Re: (unknown)

[Guest guest]

I 'm not sure what bad things you've heard about MedQuist, but I've been working

for them for over a

year now, and I have been fairly happy with them. I have rarely run out of work.

I know the pay

doesn't always seem to be as high as some people think it should be, but it is

the going rate in my

area, and I don't have to pick up and deliver.

I should also mention that they have been a great education, because I had not

worked on hospital

accounts before working for MQ, and I have gained a TREMENDOUS amount of

knowledge from them.

I think part of it is that the offices don't all run the same way, so people

have had different

experiences.

Pattie

vicki baldwin wrote:

> Hi everyone, I am new to this list, and new to MT. I have just finished

> training through our local community college.

>

> I was wondering if anyone could tell me anything about MedQuist. I have

> heard a lot of not real good things about them, but I need a place to start.

> I took their test this a.m. and think I did really good. A lot of people

> from school took it, and we all compared notes. They have eight openings

> and only 6 people applied, so figure an offer might come. Just don't know

> if I should hold out for something different. It was the first place I

> applied.

>

> Any input would be appreciated.

>

> Thank you,

> Vicki

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

> TO REMOVE YOURSELF FROM THIS MAILING LIST send a blank email to

nmtc-unsubscribe

>

> PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc

>

>

[Guest guest]

Just to clarify, I worked on a small local account for about a year before

working for MQ, but it

was not hospital experience. But some nationals are willing to take on newbies

who finished the MTEC

program, so I would encourage you to at least try. Good luck to you!

Pattie

" laurie s. walsh " wrote:

> Hi Pattie,

>

> Actually, I didn't hear anything negative about MQ, but rather, about

> working at home right after graduating. I've heard that it is better to

> start out inhouse with experienced people around you to help you out. I

> think this makes sence. BUT....I really rather start out working at home.

> Yet since I have absolutely no MT experience other than my education

> through MTEC (should graduate in June), I was just wondering how others

> are making it who have gone straight from graduating to working for a

> national. From your post, I feel encouraged to consider applying with MQ

> or some other national now. Thanks.

>

> Laur

>

> On Sun, 12 May 2002 16:46:19 -0400 Pattie writes:

> I 'm not sure what bad things you've heard about MedQuist, but I've been

> working for them for over a

> year now, and I have been fairly happy with them. I have rarely run out

> of work. I know the pay

> doesn't always seem to be as high as some people think it should be, but

> it is the going rate in my

> area, and I don't have to pick up and deliver.

>

> I should also mention that they have been a great education, because I

> had not worked on hospital

> accounts before working for MQ, and I have gained a TREMENDOUS amount of

> knowledge from them.

>

> I think part of it is that the offices don't all run the same way, so

> people have had different

> experiences.

>

> Pattie

>

> vicki baldwin wrote:

>

> > Hi everyone, I am new to this list, and new to MT. I have just

> finished

> > training through our local community college.

> >

> > I was wondering if anyone could tell me anything about MedQuist. I

> have

> > heard a lot of not real good things about them, but I need a place to

> start.

> > I took their test this a.m. and think I did really good. A lot of

> people

> > from school took it, and we all compared notes. They have eight

> openings

> > and only 6 people applied, so figure an offer might come. Just don't

> know

> > if I should hold out for something different. It was the first place I

> > applied.

> >

> > Any input would be appreciated.

> >

> > Thank you,

> > Vicki

> >

> > _________________________________________________________________

> > Chat with friends online, try MSN Messenger: http://messenger.msn.com

> >

> >

> > TO REMOVE YOURSELF FROM THIS MAILING LIST send a blank email to

> nmtc-unsubscribe

> >

> > PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc

> >

> >

[Guest guest]

That's okay. Actually, I was sort of replying to your post, because I know there

were at least two

posts about MQ, but I didn't get a chance to answer until tonight. Glad I could

help, anyway!

Pattie

" laurie s. walsh " wrote:

> Pattie, I just realized that your response was to someone's else's post!

> I didn't scroll to the bottom to see that the original post was from

> someone else because I posted a question a day or so ago about working

> for MQ right out of graduation (also under the subject of unkown) and

> assumed you were replying to my post. Oh well...I still appreciated your

> response.

