Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Hi, My daughter had the same thing. I too was told it was nothing to worry about. She'll be 3 in July and is fine. > My son Brett (5 months old and has both Plagio and Tort) just got > back from the Neurosurgeons office where they told us they > (thankfully) would not stop us from getting the helmet but said that > he did not need it. Also after the CT scan the doctor said that he > has excess fluid on the brian? The doctor didn't seem too concerned > about it but my wife and I are wondering just how common it is. Part > of the reason for the fluid is his excessive growth rate (he was less > than 50% when born and is now over 95% percentile). has anyone else > experienced this or heard of it? My wife as I write this is talking > to our ped about this also. Thank you for your support. > Dave & Michele > Buffalo NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Hi Dave, Thats great that the neuro is open to whatever you decide to do. Have you guys made a decision? I'm glad had some input on the fluid on the brain for you. Did you ped feel the same? , mom to Hannah, DOcband #3 3/30 Cape Cod, Ma > My son Brett (5 months old and has both Plagio and Tort) just got > back from the Neurosurgeons office where they told us they > (thankfully) would not stop us from getting the helmet but said that > he did not need it. Also after the CT scan the doctor said that he > has excess fluid on the brian? The doctor didn't seem too concerned > about it but my wife and I are wondering just how common it is. Part > of the reason for the fluid is his excessive growth rate (he was less > than 50% when born and is now over 95% percentile). has anyone else > experienced this or heard of it? My wife as I write this is talking > to our ped about this also. Thank you for your support. > Dave & Michele > Buffalo NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 Hi Dave, I have never heard about the excessive fluid, but I see that has already replied to youa bout it. You are very fortunate to have a Neuro willing to support your decision, whatever that may be. Many folks are not so " lucky. " Please let us know what you and Michele decide to do with Brett. -mom to Aidan > My son Brett (5 months old and has both Plagio and Tort) just got > back from the Neurosurgeons office where they told us they > (thankfully) would not stop us from getting the helmet but said that > he did not need it. Also after the CT scan the doctor said that he > has excess fluid on the brian? The doctor didn't seem too concerned > about it but my wife and I are wondering just how common it is. Part > of the reason for the fluid is his excessive growth rate (he was less > than 50% when born and is now over 95% percentile). has anyone else > experienced this or heard of it? My wife as I write this is talking > to our ped about this also. Thank you for your support. > Dave & Michele > Buffalo NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 Hi Dave, I don't know anything about excess fluid on the brain, and haven't so far read about any association with plagio. I know you'll get some responses of similar situations, since some of the exams some of our plagio babies are referred for may bring to light something similar! What a relief that your neuro will support your decision no matter what it is, regarding Brett's treatment. It is, however, common to hear about specialists not believing a case of plagio is serious enough to warrent helmeting or banding, even when the baby could benefit from it. What kind of severity would you rate Brett? Does he have any of the common, accompanying facial asymmetry, forehead bossing, or ear misalignment? There are some severity assessment forms in the LINKS/SEVERITY ASSESSMENT FORMS section of the group that you may find helpful. My own pediatrician and also the neuro that we took our daughter Remy to see, also felt she was too mild for any treatment, even though in the side view of her head she looked as flat as a board! We ended up using aggressive repositioning only to treat our daughter's plagio, and her progress photos are in the PHOTOS/BEFORE AND AFTER/REPOSITIONED folder. With Brett having tort, repo will not be an option for him, however. Would you let us know if we can be of help if you have any concerns or questions? Take care, Christie (Mom to Repo'd Remy) > My son Brett (5 months old and has both Plagio and Tort) just got > back from the Neurosurgeons office where they told us they > (thankfully) would not stop us from getting the helmet but said that > he did not need it. Also after the CT scan the doctor said that he > has excess fluid on the brian? The doctor didn't seem too concerned > about it but my wife and I are wondering just how common it is. Part > of the reason for the fluid is his excessive growth rate (he was less > than 50% when born and is now over 95% percentile). has anyone else > experienced this or heard of it? My wife as I write this is talking > to our ped about this also. Thank you for your support. > Dave & Michele > Buffalo NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 Thanks everyone for replying to our concerns about Brett. So far only has heard of the excess fluid on the brain, but if anyone else hears of it please let us know. Our ped told me not to worry about it at this point...I think I am worried anyway! I guess the neuro md was concerned becuase Brett's head has grown so rapidly (from the 45th percentile at birth to 95th at 5 1/2 months). I checked the severity assessment form would rate Brett at a ten (I came up with nine, my father with eleven and Dave with ten). I guess that would be moderate to severe? Certainly the tort plays into this, too. We are going to go ahead with banding and are in the process of trying to get approval from our insurance company. Missy (Michele) mother to Brett, 5 1/2 months > > My son Brett (5 months old and has both Plagio and Tort) just got > > back from the Neurosurgeons office where they told us they > > (thankfully) would not stop us from getting the helmet but said > that > > he did not need it. Also after the CT scan the doctor said that > he > > has excess fluid on the brian? The doctor didn't seem too > concerned > > about it but my wife and I are wondering just how common it is. > Part > > of the reason for the fluid is his excessive growth rate (he was > less > > than 50% when born and is now over 95% percentile). has anyone > else > > experienced this or heard of it? My wife as I write this is > talking > > to our ped about this also. Thank you for your support. > > Dave & Michele > > Buffalo NY Quote Link to comment Share on other sites More sharing options...
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