Re: not yet diagnosed but doing research

[Guest guest]

Hi ,

Welcome to the group! I hope we can help you with Christian's

situation.

With Christian being so young, you are on the right track to have

started repositioning, and especially to have taken progress

photos. We have a lot of tips, ideas, and products for

repositioning here at the group site in the LINKS/REPO AND TUMMY

TIME section, and the FILES/REPO HEADQUARTERS section. When you

have time, please browse around and see if you see anything that

might help. I was able to successfully repo my daughter Remy, and

we did not have to use a helmet/band. If you would like to see her

progress photos, you can check them out in the PHOTOS/BEFORE AND

AFTER/REPOSITIONED folder. Have you been able to work in some tummy

time? Is Christian off of his flat area all the time? Have you had

any success with positioning his head off of the flat area at

nighttime?

You mentioned that he always had preffered his left side -- there is

a very common condition called " torticollis, " which the majority of

plagio babies have. With tort, the baby head has a tilt/turn, and

there is a limited range of motion in the head/neck area. If a baby

has tort, it will be exremely difficult to reposition successfully.

Usually the tort has to be resolved through PT and stretching

exercises before you will see results from repo. Do you know if

your ped examined Christian for tort?

You also posted that Christian is so flat on the one side, that the

other side is noticeably bulging. Many babies with plagio also have

accompanying asymmetries such as forehead bossing, ear misalignment,

and facial asymmetry (one eye appearing a little larger than the

other, etc.) The best way to check for these types of asymmetries

is to view the baby from the top of the head down, from the chin

view up, and by holding the baby in front of the mirror and looking

at the reflection. Do you know if Christian has any of these types

of asymmetries in addition to the flatness/bulging at the back of

his head? What severity would youy say he is?

Remy was a good candidate for repo. She did not have tort or

facial/forehead/ear asymmetries, just the flattened area at the back

of the head, which I judged to be moderate. She was our only child,

and also wasn't in daycare, so we were able to devote 100% of our

time and energy to her aggressive repo. It was totally exhausting,

a very difficult job, and we kept it up for months. We have several

parents here at the group currently repo'ing with good success, and

they are a wonderful source of support and ideas!

Repo is not for everyone's situation. Progress photos are key, so

that you can know right away if repo is not working or has stalled.

Ruling out tort is also critical, because if your baby has tort, it

may be best to put your energy into PT/stretching, and go ahead and

explore your helmeting/banding options. If you end up going down

the helmet/band road, you have many, many parents here who can help

you every step of the way with your concerns and questions. I have

read before that medicaid in another state did cover the band. You

should go ahead and start making those coverage calls to see where

are as far as that's concerned. The helmet/bands can cost $1000 to

over $3000, so there is a wide range of expense there. Many times

you can have a payment plan arrangement, but that may vary from

helmet brand to brand, and facility to facility. Where are you in

Florida? Have you checked out the Helmet/Band Database in the

Database section of the group to see what locations and types of

bands are available in your area?

Would you let me know if I can be of any help? Also, I would love

to hear an update on your Fla. medicaid coverage, as well as how

your repo progress is coming along when you take an updated photo.

Take care,

Christie (Mom to Repo'd Remy)

> I hope I am posting this in the right spot! My son Christian will

> be 4 months April 18. at his last check up at about 3 months the

dr

> was very concerned about his flat spot. He has always prefered

his

> left side and sleeps exclusively on his back. his head has gotten

> so flat on that side that the other side is very noticably

bulging.

> I am very concerned. His doc never said " plagio " but I have he

> feeling this is the direction we are heading. I feel like I need

> guidance since I have never known anyone who has dealt with this.

I

> have never heard of this passive stuff and would like some

> clarification on that. If anyone knows if Medicaid in Florida

> covers helmets please let me know. And if its not covered what

kind

> of out of pocket expenses am I looking at. I love my baby but I

> find myself explaining his flat spot to people even if theyt have

> not asked. It is just so obvious and I would like to take care of

> this asap. I would love to show pics so if there is a way please

> tell me how. I have a pic from March 17 of his flat spot and have

> been trying to reposition him as much asd possible but I am not

sure

> it has made any difference. I will take another pic soon to

> compare.

