Re: Re: DAN Dr. (OT venting)

[Guest guest]

So I assume that that GI doctor told you that for free? Don't listen to him. If

you ever really want to see a GI doctor again and can afford to do it, Dr.

Krigsman is nice and can be seen in NY or FL. Buie is in MA; we've not

been to him. The most impressive results we've had were when beginning SCD.

We've backslid, but that doesn't take away from what I saw with SCD. I've just

started something with my son called Boswellin (mail order) for his colitis; as

he didn't seem to take well to Sulfasalazine.

Do the most you can for your son as young as you can. Two of my friends have

son's virtually recovered; they started very young and they did it intensively

(eg diet, yeast mitigation, bio-med, ed intervention). We were misled until 4

years old.

Re: DAN Dr. (OT venting)

I apologize folks, this is venting:

Yesterday I cried my eyeballs out

when I took my son to the GI doctor's office

he glimpsed at my very well organized big pile of

labs, diet notes, supplement notes, photos, progress report and

said " these all mean nothing to me. People are

trying to make a buck off you "

..and that my lab tests are bogus

and that " Lady " (my DAN! doctor) does not know more than I do

(Ironically, it's my DAN! doctor that told me to go

see this GI specialist, saying he understands autism)

and he proceeded to condenscendingly YELL

at me saying that I am starving my son

and that I should just take him to the park

and let him be happy

and eat what he likes

after all, he has a whole life to suffer

AND that I should concentrate on my neurotypical younger baby

because he will have to spend his life taking care of big brother

I simply can't believe I did not have a calm comeback

to him

I was so shaken

because I wanted an " authority "

to pat me on my back and say " good work for doing such great job

recovering your child "

instead, it was clear that mainstream medicine is in the

dark ages when it concerns autism

and that any Doctor can say anything (2 told us to

take vacations and forget about diets)

but they do not have anything at stake (a beloved child)

they think they should ease the guilt of parents

telling them they should just relax, take a breather and DO NOTHING

what qualifies them to give such pop psychology advice?

my son's pediatrician (fired) told me that my son was not autistic

(he was trilingual, social, normal development until vaccinations

by her that he developed autism)

and that he was only jealous of the birth of baby brother

thus testing me by ignoring me. Thus, I should let grandma bring up

little brother for a while (like she did letting her mom bring

up her kid coz she was busy with career) so my big son will know

that I love him! -Dr. Asha Misra, pediatrician, Newport Beach, CA

when I was so depressed yesterday

my husband says, don't be sad, don't look for

" authorities " ...turn to parents who have success recovering

their kids, work on that path(...and diets, DAN!)

I thought of my pecanbread friends

at least we enlightened folks are not waiting 20 years

for double blind studies before we start saving our kids

I can't believe I let him bother me !

especially when my son showed SOOOOO MUCH PROGRESS with SCD!

No one can explain that away with anything ELSE! (unless it's a

series of random miracles from prayers from loved ones)

-suddenly: joint attention (day 3)

-flat tummy (day 3)

-no more diarrheas (after intro diet)

-no hot sweaty head, crawling around, when sleeping

-no hyperactivity. Calm, smiles

-affectionate

-wakes up smiley, not screaming and whining for food

-much better eye contact

-sits and reads books and points at pictures

-started speaking in sentences

-patient. Can wait for things, food

-appetite more normal. In the past, he eats more than his father

-his ears are not SUPER sensitive to touch. He voluntarily puts

on his cowboy hat for " Howdy " (no SUPER sensitive head).

-Attempts to comb his own hair

-pays attention to baby brother

-plays with toys, explores environment

-generalizes things naturally he learns from ABA. Picks/learns up

from our conversation.

-so much more teachable with ABA

-now can eat cauliflower withot getting bloated

-my home is peaceful, quiet! no stimmy, screaming, crying, hyper kid

-etc long list of improvements

Thank you for the emotional support

Jzin Teng

California

Imperfect SCD (illegal probiotics, supplements) since 12/29/03

Intro SCD soups since 2/23/04

current SCD: no honey, limited fruits (banana, avocado, rotate), no

dairy yet, GFCF, Feingold, etc (mostly meat, eggs/rotate, veggies,

raw homemade juice for ABA reinforcer)

Dimiter age 3, ASD

Vihren, age 1, GI issues, appear neurotypical. Talking.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

------------------------------------------------------------------------------

[Guest guest]

Wow, that doctor needs a good butt kicking. You've done a great job. Don't let

anyone tell you differently. Mainstream medicine has their heads up their

butts.

Keep up the good work.

