Re: New Mom needs Help Please/UPSTATE NY

[Guest guest]

,

Welcome to the group! Please look into Angel Flights, they will fly

you for free. We currently have a few members that use them. You can

learn more about them by going here:

http://www.aircareall.org

Your baby is at a great younger age to receive excellent correction.

I used the Cranial Tech in NJ, they are excellent, you'll be in great

hands. I added Upstate NY to your subject line to catch attention.

I wish I could help you out, I am in NY but I'm on Long Island. Would

your pediatrician write you a script for a DOCband?

> Hi, one of the mother's on my aol mom's board referred me to this

> board for some help and advice. My daughter is 4 months old and I

> think she has Brachycephaly. Her head has been not been formed

right

> since she was born (my mother cried when she saw her head in the

> nursery). She had to be delivered via emergency c-section because

> she was stuck in my pelvis. She was " sunny side up " so she could

not

> drop down the birth canel correctly. The doctors and nurses said

her

> head would get better on its own but it still has not corrected

> itself, it has only gotten worse and she is starting to get lumps

on

> her head above her ears. Her head like v's out in the back if you

> are looking at it from above and then is getting flat. It is very

> wide at the back (sorry if I am not explaining this so it makes

> sense...it is hard to explain unless you are looking at her, I can

> email you a picture if that would be easier to look at). I asked a

> doctor again three weeks ago if her head looked normal and she said

> it was fine. My aunt who is a pediatric RN said that I should have

> it checked because it didn't look right. I don't lay her down on

her

> back very much except to sleep and to play because she HATES her

> stomach and won't lay there for even a minute without crying. I

> contacted Cranial Technologies, Inc. in Paramus, NJ because that is

> the closest location to my house. (I live in upstate NY, near

> Canada, and there are not many specialists in the area. It will

take

> me about 6 hours to drive there.) They told me to come in for a

> consultation and that it would cost $3000 to get help. They have

had

> problems with my insurance co in the past with not paying for the

> band but because my husband is in the army I don't have much of a

> choice. If anyone has any suggestions or helpful tips in dealing

> with this problem and/or the insurance company or if you know of

any

> doctors in the Syracuse, NY area I would greatly appreciate the

help

> (as my husband is in Afghanistan and I am going through this

alone)!

> TIA

>

>

>

[Guest guest]

I am taking my daugter to see her pediatrician next week and if she

won't write the script for it, I will take her to another doctor who

will. I am going to keep trying until I find someone who will help

her and not just say she'll grow out of it, because as her mother I

know something is wrong and I honestly don't trust doctors. I think

it is partly their fault she has this problem to begin with since she

was stuck and facing the wrong way in the womb and they knew it and

did nothing about it and made both of us struggle through labor until

her heart rate dropped when I started to push. Then they finally

called the c-section. Anyhow, thank you for your information. I

will definately look into Angel Flights.

> > Hi, one of the mother's on my aol mom's board referred me to this

> > board for some help and advice. My daughter is 4 months old and

I

> > think she has Brachycephaly. Her head has been not been formed

> right

> > since she was born (my mother cried when she saw her head in the

> > nursery). She had to be delivered via emergency c-section

because

> > she was stuck in my pelvis. She was " sunny side up " so she could

> not

> > drop down the birth canel correctly. The doctors and nurses said

> her

> > head would get better on its own but it still has not corrected

> > itself, it has only gotten worse and she is starting to get lumps

> on

> > her head above her ears. Her head like v's out in the back if

you

> > are looking at it from above and then is getting flat. It is very

> > wide at the back (sorry if I am not explaining this so it makes

> > sense...it is hard to explain unless you are looking at her, I

can

> > email you a picture if that would be easier to look at). I asked

a

> > doctor again three weeks ago if her head looked normal and she

said

> > it was fine. My aunt who is a pediatric RN said that I should

have

> > it checked because it didn't look right. I don't lay her down on

> her

> > back very much except to sleep and to play because she HATES her

> > stomach and won't lay there for even a minute without crying. I

> > contacted Cranial Technologies, Inc. in Paramus, NJ because that

is

> > the closest location to my house. (I live in upstate NY, near

> > Canada, and there are not many specialists in the area. It will

> take

> > me about 6 hours to drive there.) They told me to come in for a

> > consultation and that it would cost $3000 to get help. They have

> had

> > problems with my insurance co in the past with not paying for the

> > band but because my husband is in the army I don't have much of a

> > choice. If anyone has any suggestions or helpful tips in dealing

> > with this problem and/or the insurance company or if you know of

> any

> > doctors in the Syracuse, NY area I would greatly appreciate the

> help

> > (as my husband is in Afghanistan and I am going through this

> alone)!