>

> Whew, I am sorry to have made this so long but it has been on my

> mind so much lately.

>

> Thanks and I look forward to your responses.

>

> Mom to Jocelyn and Christian

[Guest guest]

Hi,

I see you've received a lot of input already, so I'll just welcome

you to the group, welcome!

> I hope I am posting this in the right spot! My son Christian will

> be 4 months April 18. at his last check up at about 3 months the

dr

> was very concerned about his flat spot. He has always prefered his

> left side and sleeps exclusively on his back. his head has gotten

> so flat on that side that the other side is very noticably

bulging.

> I am very concerned. His doc never said " plagio " but I have he

> feeling this is the direction we are heading. I feel like I need

> guidance since I have never known anyone who has dealt with this.

I

> have never heard of this passive stuff and would like some

> clarification on that. If anyone knows if Medicaid in Florida

> covers helmets please let me know. And if its not covered what

kind

> of out of pocket expenses am I looking at. I love my baby but I

> find myself explaining his flat spot to people even if theyt have

> not asked. It is just so obvious and I would like to take care of

> this asap. I would love to show pics so if there is a way please

> tell me how. I have a pic from March 17 of his flat spot and have

> been trying to reposition him as much asd possible but I am not

sure

> it has made any difference. I will take another pic soon to

> compare.

>

> Whew, I am sorry to have made this so long but it has been on my

> mind so much lately.

>

> Thanks and I look forward to your responses.

>

> Mom to Jocelyn and Christian

[Guest guest]

> > I hope I am posting this in the right spot! My son Christian

will

> > be 4 months April 18. at his last check up at about 3 months

the

> dr

> > was very concerned about his flat spot. He has always prefered

> his

> > left side and sleeps exclusively on his back. his head has

gotten

> > so flat on that side that the other side is very noticably

> bulging.

> > I am very concerned. His doc never said " plagio " but I have he

> > feeling this is the direction we are heading. I feel like I

need

> > guidance since I have never known anyone who has dealt with

this.

> I

> > have never heard of this passive stuff and would like some

> > clarification on that. If anyone knows if Medicaid in Florida

> > covers helmets please let me know. And if its not covered what

> kind

> > of out of pocket expenses am I looking at. I love my baby but I

> > find myself explaining his flat spot to people even if theyt

have

> > not asked. It is just so obvious and I would like to take care

of

> > this asap. I would love to show pics so if there is a way

please

> > tell me how. I have a pic from March 17 of his flat spot and

have

> > been trying to reposition him as much asd possible but I am not

> sure

> > it has made any difference. I will take another pic soon to

> > compare.

> >

> > Whew, I am sorry to have made this so long but it has been on my

> > mind so much lately.

> >

> > Thanks and I look forward to your responses.

> >

> > Mom to Jocelyn and Christian

[Guest guest]

> > I hope I am posting this in the right spot! My son Christian

will

> > be 4 months April 18. at his last check up at about 3 months

the

> dr

> > was very concerned about his flat spot. He has always prefered

his

> > left side and sleeps exclusively on his back. his head has

gotten

> > so flat on that side that the other side is very noticably

> bulging.

> > I am very concerned. His doc never said " plagio " but I have he

> > feeling this is the direction we are heading. I feel like I

need

> > guidance since I have never known anyone who has dealt with

this.

> I

> > have never heard of this passive stuff and would like some

> > clarification on that. If anyone knows if Medicaid in Florida

> > covers helmets please let me know. And if its not covered what

> kind

> > of out of pocket expenses am I looking at. I love my baby but I

> > find myself explaining his flat spot to people even if theyt

have

> > not asked. It is just so obvious and I would like to take care

of

> > this asap. I would love to show pics so if there is a way

please

> > tell me how. I have a pic from March 17 of his flat spot and

have

> > been trying to reposition him as much asd possible but I am not

> sure

> > it has made any difference. I will take another pic soon to

> > compare.

> >

> > Whew, I am sorry to have made this so long but it has been on my

> > mind so much lately.

> >

> > Thanks and I look forward to your responses.

> >

> > Mom to Jocelyn and Christian