Re: Back from PT - got more info

[Guest guest]

Hi ,

Good news about the tort! And well, about the plagio, as long as

you have a good fitting band from an experienced ortho it really

isn't so bad. Take it from someone who has been dealing w/it for

over a year now, lol! If Ben is close to being severe, I'd

definitely push for it sooner than later. The repo will be more

difficult w/him having the tort and being on the severe side. The

earlier he's banded the faster and BETTER correction he'll receive.

My Hannah was severe and banded at 4.5 mos and she'll still always

have remaining assymetry. Before six mos is the best time to band.

Good luck with the continuing repo.

, mom to Hannah (12/23/02), DOCbanded 5/12/03, 8/12/03, 3/30/04

Cape Cod, Ma

--- In Plagiocephaly , " M " <jlmaxian@r...>

wrote:

> We went to Ben's PT appt today, and I asked her what she would

> consider his tort/plagio. She said the tort is mild, and will

> probably respond well to PT. She did say, though, that I should

> mentally prepare myself for banding/helmeting for the plagio,

> because it's moderate to severe, and repo probably won't work.

>

> So, I've resigned myself to the fact that we may need to helmet.

> I'm still repo-ing, but he manages to get himself back on that

flat

> area every time. Uggh!

>

> I think at our 4 mo. follow up with Dr. Girotto I'm going to push

> for helmeting then, rather than waiting until 6 mo., if the repo-

ing

> still isn't showing progress.

>

> The good news is that they use the scanner here, rather than the

> casting process - I don't know how you moms do it - I looked at

> pictures of casting and cried. I told DH that he'd have to take

him

> if it comes to that.

>

> So, I'm feeling positive about his tort today, but kind of bummed

> about the plagio....

>

>

> ~mom to 2.5 mo. old Ben who has tort/plagio~

[Guest guest]

,

I'm glad to hear that Ben's tort is only mild! That's great news.

It was observant for his PT to note that repo probably won't deliver

the results... that tort can really interfere with the best of repo

intentions - it's no reflection on how hard you are devoting

yourself to repo'ing Ben! I know it must be frustrating that Ben

always gets back on his flat area. Would you let us know what his

Doctor says at your son's 4 month appt?

I don't know if you mentioned before, but I do know that there is a

Starscanner laser scanning system out there for Orthomerica products

such as the Starband, and also the Insignia scanning system for the

Hanger Cranial Band. Cranial Tech also has a new 3D imaging system

that hasn't been rolled out completely just yet for the DOCband.

Which band or type of product are you condsidering in your area? We

may even have a member who has been to the same facility you're

doing some research on.

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " M " <jlmaxian@r...>

wrote:

> We went to Ben's PT appt today, and I asked her what she would

> consider his tort/plagio. She said the tort is mild, and will

> probably respond well to PT. She did say, though, that I should

> mentally prepare myself for banding/helmeting for the plagio,

> because it's moderate to severe, and repo probably won't work.

>

> So, I've resigned myself to the fact that we may need to helmet.

> I'm still repo-ing, but he manages to get himself back on that

flat

> area every time. Uggh!

>

> I think at our 4 mo. follow up with Dr. Girotto I'm going to push

> for helmeting then, rather than waiting until 6 mo., if the repo-

ing

> still isn't showing progress.

>

> The good news is that they use the scanner here, rather than the

> casting process - I don't know how you moms do it - I looked at

> pictures of casting and cried. I told DH that he'd have to take

him

> if it comes to that.

>

> So, I'm feeling positive about his tort today, but kind of bummed

> about the plagio....

>

>

> ~mom to 2.5 mo. old Ben who has tort/plagio~

[Guest guest]

I'm not 100% sure, but I think it's the Starscanner / Starband

that's available here (Rochester, NY).

> I don't know if you mentioned before, but I do know that there is

a

> Starscanner laser scanning system out there for Orthomerica

products

> such as the Starband, and also the Insignia scanning system for

the

> Hanger Cranial Band. Cranial Tech also has a new 3D imaging

system

> that hasn't been rolled out completely just yet for the DOCband.

> Which band or type of product are you condsidering in your area?

We

> may even have a member who has been to the same facility you're

> doing some research on.

>

\

[Guest guest]

Hello

Great news about the tort only being mild and the age they caught it

at. WOW is all I can say and great ped.

As for the banding. I would push for an rx and get it all set up so

when time comes to band you can go either way. I'm a big believer

in keep all the doors open and if repo didn't work then you can go

right ahead and get that band for him.

good luck and great about the scanner. Casting really wasn't that

bad though. Willow barely cried and more b/c she was mad. lol

Sandy Willow's Mom

Torticollis resolved ( 6 - 7 months of pt and ot)

Cranio Germany Grad 04

--- In Plagiocephaly , " M " <jlmaxian@r...>

wrote:

> We went to Ben's PT appt today, and I asked her what she would

> consider his tort/plagio. She said the tort is mild, and will

> probably respond well to PT. She did say, though, that I should

> mentally prepare myself for banding/helmeting for the plagio,

> because it's moderate to severe, and repo probably won't work.

>

> So, I've resigned myself to the fact that we may need to helmet.

> I'm still repo-ing, but he manages to get himself back on that

flat

> area every time. Uggh!

>

> I think at our 4 mo. follow up with Dr. Girotto I'm going to push

> for helmeting then, rather than waiting until 6 mo., if the repo-

ing

> still isn't showing progress.

>

> The good news is that they use the scanner here, rather than the

> casting process - I don't know how you moms do it - I looked at

> pictures of casting and cried. I told DH that he'd have to take

him

> if it comes to that.

>

> So, I'm feeling positive about his tort today, but kind of bummed

> about the plagio....

>

>

> ~mom to 2.5 mo. old Ben who has tort/plagio~