> > TIA

> >

> >

> >

[Guest guest]

Hi & welcome:

We've had a couple former members w/Tricare ins that have been

successful in getting covg for their baby's band(s). I believe the

one mom who comes to my mind, fought stating her daughter's condition

began inutero, therefore, it was a " cognitive " condition(someone

correct me if I'm wrong, I always forget that word!) so she found a

loophole in her policy which resulted in covg.

I see gave you Angel Flight's link and added Upstate NY to

your subject. If you haven't already, please look at our group

DATABASE " Helmet/band providers " NY and see if anything else may be

closer? It's worth a shot!!

You could also reposition right now while waiting, chk out our LINKS

& FILES sections " repostioning " for lots of good tips & products!

Glad you're with us. Keep us posted, good luck!

Debbie

MI

>

> > Hi, one of the mother's on my aol mom's board referred me to this

> > board for some help and advice. My daughter is 4 months old and

I

> > think she has Brachycephaly. Her head has been not been formed

> right

> > since she was born (my mother cried when she saw her head in the

> > nursery). She had to be delivered via emergency c-section

because

> > she was stuck in my pelvis. She was " sunny side up " so she could

> not

> > drop down the birth canel correctly. The doctors and nurses said

> her

> > head would get better on its own but it still has not corrected

> > itself, it has only gotten worse and she is starting to get lumps

> on

> > her head above her ears. Her head like v's out in the back if

you

> > are looking at it from above and then is getting flat. It is very

> > wide at the back (sorry if I am not explaining this so it makes

> > sense...it is hard to explain unless you are looking at her, I

can

> > email you a picture if that would be easier to look at). I asked

a

> > doctor again three weeks ago if her head looked normal and she

said

> > it was fine. My aunt who is a pediatric RN said that I should

have

> > it checked because it didn't look right. I don't lay her down on

> her

> > back very much except to sleep and to play because she HATES her

> > stomach and won't lay there for even a minute without crying. I

> > contacted Cranial Technologies, Inc. in Paramus, NJ because that

is

> > the closest location to my house. (I live in upstate NY, near

> > Canada, and there are not many specialists in the area. It will

> take

> > me about 6 hours to drive there.) They told me to come in for a

> > consultation and that it would cost $3000 to get help. They have

> had

> > problems with my insurance co in the past with not paying for the

> > band but because my husband is in the army I don't have much of a

> > choice. If anyone has any suggestions or helpful tips in dealing

> > with this problem and/or the insurance company or if you know of

> any

> > doctors in the Syracuse, NY area I would greatly appreciate the

> help

> > (as my husband is in Afghanistan and I am going through this

> alone)!

> > TIA

> >

> >

> >

[Guest guest]

Hi ,

I just wanted to welcome you to the group, and I urge to do what you

feel is best for your daughter.

From what you have described, it sounds like your does have

brachycephaly and could only benefit from a band. I see that

has given you the link for Angel flights. I have heard nothing but

rave reviews for that organization and I will keep my fingers

crossed that they can help you.

I also wanted to add that you are not alone in this. There are more

than a couple moms here who will virtually hold your hand through

the whole thing! I am sorry that you have to deal with this stress

as well as having your husband in Afghanistan. Goodness, that would

be stressful in itself.

Good luck, and let us know how things progess for you.

- mom to Aidan

> > > Hi, one of the mother's on my aol mom's board referred me to

this

> > > board for some help and advice. My daughter is 4 months old

and

> I

> > > think she has Brachycephaly. Her head has been not been

formed

> > right

> > > since she was born (my mother cried when she saw her head in

the

> > > nursery). She had to be delivered via emergency c-section

> because

> > > she was stuck in my pelvis. She was " sunny side up " so she

could

> > not

> > > drop down the birth canel correctly. The doctors and nurses

said

> > her

> > > head would get better on its own but it still has not

corrected

> > > itself, it has only gotten worse and she is starting to get

lumps

> > on

> > > her head above her ears. Her head like v's out in the back if

> you

> > > are looking at it from above and then is getting flat. It is

very

> > > wide at the back (sorry if I am not explaining this so it

makes

> > > sense...it is hard to explain unless you are looking at her, I

> can

> > > email you a picture if that would be easier to look at). I

asked

> a

> > > doctor again three weeks ago if her head looked normal and she

> said

> > > it was fine. My aunt who is a pediatric RN said that I should

> have

> > > it checked because it didn't look right. I don't lay her down

on

> > her

> > > back very much except to sleep and to play because she HATES

her

> > > stomach and won't lay there for even a minute without crying.

