JADEN'S x~ray results :o(

June 15, 2004

Howdy everyone,

First off, I am sorry I haven't posted much. I have been waiting

and waiting for today to come, and that is to find out if Jaden has

scoliosis or any other abnormality. I looked at his x~rays myself

at some length, determining on my own that he has scoliosis, as I

happened to see a slight curve in his spine. I was right. The Dr.

said it's mild, and wants to keep a close watch on him and will see

him again in 6 months. Since being on this board and on the tort

board, I have learned from everyone that a certified pede chiro

might be able to correct this, and I suggested this to him. He was

not against it (Kim in MN, it was Dr. that I spoke w/

today). Then Jaden saw his PT, and she asked me what he said, I

told her, and she said, " off the record, DO IT, get him to a chiro "

and she is going to email me w/ contact info for someone who is

qualified to help him. In the meantime, I have been feeling guilty

that his tort is not coming along as good as it should have by now,

and asked her to give us a goal of how much to do his exercises

every day, she said 8 x's, but that I should actually make the

football hold the way to hold him from now on no exception. And I

have also been using the kineso tape on him for a week but haven't

noticed any difference, so we are taping not only the sides of his

neck but the back also (his right trap). Good lord, I was having a

hard enough time doing the sides, now I have to do the back? I

usually tape the sides when he falls asleep, but how the heck do I

do the back? I'll just have to have hubby help while he's awake for

this one. And on top of all THIS crap, Ann told me she will no

longer be w/ Gillette after the end of this month, meaning I have to

find a PT who is just as good as her w/ Jaden. I heard thru my mom

who works at a local hsptl that another local hsptl has an excellent

PT program (Virginia hspt;), so I'll be giving a call over there and

choose the best one that I think Jaden will agree w/, and then have

him/her do a phone consult w/ Ann before our last session w/ her

before Jaden starts PT w/ the new person.

What a lot to deal w/. I am feeling guilty that I am just not doing

enough for him, and I really believe that his tort won't get any

better if his scoliosis isn't corrected, because you can see his

spine on his x~ray tilting in the opposite direction in order to

accomodate his tort to help " straighten " him out. Am I right to

think this? I always believed that things need to be aligned from

the bottom before they can be aligned up.

So that is about it. I have also decided to give Jaden Zantac as

needed when I see him " chewing " from a burp because I just don't

want his esophagus scarred. I have to call his pede and get the

correct dosage, as he's now 17 & 1/2 lbs and just turned 7 months

old on Monday! YEY! The pede said I'd " know " if he needed it or

not when I questioned whether or not to keep him on it, because I

believed it was making things worse, but I am seeing that it was

just a coincidence now. I myself use Zantac, and I don't like using

drugs, so I feel comfortable having him use this because I have had

a good response to it also.

Oh and one more thing, we are trying the tape on the back of his

neck for now, because she suggested the use of a collar for his

tilt. Can someone explain to me what a TOT collar is or if there

are different kinds of collars out there, what their benefits are

and how long they are used for and during what circumstances, ie:

sleeping, napping, and so forth? and if they interfere w/ the

wearing of a band? I told her I wanted to try the tape first before

we consider that. I mentioned it to my hubby, he grimaced, because

apparantly it's hard enough seeing Jaden in a band, let alone

a " collar " . He can't wait for that band to come off, he thinks

Jaden is just so adorable and loves looking at the " whole " little

man.

His orthotist feels his head is coming along nicely and is rounding

out well. I told Steve that I still have concerns about the quality

of his cap, but we did speak about it at some length, and I

expressed my concerns about his facial asymmetry. I forgot to bring

Jaden's pics to show his weekly/monthly progress and the one of his

improved ear alignment. I'll do that next week. I asked him what

measurements they use to tell if his head is " round " , and the answer

he gave was since it's a passive band, they usually complete the

rounding on their own after they grow out of the band, which makes

sense for their band. I'm explaining it crappy here, sorry about

that, but it all made sense to me when we spoke. I am so mentally

drained right now so it's hard to think, we had a very long day.

Thanks for listening everyone, I know it's a long post. Please

chime in and answer my questions if you can, I'd appreciate it.

~Amy, mommy to Jaden 7 mo's MN, plagio/mild tort/mild scoliosis,

started CranioCap 4/23/04

June 16, 2004

Hi Amy,

I'm sorry you're having to go through this! Though I haven't had to

go through the scoliosis part, I know there is prob some here that

have, and definately in the tort group. I'm sure they can offer some

opinions on that as well as the tot collar... I know there are some

over on the tort side that have used that.

