Re: Gastritis Pain - How to Start SCD

[Guest guest]

Hi Joy, My daughter is 9 and also under the care of Dr. K. She is on

prescription prilosec and also sulfasazalazine. The SCD has helped her

constipation and she is currently off of the Miralax that she has taken for

almost 5 years! She also has UC and inflamed esophagus and reflux. Abby was

a huge eater of carbs.........mostly fries, GF pasta, GF pretzels,chips,

popcorn and just craves the stuff. It has been a challenge for us. She

doesn't have D. only C. so has actually lost weight on this diet. I too

feel she is hungry a lot and don't have many choices but do try to give her

big meals..........meats with hidden veggies (extra big serving), homemade

jello, lots of pureed or steamed apples or pears. She also wants a lot more

to drink to replace the carbs that are now gone so I offer a lot of water or

watered down pineapple juice. She is drinking more water than she ever has!

Sometimes in the morning with her banana pancakes I will make her a big

smoothie with fruit to make sure she's filled up before school. She won't

tolerate the texture of the muffins so am experimenting with snack options.

We did not do the intro. very long........only a couple of days because she

would not eat the soup so maybe you can go ahead and introduce some other

foods that are easy to digest. Make a lot of jello.........that really works

well and is easily tolerated. I hope this was helpful to you, I am still

learning as I go along.

Kathy

Abby's mom,-9, ASD, UC and Hannah-13

SCD for 23 days and low sal.

Gastritis Pain - How to Start SCD

> My son is eight years old and autistic with gut problems. He is under the

> care of Dr Krigsman. He has enterocolitis, GI reflux and gastritus. He

has

> been in so much pain that I have had to pull him from school for tantrums

> and self-injurious behaviors. So far the meds we have tried, prednisone

and

> Colozal, have slightly helped his colitis, but have aggravated the

gastritus

> to the point where we had to discontinue them.

>

> At this point, Dr Krigsman has recommended the SCD diet since my sons

> tolerates almost no meds.

>

> The biggest obstacle to beginning: My son seems to have attacks of pain

most

> severely when his stomach is empty. There is nothing on the starter diet

> that he really likes. Offering him chips and starchy foods when he is

> having an attack helps absorb all the acid. I will no longer be able to

do

> this with the SCD. He does not tolerate any of the proton pump inhibitor

> meds either, he presently takes pepcid and maalox. And I am not certain

> these meds are even legal. HELP!!! I want him on this diet, but don't

want

> to increase his pain as it is already too severe.

>

> Joy

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

>My son seems to have attacks of pain

most

> severely when his stomach is empty.

I suffered a horrible round of gastritis last year myself, along with other

issues, and I can verify this point - it hurts severely when the stomach gets

too empty, and then you just become nauseated and lose your appetite altogether,

which creates a vicious cycle of pain and not eating/not wanting to eat. So you

are right here.

Not that I have the answer... at that time all I felt like I could tolerate was

oatmeal, and that's of course out. I'm wondering if the yogurt, and smoothies

made with it, wouldn't feel good on his irritated stomach? Nothing acidic,

though. I'm not certain of this so please don't take it as true.

Gastritis feels like someone is jabbing knives into your gut and will double you

right over, so folks here, if you know what is low acid and would be mild on a

tummy like that, please help this boy! I feel for him, but don't have answers.

in NC

Mom of Luke, age 5, Asperger's/low-salicylate;

, age 3, healthy; and , 19 mos, healthy

All SCD since 1/26/04

[Guest guest]

Thanks Kathy, Grammy and ,

Duncan is doubled over in pain at times and it is hard for him to tell me

what is hurting. He has been GFCFSF so I dont know about yogurt. The

gelatin and chicken pancakes might appeal to him. He doesn't want most

juices now, just lots of water. It seems that the meds to calm the

inflammation in his colon inflamed his stomach. I hope this diet is the

answer for him.

Joy

Re: Gastritis Pain - How to Start SCD

> >My son seems to have attacks of pain

> most

> > severely when his stomach is empty.

>

> I suffered a horrible round of gastritis last year myself, along with

other issues, and I can verify this point - it hurts severely when the

stomach gets too empty, and then you just become nauseated and lose your

appetite altogether, which creates a vicious cycle of pain and not

eating/not wanting to eat. So you are right here.

