Re: Tavin-Hanger helmet & progress

[Guest guest]

Hello Janet

I think it's great that Tavin is rounding out so nicely. How old is

he? My dd Willow was a preemie too and I would have some ?s if you

don't mind. What and/or how did they check his vision? No one ever

offered to even refer us to have Will's vision checked. But she

follows small objects around with her eyes so maybe that is why.

Not sure. She was in a band as well and I've never been told that

this could affect her vision in any way. How early was Tavin born

if you don't mind me asking. Willow was delivered at 35wks and was

in the NICU for 3days. She only needed an IV due to me being

diabetic, but no help breathing at all. Just the normal suctioning

and stimulation I guess. Her apgars were 9 and 9 which is great for

a preemie. Well, I look forward to hearing your story.

Thanks

Sandy Willow's Mom

> I guess you could say his head is 'rounder' not flatter. He had

this very

> prominent ridge where his flat spot was on the back of his head.

That is

> was is 'flatter'. Either way, it is a positive change!! Wahoooo,

glad I

> wasn't imagining it!!

>

> Tavin seems to be going through growth spurts all the time! He

was a

> preemie, so maybe he is catching up, still?? He has been in his

Hanger

> Helmet for almost two weeks now. We took about 6 days to ease him

into

> wearing it for 23 hours. I take it off to wash it, bathe him and

for meals.

> I didn't like how it forced his neck into flexion while he was

eating. We

> had one follow up appointment last week and everything has gone

very

> smoothly. No redness anywhere. We have our next appointment

scheduled for

> the beginning of May. But the orthotist did tell me to look for

red spots

> as the helmets becomes more snug.

>

> Some other interesting news. Today I took Tavin to the eye

doctor. This

> was his second visit. They are looking for things related to him

being a

> preemie. Anywho... she saw the helmet and knew right away about

the plagio.

> She was happy to see him in a helmet and told me that it can

affect their

> vision. And because of his plagio diagnosis, we are to go back in

one year

> to check his eyesight again. So, I am hoping that her evaluation

will help

> the insurance company understand that this is a medical procedure

and not a

> cosmetic one.

>

> The eye doctor also talked about a small ridge on his forehead.

Now I

> thought that this was from the plagio. I thought that the flat

spot on the

> back of his head seemed to have pushed out the forehead a bit.

She said

> they are not related? Anyone have any ideas about this?

>

> We go the Ped. tomorrow for his last rsv shot, so I will ask her

then too if

> I remember

>

> Well, my little calls.........

> Thanks

> Janet

[Guest guest]

Janet,

I'm glad to hear Tavin is doing so well and is seeing correction!

That's interesting about your eye appt--we're taking Hannah at the

end of the month and I'll be curious to see if our doc is plagio

educated. I did read the files we have in our links section about

the possible correlation between astigmatism and plagio. As far as

the ridge, Hannah has a noticable one too, but it was much more

prominent in her more crooked days!

, mom to Hannah, DOC #3 3/30

Cape Cod, Ma

> I guess you could say his head is 'rounder' not flatter. He had

this very

> prominent ridge where his flat spot was on the back of his head.

That is

> was is 'flatter'. Either way, it is a positive change!! Wahoooo,

glad I

> wasn't imagining it!!

>

> Tavin seems to be going through growth spurts all the time! He

was a

> preemie, so maybe he is catching up, still?? He has been in his

Hanger

> Helmet for almost two weeks now. We took about 6 days to ease him

into

> wearing it for 23 hours. I take it off to wash it, bathe him and

for meals.

> I didn't like how it forced his neck into flexion while he was

eating. We

> had one follow up appointment last week and everything has gone

very

> smoothly. No redness anywhere. We have our next appointment

scheduled for

> the beginning of May. But the orthotist did tell me to look for

red spots

> as the helmets becomes more snug.

>

> Some other interesting news. Today I took Tavin to the eye

doctor. This

> was his second visit. They are looking for things related to him

being a

> preemie. Anywho... she saw the helmet and knew right away about

the plagio.

> She was happy to see him in a helmet and told me that it can

affect their

> vision. And because of his plagio diagnosis, we are to go back in

one year

> to check his eyesight again. So, I am hoping that her evaluation

will help

> the insurance company understand that this is a medical procedure

and not a

> cosmetic one.

>

> The eye doctor also talked about a small ridge on his forehead.

Now I

> thought that this was from the plagio. I thought that the flat

spot on the

> back of his head seemed to have pushed out the forehead a bit.

She said

> they are not related? Anyone have any ideas about this?

>

> We go the Ped. tomorrow for his last rsv shot, so I will ask her

then too if

> I remember

>

> Well, my little calls.........

> Thanks

> Janet

[Guest guest]

Hopefully this message will go through and hopefully it won't be a

duplicate!

Hi Janet,

I am glad that Tavin is making progress with his helmet! It

certainly helps when you can see the changes!

As forehead, I know that the bossing on the forehead is from the

plagio, but I could not tell you anyhting about a ridge on the

forehead. Sorry! Hopefully, someone else will be more knowledgeable

than I am about it!

- mom to Aidan

--- In Plagiocephaly , " Janet " <syllicat@b...>

wrote:

> I guess you could say his head is 'rounder' not flatter. He had

this very

> prominent ridge where his flat spot was on the back of his head.

That is

> was is 'flatter'. Either way, it is a positive change!! Wahoooo,

glad I

> wasn't imagining it!!

>

> Tavin seems to be going through growth spurts all the time! He was

a

> preemie, so maybe he is catching up, still?? He has been in his

Hanger

> Helmet for almost two weeks now. We took about 6 days to ease him

into

> wearing it for 23 hours. I take it off to wash it, bathe him and

for meals.

> I didn't like how it forced his neck into flexion while he was

eating. We

> had one follow up appointment last week and everything has gone very

> smoothly. No redness anywhere. We have our next appointment

scheduled for

> the beginning of May. But the orthotist did tell me to look for

red spots

> as the helmets becomes more snug.

>

> Some other interesting news. Today I took Tavin to the eye

doctor. This

> was his second visit. They are looking for things related to him

being a

> preemie. Anywho... she saw the helmet and knew right away about

the plagio.

> She was happy to see him in a helmet and told me that it can affect

their

> vision. And because of his plagio diagnosis, we are to go back in

one year

> to check his eyesight again. So, I am hoping that her evaluation

will help

> the insurance company understand that this is a medical procedure

and not a

> cosmetic one.

>

> The eye doctor also talked about a small ridge on his forehead.

Now I

> thought that this was from the plagio. I thought that the flat

spot on the

> back of his head seemed to have pushed out the forehead a bit. She

said

> they are not related? Anyone have any ideas about this?

>

> We go the Ped. tomorrow for his last rsv shot, so I will ask her

then too if

> I remember

>

> Well, my little calls.........

> Thanks

> Janet