Penny

Re: DAN Dr. (OT venting)

I apologize folks, this is venting:

Yesterday I cried my eyeballs out

when I took my son to the GI doctor's office

he glimpsed at my very well organized big pile of

labs, diet notes, supplement notes, photos, progress report and

said " these all mean nothing to me. People are

trying to make a buck off you "

..and that my lab tests are bogus

and that " Lady " (my DAN! doctor) does not know more than I do

(Ironically, it's my DAN! doctor that told me to go

see this GI specialist, saying he understands autism)

and he proceeded to condenscendingly YELL

at me saying that I am starving my son

and that I should just take him to the park

and let him be happy

and eat what he likes

after all, he has a whole life to suffer

AND that I should concentrate on my neurotypical younger baby

because he will have to spend his life taking care of big brother

I simply can't believe I did not have a calm comeback

to him

I was so shaken

because I wanted an " authority "

to pat me on my back and say " good work for doing such great job

recovering your child "

instead, it was clear that mainstream medicine is in the

dark ages when it concerns autism

and that any Doctor can say anything (2 told us to

take vacations and forget about diets)

but they do not have anything at stake (a beloved child)

they think they should ease the guilt of parents

telling them they should just relax, take a breather and DO NOTHING

what qualifies them to give such pop psychology advice?

my son's pediatrician (fired) told me that my son was not autistic

(he was trilingual, social, normal development until vaccinations

by her that he developed autism)

and that he was only jealous of the birth of baby brother

thus testing me by ignoring me. Thus, I should let grandma bring up

little brother for a while (like she did letting her mom bring

up her kid coz she was busy with career) so my big son will know

that I love him! -Dr. Asha Misra, pediatrician, Newport Beach, CA

when I was so depressed yesterday

my husband says, don't be sad, don't look for

" authorities " ...turn to parents who have success recovering

their kids, work on that path(...and diets, DAN!)

I thought of my pecanbread friends

at least we enlightened folks are not waiting 20 years

for double blind studies before we start saving our kids

I can't believe I let him bother me !

especially when my son showed SOOOOO MUCH PROGRESS with SCD!

No one can explain that away with anything ELSE! (unless it's a

series of random miracles from prayers from loved ones)

-suddenly: joint attention (day 3)

-flat tummy (day 3)

-no more diarrheas (after intro diet)

-no hot sweaty head, crawling around, when sleeping

-no hyperactivity. Calm, smiles

-affectionate

-wakes up smiley, not screaming and whining for food

-much better eye contact

-sits and reads books and points at pictures

-started speaking in sentences

-patient. Can wait for things, food

-appetite more normal. In the past, he eats more than his father

-his ears are not SUPER sensitive to touch. He voluntarily puts

on his cowboy hat for " Howdy " (no SUPER sensitive head).

-Attempts to comb his own hair

-pays attention to baby brother

-plays with toys, explores environment

-generalizes things naturally he learns from ABA. Picks/learns up

from our conversation.

-so much more teachable with ABA

-now can eat cauliflower withot getting bloated

-my home is peaceful, quiet! no stimmy, screaming, crying, hyper kid

-etc long list of improvements

Thank you for the emotional support

Jzin Teng

California

Imperfect SCD (illegal probiotics, supplements) since 12/29/03

Intro SCD soups since 2/23/04

current SCD: no honey, limited fruits (banana, avocado, rotate), no

dairy yet, GFCF, Feingold, etc (mostly meat, eggs/rotate, veggies,

raw homemade juice for ABA reinforcer)

Dimiter age 3, ASD

Vihren, age 1, GI issues, appear neurotypical. Talking.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

------------------------------------------------------------------------------

[Guest guest]

Your son totally does not need that doctor! He is doing so well so be

thankful for that and find someone new if you need a GI. Talk to your DAN

doctor about what he put you through! Mainstream doctors are clueless to

all of this...........find someone on board, like Dr. Krigsman or one of his

colleagues. Our pediatrician totally doesn't agree with me on a lot of this,

especially vaccine issues but she still tries to help and we only see her

for illness's and well check-ups. I don't care if people disagree with

me........my own sister who is in the medical field has said awful things to

me about what we do and it is hurtful so I just don't share anything with

her anymore. You know in your heart you are helping your son and you have a

lot of proof so be totally proud of yourself and what you have accomplished

with all your love and hard work!

Kathy, mom to Abby-9, ASD, UC, SCD for one month and Hannah-13 typical teen

Re: DAN Dr. (OT venting)

> I apologize folks, this is venting:

>

> Yesterday I cried my eyeballs out

> when I took my son to the GI doctor's office

> he glimpsed at my very well organized big pile of

> labs, diet notes, supplement notes, photos, progress report and

> said " these all mean nothing to me. People are

> trying to make a buck off you "

> ..and that my lab tests are bogus

> and that " Lady " (my DAN! doctor) does not know more than I do

> (Ironically, it's my DAN! doctor that told me to go

> see this GI specialist, saying he understands autism)

> and he proceeded to condenscendingly YELL

> at me saying that I am starving my son

> and that I should just take him to the park

> and let him be happy

> and eat what he likes

> after all, he has a whole life to suffer

> AND that I should concentrate on my neurotypical younger baby

> because he will have to spend his life taking care of big brother

>

> I simply can't believe I did not have a calm comeback

> to him

>

> I was so shaken

>

> because I wanted an " authority "

> to pat me on my back and say " good work for doing such great job

> recovering your child "

>

> instead, it was clear that mainstream medicine is in the

> dark ages when it concerns autism

>

> and that any Doctor can say anything (2 told us to

> take vacations and forget about diets)

>

> but they do not have anything at stake (a beloved child)

>

> they think they should ease the guilt of parents

> telling them they should just relax, take a breather and DO NOTHING

>

> what qualifies them to give such pop psychology advice?