>

> Not that I have the answer... at that time all I felt like I could

tolerate was oatmeal, and that's of course out. I'm wondering if the

yogurt, and smoothies made with it, wouldn't feel good on his irritated

stomach? Nothing acidic, though. I'm not certain of this so please don't

take it as true.

>

> Gastritis feels like someone is jabbing knives into your gut and will

double you right over, so folks here, if you know what is low acid and would

be mild on a tummy like that, please help this boy! I feel for him, but

don't have answers.

>

> in NC

> Mom of Luke, age 5, Asperger's/low-salicylate;

> , age 3, healthy; and , 19 mos, healthy

> All SCD since 1/26/04

>

>

[Guest guest]

Hi Joy,

I feel for you, my son is a Krigsman kid too, very bad colitis,

doesn't tolerate the meds either. If not for this diet,we would be in

big trouble, it's the only thing that has helped. I would say if you

think the pain is the worst when hungry, offer food frequently, don't

allow for him to get hungry as that is causing pain. I know the intro

is tough, esp. when they don't want to eat it. The first few weeks of

this diet the only thing would eat was legal juice popsicles,

the soup and broiled hamburger. He was a total rice and potato

chipaholic, so it can be done, as daunting a task as I know it seems

to you today, you can do it, one day at a time. He is still pretty

limited now as we have to advance really slowly and he has alot of

food sensitivities as well. How about jello, apple or pear sauce, the

soup, or just the meat from the chicken soup if he won't do soup.

Another thing would eat was a roast beef cooked in the crock pot

till in was totally falling apart, very, very, done with a little of

the broth on top, broiled hamburger, scrambled eggs (alex hated them

in the beginning, I had to beg him to eat them, now he loves them)

the chicken pancakes, cooked fruit, or cook it, then freeze it if he

likes cold/crunchy, popsicles made or pear or applesauce might be

good. The moms are great on this list, if you post what type of

things he'll eat, they will suggest things to try. Sounds like

keeping his little belly full would help, Val

[Guest guest]

hi,

about the hungry feeling: I make sure my son gets food every 1 1/2 to

2 hours. A banana, some cookies, some yoghurt, whatever.

A couple of weeks ago at school they noticed that he would have no

energy left at the end of the day. I thought he might be hungry. And

indeed, since he eats something in between, he's OK.

Don't forget we are dealing with 'fast' sugars (monosaccharides) and

kids with malabsorption who need to catch up foodwise.

And yes, after more than 1 year I still dilute the homemade juices a

100%.

Marjan

mom to Nick, 7, scd since jan 18 2003

Netherlands

[Guest guest]

Makes total sense to me and also even though Abby looks so much thinner now

a lot of it is the fact that her stomach just isn't " bloated " looking

anymore............even after this short time. All the carbs just blew her

up. Thanks for helping us learn.

Kathy

Abby's mom

SCD for 24 days

Re: Gastritis Pain - How to Start SCD

> Hi Kathy,

>

> >doesn't have D. only C. so has actually lost weight on this diet. I too

> >feel she is hungry a lot and don't have many choices but do try to give

her

> >big meals..........

>

> As an adult that went through it I can tell you when I started the diet I

*was* hungry all the time. I started extremely underweight - about 30-40

lbs under my ideal weight. I lost a few pounds at first even though I was

eating lots of food. A few reasons for this:

> 1.) The body is shifting to a new way of digestion. That takes energy -

food energy.

> 2.) The body is attempting to heal itself and continue to feed itself.

Again more food energy is needed.

> 3.) The body is trying to restore equilibrium, vitamins, minerals etc.

again more food energy

> 4.) In addition to this since these are children who are growing as

opposed to the adults who are just trying to maintain. They already need

extra food for their growing years. A lot of kids have reported to shot up

in height once the guts have stabilizied/

>

> But, there is good news at the end of this rainbow. Once their weight

stabilizes and they are well on the road to healing the insatiable appetites

usually slow down and level off. Rember that there bodies have literally

been starving on starch diets and causing damage. Of course, like any kids

they'll go through food bursts with their natural growth spurts - like when

my daughter eats 2 adult sized plates of food and askes for two helpings of

desserts. She may weigh 48 pounds soaking wet.

>

>

> Sheila, SCD 37 mos UC 20 yrs

> mom of SCD 22 mos

>

>

>

>