Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 I first posted about a month ago and am looking for some more advice. I've been repositioning my daughter Madison (now 5 months) since she was 2.5 months old. Although we have come a long way we still have a ways to go. I have been taking pictures of her head since I first visited the site, and have been encouraged because her ears are now more aligned (I will try to post tonight). When we first noticed her plagio, the right ear was quite a bit forward. However, over the past week or so, it looks like her head has gotten worse...I don't know how because I am very aggressive about repositioning her at home (she is almost never on her flat spot) and day care has been pretty diligent also (as far as I can tell). Anyhow, I think she is going through a growth spurt (what we have been waiting for), but it appears as though the back of her head (non-flat side) is popping out instead of her flat side and it is making things look worse. I'm hoping this growth spurt will continue and we will see some improvement on the flat side. Her ear position is still pretty good and there doesn't seem to be any regression. Does any of this make sense??? I'm feeling a little discouraged. One more thing, we have an appointment next week at a crainofacial center to get a more thorough diagnosis of her plagio. The ped neurosurgeon we saw didn't even touch her head, just said that she had plagio (wouldn't classify it as mild, moderate or severe) and said it was our decision as to whether or not we wanted the helmet. Needless to say, he wasn't very helpful. Hopefully we find out more next week so we can make an informed decision. I'm still hopefull that repositioning will work, but if we need to put her in a helmet, I want to do it now before she gets much older. Thanks for all the wonderful info posted on this page. (mom to maddie) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 Hi , Were you able to get those pics posted? It's really hard to say anything w/out seeing them. I'm glad you're getting another opinion of her plagio too since she's getting on the older side for repoing and your last doc didn't seem to be very helpful at all! Let us know when you get those pics up. , mom to Hannah, DOCband #3 3/30 Cape Cod, Ma > I first posted about a month ago and am looking for some more > advice. I've been repositioning my daughter Madison (now 5 months) > since she was 2.5 months old. Although we have come a long way we > still have a ways to go. I have been taking pictures of her head > since I first visited the site, and have been encouraged because her > ears are now more aligned (I will try to post tonight). When we > first noticed her plagio, the right ear was quite a bit forward. > However, over the past week or so, it looks like her head has gotten > worse...I don't know how because I am very aggressive about > repositioning her at home (she is almost never on her flat spot) and > day care has been pretty diligent also (as far as I can tell). > Anyhow, I think she is going through a growth spurt (what we have > been waiting for), but it appears as though the back of her head > (non-flat side) is popping out instead of her flat side and it is > making things look worse. I'm hoping this growth spurt will > continue and we will see some improvement on the flat side. Her ear > position is still pretty good and there doesn't seem to be any > regression. Does any of this make sense??? I'm feeling a little > discouraged. > > One more thing, we have an appointment next week at a crainofacial > center to get a more thorough diagnosis of her plagio. The ped > neurosurgeon we saw didn't even touch her head, just said that she > had plagio (wouldn't classify it as mild, moderate or severe) and > said it was our decision as to whether or not we wanted the helmet. > Needless to say, he wasn't very helpful. Hopefully we find out more > next week so we can make an informed decision. I'm still hopefull > that repositioning will work, but if we need to put her in a helmet, > I want to do it now before she gets much older. > > Thanks for all the wonderful info posted on this page. > > (mom to maddie) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 I just posted them under Maddie H. Thanks (mom to Maddie) --- In Plagiocephaly , " " <sarahhollis@y...> wrote: > Hi , > Were you able to get those pics posted? It's really hard to say > anything w/out seeing them. I'm glad you're getting another opinion > of her plagio too since she's getting on the older side for repoing > and your last doc didn't seem to be very helpful at all! Let us > know when you get those pics up. > , mom to Hannah, DOCband #3 3/30 > Cape Cod, Ma > > --- In Plagiocephaly , " plmhoy333 " <phoy@t...> wrote: > > I first posted about a month ago and am looking for some more > > advice. I've been repositioning my daughter Madison (now 5 months) > > since she was 2.5 months old. Although we have come a long way we > > still have a ways to go. I have been taking pictures of her head > > since I first visited the site, and have been encouraged because > her > > ears are now more aligned (I will try to post tonight). When we > > first noticed her plagio, the right ear was quite a bit forward. > > However, over the past week or so, it looks like her head has > gotten > > worse...I don't know how because I am very aggressive about > > repositioning her at home (she is almost never on her flat spot) > and > > day care has been pretty diligent also (as far as I can tell). > > Anyhow, I think she is going through a growth spurt (what we have > > been waiting for), but it appears as though the back of her head > > (non-flat side) is popping out instead of her flat side and it is > > making things look worse. I'm hoping this growth spurt will > > continue and we will see some improvement on the flat side. Her > ear > > position is still pretty good and there doesn't seem to be any > > regression. Does any of this make sense??? I'm feeling a little > > discouraged. > > > > One more thing, we have an appointment next week at a crainofacial > > center to get a more thorough diagnosis of her plagio. The ped > > neurosurgeon we saw didn't even touch her head, just said that she > > had plagio (wouldn't classify it as mild, moderate or severe) and > > said it was our decision as to whether or not we wanted the > helmet. > > Needless to say, he wasn't very helpful. Hopefully we find out > more > > next week so we can make an informed decision. I'm still hopefull > > that repositioning will work, but if we need to put her in a > helmet, > > I want to do it now before she gets much older. > > > > Thanks for all the wonderful info posted on this page. > > > > (mom to maddie) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 , I replied to your repo regression question under your " repo pics posted " post, I just wanted to let you know! Christie (Mom to Repo'd Remy) > I first posted about a month ago and am looking for some more > advice. I've been repositioning my daughter Madison (now 5 months) > since she was 2.5 months old. Although we have come a long way we > still have a ways to go. I have been taking pictures of her head > since I first visited the site, and have been encouraged because her > ears are now more aligned (I will try to post tonight). When we > first noticed her plagio, the right ear was quite a bit forward. > However, over the past week or so, it looks like her head has gotten > worse...I don't know how because I am very aggressive about > repositioning her at home (she is almost never on her flat spot) and > day care has been pretty diligent also (as far as I can tell). > Anyhow, I think she is going through a growth spurt (what we have > been waiting for), but it appears as though the back of her head > (non-flat side) is popping out instead of her flat side and it is > making things look worse. I'm hoping this growth spurt will > continue and we will see some improvement on the flat side. Her ear > position is still pretty good and there doesn't seem to be any > regression. Does any of this make sense??? I'm feeling a little > discouraged. > > One more thing, we have an appointment next week at a crainofacial > center to get a more thorough diagnosis of her plagio. The ped > neurosurgeon we saw didn't even touch her head, just said that she > had plagio (wouldn't classify it as mild, moderate or severe) and > said it was our decision as to whether or not we wanted the helmet. > Needless to say, he wasn't very helpful. Hopefully we find out more > next week so we can make an informed decision. I'm still hopefull > that repositioning will work, but if we need to put her in a helmet, > I want to do it now before she gets much older. > > Thanks for all the wonderful info posted on this page. > > (mom to maddie) Quote Link to comment Share on other sites More sharing options...
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