Visible changes in only 12 days with DOC band!!!

[Guest guest]

Hi-

I am sorry I haven't posted sooner. Our entire household has been

sick and it has been pretty hectic around here.

I went to Phoenix for Alyssa's first adjustment. I did not expect

to see any difference only 12 days into the treatment.

I got to see the headsicle. I had no idea that Alyssa's head shape

was as bad as it is! Not only is there the flat spot on the back

right side, but the front of her head needs to fill in as well. It

was clearly visible that her entire skull shape is crooked with one

side of her face in front of the other. She has a few large bumps

on the back of her head that I didn't even realize were there. The

tech said that her headsicle shows clear signs that the plagio

happened while in utero more so than by positioning.

I can only imagine what the headsicle would have looked like if it

had been done while Alyssa was a newborn.

Anyway, I didn't have any idea how progress would be measured. The

OT put the sock/stocking thing they used for the casting on Alyssa's

head. I looked at the headsicle and then at Alyssa's head and there

is a visible difference already! I was completely stunned. One of

the bumps has smoothed out and the front of her head (temple area)

filled out a little.

I have NO idea how this happened so quickly. The OT was very

pleased, especially because of Alyssa's age (9 months old when

banded). She is estimating 3 months total time for the band to be

worn instead of the 4 that I thought. Of course, only time will

tell how long it will end up being worn.

I couldn't be happier. The trip this time was rough (3 hour drive

to one airport, 2.5 hour flight one way) plus Alyssa's diaper leaked

while sitting on my lap on the airplane on the way down. It looked

like I wet MY pants. You should have seen me try to 1. Fit into the

bathroom on the plane while holding an infant (this was a small jet)

2. Try to change her diaper, remove the band so I could change her

clothes, change her clothes then put the band back on. 3. Move

around while in the bathroom. I had to exit the bathroom, turn and

then re-enter because it was so small 4. Try to blot my pants with

diaper wipes. I had no extra clothing because we went down and back

in the same day.

The poor person next to us got spit on the entire trip because

Alyssa has learned how to make noises with her mouth/lips vibrating

so she did that the ENTIRE trip.

But............after seeing the results so soon, I decided that I

would fly from WA to Florida and back if that is what it took

because it is worth it.

A few people asked about the band, mostly kids. I got positive

responses. A pilot pulled me aside in the airport and told me that

his son had cranio (that long word where the bones fuse

prematurely) and had to have surgery. He wore the DOC band after

the surgery and now his head is perfect. He was very enthusiastic

about my endeavor.

Cross your fingers for more growth.........I am so excited!!

Diane

Alyssa

[Guest guest]

Thanks for share this with us Diane. I’m very glad for you

two that Alissa is doing so well.

Also, I’m printing out your testimony to add it to my

appeal folder. This testimony proves that the treatment indeed works.

Thanks

Ivonne

’ mom

Fighting with United Health Care

Dallas,TX. US

Visible changes

in only 12 days with DOC band!!!

Hi-

I am sorry I haven't posted sooner. Our entire household has been

sick and it has been pretty hectic around here.

I went to Phoenix for Alyssa's first adjustment. I did not expect

to see any difference only 12 days into the treatment.

I got to see the headsicle. I had no idea that Alyssa's head shape

was as bad as it is! Not only is there the flat spot on the back

right side, but the front of her head needs to fill in as well. It

was clearly visible that her entire skull shape is crooked with one

side of her face in front of the other. She has a few large bumps

on the back of her head that I didn't even realize were there. The

tech said that her headsicle shows clear signs that the plagio

happened while in utero more so than by positioning.

I can only imagine what the headsicle would have looked like if it

had been done while Alyssa was a newborn.

Anyway, I didn't have any idea how progress would be measured. The

OT put the sock/stocking thing they used for the casting on Alyssa's

head. I looked at the headsicle and then at Alyssa's head and there

is a visible difference already! I was completely stunned. One

of

the bumps has smoothed out and the front of her head (temple area)

filled out a little.

I have NO idea how this happened so quickly. The OT was very

pleased, especially because of Alyssa's age (9 months old when

banded). She is estimating 3 months total time for the band to be

worn instead of the 4 that I thought. Of course, only time will

tell how long it will end up being worn.

I couldn't be happier. The trip this time was rough (3 hour drive

to one airport, 2.5 hour flight one way) plus Alyssa's diaper leaked

while sitting on my lap on the airplane on the way down. It looked

like I wet MY pants. You should have seen me try to 1. Fit into the

bathroom on the plane while holding an infant (this was a small jet)

2. Try to change her diaper, remove the band so I could change her

clothes, change her clothes then put the band back on. 3. Move

around while in the bathroom. I had to exit the bathroom, turn and

then re-enter because it was so small 4. Try to blot my pants with

diaper wipes. I had no extra clothing because we went down and back

in the same day.

The poor person next to us got spit on the entire trip because

Alyssa has learned how to make noises with her mouth/lips vibrating

so she did that the ENTIRE trip.

But............after seeing the results so soon, I decided that I

would fly from WA to Florida and back if that is what it took

because it is worth it.

A few people asked about the band, mostly kids. I got positive

responses. A pilot pulled me aside in the airport and told me that

his son had cranio (that long word where the bones fuse

prematurely) and had to have surgery. He wore the DOC band after

the surgery and now his head is perfect. He was very enthusiastic

about my endeavor.

Cross your fingers for more growth.........I am so excited!!

Diane

Alyssa

For more plagio

info

[Guest guest]

I ma happy you are already seeing such improvement. Yeah Alyssa!