>

> Laur

> On Sun, 12 May 2002 20:02:57 -0700 laurie s. walsh

> writes:

> Hi Pattie,

>

> Actually, I didn't hear anything negative about MQ, but rather, about

> working at home right after graduating. I've heard that it is better to

> start out inhouse with experienced people around you to help you out. I

> think this makes sence. BUT....I really rather start out working at home.

> Yet since I have absolutely no MT experience other than my education

> through MTEC (should graduate in June), I was just wondering how others

> are making it who have gone straight from graduating to working for a

> national. From your post, I feel encouraged to consider applying with MQ

> or some other national now. Thanks.

>

> Laur

>

> On Sun, 12 May 2002 16:46:19 -0400 Pattie writes:

> I 'm not sure what bad things you've heard about MedQuist, but I've been

> working for them for over a

> year now, and I have been fairly happy with them. I have rarely run out

> of work. I know the pay

> doesn't always seem to be as high as some people think it should be, but

> it is the going rate in my

> area, and I don't have to pick up and deliver.

>

> I should also mention that they have been a great education, because I

> had not worked on hospital

> accounts before working for MQ, and I have gained a TREMENDOUS amount of

> knowledge from them.

>

> I think part of it is that the offices don't all run the same way, so

> people have had different

> experiences.

>

> Pattie

>

> vicki baldwin wrote:

>

> > Hi everyone, I am new to this list, and new to MT. I have just

> finished

> > training through our local community college.

> >

> > I was wondering if anyone could tell me anything about MedQuist. I

> have

> > heard a lot of not real good things about them, but I need a place to

> start.

> > I took their test this a.m. and think I did really good. A lot of

> people

> > from school took it, and we all compared notes. They have eight

> openings

> > and only 6 people applied, so figure an offer might come. Just don't

> know

> > if I should hold out for something different. It was the first place I

> > applied.

> >

> > Any input would be appreciated.

> >

> > Thank you,

> > Vicki

> >

> > _________________________________________________________________

> > Chat with friends online, try MSN Messenger: http://messenger.msn.com

> >

> >

> > TO REMOVE YOURSELF FROM THIS MAILING LIST send a blank email to

> nmtc-unsubscribe

> >

> > PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc

> >

> >

[Guest guest]

I'll tell you what my experience was. I worked in small (okay, tiny) acute

care

hospitals after graduation as I followed my husband around in his teaching

career.

I had approximately 15 years experience when I decided to get out (hospital

politics

and gossipy people drive me nuts!) and run my own business for a while in a

totally

unrelated area. I ran the business for 9 years when I discovered I could

transcribe

from home. I started researching and eventually applied to Healthscribe.

Their recruiter

called me and upon hearing that I had been absent from the field for 9 years

said and

I quote, " You'll never survive after that length of an absence from the

field. " Not to be

discouraged, I continued searching, applying, etc., until someone did the

unthinkable and emailed

me privately, of course, that I should try her company. I did and the rest

is history. They didn't care about my 9 year absence and I have been with

them ever since--going on 3 years.

So, coming fresh out of school I think you may even have an easier time of

it--at least the information in your head is current!! While you won't have

someone next to you to listen if you don't understand something, I've put

some of the strangest, bizarre " sounds likes " on here and sure enough, it

was enough to ring a bell with someone!! Plus, there's almost always

someone here!

CB

> > Yet since I have absolutely no MT experience other than my education

> through MTEC (should graduate in June), I was just wondering how others

> are making it who have gone straight from graduating to working for a

> national. From your post, I feel encouraged to consider applying with MQ

> or some other national now. Thanks.

>

> Laur

>

> On Sun, 12 May 2002 16:46:19 -0400 Pattie writes:

> I 'm not sure what bad things you've heard about MedQuist, but I've been

> working for them for over a

> year now, and I have been fairly happy with them. I have rarely run out

> of work. I know the pay

> doesn't always seem to be as high as some people think it should be, but

> it is the going rate in my

> area, and I don't have to pick up and deliver.

