To -Re: Not too happy here!

June 20, 2004

-

I have been pushing for a helmet for a month now. When I went to

the new Ped. to get the prescription, she wrote it and came back into

the room as an " afterthought " to send us to a neurosurgeon. She

wanted to cover her bases on Asher's possible craniosynostosis. She

said she'd just feel better ruling it out.

I did not know the statistic about kids' heads getting smaller, but

it makes sense. We are leaving for Iowa on Monday and will be gone 6

weeks. The orthotist didn't want to wait another 2 months since we

can't get into the neuro until we get back to Denver in August.

Hanger is actually sending the helmet to Iowa and having it fitted

there, so we don't lost any more time.

When I called to neurologist's office to schedule the appointment

last week, I asked just what you're asking me now. I mentioned he

will be starting helmet therapy and wondered if he does have

craniosynostosis, if starting the helmet is going to hurt. They said

they don't advocate for the helmet for any kid, but it deffinately

won't hurt anything, even if he does have it.

SO-to make a long story short, I am going ahead with the helmet

since Asher's ped. is being more precautionary than anything...I

don't want to lose any more time and have been told it definately

won't hurt the craniosyistosis if he does have it.

in Denver

(Mom to Asher, 8-months) Pos. Plagiocephaly, Motor delays

--- In Plagiocephaly , " Mark Hill " <mark.hill187@n...>

wrote:

> Hi

> I was wondering why you have gone ahead with the helmet when your

lo is being seen for possible cranio. Just wondering thats all My

little girl has been dx with plagio but my husband and I think it is

cranio so have held back with the banding. (we recognise cranio

symptons because my son has it)

>

> DId you drs recommend going ahead with the helmet?

>

> Thanks

>

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