It's frustrating and I know how you feel about feeling guilty... it

sucks, huh? I feel that way sometimes, too. I'm a lil happy to hear

that its MILD... that is the key word. I too, would take him to a

chiro. A friend of mine goes to one and she swears by him... I myself

have never been.

The kinesio tape, you may not see results right away... I didn't not

RIGHT away. We used it on his back, arms and neck. But, key thing

there, I brought him in to have it done... I give you much credit for

even trying!

One of the other moms at Gillette told me a name of a couple ped PTs

at polinksy rehab, I am going to probably bring Jax there. We see Dr

on Tuesday so I will have him write the script then. When Ann

told me she was leaving I thought I was gonna cry..lol.. I adore her

and so does Jaxson. But, she's moving on with just her own thing so I

GUESS im happy for her. HMPH. Im going to get her something.. just

have to figure out what. I told her yesterday that I dont think I'm

going to keep working with Russ (the PT that they bring in for Jax).

I told her he's just not comfortable even holding Jax.. how the heck

with he help him.

Jaxson is coming along ok with his sitting and stuff.. he FINALLY

gets into a side position to grab for stuff which is new as of this

past weekend. Ann was thrilled. It's a huge deal for us whenever he

does anything.

She talked to me today about the different type braces they can do

for Jax's feet. Dr will discuss with us on Tues, but I really

think Jax will benefit from them.. the kind with the metal type brace

connecting the feet. He has SMO's now, but Ann isn't sure she likes

the kind he has now.. they cover his toes. So, she wants new ones

made, if possible.

Oh, the ladies name at the desk .. longer hair, short in

height? She's great. I love them all... for awhile we saw them 2-3

times a week... and they love kids. So unlike other clinics when

you walk in with your kid they kinda just ignore you and the baby..

definately not the case here.

Ok, I'm done with my babble. I'm going to be thinking about you guys

and hoping that the scoliosis clears up by a chiro.. let me know when

you go and how it is... I have thought about it, just never did.

Oh, and yeah, he's sick again. Since he was in the hospital he has

been sick 3 times! my gosh! And, another odd thing... every time he

umm, fills his pants, he throws up. What's with that??

Take care, Amy.. lots of hugs to Jaden.

Kim

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> First off, I am sorry I haven't posted much. I have been waiting

> and waiting for today to come, and that is to find out if Jaden has

> scoliosis or any other abnormality. I looked at his x~rays myself

> at some length, determining on my own that he has scoliosis, as I

> happened to see a slight curve in his spine. I was right. The Dr.

> said it's mild, and wants to keep a close watch on him and will see

> him again in 6 months. Since being on this board and on the tort

> board, I have learned from everyone that a certified pede chiro

> might be able to correct this, and I suggested this to him. He was

> not against it (Kim in MN, it was Dr. that I spoke w/

> today). Then Jaden saw his PT, and she asked me what he said, I

> told her, and she said, " off the record, DO IT, get him to a chiro "

> and she is going to email me w/ contact info for someone who is

> qualified to help him. In the meantime, I have been feeling guilty

> that his tort is not coming along as good as it should have by now,

> and asked her to give us a goal of how much to do his exercises

> every day, she said 8 x's, but that I should actually make the

> football hold the way to hold him from now on no exception. And I

> have also been using the kineso tape on him for a week but haven't

> noticed any difference, so we are taping not only the sides of his

> neck but the back also (his right trap). Good lord, I was having a

> hard enough time doing the sides, now I have to do the back? I

> usually tape the sides when he falls asleep, but how the heck do I

> do the back? I'll just have to have hubby help while he's awake

for

> this one. And on top of all THIS crap, Ann told me she will no

> longer be w/ Gillette after the end of this month, meaning I have

to

> find a PT who is just as good as her w/ Jaden. I heard thru my mom

> who works at a local hsptl that another local hsptl has an

excellent

> PT program (Virginia hspt;), so I'll be giving a call over there

and

> choose the best one that I think Jaden will agree w/, and then have

> him/her do a phone consult w/ Ann before our last session w/ her

> before Jaden starts PT w/ the new person.

>

> What a lot to deal w/. I am feeling guilty that I am just not

doing

> enough for him, and I really believe that his tort won't get any

> better if his scoliosis isn't corrected, because you can see his

> spine on his x~ray tilting in the opposite direction in order to

> accomodate his tort to help " straighten " him out. Am I right to

> think this? I always believed that things need to be aligned from

> the bottom before they can be aligned up.

