Re: What direction do I take?...for pecanbread list this is OT

[Guest guest]

Penny,

First of all I want to say you are by no means the forever and lost mom. You

care so deeply for your son that you ache for him. Nothing wrong with that. I

want to first say that I said years ago that I could never homeschool my

children. Actually I said that I would have to be crazy to try. The Lord

brought that to me the following year so that I had to and could only rely on

Him because I couldn't in my own strength do it. I am now in my 7th yr.

I have also learned to look at the big picture is sometimes very overwhelming,

so I break it up into a lot of small challenges. Then I label the challenges in

priority. And begin the challenges accordingly all the while praying for

wisdom.

I hope this helps you as you help your son. Remember when you are down to look

up

Blessings,

Doreen

What direction do I take?...for pecanbread list this is

OT

I can't seem to stop myself from going in a million different directions. I

think it will be imprinted on my headstone that I am the queen of inconsistency.

I tend to go off on different things and never really focus. I have been so

entranced in Kenzie's diet over the last several months that everything else has

gone by the wayside. Mostly I'm thinking about his learning. I've always felt

that he is a very sick little boy. It's been proven by medical tests, stools

and his behavior. I felt that in order for him to learn in the most optimum way

that he needed to be healthy first. That seems to be something that we will be

working on forever. He's getting healthier but we still have a long ways to go.

I've been reading post from all my different list. The glaring problem for

me seems to be lack of education. I had asked recently on the me-list what

people that about his educational program at school. I think they are doing a

great job of priming him for lst grade in the respect of being with other kids

and being able to handle all that comes with being the in the classroom. What I

think that is being missed is the actual educational piece of the puzzle.

However maybe the priming needs to come before the learning. I get so

frustrated and discouraged that he is so far behind. He's not even remotely at

preschool level and he'll be eight this summer. This is where I think my

responsibility lies. I feel that I should work with him a lot but it just never

seems to happen. He doesn't like to do table work or DTT, never has. He

probably gets way too many videos so why would he want to come to the table to

do things that doesn't interest him. I think the impedance for this post was

reading on the me-list teaching interverbals and RFFC's. We started that four

years ago and never got anywhere. His consultant says she feels he should

really understand for example, what a ball is before you teach all the

components of it. She feels confident with the progress he has made and I have

a lot of faith in her. It's just never enough for me. At this rate I don't see

him as ever getting even close to catching up with his peers, ever. So why all

this bitching you say...why not just, as Nike says " do it. " Honestly, I'm

really bad at it. Just like everything else I flounder. What I'm asking is

what would you do if you were in my situation? I have three small children. We

run our own business so I have to have that involvement, especially in the

summer. I live in the mountains of rural Montana with no people around to hire

even if I had the money. No family here, no c! hurch in volvement. I'm not

complaining because we did this willingly but what would you do? How would you

maintain the needed time he needs in educating him? I am not nor will I ever be

a good homeschool person. I think I would do him, the rest of my family and

myself a disservice by trying to do so. I would just freak out. So, based upon

that, what would you do if you were in my shoes? I just recently attempted to

do RDI with him thinking that would be a good program for after school next year

when he is gone from 6:45am to 5pm. Haven't been doing well with that either.

I've also been looking at and doing some alternative biomedical things like SCD

and homeopathy. I can't seem to stay focused in one direction. Please help.

The forever and always lost mom.

Penny

Kenzie ASD 7 y.o.

[Guest guest]

Hi,

you might want to check out the National Association for Child Development

(NACD). They do individual evaluations assessing all areas of development and

education and behavior and design a home program to stimulate development,

increase processing and normalize sensory channels. I have been homeschooling

my 5 year old daughter for the past two years with them and am very happy with

her progress developmentally and academically - it of course takes time and

effort to implement her program, but they seem to know better than anyone else

what her brain is doing and what she needs to move on. The physiologic issues

are a challenge, and can lead to periods of plateaus and regressions, so

addressing both developmental needs and physiologic needs is important for

optimum development. Despite all the physiologic challenges, my daughter is

doing well with NACD. I have also talked with other NACD families who have

found that doing a very personalized program that meets our kids needs and

doing it consistently over time makes the biggest changes. NACD is a

neurodevelopmental approach and their website is www.nacd.org . hope this is

helpful to you.

love,

Vidya

Penny Galloup wrote:

I can't seem to stop myself from going in a million different directions. I

think it will be imprinted on my headstone that I am the queen of inconsistency.

I tend to go off on different things and never really focus. I have been so

entranced in Kenzie's diet over the last several months that everything else has

gone by the wayside. Mostly I'm thinking about his learning. I've always felt

that he is a very sick little boy. It's been proven by medical tests, stools

and his behavior. I felt that in order for him to learn in the most optimum way

that he needed to be healthy first. That seems to be something that we will be

working on forever. He's getting healthier but we still have a long ways to go.

I've been reading post from all my different list. The glaring problem for me

seems to be lack of education. I had asked recently on the me-list what people

that about his educational program at school. I think they are doing a great

job of priming him for lst grade in the respect of being with other kids and

being able to handle all that comes with being the in the classroom. What I

think that is being missed is the actual educational piece of the puzzle.

