Re: Thinking about starting my son on SCD

[Guest guest]

, thanks for moderating for us, and just wanted to say how

encouraging your sign-off is!

Re: Thinking about starting my son on SCD

>

> > Hi Everyone,

> >

> > I have a 2 year old son that was diagnosed as moderately autistic

> at

> > 18 months. He has been GF/CF for about 6 months now. But he still

> > has lots of stomach issues that we're struggling to address.

>

> -----------------------------------

> Dear Craig,

>

> Welcome to our list! I predict you will soon be very glad you found

> it because your son sounds like a perfect candidate for some major

> healing on the SCD. Many of the families here have struggled with the

> issues you addressed and many of them came here after a time on GFCF -

> anywhere from a few days - to several years. We did GFCF for 6

> months before finding out about SCD a little over a year ago.

>

> ---------------------------

> He has

> > severe candida yeast. We used nystain for 3 weeks and a urine test

> > showed that it was under control during the 3rd week but it came

> back

> > once we stopped the nystatin.

>

> ---------------------------------

>

> SCD can definitely help with yeast issues. It is designed to starve

> out the bacteria and yeast which live together in a biofilm (this is

> from Elaine - not me!). The thing about GFCF is it is full of yeast

> feeding foods - starches and sugars.

>

> ------------------------------------

>

>

> He has clostridia and we also believe

> > he has worm(s). His stomach is almost always bloated, especially

> > after he eats.

>

> -------------------------------------

>

> Elaine has said before that Clostridia is not starved out by limiting

> certain foods - you will probably need another method for this

> particular bacterium. Some people on the list have had good results

> with flagyl and others use naturopathic or homeopathic methods as

> well. Same goes for the worms - you need something to help get rid of

> them. However, many families have seen the bloated tummy dissappear

> after just a few days on SCD. You may want to get tested for the

> parasites and then move forward from there.

>

> ---------------------------------------

>

> >

> > It's my understanding that this diet will help control all of the

> > issues I mention above. Is this a true statement? My only

> > hesitation with this diet is that my son has many food allergies.

> He

> > cannot eat eggs or nuts which seems to be a staple of this diet.

> > Does anyone do this diet while avoiding those foods?

>

> -----------------------------------------------

>

> Many of the children here have allergies (varying kinds) to different

> foods. Egg and nut allergies are often brought up here, so I know

> there are people who can help you specifically.

>

> Please go to www.pecanbread.com as soon as possible. Many of your

> questions are answered there more throroughly than I can do in an

> email. Also, there are some great recipes - egg free and nut free

> variations, among others.

>

> Also, have you read Breaking the Vicious Cycle, yet? It will help all

> of this make so much sense. It is highly recommended to read the book

> and website as soon as you can.

>

> We are very glad you are here and are all happy to assist you and

> your family make this transition - it is SO worth the effort.

>

> Take care,

>

> son - almost 5yo, ASD, SCD one year (dx moderate autism at 3

> 1/2, now getting ready to attend REGULAR kindergarten - thanks to

> Elaine and this wonderful group of people)

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

> , thanks for moderating for us, and just wanted to say how

> encouraging your sign-off is!

Thanks ! It is fun to help out. I haven't really been a big

poster these past few months, but when Jody asked for some help, I

was so glad to be able to offer to at least chip in once a week.

Today was Kindergarten Round-Up at 's school. He's been

attending their special ed integrated pre-school for two years. When

his team recommended him for regular kindergarten, my first thought

was NO WAY - he's not ready. Well, they talked me into it because

they really believe he will " rise to the occassion " .

After today, I agree with them. He did so well - quiet and still

during all the adult blah blah blah and then, when it was time to be

with the other kids, he joined right in. He even initiates games with

other kids now.

I read recently that some of the families get discouraged by positive

posts. That has kept me from updating you all on 's progress,

but I just want some of the newer families to know that this diet -

without any other biomedical interventions, or ABA, has brought my

son from a foggy brained, zoned out, scripting, grumpy world to

fitting in (more or less) with a group of kids his own age. And not

only that, if he stands out now, it's because he is so happy and full

of joy.

Take care,

son - almost 5yo, ASD, SCD one year

[Guest guest]

Hi -

On the contrary, I find it completely encouraging and empowering to

hear about 's progress. Scripting has been a huge issue with

my daughter and we're finally started to see some decreased scripting

in the past two weeks or so. We're at the 6 month mark now, also not

doing any other biomedical interventions. We also just removed her

from her full-day self-contained ABA class and she's going to start

attending a typical preschool with a shadow five mornings a week.

Would you mind sharing some more details about your experience with

the diet? Have you been doing the yogurt? If so, at one point did

you introduce it and do you use cow's milk or goat's? Also, do you

have him on any other vitamins or supplements (CLO, enzymes, etc)?

Thanks to you and all the wonderful moms who share their stories.

Kate, Mom to ASD age 4, 6 months SCD

> > , thanks for moderating for us, and just wanted to say how

> > encouraging your sign-off is!

>

>

> Thanks ! It is fun to help out. I haven't really been a big

> poster these past few months, but when Jody asked for some help, I

> was so glad to be able to offer to at least chip in once a week.

>

> Today was Kindergarten Round-Up at 's school. He's been

> attending their special ed integrated pre-school for two years.

When

> his team recommended him for regular kindergarten, my first thought

> was NO WAY - he's not ready. Well, they talked me into it because

> they really believe he will " rise to the occassion " .

>

> After today, I agree with them. He did so well - quiet and still

> during all the adult blah blah blah and then, when it was time to

be

> with the other kids, he joined right in. He even initiates games

with

> other kids now.

>

> I read recently that some of the families get discouraged by

positive

> posts. That has kept me from updating you all on 's progress,

> but I just want some of the newer families to know that this diet -

> without any other biomedical interventions, or ABA, has brought my

> son from a foggy brained, zoned out, scripting, grumpy world to

> fitting in (more or less) with a group of kids his own age. And not

> only that, if he stands out now, it's because he is so happy and

full

> of joy.

>

> Take care,

>

> son - almost 5yo, ASD, SCD one year

[Guest guest]

Hi Kate,

I thought I'd just jump in and say that 's scripting is almost

gone -- mostly she uses it as a framework for play because she has

such a language delay. By a " framework " I mean that she will

play " Dora the Explorer " and say, " Where do we go next? Couch,

piano, kitchen! " (adding in her own words, using the " Dora " basic

script.)

We started goat yogurt at 3 1/2 months, and after 2 months of goat,

switched to cow. Not everybody can do this -- some of our kids

tolerate cow, but many don't. Now she eats 1 1/2 cups to 2 cups of

yogurt per day, and I feel it has been extremely important in her

healing.

We had a language assessment the other day, and her receptive didn't

show any improvement (though based on daily life that's wrong --

it's greatly improved) but her vocabulary score went from 25th

percentile (mild delay) to 50th percentile (age appropriate), and

her expressive language went from 1st percentile (severe delay) to

16th percentile (mild to moderate). So we are seeing improvements

that are measurable.

Sue (from Pickering)

Mom to , 4, formerly? ASD, SCD since March 16/04