Re: Newbie & Insurance hassles/Advanced OrthoPro

[Guest guest]

Sasha,

I have heard of Advanced OrthoPro! We actually have it listed in

the Helmet/Band Database in the Database section of the group. I

know of one parent who is no longer active in the group who took her

baby there. From what I recall, she was happy with the treatment

there. The helmet (back then, at least) was a passive, custom-made

helmet that is NOT FDA approved (not sure if that affect insurance

coverage or not.) Here is the info from the Database, including the

email of the mom who had been there (she provided it to be contacted

offlist by any other parents considering this helmet/facility; why

don't you try and send her an email?) Her name is Kelli, and she

was extremely nice and helpful to me when I was considering this

helmet for treatment of my own daughter, Remy, since we weren't too

far away being that we lived in Kentucky (we ended up using

repostioning only, no helmet though.)

Indiana

Local Helmet

Advanced OrthoPro, (there are three locations in the Indianapolis

area)

1820 North Illinois Street;

Indianapolis, IN 46202

(317) 924-4444

www.advancedorthopro.com

Would you let me know how your next appt. goes, or if I can help you

with researching any other options in your area?

Take care,

Christie (Mom to Repo'd Remy)

kellik@... (Kelli (mom), Luke (son who used this helmet)

> > hi erin

> >

> > I had to reply to you since I also have twins.

> >

> > I just joined this group and am hoping to get support for my

> daughter's need for a helmet. she hasn't gotten fitted yet.

all

> we've been able to do is have her see the neurosurgeon who

> prescribed the helmet for her; that was march 12. since then,

I've

> been trying to get a pre-determinination with anthem blue cross

and

> blue shield. it's been such a battle so far. she's 5 months

old

> now and I don't want to wait any longer but we can't afford the

> $1600 cash right now.

> >

> > I'm so frustrated with the insurance situation. it's making

me a

> worried mess. has anyone else had these problems? how did you

> resolve them?

> >

> > sasha

> > mom to naomi & charlotte (DOB 10/27/03)

> > http://www.babiesonline.com/babies/h/harkins/

> > Thanks for being here: Great Casting Day

> >

> >

> > This is my first post and I just want to thank everyone

for

> what I have learned here.

> > I have twin boys, not quite 4 months old. Twin A,

Jack,

> was born with a severe misalignment of his jaws and

plagiocephely

> that was not noticed at the time. His brother Ben had more

pressing

> problems, and we did not address Jack until his 2 month well

visit.

> His jaw has improved on it's own, and is not visibly noticeable

> anymore. But after a month of repositioning attempts we decided

to

> go ahead with treatment. His CT scans showed his sutures are

open

> so we are progressing to a helmet.

> > The orthotist was impressed with how well prepared we were

for

> our first visit. I knew all the right questions to ask, and I

am

> happy with him. He has a great demeanor and while a little slow

on

> the lingo, he averages about 2 helmets a week and has done at

least

> a hundred. He also showed us a helmet for another patient and I

> thought it looked pretty nice. He spent a lot of time preparing

us

> for what the casting process would be like (thanks for the

pictures

> in the files), and it was actually fun. He had me sit on the

table

> with Jack in my lap. I slipped his paci in under the sock, so

he

> was happy. Since he's not sitting up yet, he just rested

against me

> while they cast the front. Then held his head and I

supported

> Jack while they finished the back. The only time Jack cried was

> when it was all over! I know this can be traumatic for some,

but

> after what we've been through with Jack's twin Ben (5 weeks in

the

> NICU, cleft palate, PDA ligation, hernia repair, congenital

> scoliosis) a helmet is no big deal.

> >

> > Thanks again. My DH took pictures and I'll try to

upload

> them soon.

> >

> > and Jack 12/9/04 twin A

> > Greenville, SC

> >

> > For more plagio info