>

> So that is about it. I have also decided to give Jaden Zantac as

> needed when I see him " chewing " from a burp because I just don't

> want his esophagus scarred. I have to call his pede and get the

> correct dosage, as he's now 17 & 1/2 lbs and just turned 7 months

> old on Monday! YEY! The pede said I'd " know " if he needed it or

> not when I questioned whether or not to keep him on it, because I

> believed it was making things worse, but I am seeing that it was

> just a coincidence now. I myself use Zantac, and I don't like

using

> drugs, so I feel comfortable having him use this because I have had

> a good response to it also.

>

> Oh and one more thing, we are trying the tape on the back of his

> neck for now, because she suggested the use of a collar for his

> tilt. Can someone explain to me what a TOT collar is or if there

> are different kinds of collars out there, what their benefits are

> and how long they are used for and during what circumstances, ie:

> sleeping, napping, and so forth? and if they interfere w/ the

> wearing of a band? I told her I wanted to try the tape first

before

> we consider that. I mentioned it to my hubby, he grimaced, because

> apparantly it's hard enough seeing Jaden in a band, let alone

> a " collar " . He can't wait for that band to come off, he thinks

> Jaden is just so adorable and loves looking at the " whole " little

> man.

>

> His orthotist feels his head is coming along nicely and is rounding

> out well. I told Steve that I still have concerns about the

quality

> of his cap, but we did speak about it at some length, and I

> expressed my concerns about his facial asymmetry. I forgot to

bring

> Jaden's pics to show his weekly/monthly progress and the one of his

> improved ear alignment. I'll do that next week. I asked him what

> measurements they use to tell if his head is " round " , and the

answer

> he gave was since it's a passive band, they usually complete the

> rounding on their own after they grow out of the band, which makes

> sense for their band. I'm explaining it crappy here, sorry about

> that, but it all made sense to me when we spoke. I am so mentally

> drained right now so it's hard to think, we had a very long day.

>

> Thanks for listening everyone, I know it's a long post. Please

> chime in and answer my questions if you can, I'd appreciate it.

>

> ~Amy, mommy to Jaden 7 mo's MN, plagio/mild tort/mild scoliosis,

> started CranioCap 4/23/04

June 16, 2004

Hi Amy,

SOrry to hear about Jaden's results . I really hope the

chiropractor is able to get good results. Hannah didn't have tort,

so unfortunately I can't help you w/your other questions, but I'm

sure others will chime in. Hang in there!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

>

> > Howdy everyone,

> > First off, I am sorry I haven't posted much. I have been

waiting

> > and waiting for today to come, and that is to find out if Jaden

has

> > scoliosis or any other abnormality. I looked at his x~rays

myself

> > at some length, determining on my own that he has scoliosis, as

I

> > happened to see a slight curve in his spine. I was right. The

Dr.

> > said it's mild, and wants to keep a close watch on him and will

see

> > him again in 6 months. Since being on this board and on the

tort

> > board, I have learned from everyone that a certified pede chiro

> > might be able to correct this, and I suggested this to him. He

was

> > not against it (Kim in MN, it was Dr. that I spoke w/

> > today). Then Jaden saw his PT, and she asked me what he said, I

> > told her, and she said, " off the record, DO IT, get him to a

chiro "

> > and she is going to email me w/ contact info for someone who is

> > qualified to help him. In the meantime, I have been feeling

guilty

> > that his tort is not coming along as good as it should have by

now,

> > and asked her to give us a goal of how much to do his exercises

> > every day, she said 8 x's, but that I should actually make the

> > football hold the way to hold him from now on no exception. And

I

> > have also been using the kineso tape on him for a week but

haven't

> > noticed any difference, so we are taping not only the sides of

his

> > neck but the back also (his right trap). Good lord, I was

having a

> > hard enough time doing the sides, now I have to do the back? I

> > usually tape the sides when he falls asleep, but how the heck do

I

> > do the back? I'll just have to have hubby help while he's awake

> for

> > this one. And on top of all THIS crap, Ann told me she will no

> > longer be w/ Gillette after the end of this month, meaning I

have

> to

> > find a PT who is just as good as her w/ Jaden. I heard thru my

mom

> > who works at a local hsptl that another local hsptl has an

> excellent

> > PT program (Virginia hspt;), so I'll be giving a call over there

> and

> > choose the best one that I think Jaden will agree w/, and then

have

> > him/her do a phone consult w/ Ann before our last session w/ her

> > before Jaden starts PT w/ the new person.

