Re: walking poll?Christie

[Guest guest]

Heidi,

I am happy to be of help!

All I did was go to the Links/Plagio Studies and Research folder

here at the site to pick out some studies that might be relevant to

your question... we have so much information and resources at our

group because of the high contribution of our group members - it

really is a great group, and it's very convenient to have so much

information on plagio issues in one place.

Take care,

Christie (Mom to Repo'd Remy)

> Hi Christie,

>

> Thank you so much for all the information you sent! It will take

me some

> time to go through it all. How do you know so much and how are

you able to

> access it so quickly?!

>

> My daughter also walked early, 8.5 months, and my son is well

below the 5%

> in weight. I think that maybe my expecations were a little high

after my

> experience with my daughter.

>

> I really appreciate your help.

>

> heidi

>

> >From: " redlocks2003 " <redlocks@i...>

> >Reply-Plagiocephaly

> >Plagiocephaly

> >Subject: Re: walking poll?

> >Date: Tue, 10 Aug 2004 18:59:20 -0000

> >

> >Hi Heidi,

> >

> >There is an older poll already created about behavior and

> >development - it has lots of questions, but one does ask if there

> >is " delayed gross motor " observed in plagio babies. Here is the

> >poll title if you'd like to check it out in the polls section:

> >

> >Choose each of the following that pertain to your child. The

choices

> >are mainly concerning behaviour and development.

> >Created by ~ò? on 4/5/2000

> >

> >There is one published study out that partially addresses plagio

and

> >gross motor delay. This study used the Bayley Scales of Infant

> >Development - Second Edition (BSID-II) to rate the development in

> >plagio infants. I think the median age of the plagio babies in

the

> >study was 8 or 9 months, but I don't know the mid and max age

ranges

> >included. Here is a link to the study and also a short

explanation

> >of what the Bayley scale is (if the link is more than one line

long,

> >you'll need to copy and paste the entire link to your address

bar):

> >

> >Neurodevelopment in Children with Single-Suture Craniosynostosis

and

> >Plagiocephaly without Synostosis (pub. Nov. 2001)

> >The objective of this study was to determine whether children with

> >nonsyndromic craniosynostosis and plagiocephaly without synostosis

> >demonstrated cognitive and psychomotor delays when compared with a

> >standardized population sample. 0 percent of the subjects in the

> >group with plagiocephaly without synostosis were accelerated, 67

> >percent were normal, 20 percent had mild delay, and 13 percent had

> >significant delay.

> >http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> >cmd=Retrieve & db=PubMed & list_uids=11711916 & dopt=Abstract

> >

> >Bayley Scales of Infant Development - Second Edition (BSID-II)

> >Updated 1993 - As with previous edition, the BSID-II consists of

> >three scales used to diagnose developmental delay and plan

> >intervention strategies: Mental Scale and Motor Scale for

assessment

> >of the current level of cognitive, language, personal-social, fine

> >and gross motor development; Behavior Rating Scale (formerly

called

> >the Infant Behavior Record) assesses behavior during testing.

> >Changes from the previous BSID version: Extended the age range

from

> >1 month to 42 months (previously 15 months) of age with new items

> >applying to the expanded range; redesign of stimulus materials

with

> >color added; updated normative data; data collected on children

with

> >high-incidence clinical diagnoses (Down syndrome, prematurity,

> >prenatal drug exposure).

> >

> >

> >Also, you mentioned your vision concerns. There has been a bit of

> >work on plagio and vision problems. Here are the two studies I

know

> >of concerning vision:

> >

> >Visual Field Testing in Deformational Plagiocephaly (pub. Dec

2003)

> >Our study demonstrates a notable incidence of visual field

> >constriction in patients with Positional Plagiocephaly (PP.) In

> >addition, patients with PP may have delayed progression of visual

> >field development. Our data sheds doubt on the concept that PP is

a

> >benign entity with no neurologic sequelae and requires treatment

for

> >cosmetic purposes only.

> >http://www.aans.org/Library/Article.aspx?ArticleId=10865

> >

> >Ophthalmologic Findings in Patients with Nonsyndromic

Plagiocephaly

> >(pub. July 2003)

> >The purpose of this article was to study the prevalence of

> >strabismus and astigmatism in children with nonsyndromic

> >plagiocephaly. Children with deformational plagiocephaly do have

an

> >increased prevalence of astigmatism.

> >http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> >cmd=Retrieve & db=PubMed & list_uids=12867869 & dopt=Abstract

> >

> >I know that tort has an impact on development of physical skills,

> >but since Remy didn't have tort, I don't personally have any info

> >about it. Remy walked very early, 9 months, which is younger than

> >the options in the poll Sandy created! I have to wonder if

genetics

> >played a role (I was a very early walker), plus she has always

been

> >in the 5-10% for weight, so she didn't have much babyfat to pull

up

> >to standing. In addition, she spent a lot of time in a walker in

a

> >standing position beginning about 5 months since we utilized that

> >device all the time in our aggressive repositioning efforts. The

> >standing position became very familiar to her. In fact, she hated

> >sitting so much, she really didn't master it well until about 9

> >months!! I am sure that the repo positions I subjected her to

> >contributed to this odd " comfort zone " of hers.

> >

> >Good question, and I look forward to seeing the poll results.

> >

> >Christie (Mom to Repo'd Remy)

> >

> >

> >

> >--- In Plagiocephaly , " hbbergs " <bbergs@m...>

wrote:

> > > Hi all,

> > >

> > > I was wondering if there was a way to poll the members of this

> >group

> > > to find out what ages their children began walking. I don't

know

> >how

> > > to do it or who can, but thought I'd ask.

> > >

> > > My concern is that my son, Evan, 16 months, is not walking, nor

> >does

> > > he have any interest in it. When we try to hold his hands to

get

> >him

> > > to practice walking, he picks up his feet and sits down. I'm

> > > concerned that because of his plagio or maybe residual tort,

his

> >eyes

> > > are misaligned and his horizon is tipped giving him a constant

> >state

> > > of vertigo. We've seen 3 doctors to check his eyes, with 3

> >different

> > > opinions. One doctor said that because of his plagio, his left

> >cheek

> > > bone is somewhat flattened, pushing his left eye upward. I

> > > personally don't see that his eyes look misaligned, as far as

> >looking

> > > to see that both eyes appear to be focusing on the same thing.

> > > Another doctor said that what the other guy said was totally

> >wrong,

> > > that his eyes were fine and that we should come back for

testing

> >in 3

> > > months. If there's one thing I've learned though this whole

> > > experience, it's to question everything and to voice (loudly)

your

> > > concerns.

> > >

> > > Anyway, I'm wondering if we set up a sort of long term poll

though

> > > groups to find out at what age our kids started walking,

> >plagio

> > > and non-plagio, we might be able to see if there is a trend for

> >kids

> > > with plagio have delayed gross motor skills, specifically

walking,

> > > compared to their non-plagio siblings. I think it would help

me

> >to

> > > have a better idea of what to expect. I haven't read anything

> >about

> > > plagio and gross motor skills beyond the rolling over stage.

It

> > > might be an interesting study.

> > >

> > > I'd appreciate your feedback.

> > >

> > > Thanks,

> > > heidi

> > > mommy to Evan, 16 mo, plagio, tort grad, STARband 5/04, SanF,CA

> >

> >

> >

> >

> >For more plagio info