Re: Gracie's appt w/neurosurgeon

[Guest guest]

Tara,

Don't lose hope about the correction (though nobody has perfect

noggins). Gracie could easily get GREAT correction - 8 months still

is young enough - some people don't START treatment until well later

than that. It may take a little longer is all. Just dont lose hope!!

Bring some interesting toys, I hear a lollipop works great (though

we didnt try that with our son), nosey toys.. a pacifer if she takes

one. Just be prepared for crying (maybe you'll get lucky and she'll

breeze right through it w/o a sound).

Let us know how it goes and breathe... think good thoughts!!!

Kim

mom to Kaela (9) and Jaxson almost 8 months tort/plagio/CranioCap

> Tomorrow Gracie will be casted in San Diego. The appt yesterday

went

> well only because we got the prescription for the doc band and the

> doctor was very knowledgeable- but the news was not so good. The

doc

> said that we could maybe expct 30-50% correction with Gracie since

her

> head is so flat on the side. I was sad to hear that- I was really

> hoping that she could be corrected 100%- maybe I was crazy to think

> that. Gracie will be 8 months old on the 18th and she should have

her

> helmet within the week after that. The surgeon also said that after

> the babies turn one- there isn't much hope for correction. Well-

> guess I will go get ready for the trip tomorrow- what should I bring

> for her? Tara

[Guest guest]

Tara, WHOA!!!! Not all of that is true. My daughter rec'd

wonderful correction and she rec'd her DOCBand at 8.5 months, wore

it for 12.5 weeks. Go look in our photo section of the

group...there is a 19 month old that was band and what a good

looking head he has now!! Nobody can say how much correction a baby

will receive. 100% correction isn't very realistic either. My

daughter looks 100% better to me than she did the day she began

treatment, but certainly isn't perfectly round either. Please don't

be discouraged by the numbers these dr.s like to spit out. If you

ask 3 different ppl the severity of your baby, trust me, you'll get

3 different answers. If you ask those same 3 ppl the amount of

correction your baby rec'd at the end of treatment, you'll get 3

totally different answers. Stick to, how it looks to you now and

when treatment is over. Good Luck!

Dustie

> Tomorrow Gracie will be casted in San Diego. The appt yesterday

went

> well only because we got the prescription for the doc band and the

> doctor was very knowledgeable- but the news was not so good. The

doc

> said that we could maybe expct 30-50% correction with Gracie since

her

> head is so flat on the side. I was sad to hear that- I was really

> hoping that she could be corrected 100%- maybe I was crazy to think

> that. Gracie will be 8 months old on the 18th and she should have

her

> helmet within the week after that. The surgeon also said that

after

> the babies turn one- there isn't much hope for correction. Well-

> guess I will go get ready for the trip tomorrow- what should I

bring

> for her? Tara

[Guest guest]

Hi Tara,

Please don't bank on those percentages! I was told that my baby would

probably only receive maybe 50 % correction. She started out with

moderate plagio and wasn't DOCbanded until she was a little over 11

months. She received 90+% correction! No one can tell you for sure

just how much correction your baby will achieve.

I'd make a bet that Gracie will make recieve more than 50% correction

from her DOCband. When is Gracie's casting?

> Tomorrow Gracie will be casted in San Diego. The appt yesterday

went

> well only because we got the prescription for the doc band and the

> doctor was very knowledgeable- but the news was not so good. The

doc

> said that we could maybe expct 30-50% correction with Gracie since

her

> head is so flat on the side. I was sad to hear that- I was really

> hoping that she could be corrected 100%- maybe I was crazy to think

> that. Gracie will be 8 months old on the 18th and she should have

her

> helmet within the week after that. The surgeon also said that after

> the babies turn one- there isn't much hope for correction. Well-

> guess I will go get ready for the trip tomorrow- what should I bring

> for her? Tara

[Guest guest]

I'll second what everyone else has said, no one can accurately say

how much correction you can expect to get, but 8 months is definitly

not 'old'. The head keeps growing (albeit more slowly) for a long

time so as long as you are controlling that growth there is ongoing

opportunity for correction.

The staff at San Diego is great. Our daughter was there today

for a minor adjustment, and Angella had us in and out within ten

minutes. You'll be in good hands.

Matt

> Tomorrow Gracie will be casted in San Diego. The appt yesterday

went

> well only because we got the prescription for the doc band and the

> doctor was very knowledgeable- but the news was not so good. The

doc

> said that we could maybe expct 30-50% correction with Gracie since

her

> head is so flat on the side. I was sad to hear that- I was really

> hoping that she could be corrected 100%- maybe I was crazy to think

> that. Gracie will be 8 months old on the 18th and she should have

her

> helmet within the week after that. The surgeon also said that after

> the babies turn one- there isn't much hope for correction. Well-

> guess I will go get ready for the trip tomorrow- what should I bring

> for her? Tara