Re: evaluation visit to Cranialfacial surgeon today...nervous

[Guest guest]

le,

I hope your craniofacial appt. goes well! I don't know if you're

like me, but I sometimes get flustered a bit when nervous, so take

along a written list of questions if you need to! There's a link

to " Questions for the Doctor " in the LINKS/HELMETS AND BANDS folder

if you think that will be of help. Please post and let us know what

they had to say regarding Jack's plagio when you have time!

Also, thank you for posting in detail your bean bag and vest repo

combo! I would love to have a photo of this idea in our FILES/REPO

HEADQUARTERS/REPO PHOTOS folder. We bring up this idea a lot on the

board, but we don't have a picture of this idea to share! Would you

be willing to take a picture and upload it to that folder? is

the photos guru, so don't worry about sizing if you aren't sure; she

will resize it for you. Any help would be appreciated!

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " danirich75 " <danirich75@y...>

wrote:

> Hi

> Jack is having his first evaluation visit with the cranialfacial

> surgeons at Children's Hospital Boston this afternoon. I am

anxious

> about what might be said, but am dying for a real professional

> opinion. We have been repo-ing for probably two

> months....unfortunately, despite all your advice about taking pix

I

> have not done so. But I can say Jack's plagio has not worsened,

and

> perhaps improved. I believe I shared my adaptation of the roll

> behind the shoulder some weeks ago.....but let me describe it

again.

> I created a rectangular bean bag with a velcro strip on one side

and

> a vest with the corresponding velcro strip in the middle of the

back

> of the vest. This tilts Jack's right shoulder up a bit to cause

his

> head to fall to the left, away from his flat spot.

> Our only problem has been " wet wakeups " and leaking through the

side

> of his diapers when he tries to keep turning to his left. Doulbe

> diapers have fixed that so far, and I'm looking into the

old " rubber

> pants " . I can deal with an occasional wet wakeup if his head

shape

> continues to improve.

> Anyway, wish us luck today. I'll let you all know how things turn

> out.

> Thanks for all your help.

>

> le

> mom to Jack, 5months with Right Tort and associated plagio

[Guest guest]

Good luck le!

I hope it goes well & you have a plagio knowledgeable specialist!

Let us know.

Debbie

--- In Plagiocephaly , " danirich75 " <danirich75@y...>

wrote:

> Hi

> Jack is having his first evaluation visit with the cranialfacial

> surgeons at Children's Hospital Boston this afternoon. I am

anxious

> about what might be said, but am dying for a real professional

> opinion. We have been repo-ing for probably two

> months....unfortunately, despite all your advice about taking pix

I

> have not done so. But I can say Jack's plagio has not worsened,

and

> perhaps improved. I believe I shared my adaptation of the roll

> behind the shoulder some weeks ago.....but let me describe it

again.

> I created a rectangular bean bag with a velcro strip on one side

and

> a vest with the corresponding velcro strip in the middle of the

back

> of the vest. This tilts Jack's right shoulder up a bit to cause

his

> head to fall to the left, away from his flat spot.

> Our only problem has been " wet wakeups " and leaking through the

side

> of his diapers when he tries to keep turning to his left. Doulbe

> diapers have fixed that so far, and I'm looking into the

old " rubber

> pants " . I can deal with an occasional wet wakeup if his head

shape

> continues to improve.

> Anyway, wish us luck today. I'll let you all know how things turn

> out.

> Thanks for all your help.

>

> le

> mom to Jack, 5months with Right Tort and associated plagio

[Guest guest]

Hi le,

How'd you make out today?

--- In Plagiocephaly , " danirich75 " <danirich75@y...>

wrote:

> Hi

> Jack is having his first evaluation visit with the cranialfacial

> surgeons at Children's Hospital Boston this afternoon. I am

anxious

> about what might be said, but am dying for a real professional

> opinion. We have been repo-ing for probably two

> months....unfortunately, despite all your advice about taking pix I

> have not done so. But I can say Jack's plagio has not worsened,

and

> perhaps improved. I believe I shared my adaptation of the roll

> behind the shoulder some weeks ago.....but let me describe it again.

> I created a rectangular bean bag with a velcro strip on one side

and

> a vest with the corresponding velcro strip in the middle of the

back

> of the vest. This tilts Jack's right shoulder up a bit to cause

his

> head to fall to the left, away from his flat spot.

> Our only problem has been " wet wakeups " and leaking through the

side

> of his diapers when he tries to keep turning to his left. Doulbe

> diapers have fixed that so far, and I'm looking into the

old " rubber

> pants " . I can deal with an occasional wet wakeup if his head shape

> continues to improve.

> Anyway, wish us luck today. I'll let you all know how things turn

> out.

> Thanks for all your help.

>

> le

> mom to Jack, 5months with Right Tort and associated plagio

[Guest guest]

Hello le

It sounds great the repo is working. I hope it continues to do so.

Good luck today

Sandy Willow's Mom

--- In Plagiocephaly , " danirich75 " <danirich75@y...>

wrote:

> Hi

> Jack is having his first evaluation visit with the cranialfacial

> surgeons at Children's Hospital Boston this afternoon. I am

anxious

> about what might be said, but am dying for a real professional

> opinion. We have been repo-ing for probably two

> months....unfortunately, despite all your advice about taking pix

I

> have not done so. But I can say Jack's plagio has not worsened,

and

> perhaps improved. I believe I shared my adaptation of the roll

> behind the shoulder some weeks ago.....but let me describe it

again.

> I created a rectangular bean bag with a velcro strip on one side

and

> a vest with the corresponding velcro strip in the middle of the

back

> of the vest. This tilts Jack's right shoulder up a bit to cause

his

> head to fall to the left, away from his flat spot.

> Our only problem has been " wet wakeups " and leaking through the

side

> of his diapers when he tries to keep turning to his left. Doulbe

> diapers have fixed that so far, and I'm looking into the

old " rubber

> pants " . I can deal with an occasional wet wakeup if his head

shape

> continues to improve.

> Anyway, wish us luck today. I'll let you all know how things turn

> out.

> Thanks for all your help.

>

> le

> mom to Jack, 5months with Right Tort and associated plagio

[Guest guest]

le,

How'd the appt go? Let us know when you can!

, mom to Hannah, DOC #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " danirich75 " <danirich75@y...>

wrote:

> Hi

> Jack is having his first evaluation visit with the cranialfacial

> surgeons at Children's Hospital Boston this afternoon. I am

anxious

> about what might be said, but am dying for a real professional

> opinion. We have been repo-ing for probably two

> months....unfortunately, despite all your advice about taking pix

I

> have not done so. But I can say Jack's plagio has not worsened,

and

> perhaps improved. I believe I shared my adaptation of the roll

> behind the shoulder some weeks ago.....but let me describe it

again.

> I created a rectangular bean bag with a velcro strip on one side

and

> a vest with the corresponding velcro strip in the middle of the

back

> of the vest. This tilts Jack's right shoulder up a bit to cause

his

> head to fall to the left, away from his flat spot.

> Our only problem has been " wet wakeups " and leaking through the

side

> of his diapers when he tries to keep turning to his left. Doulbe

> diapers have fixed that so far, and I'm looking into the

old " rubber

> pants " . I can deal with an occasional wet wakeup if his head

shape

> continues to improve.

> Anyway, wish us luck today. I'll let you all know how things turn

> out.

> Thanks for all your help.

>

> le

> mom to Jack, 5months with Right Tort and associated plagio