>

> I should also mention that they have been a great education, because I

> had not worked on hospital

> accounts before working for MQ, and I have gained a TREMENDOUS amount of

> knowledge from them.

>

> I think part of it is that the offices don't all run the same way, so

> people have had different

> experiences.

>

> Pattie

>

>

>

> vicki baldwin wrote:

>

> > Hi everyone, I am new to this list, and new to MT. I have just

> finished

> > training through our local community college.

> >

> > I was wondering if anyone could tell me anything about MedQuist. I

> have

> > heard a lot of not real good things about them, but I need a place to

> start.

> > I took their test this a.m. and think I did really good. A lot of

> people

> > from school took it, and we all compared notes. They have eight

> openings

> > and only 6 people applied, so figure an offer might come. Just don't

> know

> > if I should hold out for something different. It was the first place I

> > applied.

> >

> > Any input would be appreciated.

> >

> > Thank you,

> > Vicki

> >

> > _________________________________________________________________

> > Chat with friends online, try MSN Messenger: http://messenger.msn.com

> >

> >

> > TO REMOVE YOURSELF FROM THIS MAILING LIST send a blank email to

> nmtc-unsubscribe

> >

> > PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc

> >

> >

[Guest guest]

Hi Pattie,

Actually, I didn't hear anything negative about MQ, but rather, about

working at home right after graduating. I've heard that it is better to

start out inhouse with experienced people around you to help you out. I

think this makes sence. BUT....I really rather start out working at home.

Yet since I have absolutely no MT experience other than my education

through MTEC (should graduate in June), I was just wondering how others

are making it who have gone straight from graduating to working for a

national. From your post, I feel encouraged to consider applying with MQ

or some other national now. Thanks.

Laur

On Sun, 12 May 2002 16:46:19 -0400 Pattie writes:

I 'm not sure what bad things you've heard about MedQuist, but I've been

working for them for over a

year now, and I have been fairly happy with them. I have rarely run out

of work. I know the pay

doesn't always seem to be as high as some people think it should be, but

it is the going rate in my

area, and I don't have to pick up and deliver.

I should also mention that they have been a great education, because I

had not worked on hospital

accounts before working for MQ, and I have gained a TREMENDOUS amount of

knowledge from them.

I think part of it is that the offices don't all run the same way, so

people have had different

experiences.

Pattie

vicki baldwin wrote:

> Hi everyone, I am new to this list, and new to MT. I have just

finished

> training through our local community college.

>

> I was wondering if anyone could tell me anything about MedQuist. I

have

> heard a lot of not real good things about them, but I need a place to

start.

> I took their test this a.m. and think I did really good. A lot of

people

> from school took it, and we all compared notes. They have eight

openings

> and only 6 people applied, so figure an offer might come. Just don't

know

> if I should hold out for something different. It was the first place I

> applied.

>

> Any input would be appreciated.

>

> Thank you,

> Vicki

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

> TO REMOVE YOURSELF FROM THIS MAILING LIST send a blank email to

nmtc-unsubscribe

>

> PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc

>

>

[Guest guest]

Pattie, I just realized that your response was to someone's else's post!

I didn't scroll to the bottom to see that the original post was from

someone else because I posted a question a day or so ago about working

for MQ right out of graduation (also under the subject of unkown) and

assumed you were replying to my post. Oh well...I still appreciated your

response.

Laur

On Sun, 12 May 2002 20:02:57 -0700 laurie s. walsh

writes:

Hi Pattie,

Actually, I didn't hear anything negative about MQ, but rather, about

working at home right after graduating. I've heard that it is better to

start out inhouse with experienced people around you to help you out. I

think this makes sence. BUT....I really rather start out working at home.

Yet since I have absolutely no MT experience other than my education

through MTEC (should graduate in June), I was just wondering how others

are making it who have gone straight from graduating to working for a

national. From your post, I feel encouraged to consider applying with MQ

or some other national now. Thanks.

Laur

On Sun, 12 May 2002 16:46:19 -0400 Pattie writes:

I 'm not sure what bad things you've heard about MedQuist, but I've been

working for them for over a

year now, and I have been fairly happy with them. I have rarely run out

of work. I know the pay

doesn't always seem to be as high as some people think it should be, but

it is the going rate in my

area, and I don't have to pick up and deliver.

