Re: New -

[Guest guest]

How old is Cole? Neely is 8 months as of today and becoming aware of

a lot more than she used to be so I'm a little worried about her

band bothering her. Neely gets hot so easily so I hope the heat of

the band doesn't bother her too bad.

--- In Plagiocephaly , " " <twiturpated@y...>

wrote:

> Hi ,

> Welcome to the group. My son Cole just got his STARband on the

22nd

> of July, and it didn't take him any time to adjust to his helmet.

> Our ortho put it on his head, and Cole never even noticed. The

only

> thing that took a few days ( 4 to be exact ) was getting use to

the

> tempurature. Cole was very hot and sweaty the first few days, but

> now when I take his band off to clean it his head isn't sweaty at

> all, and we live in Florida. I do keep him inside alot with the

a/c

> turned down though. I know you will not belive this, but Cole

> actually has been sleeping better with his band on. He doesn't

seem

> to wiggle around as much, so he doesn't wake himself up. Cole

hasn't

> tried grabbing at his band at all yet, I have heard stories of

> babies grabbing at it more as they get older and start to notice

> things more. ( I am keeping my fingers crossed that this doesn't

> happen with Cole ) I know that you are feeling nervous about this

> whole thing, but it really isn't that bad. All while I was waiting

> to get Cole banded people kept reassuring me that it would be

fine,

> and that I had nothing to worry about. I must have heard at least

a

> million times that the hardest part is getting the band then it is

> pretty easy after that. Of course I thought everyone was just

> telloing me that to make me feel better, but they were absolutly

> right. Cole is not at all phased by his band, he is still the same

> happy, cheerful baby he always was.....only difference is now he

has

> a rounder head.....and yes, in this short time he has been wearing

> his band his head is already rounder. Good luck, everything will

be

> ok.

> , mommy to Cole (STARband 7/22/04) and Eden --- In

> Plagiocephaly , " bwvinson2000 " <BVINSON2@c...>

wrote:

> > I've talked to a couple of people on here already but I just

> wanted

> > to introduce myself anyway. I'm (female - people always

> > assume I'm a male b/c of my name) and my daughter Neely will be

> > molded for her band hopefully within the week. How long did it

> take

> > your babies to adjust to the helmet - did they try to grab at it

> to

> > pull it off at first? How did it effect their sleeping?

[Guest guest]

,

Cole will be 8 months old on the 11th of this month. He also gets

hot real easily, but after the 1st 4 days his body adjusted to the

heat.

> > > I've talked to a couple of people on here already but I just

> > wanted

> > > to introduce myself anyway. I'm (female - people

always

> > > assume I'm a male b/c of my name) and my daughter Neely will

be

> > > molded for her band hopefully within the week. How long did

it

> > take

> > > your babies to adjust to the helmet - did they try to grab at

it

> > to

> > > pull it off at first? How did it effect their sleeping?

[Guest guest]

My son started wearing his STARband at 10 months. He was diagnosed

with moderate/severe brachycephaly (flat across the entire back of his

head). He has already seen some wonderful correction and will be done

with his helmet in about 2 weeks.

I think the orthotists tell you this so that you don't have

unrealistic expectations but there have been many children on this

board treated later than your son who have seen some great success.

You can see my son's pics under the folder D. in Plagio Kids.

Jules

Mom to 14 months (STARbanded on 12/01/04)

--- In Plagiocephaly , " s_rad1 " <s_radlinski@h...>

wrote:

>

> Hello. Today my 8 1/2 month old son was evaluated for a STARband.

He

> will get his helmet in 2 weeks. He has SEVERE right-sided

> plagiocephaly. Because of his age we have been told that we may not

> get total correction with the helmet. Has anyone else had

experience

> with starting helmet therapy at this age and what kind of results

did

> you see??

>

> Thanks,

[Guest guest]

My son started wearing his STARband at 10 months. He was diagnosed

with moderate/severe brachycephaly (flat across the entire back of his

head). He has already seen some wonderful correction and will be done

with his helmet in about 2 weeks.

I think the orthotists tell you this so that you don't have

unrealistic expectations but there have been many children on this

board treated later than your son who have seen some great success.

You can see my son's pics under the folder D. in Plagio Kids.

