Question about torticollis

[Guest guest]

My daughter Paige was diagnosed with a mild case of torticollis on

the same day she was diagnosed with mild-to-severe brachy. That was

a little over a month ago - to be honest, I still don't really see

it - they were like " do you see that tilt? has she always had

that? " . And I'm responing, " tilt? what tilt? "

It's mild enough that we were told only to do exercises at home - no

extra PT needed.

She has been wearing a DOCBand for six days now.

Before the band we were probably doing the two sets of exercises 5

times a day. (Not with every diaper change but I thought 5 times a

day was good).

Well now that she has the band, we're struggling with a new set of

issues, like getting it on her, so I have to admit, I've laxed a bit

on the exercises because you have to take the band on and off and

once it's off, it's a struggle to get it back on. We did them 5

times yesterday but not once today.

I can see the brachy so I'm like " we're keeping the band on and

getting this fixed! " but I don't see the torticollis so I'm sort of

unmotivated to do the exercises because she just SCREAMS while I do

them and them fights me to get the band back on.

Can someone who's had experience with mild torticollis tell me how

long you had to do these exercises and did you notice a difference?

The person at Dallas Medical Center said we would need to do the

exercises for 4 months and the person at CT told us 18 months. What

the heck?

Maybe I'm just looking for someone to yell at me so I'll get back on

the wagon with the exercises but I'm really just not seeing the

purpose here...

Thanks!

-, Mommy to Paige (DOCBanded 7/12/4, almost 9 months old)

[Guest guest]

,

My son had plagio and tort and has been out of his helmet for almost

two months. His tort is completely resolved but I continue to stretch

him several times a day. Stretching is very important (the band and

the stretching together help to correct facial asymmetry if your

child has any). And even after the tort is resolved it can come back

as they hit developmental milestones.

The technique I use for my son is to let him watch a DVD of

teletubbies while I stretch him. (I face the side I want to stretch

towards the TV). This is the only time I let him watch TV so to him

although he is being stretched it is kind of a treat. He rarely

fusses and gets a really good stretch.

Good Luck,

Tris in FL

Mom to Colin 10 1/2 mos

DOCband grad 6/04

STARband dropout 2/04

--- In Plagiocephaly , " yzagumny " <yzagumny@y...>

wrote:

>

> My daughter Paige was diagnosed with a mild case of torticollis on

> the same day she was diagnosed with mild-to-severe brachy. That

was

> a little over a month ago - to be honest, I still don't really see

> it - they were like " do you see that tilt? has she always had

> that? " . And I'm responing, " tilt? what tilt? "

>

> It's mild enough that we were told only to do exercises at home -

no

> extra PT needed.

>

> She has been wearing a DOCBand for six days now.

>

> Before the band we were probably doing the two sets of exercises 5

> times a day. (Not with every diaper change but I thought 5 times a

> day was good).

>

> Well now that she has the band, we're struggling with a new set of

> issues, like getting it on her, so I have to admit, I've laxed a

bit

> on the exercises because you have to take the band on and off and

> once it's off, it's a struggle to get it back on. We did them 5

> times yesterday but not once today.

>

> I can see the brachy so I'm like " we're keeping the band on and

> getting this fixed! " but I don't see the torticollis so I'm sort of

> unmotivated to do the exercises because she just SCREAMS while I do

> them and them fights me to get the band back on.

>

> Can someone who's had experience with mild torticollis tell me how

> long you had to do these exercises and did you notice a difference?

>

> The person at Dallas Medical Center said we would need to do the

> exercises for 4 months and the person at CT told us 18 months.

What

> the heck?

>

> Maybe I'm just looking for someone to yell at me so I'll get back

on

> the wagon with the exercises but I'm really just not seeing the

> purpose here...

>

> Thanks!

>

> -, Mommy to Paige (DOCBanded 7/12/4, almost 9 months old)

[Guest guest]

Hi ,

My son was diagnosed with very mild tort. It was enough that it caused him

to

always turn his head the same way in his sleep, thus causing his plagio. We

stretched

him from 3.5 to 6.5 months on our own because of the turning preference then

stopped until 9 months when we saw Cranial Tech and the specialists. They all

noticed his tilt which we never had. Looking back at photos of from 6 to 9

months we do see a very slight tilt. As per CT's instructions, we stretched

from

9 months until he recently turned 18 months. I guess the rationale for

continuing to

stretch so long is in case they hit a growth spurt and cause the muscle to

tighten

again. I really would encourage you to follow CT's instructions and stretch him

until

18 months.