I should also mention that they have been a great education, because I

had not worked on hospital

accounts before working for MQ, and I have gained a TREMENDOUS amount of

knowledge from them.

I think part of it is that the offices don't all run the same way, so

people have had different

experiences.

Pattie

vicki baldwin wrote:

> Hi everyone, I am new to this list, and new to MT. I have just

finished

> training through our local community college.

>

> I was wondering if anyone could tell me anything about MedQuist. I

have

> heard a lot of not real good things about them, but I need a place to

start.

> I took their test this a.m. and think I did really good. A lot of

people

> from school took it, and we all compared notes. They have eight

openings

> and only 6 people applied, so figure an offer might come. Just don't

know

> if I should hold out for something different. It was the first place I

> applied.

>

> Any input would be appreciated.

>

> Thank you,

> Vicki

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

> TO REMOVE YOURSELF FROM THIS MAILING LIST send a blank email to

nmtc-unsubscribe

>

> PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc

>

>

[Guest guest]

Sorry about those typos. One drink and I'm about done!

L.

On Sun, 12 May 2002 20:12:33 -0700 " laurie s. walsh "

writes:

Pattie, I just realized that your response was to someone's else's post!

I didn't scroll to the bottom to see that the original post was from

someone else because I posted a question a day or so ago about working

for MQ right out of graduation (also under the subject of unkown) and

assumed you were replying to my post. Oh well...I still appreciated your

response.

Laur

On Sun, 12 May 2002 20:02:57 -0700 laurie s. walsh

writes:

Hi Pattie,

Actually, I didn't hear anything negative about MQ, but rather, about

working at home right after graduating. I've heard that it is better to

start out inhouse with experienced people around you to help you out. I

think this makes sence. BUT....I really rather start out working at home.

Yet since I have absolutely no MT experience other than my education

through MTEC (should graduate in June), I was just wondering how others

are making it who have gone straight from graduating to working for a

national. From your post, I feel encouraged to consider applying with MQ

or some other national now. Thanks.

Laur

On Sun, 12 May 2002 16:46:19 -0400 Pattie writes:

I 'm not sure what bad things you've heard about MedQuist, but I've been

working for them for over a

year now, and I have been fairly happy with them. I have rarely run out

of work. I know the pay

doesn't always seem to be as high as some people think it should be, but

it is the going rate in my

area, and I don't have to pick up and deliver.

I should also mention that they have been a great education, because I

had not worked on hospital

accounts before working for MQ, and I have gained a TREMENDOUS amount of

knowledge from them.

I think part of it is that the offices don't all run the same way, so

people have had different

experiences.

Pattie

vicki baldwin wrote:

> Hi everyone, I am new to this list, and new to MT. I have just

finished

> training through our local community college.

>

> I was wondering if anyone could tell me anything about MedQuist. I

have

> heard a lot of not real good things about them, but I need a place to

start.

> I took their test this a.m. and think I did really good. A lot of

people

> from school took it, and we all compared notes. They have eight

openings

> and only 6 people applied, so figure an offer might come. Just don't

know

> if I should hold out for something different. It was the first place I

> applied.

>

> Any input would be appreciated.

>

> Thank you,

> Vicki

>

> _________________________________________________________________

> Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

>

> TO REMOVE YOURSELF FROM THIS MAILING LIST send a blank email to

nmtc-unsubscribe

>

> PLEASE VISIT THE NMTC WEB SITE - http://go.to/nmtc

>

>

[Guest guest]

Dr. Levin has told me to do a phone consult, but if I can not get the money

through a loan or otherwise I do not want to waste his time on me when he can

use that time for someone else.

[Guest guest]

I will try, but it is so hard to. I was hoping to get it done before we left

the states, but I do not think it is going to happen. Not unless by some act

of god we get approved for a loan. I have put in for two. One has been

rejected still have not heard from the other. Plan on putting in one more

and if they get rejected then I will quit for now.

[Guest guest]

Your time will will come soon! Please don't give up!