Jules

Mom to 14 months (STARbanded on 12/01/04)

--- In Plagiocephaly , " s_rad1 " <s_radlinski@h...>

wrote:

>

> Hello. Today my 8 1/2 month old son was evaluated for a STARband.

He

> will get his helmet in 2 weeks. He has SEVERE right-sided

> plagiocephaly. Because of his age we have been told that we may not

> get total correction with the helmet. Has anyone else had

experience

> with starting helmet therapy at this age and what kind of results

did

> you see??

>

> Thanks,

[Guest guest]

WOW.  Between Don's post and Cynde's there is not one darn thing I can add.  Other than alcohol use and hep c is like pouring gasoline on a fire.  Don't do it... Hugs,Teri

On Sun, Feb 13, 2011 at 12:45 PM, Cynde Moya <cyndemoya@...> wrote:

 

Before I was diagnosed, I was actively drinking. It was just about all I did, and I liked it. A lot.

 

One thing I didn’t like was when I stopped being able to digest. I would eat, and it would be fine until about 2.5 hours into it, the time the Liver is supposed to start adding its stuff to the mix. Well, I guess my liver wasn’t working, what with all this drinking and the undiagnosed HepC. Instead of the digestion moving along, the stuff would sour in my stomach and roil and hurt until I vomited it up. I became quite expert at the discreet vomit, like a bulimic. The only thing that seemed to help was more cheap champagne. This went on for, oh, 8 months at least. Until it sort of slowly and gradually resolved itself. I was also menstruating continuously for those 8 months, and not just a little bit, but A LOT. In truth, I was a disgusting mess. But it didn’t really matter as long as I could keep drinking.

 

I was far too interested in drinking to take an active role in resolving these issues. I had no insurance. I had no money, or at least I had no money that was going to be spent on things other than alcohol. I did consult my boyfriend’s son-in-law, who was a doctor, but he was really too queasy to be of much help. He did a blood test and found that my ALTs were very high, but this was early on, say 1989, before such a test would trigger a HepC screen. He suggested I stop drinking. I just laughed; like that was going to happen. I had much further to fall before I stopped.

 

So – I understand about wanting to keep drinking. It’s magical, it’s great stuff, Be Drunken Always, you really have amazing experiences and insights when you drink. You lose long periods of time to the wonder and delight, and don’t have to think of other ways to fill that time. I’m with ya. But, depending on the stage of deterioration of your liver, it could be pretty ugly before it needs to be.

 

Cynde

 

 

From: Christ

Sent: Sunday, February 13, 2011 9:29 AM

Subject: [ ] New -

 

 

Hi

Welcome to the Warriors group.

There are folks here in all stages of HCV from newly DX'd to cured, or non-responders, and more.

I am don in ks, 60, DX'd in 2008, genotype 1B, labs near normal, no treatment yet.

 

The first and only thing I want to address with you is the alcohol issue, because none of the rest matters at this point.

- Do you care that you have HCV?

- Do you care that the HCV and alcohol mix could likely kill you?

 

Your right - by drinking alcohol with HCV, you are a 'time bomb'.

I suggest that you stop ALL alcohol consumption immediately, and never touch another drop.

I know your doctor told you the same thing.

 

, this group trys to help people who are willing to help themselves heal.

We all fight hard to heal ourselves, and we dont want to watch someone kill themselves.

Im sorry to be blunt, but drinking alcohol with HCV is a SERIOUS issue.

 

I personally have watched someone close to me, go from treatable, to dead, with liver cancer in just 2 years from alcohol and drug use.

I never want to watch it again.

 

I hope you will reflect on what I have said......seriously.

 

love

don in ks

 

From: <bradshawkathryn@...>Subject: [ ] New Date: Sunday, February 13, 2011, 7:46 AM

Hello ALL:  I have hcv, no symptoms, not being treated or tested (was over 6 months ago), no medical insurance or assistance, from Indiana - just moved to Florida.  I do not qualify for clinical trial, still consuming alcohol.  I feel like a time-bomb.  I would appreciate any comments of encouragement or guidance.  Thank you!------------------------------------

[Guest guest]

I to loved my drink until my tummy issues made it impossible to drink without pain. If I was sober I was in pain due toa spastic esophagus and acid reflux. Cant tell you the times I went to the er with chest pain and they would give me a GI cocktail (great stuff) and send me home.

Well I haven't had a drop in yrs and I still have tummy issues but not near what I did have. My ulcers have since healed.