I

> > > contacted Cranial Technologies, Inc. in Paramus, NJ because

that

> is

> > > the closest location to my house. (I live in upstate NY, near

> > > Canada, and there are not many specialists in the area. It

will

> > take

> > > me about 6 hours to drive there.) They told me to come in for

a

> > > consultation and that it would cost $3000 to get help. They

have

> > had

> > > problems with my insurance co in the past with not paying for

the

> > > band but because my husband is in the army I don't have much

of a

> > > choice. If anyone has any suggestions or helpful tips in

dealing

> > > with this problem and/or the insurance company or if you know

of

> > any

> > > doctors in the Syracuse, NY area I would greatly appreciate

the

> > help

> > > (as my husband is in Afghanistan and I am going through this

> > alone)!

> > > TIA

> > >

> > >

> > >

[Guest guest]

You might mean "congential" condition....

and (DOCgrad 13-Feb-04)Debbie <dj2kirby@...> wrote:

Hi & welcome:We've had a couple former members w/Tricare ins that have been successful in getting covg for their baby's band(s). I believe the one mom who comes to my mind, fought stating her daughter's condition began inutero, therefore, it was a "cognitive" condition(someone correct me if I'm wrong, I always forget that word!) so she found a loophole in her policy which resulted in covg.I see gave you Angel Flight's link and added Upstate NY to your subject. If you haven't already, please look at our group DATABASE "Helmet/band providers" NY and see if anything else may be closer? It's worth a shot!!You could also reposition right now while waiting, chk out our LINKS & FILES sections "repostioning" for lots of good tips & products!Glad you're with us. Keep us posted, good

luck!DebbieMI> > > Hi, one of the mother's on my aol mom's board referred me to this > > board for some help and advice. My daughter is 4 months old and I > > think she has Brachycephaly. Her head has been not been formed > right > > since she was born (my mother cried when she saw her head in the > > nursery). She had to be delivered via emergency c-section because > > she was stuck in my pelvis. She was "sunny side up" so she could > not > > drop down the birth canel correctly. The doctors and nurses said > her > > head would get better on its own but it still has not corrected > > itself, it has only gotten worse and she is starting to get lumps > on > > her head above her ears. Her head like v's out in

the back if you > > are looking at it from above and then is getting flat. It is very > > wide at the back (sorry if I am not explaining this so it makes > > sense...it is hard to explain unless you are looking at her, I can > > email you a picture if that would be easier to look at). I asked a > > doctor again three weeks ago if her head looked normal and she said > > it was fine. My aunt who is a pediatric RN said that I should have > > it checked because it didn't look right. I don't lay her down on > her > > back very much except to sleep and to play because she HATES her > > stomach and won't lay there for even a minute without crying. I > > contacted Cranial Technologies, Inc. in Paramus, NJ because that is > > the closest location to my house. (I live in upstate NY, near > > Canada, and there are

not many specialists in the area. It will > take > > me about 6 hours to drive there.) They told me to come in for a > > consultation and that it would cost $3000 to get help. They have > had > > problems with my insurance co in the past with not paying for the > > band but because my husband is in the army I don't have much of a > > choice. If anyone has any suggestions or helpful tips in dealing > > with this problem and/or the insurance company or if you know of > any > > doctors in the Syracuse, NY area I would greatly appreciate the > help > > (as my husband is in Afghanistan and I am going through this > alone)! > > TIA> > > > > > For more plagio info

[Guest guest]

Hi …

I read in your

post how your dtr hates to be on her tummy. Mine did too, and for a long

time I just didn’t put her down on her tummy at all. Then I just

decided to kind of force the issue. I didn’t force her to be on her

tummy when she didn’t like it, I just kept putting her on her tummy until

she did like it. So I would just put her down on her tummy, and then like

10 seconds later she would start crying. Then I picked her up and that

was it. But then a little later, I put her down until she cried again,

but picked her up right away. I just kept doing that until she started to

like, or at least not mind, being down on her tummy. I also think it

helps that my kids lay on the floor with her. But if you don’t have

any others, your dtr would love it if you lay down on the floor with her.