(unknown)

Hello. Just wanted to tell everyone in the process of getting the

surgery done that I wish them all the best. Unfortunatelly it will

probably be about 4 years till I can get the surgery done when we get

back to the states. I am leaving for Germany in about 4-5 months and

can not get the money up that fast for mine. I even applied for a

loan and got turned down from one place. I GIVE UP!!!!!!! I don't

know what to do anymore and don't even want to think about the

surgery. It is too depressing. However, I am very happy for

everyone else in here and wish you all the best.

[Guest guest]

Just for now, girl. Never, ever give up. Please.

Hugs,

pam

> I will try, but it is so hard to. I was hoping to get it done

before we left

> the states, but I do not think it is going to happen. Not unless

by some act

> of god we get approved for a loan. I have put in for two. One has

been

> rejected still have not heard from the other. Plan on putting in

one more

> and if they get rejected then I will quit for now.

>

>

>

[Guest guest]

Hun,

Don't give up. I know it is so easy to be discouraged. I spent a year

telling myself it would never happen before I found this group. Hang

in there.

Kim D.

> I will try, but it is so hard to. I was hoping to get it done

before we left

> the states, but I do not think it is going to happen. Not unless

by some act

> of god we get approved for a loan. I have put in for two. One has

been

> rejected still have not heard from the other. Plan on putting in

one more

> and if they get rejected then I will quit for now.

>

>

>

[Guest guest]

If i need a place to go, I'm running to 's. Will you feed me

well? Baby has to eat you see. LOL!!!!

Hugs,

Pam

> > > My Wonderdful DH has lost his mind lol....... We have joey Whom

I

> > used to baby sit for over night .... He ran away from home... (he

> > called and asked to come here to run away mom drove him lol) hes 4

> > les 5 So s mom remembered Clothes for tomorrow but

forgot

> > Jammies.... Rick does not think should sleep in les

> > Jammies because they are GIRLS LOL even her light blue ones lol

He is

> > letting this child sleep in big ol sweats that used to be Rickys

and

> > one of Rickys shirts RICKY IS 12 lol now of course thinks it

> > cool to wear Rickys clothes but I think les BLUE pjs would

have

> > been just as good...... MEN cant live with them Cant shoot them

> > >

> > >

> > >

[Guest guest]

Does any one know of a provider that has CEU available via a workbook

format?

(unknown)

> Steve,

>

> www.emcert.com is a good site, and there's also www.planetems.com.

> Also, if you are Nationally Registered, make sure any web CE site you

> used is CECBEMS accredited or the NR will not accept them as CE

> credits...

>

> Regards,

>

> Alfonso R. Ochoa, NREMT-P

>

>

> > Would anyone recommend some internet CE sites?

> >

> > Also, does anyone have any CE class offerings coming up anytime

> > soon for Paramedic level?

> >

> > Your response would be appreciated.

> >

> > Steve Gifford, Lic-P, A.A.S.

> > Weatherford College

> > EMSP Dept. Chair

> > ext.105

> >

> >

> >

> >

> >

[Guest guest]

CE Solutions at 1-

(unknown)

>

>

> > Steve,

> >

> > www.emcert.com is a good site, and there's also www.planetems.com.

> > Also, if you are Nationally Registered, make sure any web CE site you

> > used is CECBEMS accredited or the NR will not accept them as CE

> > credits...

> >

> > Regards,

> >

> > Alfonso R. Ochoa, NREMT-P

> >

> >

> > > Would anyone recommend some internet CE sites?

> > >

> > > Also, does anyone have any CE class offerings coming up anytime

> > > soon for Paramedic level?

> > >

> > > Your response would be appreciated.

> > >

> > > Steve Gifford, Lic-P, A.A.S.

> > > Weatherford College

> > > EMSP Dept. Chair

> > > ext.105

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hello ,

I think you might be the dad of the new baby that we got a post about this

morning. Congratulations on your new baby.

I think several people here have already commented about the idea of s

Hopkins and Children's Hospital here in Boston. I don't understand why they

want your daughter to go to Baltimore rather than closer to home. I am not

sure I can offer anything different, but to support that at Children's in Boston

they have a lot of experience with CHARGE. One person in particular is Dr.

