Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 HI! It's wonderful to hear from you, and I can't believe Kassidy is already 2! I do indeed remember all the work you were putting against getting a local program started at Janeway - I can just imagine the monumental effort that it took on your part. What a victory, though, that Janeway Children's Hospital is helmeting plagio babies. I know it must have meant a lot to you to personally meet , who is getting treatment there owing to your personal crusade to make help available in that area. I hope you hear from any current members going to Janeway. I don't recall any recent posts from anyone mentioning Janeway lately, but maybe they are just reading the posts and not posting themselves. I added Newfoundland and Janeway to the subject header to help get their attention if they are scrolling through posts. Would you let us know when the follow-up story is completed? I'd love to read it myself, if they have a link to the news site. Take care, Christie (Mom to Repo'd Remy) > Hi everyone...It has been a long time since we posted a message, but > I had an " experience " at the local childrens' hospital the other > day that just made me smile! > Kassidy turned two on August 2, 2004, and as some of the older > members will know, Kassidy wore a helmet for plagiocephaly from > April to October last year. Her helmet was made and serviced at > Metro Health in Saint , New Brunswick, and we live in St. 's > Newfoundland. After much rallying we now have a local program that > is in operation at the Janeway Childrens hospital. I was there with > Kassidy the other day, July 29th, to be exact when we met a mom of a > little boy named . has Plagio and he was wearing a > helmet made at the Janeway. I was very emotional after we > spoke...We spent so much time and money convincing the local > specialists that this was a viable option that now that we have a > program here it is just so amazing. I understand from the orthotics > department that they have several helmets in rotation now and I am > pleased as punch! We got our start from the Sponagles in St. > New Brunswick and now we are proud to say that we have > passed our torch on as they did. If there are parents out there who > are using the services at the Janeway my family would love to hear > from you. There has been talk of a follow up story in the local > paper about Kassidys story and it would be amazing to have the kids > who have helmets made locally in the story. Please contact me > directly. If you are interested in getting together ask Jay Green > at the Janeway to give you my phonenumber. > Gooid luck on your trek..and it works! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Hi Christie! Well Kassidy is doing very well. She wore her helmet from April to October last year and in general it went well. No major issues except the constant travel, and when something mechanical did arise, the orthos at the Janeway helped patch it up until we could get back to NB. Kassidy has realignment of her ears, which were about 1 inch out of whack and her eyes, in which the right eye was about 1/2 an inch lower than the left. She seems to be developing the right shape to her jaw and from what we can tell, doing very well. She wasn't banded until she was over nine months old because we had such a hard time getting someone to listen to our concerns and actually send us to someone who could prescribe the helmet and/or recommend treatment. We saw dramatic results within a few weeks, and we can honestly say that we are not one bit dissapointed that we did it! Kassidy still has a fairly flat head. Her Plagio was very pronounced and alot of it came from low fluid during my pregnancy and her low body fat at birth. she will have to have glasses adjusted and hats and helmets will be a challenge, but it is better, and thankfully her facial features are corrected, and what a cutie she is!!!! we are not overy concerned about Kass's head shape as she has two wonderful aunts that are hairdressers and who would look at her head when her face is all that! I have put photos from our vacation in for developing and when they come back I will post some of the cuter ones for all to see. thanks for asking about our story. I am glad to tell it. we have lost track of the whole plagio thing as of late..with three kids just turning three two and one, our time is compressed. take care and i will pop in in a few days! Wanda mom to Kassidy > > Hi everyone...It has been a long time since we posted a message, > but > > I had an " experience " at the local childrens' hospital the other > > day that just made me smile! > > Kassidy turned two on August 2, 2004, and as some of the older > > members will know, Kassidy wore a helmet for plagiocephaly from > > April to October last year. Her helmet was made and serviced at > > Metro Health in Saint , New Brunswick, and we live in St. > 's > > Newfoundland. After much rallying we now have a local program that > > is in operation at the Janeway Childrens hospital. I was there > with > > Kassidy the other day, July 29th, to be exact when we met a mom of > a > > little boy named . has Plagio and he was wearing > a > > helmet made at the Janeway. I was very emotional after we > > spoke...We spent so much time and money convincing the local > > specialists that this was a viable option that now that we have a > > program here it is just so amazing. I understand from the > orthotics > > department that they have several helmets in rotation now and I am > > pleased as punch! We got our start from the Sponagles in St. > > New Brunswick and now we are proud to say that we have > > passed our torch on as they did. If there are parents out there > who > > are using the services at the Janeway my family would love to hear > > from you. There has been talk of a follow up story in the local > > paper about Kassidys story and it would be amazing to have the > kids > > who have helmets made locally in the story. Please contact me > > directly. If you are interested in getting together ask Jay Green > > at the Janeway to give you my phonenumber. > > Gooid luck on your trek..and it works! