Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 , The 3D scan showed that the sagittal and all of the other sutures were open. The radiology report said that the metopic suture suggests ridging and there may be closure of the metopic suture. It said there is synostosis with ridge fromation of the metopic suture which has resulted in plagiocephaly. He also has torticollis and the STARband has already helped round out his head some. My pediatric neurosurgeon seems to think that the band is working so we should stick with that. As far as profile - what I mean is that I read with metopic synostosis the child has a triangular look to their head and you can often see the ridge. He looks perfectly normal. There is no unusual shaping around the front of his head or the metopic suture. We have been told the plagio is very mild and that the band will correct any flatness. I think I am going to sign up with the CAPPSkids and make an appointment with a pediatric neurosurgeon to discuss the results. Let me know what you think after this reply. Everything is so frightening when it comes to your kids. Thank you so much for your help. I live in Oklahoma. Re: sutures Hi ,Please check out this Cranio group: http://www.CAPPSkids.org/board They are a great group and will be able to answer your questions. Please keep us posted.> Hi. I haven't written in a while. Life gets really busy with so many doctor appointments. My son (9 months) had a 3D catscan done and we found out that his metopic suture is closed. This has not affected his brain development. There are no other sutures closed. His pediatric neurologist recommended that we should keep on having him wear his band and that there is probably nothing to worry about. He has been wearing a STARband since mid-March. I started researching on the internet and read about metopic synostosis and started worrying that the early closure of this suture might affect his brain development in the future. He doesn't fit the profile, except for the fact that the suture closed early. When I questioned his pediatric neurologist about my new found information, he recommended that we get a second opinion by a pediatric neurosurgeon. The neurosurgeon he recommended was the same guy I went to in the very beginning who just looked at my son and said everything was cosmetic and his head would probably round out on its own. I would like to know if anyone knows anything about when the metopic suture should close and the possible effects of its early closure. Any information would be extremely helpful.> > Thank you!!!!!> > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 HI That is excatly what Annie has. She has also has ridging but over her coronal area. Has your lo's head growth continued ok or has it slowed down?If it has slowed down I would suggest getting mesaured more often. This is a sign of premature fusion. I would still push for some follow up as the sutures can continue to fuse earlier than expected. If the suture was fused and no problems inside the head then I would suggest to adopt the wait and see process which what we have done with . Especially as a lot of neuros say the surgery is for cosmetic resaons. He sounds like he is doing fine and hope everything works out alright. Just keep on top of it and if worried hassle your doctors because they are not infallible and have been known to make mistakes. Do go on CAPPSkids as they are brilliant and will try and answer any questions about cranio and metopic. It is hard when you do not know what board you should be asking. I tend to swing between this excellent plagio board and the equally brilliant CAPPSkids but you don't feel like you should be using both. You know where I am if you need any support or answers Take care sarah Re: sutures Hi ,Please check out this Cranio group: http://www.CAPPSkids.org/board They are a great group and will be able to answer your questions. Please keep us posted.> Hi. I haven't written in a while. Life gets really busy with so many doctor appointments. My son (9 months) had a 3D catscan done and we found out that his metopic suture is closed. This has not affected his brain development. There are no other sutures closed. His pediatric neurologist recommended that we should keep on having him wear his band and that there is probably nothing to worry about. He has been wearing a STARband since mid-March. I started researching on the internet and read about metopic synostosis and started worrying that the early closure of this suture might affect his brain development in the future. He doesn't fit the profile, except for the fact that the suture closed early. When I questioned his pediatric neurologist about my new found information, he recommended that we get a second opinion by a pediatric neurosurgeon. The neurosurgeon he recommended was the same guy I went to in the very beginning who just looked at my son and said everything was cosmetic and his head would probably round out on its own. I would like to know if anyone knows anything about when the metopic suture should close and the possible effects of its early closure. Any information would be extremely helpful.> > Thank you!!!!!> > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 , He doesn't have any noticable ridging across his forehead. Based on what the pediatric neurologist told me, I am pretty sure the metopic suture is closed. His head is already considered larger than most babies. His pediatric neurologist said his head was off the charts in percentiles when he was 6 months old and became concerned about too much fluid after a CatScan. By 8 months, the 3D CatScan showed the fluid level was considered normal for his larger than normal head. He said we wouldn't need to have a shunt put in because the fluid level had gone down and his head growth had slowed. Now his head is in the 90 something percentile instead of off the charts. I tried to get on the CAPPSkids by registering yesterday morning, but I can't get an email confirmation. The more I read on the internet, the more scared and confused I become. Our plan now is to get his catscans, take pictures, and write a letter and send it to the Dallas Cranial Tech. On their web page, they said they are willing to look at any scans, pictures, or letter and give you an evaluation and let you know what you should do. Hopefully we can get all that together and send it off by Monday. I will keep you posted. I really appreciate all of your help. I wish I wasn't the only one in my town going thru this - not that I would wish this on anyone. Thanks again! Re: sutures Hi ,Please check out this Cranio group: http://www.CAPPSkids.org/board They are a great group and will be able to answer your questions. Please keep us posted.> Hi. I haven't written in a while. Life gets really busy with so many doctor appointments. My son (9 months) had a 3D catscan done and we found out that his metopic suture is closed. This has not affected his brain development. There are no other sutures closed. His pediatric neurologist recommended that we should keep on having him wear his band and that there is probably nothing to worry about. He has been wearing a STARband since mid-March. I started researching on the internet and read about metopic synostosis and started worrying that the early closure of this suture might affect his brain development in the future. He doesn't fit the profile, except for the fact that the suture closed early. When I questioned his pediatric neurologist about my new found information, he recommended that we get a second opinion by a pediatric neurosurgeon. The neurosurgeon he recommended was the same guy I went to in the very beginning who just looked at my son and said everything was cosmetic and his head would probably round out on its own. I would like to know if anyone knows anything about when the metopic suture should close and the possible effects of its early closure. Any information would be extremely helpful.> > Thank you!!!!!> > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Hi again, I know that you feel alone. Do try again and get on the CAPPS board as there might be someone who lives near you. If you ever need to chat you know where I am. I know what you mean about having to face it alone. Speak to you soon Re: sutures Hi ,Please check out this Cranio group: http://www.CAPPSkids.org/board They are a great group and will be able to answer your questions. Please keep us posted.> Hi. I haven't written in a while. Life gets really busy with so many doctor appointments. My son (9 months) had a 3D catscan done and we found out that his metopic suture is closed. This has not affected his brain development. There are no other sutures closed. His pediatric neurologist recommended that we should keep on having him wear his band and that there is probably nothing to worry about. He has been wearing a STARband since mid-March. I started researching on the internet and read about metopic synostosis and started worrying that the early closure of this suture might affect his brain development in the future. He doesn't fit the profile, except for the fact that the suture closed early. When I questioned his pediatric neurologist about my new found information, he recommended that we get a second opinion by a pediatric neurosurgeon. The neurosurgeon he recommended was the same guy I went to in the very beginning who just looked at my son and said everything was cosmetic and his head would probably round out on its own. I would like to know if anyone knows anything about when the metopic suture should close and the possible effects of its early closure. Any information would be extremely helpful.> > Thank you!!!!!> > For more plagio info Quote Link to comment Share on other sites More sharing options...
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