Nedda Hobbs at 1-. She might be able to help with this.

Good Luck and keep us posted.

pam from the Perkins School for the Blind in Watertown, MA (near Boston)

[Guest guest]

,

When they say there is nothing they can do, what do they mean by that? That

they do not know how to take care of your daughter or that if you don't put

in a g-tube there is nothing they can do?

If there are no immediate life threatening medical situations, such as heart

defects or choanal atresia, they may be thinking that knowing she has CHARGE

is enough. Are they up to date on the current diagnostic criteria. While

she is there I would do a total work up to make sure nothing is missed.

If a g-tube needs done, are you comfortable with the doctors in RI?

Do you have more questions about the pros and cons of g-tubes and about

severe reflux?

As far as handling the insurance, it seems she needs to get stable enough to

be discharged, the two of you taught to manage the suctioning etc if needed,

and then you get her to Baltimore. I am still confused about why Baltimore

was so opposed to having the g-tube done? Is it because they 1) oppose the

g-tube, 2) don't trust the doctors in RI and want to do it them selves or 3)

they want to do a more complete diagnostic work up before any surgeries are

done.

If the hospital there has not done scans of kidneys, the temporal lobe, an

echocardiogram, a video swallowing studio, and UGI or other such tests, it

seems that would determine the medical necessity of being transported.

If she is stable enough to go home, why does she need the nurses with her in

transport? Have they done any parent education yet?

It sounds like you all have an awful lot to cope with and questions to ask

to help with your decisions.

To reassure you, my son Dylan started with n/g feedings at 2 weeks, had his

g-tube put in at 7 weeks along with a fundoplication for the reflux, which

made an incredible difference in his ability to have appropriate growth

which has such a big difference on development. The g-tube has worked well

for us. Other families decide they will do just about anything to avoid it

- it is a highly individual decision, based on the child's health concerns

and the parent's beliefs.

Good luck to you.

Kim Lauger

> hello, my name is joshua gomes im writing from prov. r.i. my daughter was born

> on june 14, 2005 she was diagnosed with charge. the hospital where we live is

> telling us that there is not much they can do for us, they want us to let her

> get a g-tube and send her home.we whould like to get her transferred to john

> hopkins in maryland, but our insurance will not cover her stay there. so

> please if anyone has any info that could help please e- mail me.

>

> thank

> you

>

> joshua gomes

>

>

> ---------------------------------

> Sell on Yahoo! Auctions - No fees. Bid on great items.

>

>

[Guest guest]

another piece of advice would be to cee if the hospital has a social worker,

they should be helping you, and getting you signed up for a medicad/medicaid

waiver program that would help pay for medical expenses.

Also Boston Childrens is a great hospital. Also are there any life

threatening issues that you need to address? THey say there is nothing they can

do?

that dosent sound right, there is alot they can do for CHARGE children. You

wills ee from this list we have all been through a lot, but our children are

amazing and very strong children, with big loving hearts! give her love, lots

of love, kisses, carresss and show her you love her and she will be very

special to you. Try not to feel discouraged, the beginning is tough.

cathie, mom to erika.

[Guest guest]

welcome to you charge can be very scary specialy just learning about it i

know i am a charger living in australia im 20 and i have g tube and jtube

and they put g tube when i was 8weks my doctors have been reluctant to do

stuff on me but that wasnt one of them why dont they want to do that at the

other hosptials hope you get lots of answers and support from us thaat you

need in this trying time good luck hugs ellen howe from aus

>

> another piece of advice would be to cee if the hospital has a social

> worker,

> they should be helping you, and getting you signed up for a

> medicad/medicaid

> waiver program that would help pay for medical expenses.

> Also Boston Childrens is a great hospital. Also are there any life

> threatening issues that you need to address? THey say there is nothing

> they can do?

> that dosent sound right, there is alot they can do for CHARGE children.

> You

> wills ee from this list we have all been through a lot, but our children

> are

> amazing and very strong children, with big loving hearts! give her love,

> lots

> of love, kisses, carresss and show her you love her and she will be very

> special to you. Try not to feel discouraged, the beginning is tough.

> cathie, mom to erika.