This is just what worked for me. I hope you can find something that works

for you. Good luck…

Becky and

(6mo) in Pgh, PA

From: Spring [mailto:las313@...]

Sent: Tuesday, March 23, 2004

11:33 PM

Plagiocephaly

Subject: Re: Re: New Mom

needs Help Please/UPSTATE NY

You might mean " congential " condition....

and (DOCgrad 13-Feb-04)

Debbie

<dj2kirby@...> wrote:

Hi & welcome:

We've had a couple former members w/Tricare ins

that have been

successful in getting covg for their baby's

band(s). I believe the

one mom who comes to my mind, fought stating her

daughter's condition

began inutero, therefore, it was a " cognitive "

condition(someone

correct me if I'm wrong, I always forget that

word!) so she found a

loophole in her policy which resulted in covg.

I see gave you Angel Flight's link and

added Upstate NY to

your subject. If you haven't already, please

look at our group

DATABASE " Helmet/band providers " NY and

see if anything else may be

closer? It's worth a shot!!

You could also reposition right now while waiting,

chk out our LINKS

& FILES sections " repostioning " for

lots of good tips & products!

Glad you're with us. Keep us posted, good luck!

Debbie

MI

>

> > Hi, one of the mother's on my aol mom's

board referred me to this

> > board for some help and advice. My

daughter is 4 months old and

I

> > think she has Brachycephaly. Her

head has been not been formed

> right

> > since she was born (my mother cried when

she saw her head in the

> > nursery). She had to be delivered

via emergency c-section

because

> > she was stuck in my pelvis. She

was " sunny side up " so she could

> not

> > drop down the birth canel

correctly. The doctors and nurses said

> her

> > head would get better on its own but it

still has not corrected

> > itself, it has only gotten worse and she

is starting to get lumps

> on

> > her head above her ears. Her head

like v's out in the back if

you

> > are looking at it from above and then is

getting flat. It is very

> > wide at the back (sorry if I am not

explaining this so it makes

> > sense...it is hard to explain unless you

are looking at her, I

can

> > email you a picture if that would be

easier to look at). I asked

a

> > doctor again three weeks ago if her head

looked normal and she

said

> > it was fine. My aunt who is a

pediatric RN said that I should

have

> > it checked because it didn't look

right. I don't lay her down on

> her

> > back very much except to sleep and to

play because she HATES her

> > stomach and won't lay there for even a

minute without crying. I

> > contacted Cranial Technologies, Inc. in Paramus, NJ because that

is

> > the closest location to my house.

(I live in upstate NY, near

> > Canada, and there are not many

specialists in the area. It will

> take

> > me about 6 hours to drive there.)

They told me to come in for a

> > consultation and that it would cost

$3000 to get help. They have

> had

> > problems with my insurance co in the

past with not paying for the

> > band but because my husband is in the

army I don't have much of a

> > choice. If anyone has any

suggestions or helpful tips in dealing

> > with this problem and/or the insurance

company or if you know of

> any

> > doctors in the Syracuse, NY area I would greatly appreciate the

> help

> > (as my husband is in Afghanistan and I am going through this

> alone)!

> > TIA

> >

> >

> >

For more

plagio info

[Guest guest]

Hi! We won our battle with Tricare and not only got them to pay for

2 DOC bands but also reimburse us for all of my travel expenses (we

drove 3 hours each way) they paid for gas, hotel stays, food. The

only receipts I needed was for the hotel stays. If youd like more

info you can email me Thezepps6@... . My husband is

stationed on Ft Bragg so I believe we are in different Tricare

regions but Im sure Tricare is not all that different in different

regions. Anyway please feel free to email me!

Christi

> > > Hi, one of the mother's on my aol mom's board referred me to

this

> > > board for some help and advice. My daughter is 4 months old

and

> I

> > > think she has Brachycephaly. Her head has been not been

formed

> > right

> > > since she was born (my mother cried when she saw her head in

the

> > > nursery). She had to be delivered via emergency c-section

> because

> > > she was stuck in my pelvis. She was " sunny side up " so she

could

> > not

> > > drop down the birth canel correctly. The doctors and nurses

said

> > her

> > > head would get better on its own but it still has not

corrected

> > > itself, it has only gotten worse and she is starting to get

lumps

> > on

> > > her head above her ears. Her head like v's out in the back if

> you

> > > are looking at it from above and then is getting flat. It is

very

> > > wide at the back (sorry if I am not explaining this so it

makes

> > > sense...it is hard to explain unless you are looking at her, I

> can

> > > email you a picture if that would be easier to look at). I

asked

> a

> > > doctor again three weeks ago if her head looked normal and she

> said

> > > it was fine. My aunt who is a pediatric RN said that I should

> have

> > > it checked because it didn't look right. I don't lay her down

on

> > her

> > > back very much except to sleep and to play because she HATES

her

> > > stomach and won't lay there for even a minute without crying.