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 HEY Wanda! So great to hear an update from you!!!! I'm glad Kassidy is doing so well and Happy Birthday wishes to her! Thats great news about the local option now for people in your area. Now, you had another baby after Kassidy too, right? How is she doing? , mom to Hannah, DOCgrad 7/29/04 after 3 bands Cape Cod, Ma > > > Hi everyone...It has been a long time since we posted a message, > > but > > > I had an " experience " at the local childrens' hospital the > other > > > day that just made me smile! > > > Kassidy turned two on August 2, 2004, and as some of the older > > > members will know, Kassidy wore a helmet for plagiocephaly from > > > April to October last year. Her helmet was made and serviced at > > > Metro Health in Saint , New Brunswick, and we live in St. > > 's > > > Newfoundland. After much rallying we now have a local program > that > > > is in operation at the Janeway Childrens hospital. I was there > > with > > > Kassidy the other day, July 29th, to be exact when we met a mom > of > > a > > > little boy named . has Plagio and he was > wearing > > a > > > helmet made at the Janeway. I was very emotional after we > > > spoke...We spent so much time and money convincing the local > > > specialists that this was a viable option that now that we have > a > > > program here it is just so amazing. I understand from the > > orthotics > > > department that they have several helmets in rotation now and I > am > > > pleased as punch! We got our start from the Sponagles in St. > > > New Brunswick and now we are proud to say that we have > > > passed our torch on as they did. If there are parents out there > > who > > > are using the services at the Janeway my family would love to > hear > > > from you. There has been talk of a follow up story in the local > > > paper about Kassidys story and it would be amazing to have the > > kids > > > who have helmets made locally in the story. Please contact me > > > directly. If you are interested in getting together ask Jay > Green > > > at the Janeway to give you my phonenumber. > > > Gooid luck on your trek..and it works! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 Hi ~ It is good to hear from you too! Yes we did have another little one just 11.5 months after Kassidy was born. Kacey Clara was here just 10 days before Kassidy turned 1 and just 6 days after Keira turned 2! So this year we just had one heck of a huge birthday bash for all three who are now 3 2 and 1! Kacey is doing great. She initially had some tort and some mild plagio, but her head is as round as the next guys now! She is almost walking, but is still very happy crawling. Kassidy is running everywhere and starting to really string together sentences well, and has an evil streak! Keira is adapting to having to run from them both! I promise to post some pictures from our holiday when they come back! Take care and keep in touch Wanda, mom to too many! hah hah hah > > > > Hi everyone...It has been a long time since we posted a > message, > > > but > > > > I had an " experience " at the local childrens' hospital the > > other > > > > day that just made me smile! > > > > Kassidy turned two on August 2, 2004, and as some of the older > > > > members will know, Kassidy wore a helmet for plagiocephaly > from > > > > April to October last year. Her helmet was made and serviced > at > > > > Metro Health in Saint , New Brunswick, and we live in St. > > > 's > > > > Newfoundland. After much rallying we now have a local program > > that > > > > is in operation at the Janeway Childrens hospital. I was > there > > > with > > > > Kassidy the other day, July 29th, to be exact when we met a > mom > > of > > > a > > > > little boy named . has Plagio and he was > > wearing > > > a > > > > helmet made at the Janeway. I was very emotional after we > > > > spoke...We spent so much time and money convincing the local > > > > specialists that this was a viable option that now that we > have > > a > > > > program here it is just so amazing. I understand from the > > > orthotics > > > > department that they have several helmets in rotation now and > I > > am > > > > pleased as punch! We got our start from the Sponagles in St. > > > > New Brunswick and now we are proud to say that we have > > > > passed our torch on as they did. If there are parents out > there > > > who > > > > are using the services at the Janeway my family would love to > > hear > > > > from you. There has been talk of a follow up story in the > local > > > > paper about Kassidys story and it would be amazing to have the > > > kids > > > > who have helmets made locally in the story. Please contact me > > > > directly. If you are interested in getting together ask Jay > > Green > > > > at the Janeway to give you my phonenumber. > > > > Gooid luck on your trek..and it works! Quote Link to comment Share on other sites More sharing options...
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