> >

> > What a lot to deal w/. I am feeling guilty that I am just not

> doing

> > enough for him, and I really believe that his tort won't get any

> > better if his scoliosis isn't corrected, because you can see his

> > spine on his x~ray tilting in the opposite direction in order to

> > accomodate his tort to help " straighten " him out. Am I right to

> > think this? I always believed that things need to be aligned

from

> > the bottom before they can be aligned up.

> >

> > So that is about it. I have also decided to give Jaden Zantac

as

> > needed when I see him " chewing " from a burp because I just don't

> > want his esophagus scarred. I have to call his pede and get the

> > correct dosage, as he's now 17 & 1/2 lbs and just turned 7

months

> > old on Monday! YEY! The pede said I'd " know " if he needed it

or

> > not when I questioned whether or not to keep him on it, because

I

> > believed it was making things worse, but I am seeing that it was

> > just a coincidence now. I myself use Zantac, and I don't like

> using

> > drugs, so I feel comfortable having him use this because I have

had

> > a good response to it also.

> >

> > Oh and one more thing, we are trying the tape on the back of his

> > neck for now, because she suggested the use of a collar for his

> > tilt. Can someone explain to me what a TOT collar is or if

there

> > are different kinds of collars out there, what their benefits

are

> > and how long they are used for and during what circumstances,

ie:

> > sleeping, napping, and so forth? and if they interfere w/ the

> > wearing of a band? I told her I wanted to try the tape first

> before

> > we consider that. I mentioned it to my hubby, he grimaced,

because

> > apparantly it's hard enough seeing Jaden in a band, let alone

> > a " collar " . He can't wait for that band to come off, he thinks

> > Jaden is just so adorable and loves looking at the " whole "

little

> > man.

> >

> > His orthotist feels his head is coming along nicely and is

rounding

> > out well. I told Steve that I still have concerns about the

> quality

> > of his cap, but we did speak about it at some length, and I

> > expressed my concerns about his facial asymmetry. I forgot to

> bring

> > Jaden's pics to show his weekly/monthly progress and the one of

his

> > improved ear alignment. I'll do that next week. I asked him

what

> > measurements they use to tell if his head is " round " , and the

> answer

> > he gave was since it's a passive band, they usually complete the

> > rounding on their own after they grow out of the band, which

makes

> > sense for their band. I'm explaining it crappy here, sorry

about

> > that, but it all made sense to me when we spoke. I am so

mentally

> > drained right now so it's hard to think, we had a very long day.

> >

> > Thanks for listening everyone, I know it's a long post. Please

> > chime in and answer my questions if you can, I'd appreciate it.

> >

> > ~Amy, mommy to Jaden 7 mo's MN, plagio/mild tort/mild scoliosis,

> > started CranioCap 4/23/04

June 16, 2004

Hi Amy

I'm sorry to hear that they did indeed find scoliosis in Jaden. I

do hope you will find a good chiro that will be able to help him.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> First off, I am sorry I haven't posted much. I have been waiting

> and waiting for today to come, and that is to find out if Jaden

has

> scoliosis or any other abnormality. I looked at his x~rays myself

> at some length, determining on my own that he has scoliosis, as I

> happened to see a slight curve in his spine. I was right. The

Dr.

> said it's mild, and wants to keep a close watch on him and will

see

> him again in 6 months. Since being on this board and on the tort

> board, I have learned from everyone that a certified pede chiro

> might be able to correct this, and I suggested this to him. He

was

> not against it (Kim in MN, it was Dr. that I spoke w/

> today). Then Jaden saw his PT, and she asked me what he said, I

> told her, and she said, " off the record, DO IT, get him to a

chiro "

> and she is going to email me w/ contact info for someone who is

> qualified to help him. In the meantime, I have been feeling

guilty

> that his tort is not coming along as good as it should have by

now,

> and asked her to give us a goal of how much to do his exercises

> every day, she said 8 x's, but that I should actually make the

> football hold the way to hold him from now on no exception. And I

> have also been using the kineso tape on him for a week but haven't

> noticed any difference, so we are taping not only the sides of his

> neck but the back also (his right trap). Good lord, I was having

a

> hard enough time doing the sides, now I have to do the back? I

> usually tape the sides when he falls asleep, but how the heck do I

> do the back? I'll just have to have hubby help while he's awake

for

> this one. And on top of all THIS crap, Ann told me she will no

> longer be w/ Gillette after the end of this month, meaning I have

to

> find a PT who is just as good as her w/ Jaden. I heard thru my

mom

> who works at a local hsptl that another local hsptl has an

excellent

> PT program (Virginia hspt;), so I'll be giving a call over there

and

> choose the best one that I think Jaden will agree w/, and then