Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 Hi again Krissy! Sorry it's taken me so long to get back to you. My in-laws are visiting from Mass (lots of New Englanders around here, huh!) and I've had a busy morning. (Btw, I was born and raised in RI!) ANyhow, regarding your questions. You will have to take back to Kast once every two weeks so that they can take measurements of his head and monitor his progress. I both hate and love these appts because at least I get proof that the helmet is working. But, as you witnessed, Christian does NOT like having the helmet put on. Initially, I was at Kast very often because there were a lot of adjustments that needed to be made. It took a good 3 or 4 adjustments before we got the thing fitting right. I was there at least once a week for the first 3 weeks. At the beginning--right after the casting process--I felt the same way you do. I was questioning myself like crazy as to whether or not we were doing the right thing, if this was cruel. But, you know, my husband (an accountant and always the voice of reason!) reminding me of all the hard things we have to do to our kids for their own good, like vaccinations, etc. We've had some tough times with our 3 1/2 year old, and he is now a wild, happy, smart-as-whip boy who we adore and probably even borderline worship! HA HA! I promise you it will get easier and will thank you later. And (I think it was ??????) was right when she said the casting is the worst part. Keep me posted. Feel free to e-mail me directly or call me! :-) Your plagio-pal, Lori > > > My son is 6 months old with Plagiocephaly. He showed a flat spot > > during his first day to > > > this world. At his 2 month check up, my husband and I brought our > > concerns to our Ped. > > > He said to switch everything around. So, we flipped his sleeping > > position instead of his > > > head facing the left of the crib it was now the right side. We > > tried our best. My mother in- > > > law was the one REALLY pushing for our son to be put on his > > stomach. But, as new first > > > time parents the fear of Sids outweighed switching him to his > > stomach. He looked to the > > > right all the time so in the middle of the night I would move his > > head to the left. He now > > > loves looking to the left-and right but has a very flat back head > > with no Tortocollis. By the > > > fourth month check, the Ped just said don't worry about it, these > > things worked out on > > > their own and he joked and said when his hair comes in you won't > > notice it. His 5 1/2 > > > month check I brought the issue up again! The Ped. didn't have the > > courtesy to explain > > > Plagiocephaly and had the nurse tell me that the doctor wants you > > to see a Neurosurgeon. > > > I turned pale. I was livid to say the least. I wish my husband and > > I knew about this problem > > > with children sleeping on their backs. Today my son got casted for > > his Starband Helmet. It > > > was torture and I question this process. Have there been good > > results with Helmet? Is > > > there horrible side effects from the helmet? What should we look > > for when we get the > > > Helmet? The company that fit him today just said general things. > > They said they may get > > > red marks and the first week is usually the worse. They also said > > the flat spots could come > > > back once the helmet is off. Living in Florida I worry about the > > heat and is it really worth > > > all the pain and process. The Neurosurgeon told me, if it was her > > child she wouldn't get > > > the helmet. She says radical postioning is the way to go. We opted > > for the helmet because > > > we feel we have tried everything to keep his head off things when > > he is awake. He is such a > > > light sleeper and he hates his stomach and side. Iwish iI listened > > to my mother in-law, > > > sometimes mom's know best! > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.