Yes the alcohol will numb alot of things temporarily but it is worth it? .

From: <bradshawkathryn@...>Subject: [ ] New Date: Sunday, February 13, 2011, 7:46 AM

Hello ALL: I have hcv, no symptoms, not being treated or tested (was over 6 months ago), no medical insurance or assistance, from Indiana - just moved to Florida. I do not qualify for clinical trial, still consuming alcohol. I feel like a time-bomb. I would appreciate any comments of encouragement or guidance. Thank you!------------------------------------

[Guest guest]

My story was an attempt to demonstrate that just telling an alcoholic not to drink is not very effective. It might make you feel better, but it's probably not going to have much effect, and might even turn the drinker off. I'm more into the harm reduction model, myself.

Now, this is me making a leap, that is an alcoholic. Maybe she's not; maybe she just likes to drink, who knows?

For an ordinary person, stopping that glass or two of wine with dinner, quitting those few beers on the weekend, having a coke instead of a drink with the fellas after work, these are all is easy changes in the face of a debilitating disease. But for an active, drinking alcoholic, it is not easy. It's a major life decision, a big change.

So - . You've already done the geographic, moving several states away. Start thinking about what it would take to get you to start quitting drinking. Look up the closest AA meetings; go by the main place and pick up a schedule. Study that book. Find some meetings that fit into your hectic life. If you are an alcoholic, don't imagine that you will be able to "cut down." Because you know there is never enough to drink once you get started. So - warm up to the idea. Make plans. Find alcoholics to talk to. You don't actually have to hit the bottom face first to quit drinking.

Cyn

Re: [ ] New -

WOW. Between Don's post and Cynde's there is not one darn thing I can add. Other than alcohol use and hep c is like pouring gasoline on a fire. Don't do it...

Hugs,Teri

On Sun, Feb 13, 2011 at 12:45 PM, Cynde Moya <cyndemoya@...> wrote:

[Guest guest]

I agree with you i dont suffer from alcoholism i suffer from depression & i can

feel your frustration when helpful people say " stop drinking " or in my case

" dont be sad " " get over it you will feel better " blah blah blah

Blessed be marie---------

Sent from AT & T's Wireless network using Mobile Email

- Re: [ ] New -

My story was an attempt to demonstrate that just telling an alcoholic not to

drink is not very effective. It might make you feel better, but it's probably

not going to have much effect, and might even turn the drinker off. I'm more

into the harm reduction model, myself.

Now, this is me making a leap, that is an alcoholic. Maybe she's not;

maybe she just likes to drink, who knows?

For an ordinary person, stopping that glass or two of wine with dinner, quitting

those few beers on the weekend, having a coke instead of a drink with the fellas

after work, these are all is easy changes in the face of a debilitating disease.

But for an active, drinking alcoholic, it is not easy. It's a major life

decision, a big change.

So - . You've already done the geographic, moving several states away.

Start thinking about what it would take to get you to start quitting drinking.

Look up the closest AA meetings; go by the main place and pick up a schedule.

Study that book. Find some meetings that fit into your hectic life. If you are

an alcoholic, don't imagine that you will be able to " cut down. " Because you

know there is never enough to drink once you get started. So - warm up to the

idea. Make plans. Find alcoholics to talk to. You don't actually have to hit the

bottom face first to quit drinking.

Cyn

Re: [ ] New -

WOW. Between Don's post and Cynde's there is not one darn thing I can add.

Other than alcohol use and hep c is like pouring gasoline on a fire. Don't do

it...

Hugs,

Teri

On Sun, Feb 13, 2011 at 12:45 PM, Cynde Moya <cyndemoya@...> wrote:

[Guest guest]

Alcohol is how I treated my depression as well. I didn't like the meds they gave me so I self medicated. I worked every day until my dad died in 2004 and I cant say as I remember much about that yr. Not only did they medicate me but I drank my self stupid for about 1 12 yr. Didn't want to live. One day I woke up, decided I wanted to live, pulled myself together and went back to work. I still drank to self medicate but not 24/7. Depression and hep c go hand in hand.

I just quite drinking one day. Now they give me Valium to help me relaxe when I am stressing out so bad, I get so upset sometimes that my esphgosis spams you talk about pain which I cant bring myself to take. I just give it to God everyday and he gives me the strength I need.

