2 QUESTIONS FOR PIERRE ABOUT TREATMENT

[Guest guest]

hello Pierre and all users's igA group ,

I'm french and 35 years old .

I have only one right kidney.

in 1989 , disorders appear with blood and proteinuria in my test urine.

in 1993 , Hyper tension

in 1995 , biopsy by lombotomia because kidney alone ( no risks).

now 2003, my creatinine is 2.7 before 1 year and clearance 35 %.

i try for 3 months an hard low antigenic diet in a french book from a doctor

called DR SEIGNALET " food or third medecine "

he said principally no bread , no milk , no beer , no pasta

etc he want restaure the primitive food way.

A/ my main question is before meeting my neph in an associative forum on

genetic renal dieseases called AIRG

on 21 and 22 june 2003:

in FRANCE , most of nephs don't give prenisone on igA patients

do you think i must now write him a letter to ask for the interest of this

drug for me ?

he said me two times if you have been japanese patient , you will take

predisone for example ? but not in france.

it's seem to exist two schools of thinking in therapeutic management:

1/ ACE( Renitec 10 mg ) + ALLOPURINOL ( Zyloric 100 mg ) + FISH OIL ( 8

g/day) my treatment since 6 years

2/ prenisone and others drugs

thanks very much for yours responses.

I'm very happy to meet this place to broke isolation.

B/ the last question , read all posts of the igA group is very interesting

but so hard sometimes

Do you think for the health mental et serenity is better to know or not ,

all details of your ill evolution reading and compare with the others

stories ?

friendly .

PASCAL