Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Hi & welcome to our group! I see you mention UK. Is that where you're located? There are a couple options in the UK, Dr. Blecher which many of our parents in the group have used or are using. Here's a link to his site: http://www.cranio-online.de/index_engl.html#. As well as Cranial Tech with the DOCband. They have a couple locations overseas that may be near you? They're website it http://www.cranialtech.com There's a great study in our LINKS section about the bands NOT restricting brain growth. Let me find the link for you & I'll reply with in it a minute for you to read. The bands do NOT cause any brain growth restriction & are perfectly harmless. Repositioning is most effective in younger infants, but some in the group have still had success a bit older. We have a ton of repositioning tips in our LINKS & FILES section " repositioning " folders. Will it round out on it's own?? Who knows!! I wish we all had a crystal ball to look into to answer that, but it's truly something you have to wait & see. Normally by the time you've waited, it's too late to use a band or helmet IF it has not rounded on it's own. I'll have the link for the brain growth study in my next reply to you. Welcome & please keep us posted. Debbie MI > Our daughter has quite a short / broad head with a flat side ( > differential estimated to be roughly 11mm ). She is now 6½ months > old and we need to decide whether to seek help from an orthotist in > Lancashire, UK, without the backing of our Dr who knows nothing > about brachycephaly or plagio. > > We have been referred to a Pediatrician and could be waiting up to 8 > weeks for the appointment. It is also unlikely that he will know > anything about the condition. We have made contact with the > orthotist who would prefer that we're referred by a Dr, before > offering treatment. > > We feel very impatient and don't want to waste precious time. It is > becoming increasingly difficult to judge for ourselves whether her > head shape appears all that mishapen. Wish we had a gut feeling as > to what to do for the best. > > We'd appreciate any advice on the following: > > 1.Our main worry ( and our Dr's ) is about the unnatural effect that > a helmet might have on the rapidly growing brain (restricting > natural growth on one side and allowing the brain to expand on the > other side......plus the different sides of the brain affect > different parts of the body. We would not want to endanger her brain > for the sake of a slightly flat head.Can anyone reassure us on this > score????? > > 2.Is it too late to start repositioning our daughter's head at 6½ > months, with a view to monitoring any change over the following 4 > months, then reconsider a helmet if we feel it's necessary? > > 3.Is the flatness likely to improve naturally as she starts to crawl? > > Any Advice Welcome. > Thanks > > Kate & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Here's the link to " cranial growth unrestricted " . HTH. http://www.cranialtech.com/ParentsArea/publications/cti1174.pdf Debbie > > 1.Our main worry ( and our Dr's ) is about the unnatural effect that > a helmet might have on the rapidly growing brain (restricting > natural growth on one side and allowing the brain to expand on the > other side......plus the different sides of the brain affect > different parts of the body. We would not want to endanger her brain > for the sake of a slightly flat head.Can anyone reassure us on this > score????? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Hi Kate and , I just wanted to welcome you to ther group and really second everything Debbie has already posted to you. It really is a hard decision and when you've got a doctor w/out plagio knowledge that further compounds the issue. My ped didn't know anything about banding either, butI really wanted her " approval " or at least something from her to build my confidence! She sent us to a specialist for the first band, but since has read up on the subject and has much more knowledge and even has written the scripts for our second and third bands. My daughter was banded for 7 mos out of her first year and her helmet didn't interfere with her head circumference growth at all (in fact it's in the 90% percentile!). Hopefully this knowledge and the link that Debbie provided will help you feel better. The head still grows, it just grows in the directions it needs to make it rounder. Hannah has worn a helmet for a long time for her severe plagio and is developmentally right on track and hit many of her milestones early in fact. The helmet didn't slow her down at all! Good luck. , mom to Hannah, DOC #3 3/30 Cape Cod, Ma > > Our daughter has quite a short / broad head with a flat side ( > > differential estimated to be roughly 11mm ). She is now 6½ months > > old and we need to decide whether to seek help from an orthotist > in > > Lancashire, UK, without the backing of our Dr who knows nothing > > about brachycephaly or plagio. > > > > We have been referred to a Pediatrician and could be waiting up to > 8 > > weeks for the appointment. It is also unlikely that he will know > > anything about the condition. We have made contact with the > > orthotist who would prefer that we're referred by a Dr, before > > offering treatment. > > > > We feel very impatient and don't want to waste precious time. It > is > > becoming increasingly difficult to judge for ourselves whether her > > head shape appears all that mishapen. Wish we had a gut feeling as > > to what to do for the best. > > > > We'd appreciate any advice on the following: > > > > 1.Our main worry ( and our Dr's ) is about the unnatural effect > that > > a helmet might have on the rapidly growing brain (restricting > > natural growth on one side and allowing the brain to expand on the > > other side......plus the different sides of the brain affect > > different parts of the body. We would not want to endanger her > brain > > for the sake of a slightly flat head.Can anyone reassure us on > this > > score????? > > > > 2.Is it too late to start repositioning our daughter's head at 6½ > > months, with a view to monitoring any change over the following 4 > > months, then reconsider a helmet if we feel it's necessary? > > > > 3.Is the flatness likely to improve naturally as she starts to > crawl? > > > > Any Advice Welcome. > > Thanks > > > > Kate & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Hi Kate and , I just want to second everything that Debbie and have already told you. Welcome to the group. > Our daughter has quite a short / broad head with a flat side ( > differential estimated to be roughly 11mm ). She is now 6½ months > old and we need to decide whether to seek help from an orthotist in > Lancashire, UK, without the backing of our Dr who knows nothing > about brachycephaly or plagio. > > We have been referred to a Pediatrician and could be waiting up to 8 > weeks for the appointment. It is also unlikely that he will know > anything about the condition. We have made contact with the > orthotist who would prefer that we're referred by a Dr, before > offering treatment. > > We feel very impatient and don't want to waste precious time. It is > becoming increasingly difficult to judge for ourselves whether her > head shape appears all that mishapen. Wish we had a gut feeling as > to what to do for the best. > > We'd appreciate any advice on the following: > > 1.Our main worry ( and our Dr's ) is about the unnatural effect that > a helmet might have on the rapidly growing brain (restricting > natural growth on one side and allowing the brain to expand on the > other side......plus the different sides of the brain affect > different parts of the body. We would not want to endanger her brain > for the sake of a slightly flat head.Can anyone reassure us on this > score????? > > 2.Is it too late to start repositioning our daughter's head at 6½ > months, with a view to monitoring any change over the following 4 > months, then reconsider a helmet if we feel it's necessary? > > 3.Is the flatness likely to improve naturally as she starts to crawl? > > Any Advice Welcome. > Thanks > > Kate & Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.