I still have bad days. Espically after they pulled me from tx that was a really bad day, I had thoughts of suicide. Thought "to hell with it all, if they wont help me live I will help me die" well I didnt take that drink and still havent. I am so focused on healing my body (I have even quit smoking for the past 3 wks) that I dont even think about self medicating anymore.

It is like anything else either your ready or your not.

[Guest guest]

CynI couldn't have said it any better myself!! I believe that just recently I posted exactly what you pointed out. You can tell an alcoholic, you just can't tell them much.I've been in recovery for a whole long time now; but, not one step was easy. Simple? Yes. Easy - no way!!I was already sober (19 months) when I came to live in the Valley of my birth. So, outside of family, I absolutely didn't know a soul. Six months later, I'm taking my grandmother to see her Dr. and to the pharmacy. Suddenly, she stops and asks me how I could know so many people, when her and my grandfather had been here 20 yrs that time. Well, I knew that my Gran would never

understand that her eldest granddaughter could possibly be an alcoholic, so I just slid by the answer there.Part of my story is that I didn't get here all nice and comfortable or do any kind of happy dance just as I was entering the room. I came through those doors too embarrassed to even raise my head. Also, because I was not a daily drunk, it was far too easy for me to convince myself that I just had to learn to control myself better. LOL Yup, I had to face a few slips. Believe it or not, each one of those slips meant that my behaviour actually got worse!! Thank heavens that people in AA accept us anyway we come!! We're just a fellowship of folks that got caught not really knowing all the rules and then we walk in to a room and very shortly that is lifted. We learn that every person in that room has a story of their own and no one is competing.But, my life today is absolutely nothing

like it was when I was drinking!! Quite simply, I am just not the same person at all. My worst day today, is still far better than my best day as a drunk. Facing liver cancer last spring was extremely frightening for me. But, having put my faith in a Spiritual Power that is greater than me, got me through it.

My story was an attempt to demonstrate that just telling an alcoholic not to drink is not very effective. It might make you feel better, but it's probably not going to have much effect, and might even turn the drinker off. I'm more into the harm reduction model, myself.

Now, this is me making a leap, that is an alcoholic. Maybe she's not; maybe she just likes to drink, who knows?

For an ordinary person, stopping that glass or two of wine with dinner, quitting those few beers on the weekend, having a coke instead of a drink with the fellas after work, these are all is easy changes in the face of a debilitating disease. But for an active, drinking alcoholic, it is not easy. It's a major life decision, a big change.

So - . You've already done the geographic, moving several states away. Start thinking about what it would take to get you to start quitting drinking. Look up the closest AA meetings; go by the main place and pick up a schedule. Study that book. Find some meetings that fit into your hectic life. If you are an alcoholic, don't imagine that you will be able to "cut down." Because you know there is never enough to drink once you get started. So - warm up to the idea. Make plans. Find alcoholics to talk to. You don't actually have to hit the bottom face first to quit drinking.

Cyn

Re: [ ] New -

WOW. Between Don's post and Cynde's there is not one darn thing I can add. Other than alcohol use and hep c is like pouring gasoline on a fire. Don't do it...

Hugs,Teri

On Sun, Feb 13, 2011 at 12:45 PM, Cynde Moya <cyndemoya@...> wrote:

[Guest guest]

,

I can only say one thing Don is soo right I have lost 5 friends from my old HS

class and 3 other close friends that just could not stop drinking each binge

landed them in the hospital and they were told ,the next one would land them in

the morge,I know its very very hard to just say no,but saying yes just one last

time and I'll stop tomorrow just does not work as you know probably tomorrow

never comes!

You have made a BIG step finding this group,believe me most of us have been

there.I'm not preaching another word,I think you know Don is right,I do wish you

the very best of luck on saving your life,only you can be the one to decide,I

hope you choose to give it your best shot...............

Kilroy N Oz

>

>

> From: <bradshawkathryn@...>

> Subject: [ ] New

>

> Date: Sunday, February 13, 2011, 7:46 AM

>

>

> Hello ALL: I have hcv, no symptoms, not being treated or tested (was

over 6 months ago), no medical insurance or assistance, from Indiana - just

moved to Florida. I do not qualify for clinical trial, still consuming alcohol.

I feel like a time-bomb. I would appreciate any comments of encouragement or

guidance. Thank you!

>

>

>

> ------------------------------------

>

>