Angie and Jenna

Visible changes in only 12 days with DOC band!!!

> Hi-

> I am sorry I haven't posted sooner. Our entire household has been

> sick and it has been pretty hectic around here.

> I went to Phoenix for Alyssa's first adjustment. I did not expect

> to see any difference only 12 days into the treatment.

> I got to see the headsicle. I had no idea that Alyssa's head shape

> was as bad as it is! Not only is there the flat spot on the back

> right side, but the front of her head needs to fill in as well. It

> was clearly visible that her entire skull shape is crooked with one

> side of her face in front of the other. She has a few large bumps

> on the back of her head that I didn't even realize were there. The

> tech said that her headsicle shows clear signs that the plagio

> happened while in utero more so than by positioning.

> I can only imagine what the headsicle would have looked like if it

> had been done while Alyssa was a newborn.

> Anyway, I didn't have any idea how progress would be measured. The

> OT put the sock/stocking thing they used for the casting on Alyssa's

> head. I looked at the headsicle and then at Alyssa's head and there

> is a visible difference already! I was completely stunned. One of

> the bumps has smoothed out and the front of her head (temple area)

> filled out a little.

> I have NO idea how this happened so quickly. The OT was very

> pleased, especially because of Alyssa's age (9 months old when

> banded). She is estimating 3 months total time for the band to be

> worn instead of the 4 that I thought. Of course, only time will

> tell how long it will end up being worn.

> I couldn't be happier. The trip this time was rough (3 hour drive

> to one airport, 2.5 hour flight one way) plus Alyssa's diaper leaked

> while sitting on my lap on the airplane on the way down. It looked

> like I wet MY pants. You should have seen me try to 1. Fit into the

> bathroom on the plane while holding an infant (this was a small jet)

> 2. Try to change her diaper, remove the band so I could change her

> clothes, change her clothes then put the band back on. 3. Move

> around while in the bathroom. I had to exit the bathroom, turn and

> then re-enter because it was so small 4. Try to blot my pants with

> diaper wipes. I had no extra clothing because we went down and back

> in the same day.

> The poor person next to us got spit on the entire trip because

> Alyssa has learned how to make noises with her mouth/lips vibrating

> so she did that the ENTIRE trip.

> But............after seeing the results so soon, I decided that I

> would fly from WA to Florida and back if that is what it took

> because it is worth it.

> A few people asked about the band, mostly kids. I got positive

> responses. A pilot pulled me aside in the airport and told me that

> his son had cranio (that long word where the bones fuse

> prematurely) and had to have surgery. He wore the DOC band after

> the surgery and now his head is perfect. He was very enthusiastic

> about my endeavor.

> Cross your fingers for more growth.........I am so excited!!

>

> Diane

> Alyssa

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Diane,

I am so happy you are seeing progress so soon. It is amazing with Alyssa's age. Usually it takes 3-4 weeks - woo hoo!!! You had me laughing with your diaper escapades. I've changed na's diaper on a plane but it was regular size. I always pack an extra shirt for me never thought of pants, hmm.

mom to naalex00alys03 <alex00alys03@...> wrote:

Hi-I am sorry I haven't posted sooner. Our entire household has been sick and it has been pretty hectic around here.I went to Phoenix for Alyssa's first adjustment. I did not expect to see any difference only 12 days into the treatment.I got to see the headsicle. I had no idea that Alyssa's head shape was as bad as it is! Not only is there the flat spot on the back right side, but the front of her head needs to fill in as well. It was clearly visible that her entire skull shape is crooked with one side of her face in front of the other. She has a few large bumps on the back of her head that I didn't even realize were there. The tech said that her headsicle shows clear signs that the plagio happened while in utero more so than by positioning. I can only imagine what the headsicle

would have looked like if it had been done while Alyssa was a newborn. Anyway, I didn't have any idea how progress would be measured. The OT put the sock/stocking thing they used for the casting on Alyssa's head. I looked at the headsicle and then at Alyssa's head and there is a visible difference already! I was completely stunned. One of the bumps has smoothed out and the front of her head (temple area) filled out a little. I have NO idea how this happened so quickly. The OT was very pleased, especially because of Alyssa's age (9 months old when banded). She is estimating 3 months total time for the band to be worn instead of the 4 that I thought. Of course, only time will tell how long it will end up being worn. I couldn't be happier. The trip this time was rough (3 hour drive to one airport, 2.5 hour flight one way) plus Alyssa's diaper leaked while

sitting on my lap on the airplane on the way down. It looked like I wet MY pants. You should have seen me try to 1. Fit into the bathroom on the plane while holding an infant (this was a small jet)2. Try to change her diaper, remove the band so I could change her clothes, change her clothes then put the band back on. 3. Move around while in the bathroom. I had to exit the bathroom, turn and then re-enter because it was so small 4. Try to blot my pants with diaper wipes. I had no extra clothing because we went down and back in the same day.The poor person next to us got spit on the entire trip because Alyssa has learned how to make noises with her mouth/lips vibrating so she did that the ENTIRE trip. But............after seeing the results so soon, I decided that I would fly from WA to Florida and back if that is what it took because it is worth it. A few people asked about the

band, mostly kids. I got positive responses. A pilot pulled me aside in the airport and told me that his son had cranio (that long word where the bones fuse prematurely) and had to have surgery. He wore the DOC band after the surgery and now his head is perfect. He was very enthusiastic about my endeavor.Cross your fingers for more growth.........I am so excited!!Diane AlyssaFor more plagio info