>

> my son's pediatrician (fired) told me that my son was not autistic

> (he was trilingual, social, normal development until vaccinations

> by her that he developed autism)

> and that he was only jealous of the birth of baby brother

> thus testing me by ignoring me. Thus, I should let grandma bring up

> little brother for a while (like she did letting her mom bring

> up her kid coz she was busy with career) so my big son will know

> that I love him! -Dr. Asha Misra, pediatrician, Newport Beach, CA

>

> when I was so depressed yesterday

> my husband says, don't be sad, don't look for

> " authorities " ...turn to parents who have success recovering

> their kids, work on that path(...and diets, DAN!)

> I thought of my pecanbread friends

> at least we enlightened folks are not waiting 20 years

> for double blind studies before we start saving our kids

>

> I can't believe I let him bother me !

>

> especially when my son showed SOOOOO MUCH PROGRESS with SCD!

> No one can explain that away with anything ELSE! (unless it's a

> series of random miracles from prayers from loved ones)

>

> -suddenly: joint attention (day 3)

> -flat tummy (day 3)

> -no more diarrheas (after intro diet)

> -no hot sweaty head, crawling around, when sleeping

> -no hyperactivity. Calm, smiles

> -affectionate

> -wakes up smiley, not screaming and whining for food

> -much better eye contact

> -sits and reads books and points at pictures

> -started speaking in sentences

> -patient. Can wait for things, food

> -appetite more normal. In the past, he eats more than his father

> -his ears are not SUPER sensitive to touch. He voluntarily puts

> on his cowboy hat for " Howdy " (no SUPER sensitive head).

> -Attempts to comb his own hair

> -pays attention to baby brother

> -plays with toys, explores environment

> -generalizes things naturally he learns from ABA. Picks/learns up

> from our conversation.

> -so much more teachable with ABA

> -now can eat cauliflower withot getting bloated

> -my home is peaceful, quiet! no stimmy, screaming, crying, hyper kid

> -etc long list of improvements

>

> Thank you for the emotional support

>

> Jzin Teng

> California

> Imperfect SCD (illegal probiotics, supplements) since 12/29/03

> Intro SCD soups since 2/23/04

> current SCD: no honey, limited fruits (banana, avocado, rotate), no

> dairy yet, GFCF, Feingold, etc (mostly meat, eggs/rotate, veggies,

> raw homemade juice for ABA reinforcer)

> Dimiter age 3, ASD

> Vihren, age 1, GI issues, appear neurotypical. Talking.

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Jzin,

You poor sweet thing! I totally relate to what you went through,

although it is me that I am discussing to belligerent doctors, and I can

only imagine how much more anger it would incite if for my daughter.

I have had Crohn's disease for 16 years and have always been looking

into alternatives. About 10 years ago, I traveled to Cambridge, England

to work with a GI specialist that was having an 80% success with food

elimination diets. His flaw was that he would introduce grains, and

sometimes it was difficult to pinpoint what was causing the problem, so

eventually it didn't work for me. But when I returned to the States to

work with my GI specialists, I got basically the same reaction as you.

Anger, one " expert " told me I needed a psychiatrist because I was

questioning things. And the worst thing about it all was that I was a

young woman (early 20's) and had to deal with being treated as if I was

a moron, or just going through adolescent rebellion from these older

men, and often even going through sexual inappropriateness (having my

breasts be addressed during the conversation rather than my face, being

told I had to stop reading fluff off of the fashion magazines (when it

was the Lancet I was quoting), and I did not have the maturity to file

harassment claims at the time.

So I appreciate the anger you are experiencing. I am even still dealing

with this, as my doctor through UCSF is basically the northern

Californian expert of Crohn's disease, and I need information as how to

get off of a newer drug (Remicade), because SCD is healing me, and he

has no interest in this diet, so basically is telling me I am

misinformed, and stupid in not following his advise. (Taking a drug I

seem not to need anymore because of course, I will have a flare up

because diet does nothing.)

I don't know what to do. I am considering leaving copies of BTVC in his

waiting room with " Do Not Remove, Property of UCSF " and at least

reaching his huge quantity of patients (he sees about 80% IBD patients.)

(The renegade SCDer strikes again.)

You always think of the proper come back hours after your opportunity.

But I would agree with the advise of writing a complaint. Doctors need

to learn compassion, and even if they do not agree with a diet (due to

ignorance), there is no excuse for belligerence, accusations, or anger.

It is so interesting how threatened they become when their expertise is

questioned.

I guess I just wanted to offer support and comraderie. We are here for

you, and we are enlightened, and SO lucky to have found this diet. And I

applaud all of the mothers in their quest for their children. I think

eventually, this way of eating will come into its scientific own, and

will become mainstream, but not for many, many years. And hopefully our

happy, well-fed children will be able to say, after years of healthy

living, " I told you so! "

Debora

CD adult

SCD 7 months