I

> > > contacted Cranial Technologies, Inc. in Paramus, NJ because

that

> is

> > > the closest location to my house. (I live in upstate NY, near

> > > Canada, and there are not many specialists in the area. It

will

> > take

> > > me about 6 hours to drive there.) They told me to come in for

a

> > > consultation and that it would cost $3000 to get help. They

have

> > had

> > > problems with my insurance co in the past with not paying for

the

> > > band but because my husband is in the army I don't have much

of a

> > > choice. If anyone has any suggestions or helpful tips in

dealing

> > > with this problem and/or the insurance company or if you know

of

> > any

> > > doctors in the Syracuse, NY area I would greatly appreciate

the

> > help

> > > (as my husband is in Afghanistan and I am going through this

> > alone)!

> > > TIA

> > >

> > >

> > >

[Guest guest]

Christi,

Christi

We’re at Bragg

too, please let me know how to do it because ’s neuro said there was

no way that Tri-Care would pay.

Thanks

From: Zepp

(Marsh) [mailto:thezepps6@...]

Sent: Thursday, March 25, 2004

2:00 PM

Plagiocephaly

Subject: Re: New Mom

needs Help Please/UPSTATE NY

Hi! We won our battle with Tricare and not only got them to pay

for

2 DOC bands but also reimburse us for all of my

travel expenses (we

drove 3 hours each way) they paid for gas, hotel

stays, food. The

only receipts I needed was for the hotel stays. If

youd like more

info you can email me Thezepps6@... . My

husband is

stationed on Ft Bragg so I believe we are in

different Tricare

regions but Im sure Tricare is not all that

different in different

regions. Anyway please feel free to email me!

Christi

> > > Hi, one of the mother's on my aol

mom's board referred me to

this

> > > board for some help and

advice. My daughter is 4 months old

and

> I

> > > think she has Brachycephaly.

Her head has been not been

formed

> > right

> > > since she was born (my mother cried

when she saw her head in

the

> > > nursery). She had to be

delivered via emergency c-section

> because

> > > she was stuck in my pelvis.

She was " sunny side up " so she

could

> > not

> > > drop down the birth canel

correctly. The doctors and nurses

said

> > her

> > > head would get better on its own

but it still has not

corrected

> > > itself, it has only gotten worse

and she is starting to get

lumps

> > on

> > > her head above her ears. Her

head like v's out in the back if

> you

> > > are looking at it from above and

then is getting flat. It is

very

> > > wide at the back (sorry if I am not

explaining this so it

makes

> > > sense...it is hard to explain

unless you are looking at her, I

> can

> > > email you a picture if that would

be easier to look at). I

asked

> a

> > > doctor again three weeks ago if her

head looked normal and she

> said

> > > it was fine. My aunt who is a

pediatric RN said that I should

> have

> > > it checked because it didn't look

right. I don't lay her down

on

> > her

> > > back very much except to sleep and

to play because she HATES

her

> > > stomach and won't lay there for

even a minute without crying.

I

> > > contacted Cranial Technologies,

Inc. in Paramus, NJ because

that

> is

> > > the closest location to my

house. (I live in upstate NY, near

> > > Canada, and there are not many

specialists in the area. It

will

> > take

> > > me about 6 hours to drive

there.) They told me to come in for

a

> > > consultation and that it would cost

$3000 to get help. They

have

> > had

> > > problems with my insurance co in

the past with not paying for

the

> > > band but because my husband is in

the army I don't have much

of a

> > > choice. If anyone has any

suggestions or helpful tips in

dealing

> > > with this problem and/or the

insurance company or if you know

of

> > any

> > > doctors in the Syracuse,

NY area I would greatly appreciate

the

> > help

> > > (as my husband is in Afghanistan and

I am going through this

> > alone)!

> > > TIA

> > >

> > >

> > >

For more

plagio info