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Hello everyone this is Carolyn & I wanted to ask for all your opinions. Am I

wrong if I dont take Noah to his next doctors appointment to see Dr.Harbison

next week? I have thought about this over & over & I think that right now

things are going good for Noah so why should I put him through more torture?

He crys the minute a doctor or nurse touches him because he has seen so many

in the 11 months of his life. I spoke to my Pediatrican today (because Noah

has a cold) & he said " why should I push Noah if everything is Ok now " . He

also said that Dr. H hasnt gotten intouch with him & that bothers me to. My

Pediatrican gave me a number for me to call to get Noah physical theropy & I

am going to do that but to drag him to Manhatten for what? To see if he has a

thyroid problem? I can do that here. Just because he is " Pudgy " doesnt mean

he has any problems just means he " LOVES " to eat. Ok be honest " Am I wrong " ?

Thanks so much for listening....Carolyn (My3Sons-Noah w/RSS)

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Carolyn,

I think that it is very important for you to keep that appointment with Dr.

Harbison. Noah may not need any intervention now, but if he does in the

future (such as gh treatments) she will have the necessary data to support

using that method of treatment. You need to have ONE doctor who will do the

measurements on a regular basis and in the same way each and every time.

She will also be able to monitor his growth and watch out for any asymmetry

that may become more obvious, or be able to flag anything else that may

develop that someone who is not as familiar with RSS would not necessarily

notice.

However, if it is not convenient for you to take Noah next week, then call

up and change the appointment. Perhaps if it is too much to go every three

months, you could talk to Dr. Harbison and change it to every six months for

a little while.

As for her not calling your pediatrician, I hate to say it, but I am not

surprised. She is not too good in that department. The best way for your

doctor to get in touch with her is to call her after 4 when the office calms

down. Sometimes she even answers the phone herself. I do know that she

goes away to Hawaii, but I don't think that is until the mid to end of

February. Then she goes away for three weeks.

Hang in there, Carolyn. It is easy to want to not follow up, but you may be

sorry if you don't - in the long run, that is. I know you don't want to

hear that answer, yet I have learned from experience.

Jodi

Hello am I wrong?

> Hello everyone this is Carolyn & I wanted to ask for all your opinions. Am

I

> wrong if I dont take Noah to his next doctors appointment to see

Dr.Harbison

> next week? I have thought about this over & over & I think that right now

> things are going good for Noah so why should I put him through more

torture?

> He crys the minute a doctor or nurse touches him because he has seen so

many

> in the 11 months of his life. I spoke to my Pediatrican today (because

Noah

> has a cold) & he said " why should I push Noah if everything is Ok now " . He

> also said that Dr. H hasnt gotten intouch with him & that bothers me to.

My

> Pediatrican gave me a number for me to call to get Noah physical theropy &

I

> am going to do that but to drag him to Manhatten for what? To see if he

has a

> thyroid problem? I can do that here. Just because he is " Pudgy " doesnt

mean

> he has any problems just means he " LOVES " to eat. Ok be honest " Am I

wrong " ?

> Thanks so much for listening....Carolyn (My3Sons-Noah w/RSS)

>

>

>

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I already sent the other email, but oh, I wish I could have talked to you

before. Dr. H, no matter how good she is, has had HORRIBLE office staff

always. They are among the worst. We were told it is the hospital that

hires the receptionist/office staff, not the doctors. Who knows. But we

have had just awful experience with the office staff at Dr. H. I wish you

had been able to talk to Dr. H before cancelling your appt.

S.

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> the shot for RSV is called Synagis.

>

Hi guys

Call me slow--Christmas hang over or something. But I missed what this RSV is?

Can you

explain for me? I understand it's a shot-but for what??

Thanks--probably snow on the brain here

Debby

twinks898@... wrote:

> Carolyn- the shot for RSV is called Synagis. It is primarily reserved for

> preemies at this point because it is very expensive and the insurance

> companies won't cover it. I tried to get it for my sons who were both IUGR,

> but I was refused even when I said I would pay out of pocket. RSV is a

> potentially life-threatening disease, especially in preemies, so if you are

> given the option to give it to Noah, go for it. My Nate got it at 6months old

> and was almost hospitalized. He was bluish and had a terrible cough. His

> brother had it too, but was a little less severe. In adults it seems like

> just a regular cold, so be sure to wash, wash , wash,, especially with your

> older boys. I have the boys wash their hands as soon as they walk in the door

> from school and they aren't allowed to kiss the baby anywhere except the back

> of her head or her feet. Anyway, that's my RSV spiel. I feel so strongly

> about preventing kids under 2 from getting it, that my in- laws think I'm

> nuts- who cares, they didn't come to help take care of my boys when they were

> so sick and I was up all night and so was my husband. I was so afraid Nate

> would stop breathing and I cried listening to the trouble he was

> having.-----On to your doctor situation. I don't blame you for feeling like

> you're getting the shaft from Dr. H. As great a doctor as she may be, she

> still needs to have some attention to her patients. If you're looking for

> another doc, my geneticist told us about Dr. Deo at Montefiore. She

> supposedly has experience with RSS too. We will be seeing Dr. H. on the 12th,

> we'll see how it goes from there. I have to say that I was not too impressed

> that she gave us the script for Periactin and didn't tell us anything about

> how to use it.I started it at the full dose until I saw how Nate responded

> and talked to you guys about why and how I should have started it.Sorry to be

> so long winded. Take care,Liz-Mom of Nate(?RSS)and Sam-27 month old twins and

> Arianna-8 months

>

>

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