>

>

>

[Guest guest]

Thank you for the tip on the medicad waiver program! We will call first thing

in the morning!!

NPTQueenie@... wrote:another piece of advice would be to cee if the hospital

has a social worker,

they should be helping you, and getting you signed up for a medicad/medicaid

waiver program that would help pay for medical expenses.

Also Boston Childrens is a great hospital. Also are there any life

threatening issues that you need to address? THey say there is nothing they can

do?

that dosent sound right, there is alot they can do for CHARGE children. You

wills ee from this list we have all been through a lot, but our children are

amazing and very strong children, with big loving hearts! give her love, lots

of love, kisses, carresss and show her you love her and she will be very

special to you. Try not to feel discouraged, the beginning is tough.

cathie, mom to erika.

[Guest guest]

Kim,

I gave the mesage you sent. He asked me to respond to you because he is

at the hospital with igh. igh does have a heart defect (3 holes),

choanal atresia and moderate reflux. They did do the kidney test(showed

swelling in one kidney) echo (clean), mri(clean), and swallowing (has severe

difficulty, swallows into her lungs). We believe that the g-tube needs to be

done, however, by whom? To answer your question Balitmore is opposed to RI

doing the g-tube because of 2 & 3. They do not trust the doctors in RI and they

want a more complete workup. RI doctor already admitted to having little to no

experience with CHARGE. Josh and Jen(igh's mom) Do not feel comfortable

with having them do it. My opinion is to bring her to Boston, based upon the

info people have sent about their experiences there. I think that if Boston and

Hopkins are comprable, keep her close to home. It would be good for the

family as well as igh. Not to sure Josh would agree. He is

under the impression that Baltimore is the place for her.

They have not had any classes for taking care of igh. Not sure if you are

aware, every 30 days Women & Infants' has a doctor change. It wasn't until the

change (two weeks after igh was born) that they told Josh that she had

CHARGE. " New " dr. told Josh that other one knew but did not know how to " break

the news " to him! Information he had given Josh was false and new shift dr.

gave appropriate info. Needless to say, our family is not comfortable with

igh being there. They said there is nothing they can do to " cure " her

condition. They want to do the g-tube and send her home. They told Josh to

" spend as much time with her while you can. " Not to optomistic. Anyway, the

decision now is Baltimore or Boston. We will figure out the medical after that.

Same question here about the stability. They said after g-tube she can go home.

When asked about the flight to Blatimore they said she needs medical assistance

on flight. But if driving there, non required! WHAT?? Does not make sense to

us either. That is why we all agree that she needs to be anywhere but where she

is.

Thanks for listening and helping!

Christene (igh's aunt)

Kim Lauger wrote:

,

When they say there is nothing they can do, what do they mean by that? That

they do not know how to take care of your daughter or that if you don't put

in a g-tube there is nothing they can do?

If there are no immediate life threatening medical situations, such as heart

defects or choanal atresia, they may be thinking that knowing she has CHARGE

is enough. Are they up to date on the current diagnostic criteria. While

she is there I would do a total work up to make sure nothing is missed.

If a g-tube needs done, are you comfortable with the doctors in RI?

Do you have more questions about the pros and cons of g-tubes and about

severe reflux?

As far as handling the insurance, it seems she needs to get stable enough to

be discharged, the two of you taught to manage the suctioning etc if needed,

and then you get her to Baltimore. I am still confused about why Baltimore

was so opposed to having the g-tube done? Is it because they 1) oppose the

g-tube, 2) don't trust the doctors in RI and want to do it them selves or 3)

they want to do a more complete diagnostic work up before any surgeries are

done.

If the hospital there has not done scans of kidneys, the temporal lobe, an

echocardiogram, a video swallowing studio, and UGI or other such tests, it

seems that would determine the medical necessity of being transported.

If she is stable enough to go home, why does she need the nurses with her in

transport? Have they done any parent education yet?

It sounds like you all have an awful lot to cope with and questions to ask

to help with your decisions.

