Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Hi Krissy, I can see exactly what you are talking about but it is probably completely normal. I would call his neuro. and ask about it. You may get some reassurance so you do not have to worry one more day. Perhaps s/he can just talk to you on the phone about it without needing to be seen. If you do want someone besides the ortho to see it do you think 's primary ped could see him today? I really do not know, but I am guessing that you do not have anything serious to worry about. I know it's hard though! I will ask our ortho about it today as well. I see a bump/ridge on the top right of Colin's head and I'm not sure if it was always there now! We have an apptm't at 3pm EST and will be home by 5:30 pm. I'll post tonight no later than when Colin goes to bed. Maybe it would be nice if they had more hair....LOL! J/K Sue Colin F. almost 10 mos. old STARband 6/29 Buffalo, NY --- In Plagiocephaly , " Krissy Cook " <krissycook@m...> wrote: > Hi Everyone- > > I was on the Plagio. chat last night and mentioned about having a bump on the top > of his head. It is where the helmet opening is and right at his soft spot. > > I called the Orthotist today and she couldn't see him because she was not in the office this > afternoon. He has an appointment tomorror at 1:30PM. > > I have posted some photos of his head. I tried with lighting and back lighting so you could > get a real look at the bump I am talking about. I am concerned and I want to know what > you think. > > The Ortho. thinks he has not outgrown his band because he has a lot of room in the back > of the band. He has never had a fitting on the front of the band where the forehead or > sides of his head touches because he need growth away from those areas. So, we always > fit the back for back Brachy growth. > > It doesn't seem to hurt him. He is as happy as can be. But, the Ortho did mention that > there may be some extra fluid there. Has anyone had this experience? Should I call his > Neuro.? Should I not keep the helmet on him until we see the Ortho? There is not real red > spot, but it is so close to his soft spot and I don't want his head to have anything bad > happen. > > Thank you for responding! Once I get some feedback, I will delete the photos! Thanks > agin. > Krissy > ph's mom > Starband 4/28/04 (7 months) > Palm Harbor, FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Krissy, Perhaps he just slept funky and his helmet was resting on a new spot during that time? The striped marks are similar to what gets sometimes when he wakes up from either a nap or all night. They DO fade within the appropriate time so I don't worry. Because you say it's right on a fontanelle I would call his neuro just to be on the safe side. It can't hurt to ask. If you are really worried it may get worse I would leave the band off for now. Crista-Grayslake, IL Mom to -9 mo old-DOCbanded 5/13 brachy --- In Plagiocephaly , " Krissy Cook " <krissycook@m...> wrote: > Hi Everyone- > > I was on the Plagio. chat last night and mentioned about having a bump on the top > of his head. It is where the helmet opening is and right at his soft spot. > > I called the Orthotist today and she couldn't see him because she was not in the office this > afternoon. He has an appointment tomorror at 1:30PM. > > I have posted some photos of his head. I tried with lighting and back lighting so you could > get a real look at the bump I am talking about. I am concerned and I want to know what > you think. > > The Ortho. thinks he has not outgrown his band because he has a lot of room in the back > of the band. He has never had a fitting on the front of the band where the forehead or > sides of his head touches because he need growth away from those areas. So, we always > fit the back for back Brachy growth. > > It doesn't seem to hurt him. He is as happy as can be. But, the Ortho did mention that > there may be some extra fluid there. Has anyone had this experience? Should I call his > Neuro.? Should I not keep the helmet on him until we see the Ortho? There is not real red > spot, but it is so close to his soft spot and I don't want his head to have anything bad > happen. > > Thank you for responding! Once I get some feedback, I will delete the photos! Thanks > agin. > Krissy > ph's mom > Starband 4/28/04 (7 months) > Palm Harbor, FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Krissy, My daughter had that same looking bump on her head during and after treatment for awhile. Her's was where the plates of her skull were shifting into their correct shape. had a soft spot the size of a golfball for the first 2 years of her life. It is now the size of a quarter. I would definitly bring it up to the ortho tomorrow at your visit. Excess fuild is also very common during and shortly after banding. Let us know! Dustie -- In Plagiocephaly , " Krissy Cook " <krissycook@m...> wrote: > Hi Everyone- > > I was on the Plagio. chat last night and mentioned about having a bump on the top > of his head. It is where the helmet opening is and right at his soft spot. > > I called the Orthotist today and she couldn't see him because she was not in the office this > afternoon. He has an appointment tomorror at 1:30PM. > > I have posted some photos of his head. I tried with lighting and back lighting so you could > get a real look at the bump I am talking about. I am concerned and I want to know what > you think. > > The Ortho. thinks he has not outgrown his band because he has a lot of room in the back > of the band. He has never had a fitting on the front of the band where the forehead or > sides of his head touches because he need growth away from those areas. So, we always > fit the back for back Brachy growth. > > It doesn't seem to hurt him. He is as happy as can be. But, the Ortho did mention that > there may be some extra fluid there. Has anyone had this experience? Should I call his > Neuro.? Should I not keep the helmet on him until we see the Ortho? There is not real red > spot, but it is so close to his soft spot and I don't want his head to have anything bad > happen. > > Thank you for responding! Once I get some feedback, I will delete the photos! Thanks > agin. > Krissy > ph's mom > Starband 4/28/04 (7 months) > Palm Harbor, FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Krissy: I can definitely see the bump & understand why you're concerned, I would be too! Often, babies can get fluid retention " bumps " around gaps between band & skin, this is common & no problem for concern and will go away after the baby has been bandless for a while. However, we normally hear of this around the ear area near the bands velcro closure. I don't know, personally, I would keep the band off til you can be seen by your orthotist tomorrow just to be safe and err on the side of caution. Better to be safe than sorry I'd say. Let us know what you do & what the ortho says tomorrow. Debbie > -- In Plagiocephaly , " Krissy Cook " <krissycook@m...> > wrote: > > Hi Everyone- > > > > I was on the Plagio. chat last night and mentioned about > having a bump on the top > > of his head. It is where the helmet opening is and right at his > soft spot. > > > > I called the Orthotist today and she couldn't see him because she > was not in the office this > > afternoon. He has an appointment tomorror at 1:30PM. > > > > I have posted some photos of his head. I tried with lighting and > back lighting so you could > > get a real look at the bump I am talking about. I am concerned and > I want to know what > > you think. > > > > The Ortho. thinks he has not outgrown his band because he has a > lot of room in the back > > of the band. He has never had a fitting on the front of the band > where the forehead or > > sides of his head touches because he need growth away from those > areas. So, we always > > fit the back for back Brachy growth. > > > > It doesn't seem to hurt him. He is as happy as can be. But, the > Ortho did mention that > > there may be some extra fluid there. Has anyone had this > experience? Should I call his > > Neuro.? Should I not keep the helmet on him until we see the > Ortho? There is not real red > > spot, but it is so close to his soft spot and I don't want his > head to have anything bad > > happen. > > > > Thank you for responding! Once I get some feedback, I will delete > the photos! Thanks > > agin. > > Krissy > > ph's mom > > Starband 4/28/04 (7 months) > > Palm Harbor, FL Quote Link to comment Share on other sites More sharing options...
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