Good luck,

Mark (dad to , DOCgrad 1/19)

>

> My daughter Paige was diagnosed with a mild case of torticollis on

> the same day she was diagnosed with mild-to-severe brachy. That was

> a little over a month ago - to be honest, I still don't really see

> it - they were like " do you see that tilt? has she always had

> that? " . And I'm responing, " tilt? what tilt? "

>

> It's mild enough that we were told only to do exercises at home - no

> extra PT needed.

>

> She has been wearing a DOCBand for six days now.

>

> Before the band we were probably doing the two sets of exercises 5

> times a day. (Not with every diaper change but I thought 5 times a

> day was good).

>

> Well now that she has the band, we're struggling with a new set of

> issues, like getting it on her, so I have to admit, I've laxed a bit

> on the exercises because you have to take the band on and off and

> once it's off, it's a struggle to get it back on. We did them 5

> times yesterday but not once today.

>

> I can see the brachy so I'm like " we're keeping the band on and

> getting this fixed! " but I don't see the torticollis so I'm sort of

> unmotivated to do the exercises because she just SCREAMS while I do

> them and them fights me to get the band back on.

>

> Can someone who's had experience with mild torticollis tell me how

> long you had to do these exercises and did you notice a difference?

>

> The person at Dallas Medical Center said we would need to do the

> exercises for 4 months and the person at CT told us 18 months. What

> the heck?

>

> Maybe I'm just looking for someone to yell at me so I'll get back on

> the wagon with the exercises but I'm really just not seeing the

> purpose here...

>

> Thanks!

>

> -, Mommy to Paige (DOCBanded 7/12/4, almost 9 months old)

[Guest guest]

,

I was in a very similar place. My ds has very mild plagio. We, (me,

CT, the PT and Dallas Children Medical Center, Trish,) think he

stretched some of it out on his own being such an active baby. He is

very late getting his band, and I never want to take it off for his

stretches. The PT showed me several ways to stretch with it on, (I

am sure she wanted me to do the ones with it off, too. I just

didn't.) That's all I did, and he was completely in alignment at his

last session! I know his case was very mild, and we are VERY lucky!

The PT gave me different stretches than CT and Trish gave me. (Did

you see Trish at Dallas Children's?) Our PT does not want me to

touch his chin.

We still have to continue stretching for a few more months to prevent

the growth spurt tightening. I am doing exactly what I was doing

when he got better. hopefully it is still working. He'll be 2 in

December, and out of his band in October! Good luck with you

decision.

Melany

Kody's Mommy

DOCbanded 6/2

Texas

PS My 19 month old does HATE all the stretches and is very strong

and fights back and I wish I knew to do them sooner! Who knows it

may have been easier, and prevented part of the flattening. That's

what our new pede says, anyway. Also, I hope this makes sense.

Kody's calling from his nap, so here I go sending it!

In Plagiocephaly , " yzagumny " <yzagumny@y...> wrote:

>

> My daughter Paige was diagnosed with a mild case of torticollis on

> the same day she was diagnosed with mild-to-severe brachy. That

was

> a little over a month ago - to be honest, I still don't really see

> it - they were like " do you see that tilt? has she always had

> that? " . And I'm responing, " tilt? what tilt? "

>

> It's mild enough that we were told only to do exercises at home -

no

> extra PT needed.

>

> She has been wearing a DOCBand for six days now.

>

> Before the band we were probably doing the two sets of exercises 5

> times a day. (Not with every diaper change but I thought 5 times a

> day was good).

>

> Well now that she has the band, we're struggling with a new set of

> issues, like getting it on her, so I have to admit, I've laxed a

bit

> on the exercises because you have to take the band on and off and

> once it's off, it's a struggle to get it back on. We did them 5

> times yesterday but not once today.

>

> I can see the brachy so I'm like " we're keeping the band on and

> getting this fixed! " but I don't see the torticollis so I'm sort of

> unmotivated to do the exercises because she just SCREAMS while I do

> them and them fights me to get the band back on.

>

> Can someone who's had experience with mild torticollis tell me how

> long you had to do these exercises and did you notice a difference?

>

> The person at Dallas Medical Center said we would need to do the

> exercises for 4 months and the person at CT told us 18 months.

What

> the heck?

>

> Maybe I'm just looking for someone to yell at me so I'll get back

on

> the wagon with the exercises but I'm really just not seeing the

> purpose here...

>

> Thanks!

>

> -, Mommy to Paige (DOCBanded 7/12/4, almost 9 months old)