Re: Update and questions about DOCband vs Starband...

[Guest guest]

Sounds like you are really on your way to getting treatment for Jake!

That's great. My son has a local helmet, but reading on the

Orthomerica website (Makers of the Starband) it looks like they do

have a helmet that treats scaphy, called a STARlight™ Bivalved. You

might check their website to learn more about it. Here's the link:

http://www.orthomerica.com/products/cranial/starlightbivalve.htm

Connor (PPO helmet 5/4/04)

--- In Plagiocephaly , " vermontmoms " <vermontmoms@y...>

wrote:

> Hello again,

>

> First I want to say thanks to all of you for the great info I have

> received in such a short time. It has really helped us decide on a

> course of action.

>

> So to update you all...I have finally talked to our ped and he said

> that yes, he knew Jakob had a problem and mentioned it to us but

> wasn't overly concerned b/c he has full ROM. I said yes, he does

> have full ROM from left to right but he has decreased ROM in neck

> flexion and side bending which I feel is causing the tilt/Tort. He

> agreed and said that he would refer him for PT. We also discussed

> Jakob's head shape and he also agreed that he thinks he has scaphy.

> He has referred us to a pediatric neurosurgeon in Dartmouth, NH (not

> sure the name of the doc yet). All of this is great news! In the

> meantime I have set up our initial consult with Cranial Technologies

> in CT to get their opionion of the severity/dx/treatment of the

> Scaphy. Yes, I have been busy in the last 48hrs!

>

> Now onto my new questions...can anyone tell me what are the

> differences btwn DOCband and Starband? Does one band treat Scaphy

> better than the other? If Starband is similar to DOCband, how do you

> find locations for them so I can see if that clinic maybe closer to

> us?

>

> Well, that is all that I have for today...

> Thanks again,

> Jen

> Jakob and (6/17/03)

[Guest guest]

Yes Orthomerica does have a " helmet " to treat scaphy but it is

relatively new. I would certainly check the experience of the ortho

who would be treating a Scaphy headshape using the STARLight.

Dustie

> > Hello again,

> >

> > First I want to say thanks to all of you for the great info I

have

> > received in such a short time. It has really helped us decide

on a

> > course of action.

> >

> > So to update you all...I have finally talked to our ped and he

said

> > that yes, he knew Jakob had a problem and mentioned it to us but

> > wasn't overly concerned b/c he has full ROM. I said yes, he

does

> > have full ROM from left to right but he has decreased ROM in

neck

> > flexion and side bending which I feel is causing the tilt/Tort.

He

> > agreed and said that he would refer him for PT. We also

discussed

> > Jakob's head shape and he also agreed that he thinks he has

scaphy.

> > He has referred us to a pediatric neurosurgeon in Dartmouth, NH

(not

> > sure the name of the doc yet). All of this is great news! In

the

> > meantime I have set up our initial consult with Cranial

Technologies

> > in CT to get their opionion of the severity/dx/treatment of the

> > Scaphy. Yes, I have been busy in the last 48hrs!

> >

> > Now onto my new questions...can anyone tell me what are the

> > differences btwn DOCband and Starband? Does one band treat

Scaphy

> > better than the other? If Starband is similar to DOCband, how

do you

> > find locations for them so I can see if that clinic maybe closer

to

> > us?

> >

> > Well, that is all that I have for today...

> > Thanks again,

> > Jen

> > Jakob and (6/17/03)

[Guest guest]

Hi Jen,

I see you've already been given great info on the Star vs. DOCband.

I think if you do end up needing a bivalve and want to look into the

STARband, I'd definitely ask if the ortho has experience w/that

particular helmet, not just the STARband in general. As far as

STARband locations closer to you, I know there is NOPCO in

Massachusetts and I'm not sure what else. Have you tried emailing

Mark at deeman12342001 ? He did lots of research in your

general area. His son wore a DOCband this past fall. WHen is your

CT appt?

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

> Hello again,

>

> First I want to say thanks to all of you for the great info I have

> received in such a short time. It has really helped us decide on

a

> course of action.

>

> So to update you all...I have finally talked to our ped and he

said

> that yes, he knew Jakob had a problem and mentioned it to us but

> wasn't overly concerned b/c he has full ROM. I said yes, he does

> have full ROM from left to right but he has decreased ROM in neck

> flexion and side bending which I feel is causing the tilt/Tort.

He

> agreed and said that he would refer him for PT. We also discussed

> Jakob's head shape and he also agreed that he thinks he has

scaphy.

> He has referred us to a pediatric neurosurgeon in Dartmouth, NH

(not

> sure the name of the doc yet). All of this is great news! In the

> meantime I have set up our initial consult with Cranial

Technologies

> in CT to get their opionion of the severity/dx/treatment of the

> Scaphy. Yes, I have been busy in the last 48hrs!

>

> Now onto my new questions...can anyone tell me what are the

> differences btwn DOCband and Starband? Does one band treat Scaphy

> better than the other? If Starband is similar to DOCband, how do

you

> find locations for them so I can see if that clinic maybe closer

to

> us?

>

> Well, that is all that I have for today...

> Thanks again,

> Jen

> Jakob and (6/17/03)