However maybe the priming needs to come before the learning. I get so

frustrated and discouraged that he is so far behind. He's not even remotely at

preschool level and he'll be eight this summer. This is where I think my

responsibility lies. I feel that I should work with him a lot but it just never

seems to happen. He doesn't like to do table work or DTT, never has. He

probably gets way too many videos so why would he want to come to the table to

do things that doesn't interest him. I think the impedance for this

post was reading on the me-list teaching interverbals and RFFC's. We started

that four years ago and never got anywhere. His consultant says she feels he

should really understand for example, what a ball is before you teach all the

components of it. She feels confident with the progress he has made and I have

a lot of faith in her. It's just never enough for me. At this rate I don't see

him as ever getting even close to catching up with his peers, ever. So why all

this bitching you say...why not just, as Nike says " do it. " Honestly, I'm

really bad at it. Just like everything else I flounder. What I'm asking is

what would you do if you were in my situation? I have three small children. We

run our own business so I have to have that involvement, especially in the

summer. I live in the mountains of rural Montana with no people around to hire

even if I had the money. No family here, no church involvement. I'm not

complaining because we did this willingly but what would you

do? How would you maintain the needed time he needs in educating him? I am

not nor will I ever be a good homeschool person. I think I would do him, the

rest of my family and myself a disservice by trying to do so. I would just

freak out. So, based upon that, what would you do if you were in my shoes? I

just recently attempted to do RDI with him thinking that would be a good program

for after school next year when he is gone from 6:45am to 5pm. Haven't been

doing well with that either. I've also been looking at and doing some

alternative biomedical things like SCD and homeopathy. I can't seem to stay

focused in one direction. Please help.

The forever and always lost mom.

Penny

Kenzie ASD 7 y.o.

[Guest guest]

:

Great two cents worth.

Thank you

Penny

Re: What direction do I take?...for pecanbread list this

is OT

Dear Penny:

I know that I have felt exactly the same way many times and I do not

know a mom of a special needs child who has not. It sounds like you

have in fact focused quite intensely on Kenzie's diet and should

congratulate yourself for all of your hard work rather than punish

yourself. Listening to your situation, I had two reactions. First,

it sounds like you do not have many sources of assistance around you

and that the school is one of the few places where you can get some

outside assistance. That doesn't mean you have to rely on them

solely, but I wouldn't rush to home school if I were in your shoes.

Second, I think you have to consider what you are best at as well. I

feel I work tirelessly on my son's behalf, but I know that if I tried

to homeschool him I would go right over the edge - yup - right over.

On the education front I am better at encouraging others - okay,

pushing maybe - to look for and try new ways of reaching and

educating my son. I ask, I question, I research but I know that if I

was trying to educate him myself, I would be a complete failure.

Try not to be too hard on yourself. None of us are good at

everything - but we are all doing a heroic job in our own ways of

raising our special children. Just my 2 cents. Hugs to you. .

> I can't seem to stop myself from going in a million different

directions. I think it will be imprinted on my headstone that I am

the queen of inconsistency. I tend to go off on different things and

never really focus. I have been so entranced in Kenzie's diet over

the last several months that everything else has gone by the

wayside. Mostly I'm thinking about his learning. I've always felt

that he is a very sick little boy. It's been proven by medical

tests, stools and his behavior. I felt that in order for him to

learn in the most optimum way that he needed to be healthy first.

That seems to be something that we will be working on forever. He's

getting healthier but we still have a long ways to go.

>

> I've been reading post from all my different list. The glaring

problem for me seems to be lack of education. I had asked recently

on the me-list what people that about his educational program at

school. I think they are doing a great job of priming him for lst

grade in the respect of being with other kids and being able to

handle all that comes with being the in the classroom. What I think

that is being missed is the actual educational piece of the puzzle.

However maybe the priming needs to come before the learning. I get

so frustrated and discouraged that he is so far behind. He's not

even remotely at preschool level and he'll be eight this summer.

This is where I think my responsibility lies. I feel that I should

work with him a lot but it just never seems to happen. He doesn't

like to do table work or DTT, never has. He probably gets way too

many videos so why would he want to come to the table to do things

that doesn't interest him. I think the impedance for this post was

reading on the me-list teaching interverbals and RFFC's. We started

that four years ago and never got anywhere. His consultant says she

feels he should really understand for example, what a ball is before

you teach all the components of it. She feels confident with the

progress he has made and I have a lot of faith in her. It's just

never enough for me. At this rate I don't see him as ever getting

even close to catching up with his peers, ever. So why all this

bitching you say...why not just, as Nike says " do it. " Honestly, I'm

really bad at it. Just like everything else I flounder. What I'm

asking is what would you do if you were in my situation? I have

three small children. We run our own business so I have to have that

involvement, especially in the summer. I live in the mountains of

rural Montana with no people around to hire even if I had the money.

No family here, no church involvement. I'm not complaining because

we did this willingly but what would you do? How would you maintain

the needed time he needs in educating him? I am not nor will I ever

be a good homeschool person. I think I would do him, the rest of my

family and myself a disservice by trying to do so. I would just

freak out. So, based upon that, what would you do if you were in my

shoes? I just recently attempted to do RDI with him thinking that

would be a good program for after school next year when he is gone

from 6:45am to 5pm. Haven't been doing well with that either. I've

also been looking at and doing some alternative biomedical things

like SCD and homeopathy. I can't seem to stay focused in one

direction. Please help.

>

> The forever and always lost mom.

>

> Penny

> Kenzie ASD 7 y.o.

>

>