Nervous about helmet fitting (UK)

[Guest guest]

Hello all. Hope everyone is well.

Well, it's Isis's helmet fitting tomorrow with Dr Blecher. I wasn't

nervous before, but for some reason anxiety is kicking in good

and proper now. I think it's the weather. It's very hot and humid

here in the UK at the moment and it's going to get hotter

tomorrow. London is going to be so stuffy and airless, but it's the

train journey home that is worrying me more. I know that when

the helmet is first fitted, the baby's head gets very sweaty and

heat distribution is mucked about a bit. I'm just worried that it's

not going to be good introduction to the helmet for Isis. Has

anyone got any tips on how to make her more comfortable?

Also, I'm supposing there must be other UK-ers going to see Dr

Blecher tomorrow... does anybody fancy meeting up for a coffee?

I'm going to go and dunk my feet in the kids' paddling pool now.

Take care all.

Faye x (Hampshire, UK)

mum to Caitlyn-10yrs (reg. blind, SOD, EDS), Harvey-5yrs (EDS),

Isis-6mths (severe plagio, EDS)

[Guest guest]

Hi Faye

I went to see Dr Blecher today and I think you'll be fine. It is hot

and humid at the moment (you US people won't believe us!), but you

can definitely work around that. Dr Blecher is sooo reassuring- and

as many people have said time and time again in this group- once you

start the process, it's much better than waiting and feeling that

dread and anticipation. Everyone feels anxious before they get the

helmet, honestly. I really did- i felt like I was going to cry on

that day (and I did on the way home). But I feel so different now,

four weeks after we picked up her helmet.

You're on your way to getting this sorted, and that's a much better

feeling than sitting around thinking 'my baby's head looks funny and

the doctor said it would be ok, but I'm still worried and anxious'

etc... And the good news is that change can come quite quickly with

severe plagio- my little daughter (also severe) has seen a fantastic

improvement with her helmet in just four weeks- from 2.3cm to 1.1cm.

I'm sure Isis will adapt very quickly to the new situation and you

will too.

As for the heat- I guess you just have to see how it goes on the

journey home. Dr Blecher is very inspiring in terms of making you

get on with the treatment right away. Like you I was thinking, it

will be too hot on the Tube, she'll overheat- but he suggested just

popping it on and getting on with it- it's easy otherwise to find

excuses to delay going the 23 hours with it- and she was absolutely

fine. If Isis really seems hot and bothered you can simply remove it

for a short while and then pop it back on later.They adjust much

better than you think. One good thing to do is dress Isis as lightly

as possible- in this weather just a little all-in-one or a thin

cotton dress, as this will keep her cooler, plus drinks etc.

Hope this helps-good luck and hope you meet some other UK mums

tomorrow to give a bit of extra reassurance!

Hanah (mum to Lucia)

> Hello all. Hope everyone is well.

>

> Well, it's Isis's helmet fitting tomorrow with Dr Blecher. I

wasn't

> nervous before, but for some reason anxiety is kicking in good

> and proper now. I think it's the weather. It's very hot and humid

> here in the UK at the moment and it's going to get hotter

> tomorrow. London is going to be so stuffy and airless, but it's

the

> train journey home that is worrying me more. I know that when

> the helmet is first fitted, the baby's head gets very sweaty and

> heat distribution is mucked about a bit. I'm just worried that

it's

> not going to be good introduction to the helmet for Isis. Has

> anyone got any tips on how to make her more comfortable?

>

> Also, I'm supposing there must be other UK-ers going to see Dr

> Blecher tomorrow... does anybody fancy meeting up for a coffee?

>

> I'm going to go and dunk my feet in the kids' paddling pool now.

> Take care all.

>

> Faye x (Hampshire, UK)

> mum to Caitlyn-10yrs (reg. blind, SOD, EDS), Harvey-5yrs (EDS),

> Isis-6mths (severe plagio, EDS)

[Guest guest]

Hello Faya

It's totally normal to be nervous. If it gets too hot on your way

home, you can always take the helmet off till you get home. You will

be surprised tomorrow. Dr. Blecher does a great job. Willow's band

was a great fit, and she slept on the way home with it. Didn't

bother her one bit. It wasn't summer, but in general the helmet

didn't bother her. Good luck and let us know how it goes.

Tell Dr. Blecher that the Palmer's say hello. Specially Willow as

she had post helmet rounding. ) Also make sure that you ask

whatever ?s you might have. He is great in sitting down with you to

answer them all.

Sandy WIllow's Mom

Torticollis resolved

Cranio Germany Grad

> Hello all. Hope everyone is well.

>

> Well, it's Isis's helmet fitting tomorrow with Dr Blecher. I wasn't

> nervous before, but for some reason anxiety is kicking in good

> and proper now. I think it's the weather. It's very hot and humid

> here in the UK at the moment and it's going to get hotter

> tomorrow. London is going to be so stuffy and airless, but it's the

> train journey home that is worrying me more. I know that when

> the helmet is first fitted, the baby's head gets very sweaty and

> heat distribution is mucked about a bit. I'm just worried that it's

> not going to be good introduction to the helmet for Isis. Has

> anyone got any tips on how to make her more comfortable?

