Re: Gastritis Pain - How to Start SCD

[Guest guest]

Hi Joy, My daughter is 9 and also under the care of Dr. K. She is on

prescription prilosec and also sulfasazalazine. The SCD has helped her

constipation and she is currently off of the Miralax that she has taken for

almost 5 years! She also has UC and inflamed esophagus and reflux. Abby was

a huge eater of carbs.........mostly fries, GF pasta, GF pretzels,chips,

popcorn and just craves the stuff. It has been a challenge for us. She

doesn't have D. only C. so has actually lost weight on this diet. I too

feel she is hungry a lot and don't have many choices but do try to give her

big meals..........meats with hidden veggies (extra big serving), homemade

jello, lots of pureed or steamed apples or pears. She also wants a lot more

to drink to replace the carbs that are now gone so I offer a lot of water or

watered down pineapple juice. She is drinking more water than she ever has!

Sometimes in the morning with her banana pancakes I will make her a big

smoothie with fruit to make sure she's filled up before school. She won't

tolerate the texture of the muffins so am experimenting with snack options.

We did not do the intro. very long........only a couple of days because she

would not eat the soup so maybe you can go ahead and introduce some other

foods that are easy to digest. Make a lot of jello.........that really works

well and is easily tolerated. I hope this was helpful to you, I am still

learning as I go along.

Kathy

Abby's mom,-9, ASD, UC and Hannah-13

SCD for 23 days and low sal.

Gastritis Pain - How to Start SCD

> My son is eight years old and autistic with gut problems. He is under the

> care of Dr Krigsman. He has enterocolitis, GI reflux and gastritus. He

has

> been in so much pain that I have had to pull him from school for tantrums

> and self-injurious behaviors. So far the meds we have tried, prednisone

and

> Colozal, have slightly helped his colitis, but have aggravated the

gastritus

> to the point where we had to discontinue them.

>

> At this point, Dr Krigsman has recommended the SCD diet since my sons

> tolerates almost no meds.

>

> The biggest obstacle to beginning: My son seems to have attacks of pain

most

> severely when his stomach is empty. There is nothing on the starter diet

> that he really likes. Offering him chips and starchy foods when he is

> having an attack helps absorb all the acid. I will no longer be able to

do

> this with the SCD. He does not tolerate any of the proton pump inhibitor

> meds either, he presently takes pepcid and maalox. And I am not certain

> these meds are even legal. HELP!!! I want him on this diet, but don't

want

> to increase his pain as it is already too severe.

>

> Joy

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

>My son seems to have attacks of pain

most

> severely when his stomach is empty.

I suffered a horrible round of gastritis last year myself, along with other

issues, and I can verify this point - it hurts severely when the stomach gets

too empty, and then you just become nauseated and lose your appetite altogether,

which creates a vicious cycle of pain and not eating/not wanting to eat. So you

are right here.

Not that I have the answer... at that time all I felt like I could tolerate was

oatmeal, and that's of course out. I'm wondering if the yogurt, and smoothies

made with it, wouldn't feel good on his irritated stomach? Nothing acidic,

though. I'm not certain of this so please don't take it as true.

Gastritis feels like someone is jabbing knives into your gut and will double you

right over, so folks here, if you know what is low acid and would be mild on a

tummy like that, please help this boy! I feel for him, but don't have answers.

in NC

Mom of Luke, age 5, Asperger's/low-salicylate;

, age 3, healthy; and , 19 mos, healthy

All SCD since 1/26/04

[Guest guest]

Hi Joy,

Welcome to our list!

My husband has reflux. I was afraid to put him on SCD when I did SCD

for my son. I had planned to continue GFCFSF(plus other foods free)

with him and my diet hating daughter However on the first day of the

diet I was too tired to plan for 2 diets,so everyone ate SCD. On the

first day that my husband ate SCD,he noticed a great difference.

My husband no longer needs meds,he sometimes gets a little pain but

drinking water relieves it. Do you use a raised wedge when he sleeps?

Bed, bath and beyond sells them.

All the best,Mimi

> My son is eight years old and autistic with gut problems. He is

under the

> care of Dr Krigsman. He has enterocolitis, GI reflux and gastritus.

He has

> been in so much pain that I have had to pull him from school for

tantrums

> and self-injurious behaviors. So far the meds we have tried,

prednisone and

> Colozal, have slightly helped his colitis, but have aggravated the

gastritus

> to the point where we had to discontinue them.

>

> At this point, Dr Krigsman has recommended the SCD diet since my sons

> tolerates almost no meds.

>

> The biggest obstacle to beginning: My son seems to have attacks of

pain most

> severely when his stomach is empty. There is nothing on the starter

diet

> that he really likes. Offering him chips and starchy foods when he is

> having an attack helps absorb all the acid. I will no longer be

able to do

> this with the SCD. He does not tolerate any of the proton pump

inhibitor

> meds either, he presently takes pepcid and maalox. And I am not certain

> these meds are even legal. HELP!!! I want him on this diet, but

don't want

> to increase his pain as it is already too severe.

>

> Joy

[Guest guest]

Hi Kathy,

>doesn't have D. only C. so has actually lost weight on this diet. I too

>feel she is hungry a lot and don't have many choices but do try to give her

>big meals..........

As an adult that went through it I can tell you when I started the diet I *was*

hungry all the time. I started extremely underweight - about 30-40 lbs under my

ideal weight. I lost a few pounds at first even though I was eating lots of

food. A few reasons for this:

1.) The body is shifting to a new way of digestion. That takes energy - food

energy.

2.) The body is attempting to heal itself and continue to feed itself. Again

more food energy is needed.

3.) The body is trying to restore equilibrium, vitamins, minerals etc. again

more food energy

4.) In addition to this since these are children who are growing as opposed to

the adults who are just trying to maintain. They already need extra food for

their growing years. A lot of kids have reported to shot up in height once the

guts have stabilizied/

But, there is good news at the end of this rainbow. Once their weight

stabilizes and they are well on the road to healing the insatiable appetites

usually slow down and level off. Rember that there bodies have literally been

starving on starch diets and causing damage. Of course, like any kids they'll

go through food bursts with their natural growth spurts - like when my daughter

eats 2 adult sized plates of food and askes for two helpings of desserts. She

may weigh 48 pounds soaking wet.

Sheila, SCD 37 mos UC 20 yrs

mom of SCD 22 mos