Re: New Member - Problems with Helmet

[Guest guest]

Traci,

I hope the new, third helmet is a better fit! The red spots all

over caused by the second helmet do not sound good! Do these red

spots go away in an hour if you take the ill-fitting band off? Have

you decided to leave this ill-fitting band off until you get your

third helmet?

Hanger actually makes their own band called the " Hanger Cranial

Band " and sometimes offers the " Starband, " manufactured by another

company, Orthomerica. They are similar looking in appearance,

both " active " bands, and FDA approved. Some Hanger locations now

have the Insignia scanning system instead of traditional casting.

Overall, have you seen some good correction with Kiley from the

first band? If other orthos are continuing to recommend that you

stay with this ortho, than it may be that he is the only one in your

area with any experience in cranial banding. I hope you don't have

a big time gap between casting and fitting of this third band,

especially if your daughter's head continues to change so fast.

Did I read that you are in the New Orleans area? I was born in, and

have family there, in Slidell. Whenever I go there for a visit, I

have to bring sweatpants, because I eat so much I can't fit into my

pants by the time the visit's over! Anyway, I don't think we have

heard of any locations for treatment in the Louisiana area before,

owing to experienced orthotists being limited. I have heard of

members travelling to Texas or Georgia for treatment. Would you

keep us posted with how your treatment is going w/Kiley at Hanger?

Please let us know if you are happy with the service there, and feel

free to post some progress photos of Kiley in our PHOTOS section.

My own daughter, Remy, is in the PHOTOS/BEFORE AND

AFTER/REPOSITIONED folder (we ended up using aggressive

repositioning only to treat her plagio/brachy.)

Take care,

Christie (Mom to Repo'd Remy)

> Traci,

>

> I hope some group members are able to help you out with your fit

> issues. My knowledge of helmet and band design is rudimentary,

but

> are you saying that your daughter's head corrected so quickly,

that

> the " holding points " of the helmet were no longer effective and

> didn't fit right? I'm concerned that your daughter experienced

> regression between the two helmets, and that you are now seeing

the

> second helmet actually flatten her head. Did she spend an

> inordinate amount of time on the back of her head in between

helmets

> in the crib, bouncie, carseat, or swing? Is this second helmet

> causing any red spots or marks on her head that don't fade within

an

> hour? Would you mind providing a bit more info that may help

other

> group members help you out? What brand or type of helmet is your

> daughter wearing? Do you know if her orthotists has lot of

> experience in cranial helmets?

>

> I hope we can answer some of your questions!

>

> Christie (Mom to Repo'd Remy)

>

> --- In Plagiocephaly , " thillb2 " <thillb2@y...>

wrote:

> > My 7 month old daughter has Plagio. She has had her helmet for 2

> > months now. She is actually on her second helmet. Her head

changed

> > shape so fast with the first helmet, she had to be casted for a

> > second. Her head rounded out with the first helmet within the

> first

> > week. Once the head was round the helmet was to big and kept

> falling

> > off. It took two weeks for her new helmet to come in. During

this

> > time, her head started to flatten out again. Just 3 days of

> wearing

> > the second helmet her head rounded out again. Now this helmet is

> not

> > fitting correctly and her head is starting to flatten out again.

> The

> > Neurosurgeon said he has never seen anything like this and he

does

> > not know why it happened. He suggested we let her go with out

the

> > helmet and see what happens. I do not want to do this, her head

> > changes so much, I am afraid it will flatten completely in her

> sleep.

> > Had anyone had similar problems?????

> >

> > Thanks, Traci & Kiley

>

>

>

> For more plagio info