>

> Also, I'm supposing there must be other UK-ers going to see Dr

> Blecher tomorrow... does anybody fancy meeting up for a coffee?

>

> I'm going to go and dunk my feet in the kids' paddling pool now.

> Take care all.

>

> Faye x (Hampshire, UK)

> mum to Caitlyn-10yrs (reg. blind, SOD, EDS), Harvey-5yrs (EDS),

> Isis-6mths (severe plagio, EDS)

[Guest guest]

Hi Faye

I wrote you a really long reply, but it hasn't appeared. It's the

second message I've lost tonight, not sure if there is a problem...

Anyway- I'll repeat more or less what I said ( I do ramble on, I

know!) which is that I really sympathise with how you are feeling, I

was EXACTLY the same four weeks ago, really nervous, worried about

the heat on the Tube, and generally wishing I hadn't embarked on

this whole enterprise. I cried on the way home on the train, mostly

through stress-relief after all the anxiety! The good news is that

you will honestly feel better in a few weeks time,in fact in a few

days time. And when you see the result, like I did today whe I found

out Lucia was doing really really well(I went to see Dr Blecher for

our first four week check),you feel so pleased that you can hardly

remember the anxiety and worry you went through beforehand.

Now for the heat...(I know you US people will think we are

exaggerating, but it is very very humid here, honest!)- I was

worried about the Tube on the first day, but Dr Blecher was very

reassuring and just popped the helmet on her head and said go with

it, she'll be fine- and she was. I think he knows us parents tend to

want to delay the awful moment of actually putting the helmet on for

23 hours a day and tend to come up with excuses (I'll put it on

tomorrow morning etc). His confidence is inspiring, and gave me the

confidence to just plop it on her head for 23 hours a day from the

start and to sleep in it the first night and she was fine. The heat

cna be a problem though, so i would dress her really lightly, just a

little all-in-one or a cotton summer dress (as little as you can get

away with), take drinks, and be prepared to take the hemlet off if

she seems to be bothered by it (you can just take it off for 10 min

to let her cool down). But it may well not be a problem, it's only

in the real heat that it is unbearable (as there was a bit of a

breeze in Central London today, believe it or not). I took it off

for 15 min on the Tube today, but kept it on the rest of the journey.

Hope this helps, and hope you find some other UK mums to meet

tomorrow for extra reassurance and to say hi! Let us know how you

get on.

Hannah (mum to Lucia)

> Hello all. Hope everyone is well.

>

> Well, it's Isis's helmet fitting tomorrow with Dr Blecher. I

wasn't

> nervous before, but for some reason anxiety is kicking in good

> and proper now. I think it's the weather. It's very hot and humid

> here in the UK at the moment and it's going to get hotter

> tomorrow. London is going to be so stuffy and airless, but it's

the

> train journey home that is worrying me more. I know that when

> the helmet is first fitted, the baby's head gets very sweaty and

> heat distribution is mucked about a bit. I'm just worried that

it's

> not going to be good introduction to the helmet for Isis. Has

> anyone got any tips on how to make her more comfortable?

>

> Also, I'm supposing there must be other UK-ers going to see Dr

> Blecher tomorrow... does anybody fancy meeting up for a coffee?

>

> I'm going to go and dunk my feet in the kids' paddling pool now.

> Take care all.

>

> Faye x (Hampshire, UK)

> mum to Caitlyn-10yrs (reg. blind, SOD, EDS), Harvey-5yrs (EDS),

> Isis-6mths (severe plagio, EDS)

[Guest guest]

Hello Faya

Please let us know how the appointment went today. good luck

Sandy

> Hello all. Hope everyone is well.

>

> Well, it's Isis's helmet fitting tomorrow with Dr Blecher. I wasn't

> nervous before, but for some reason anxiety is kicking in good

> and proper now. I think it's the weather. It's very hot and humid

> here in the UK at the moment and it's going to get hotter

> tomorrow. London is going to be so stuffy and airless, but it's the

> train journey home that is worrying me more. I know that when

> the helmet is first fitted, the baby's head gets very sweaty and

> heat distribution is mucked about a bit. I'm just worried that it's

> not going to be good introduction to the helmet for Isis. Has

> anyone got any tips on how to make her more comfortable?

>

> Also, I'm supposing there must be other UK-ers going to see Dr

> Blecher tomorrow... does anybody fancy meeting up for a coffee?

>

> I'm going to go and dunk my feet in the kids' paddling pool now.

> Take care all.

>

> Faye x (Hampshire, UK)

> mum to Caitlyn-10yrs (reg. blind, SOD, EDS), Harvey-5yrs (EDS),

> Isis-6mths (severe plagio, EDS)