To reassure you, my son Dylan started with n/g feedings at 2 weeks, had his

g-tube put in at 7 weeks along with a fundoplication for the reflux, which

made an incredible difference in his ability to have appropriate growth

which has such a big difference on development. The g-tube has worked well

for us. Other families decide they will do just about anything to avoid it

- it is a highly individual decision, based on the child's health concerns

and the parent's beliefs.

Good luck to you.

Kim Lauger

> hello, my name is joshua gomes im writing from prov. r.i. my daughter was born

> on june 14, 2005 she was diagnosed with charge. the hospital where we live is

> telling us that there is not much they can do for us, they want us to let her

> get a g-tube and send her home.we whould like to get her transferred to john

> hopkins in maryland, but our insurance will not cover her stay there. so

> please if anyone has any info that could help please e- mail me.

>

> thank

> you

>

> joshua gomes

>

>

> ---------------------------------

> Sell on Yahoo! Auctions - No fees. Bid on great items.

>

>

[Guest guest]

When trying to figure out what hospital to go to you can look online all you

want. For the procedures your nice will be having find out how many have been

done at the specific hospitals. Also try ask how many have been on children

who have CHARGE. Then find out if the specific doctors your niece will be

seeing have experience with children who have CHARGE. You also need a good

team.

And a consistent team.

Boston Children's supposedly be one of the best and has had many children

with CHARGE. That's really important. CHARGE children also react differently

to

medications and anesthesia. We lived in CT and went to Yale mostly, but have

been to Boston Children's to an otolaryngologist. I felt they were great.

When figuring out doctors and/or surgeries I call the floor my daughter will

be on and I ask the nurses on staff what is their objective opinion about

specific doctors, procedures, and such. Most of the time nurses will first tell

you they can't say but very often when I ask what would they do if this were

their child, they'll share. If you share your true emotions and fears to the

nurses, who are often parents too, they'll give you the truth. When it is

surgery I don't necessarily want a nicey nice doctor. I want one with good

hands.

But when it is a doctor continually evaluating something about my daughter it

is important she feel comfortable with him/her.

By the way, did you know there is a CHARGE Foundation? It is phenomenal.

You can join easily. There you will find tons of information! And that

information will help you for years. I advise you to get the CHARGE parent

manual.

It will help you more than you can imagine. You can:

contact marion@... or visit

the web site at http://www.chargesyndrome.org.

Good luck in all you do. And welcome to the CHARGE list.

Bonnie, Mom to a 22, Patty CHARGE 20, and wife to

[Guest guest]

Christene,

Hi...I'm a mom here in CT just across the border...My son had to have his

heart repair before they would place the g-tube.... I'm not sure if there is an

order in which to do surgeries...

has had all of his surgeries at Yale in New Haven CT...they too know of

CHARGE... so perhaps another option for igh....

Please let us know if there is anything we can do....especially if your brother

decided to bring igh to Yale....

Ellen mom to 7 in CT

( yes another Ellen)

---------------------------------

[Guest guest]

lol ellen y did u right yes another ellen in brakets like that love you hugs

ellen

>

> Christene,

> Hi...I'm a mom here in CT just across the border...My son had to have

> his heart repair before they would place the g-tube.... I'm not sure if

> there is an order in which to do surgeries...

> has had all of his surgeries at Yale in New Haven CT...they too know

> of CHARGE... so perhaps another option for igh....

> Please let us know if there is anything we can do....especially if your

> brother decided to bring igh to Yale....

> Ellen mom to 7 in CT

> ( yes another Ellen)

>

>

>

> ---------------------------------

>

>

>

>

>

>

[Guest guest]

Christene,

In reading your email to Kim, I have to say that what the hospital and

doctors are telling your family sounds absolutely ridiculous. Maybe there is

more than meets the eye and it sounds like igh is pretty sick right now,

but her case sounds like hundreds on this list and throughout the world.

Many of our kids have come through similiar situations, and worse, to become

happy, relatively healthy productive people. Josh needs to raise hell and

find someone that knows CHARGE and put together a plan to manage igh's

next few months and even years. There is certainly a long road ahead, but

with the right supports it can be done.

Thinking of you and wishing you luck.

Jeanie Colp

mom to MacKenzie 7 CHARGE, Tyler 13 & Zachary 10

Nova Scotia, Canada