Re: New to the Group - Breastfeeding

[Guest guest]

Hi!

I just want to jump in here a minute and give you my two cents

worth. My 5.5 month old daughter has tort and is in a StarBand

(since 2/10/04). We also had difficulties nursing and I asked about

it here... I'll pass on the advice that I got, and tell you what

works for us. For us the tort has only been a minor issue in

nursing, resolved by changing the position I use to nurse (lying

down seems to be less uncomfortable on the tort side). Anyway, the

band is a little hard to get used to, but try putting a thick burp

cloth or a folded receiving blanket on your arm under baby's head.

Or my new favorite (thanks to GREAT advice received here!) is to sit

in the rocking chair with a fairly dense feather pillow half on my

lap, half on the chair arm, and then lay baby on pillow instead of

cradling in your arms.

We are also waiting to be seen for PT... we finally got the referral

after 2 months of fighting our ped, and now the PT can't see us for

another three weeks. Grrrrr... it seems we've been waiting for

treatment way too long. Luckily with younger babies (like we have)

there is a little time for it.

Just re-read your post... not sure if you are still trying to nurse

or not... and I have heard of only one person who was supposedly

helped by the cranio sacral therapy... she swears that her son

couldn't nurse before treatment, and then did just fine after... who

knows if that did the trick or if it was a fluke!

Stand your ground for what you think is right!

& Abigail (9/2/03) StarBanded 2/10/04 & tort

> Hi Barb and welcome to the group! My daughter didn't have Tort,

but

> I have heard time and time again that tort babies

couldn't/wouldn't

> breastfeed. Again, this is not your fault. As far as your ped

> goes, I would go to the " photo " section of the group and print off

> pictures of banded babies. There is a before and after section

that

> proves bands/helmets do work. There is also an article from the

AAP

> article stating this in our " files " section. Has had a

CT

> Scan or 3-D x-rays to rule out cranio? Please keep us posted on

how

> your ped reacts to your new-found knowledge of plagio.

>

> Dustie, mom to , DOCgrad'03

> Dallas

> --- In Plagiocephaly , " b_belik " <ddakers@a...>

wrote:

> > Hi! I am writing from Maine. My wonderful daughter, ,

> will

> > be 4 months next Tuesday and we are beginning the process for

> seeking

> > treatment of her plagio. I have been aggressively repositioning

> for

> > about 5 to 6 weeks now --and it just isn't working--most likely

> > because we haven't yet started physical therapy for her tort.

> >

> > About 2 1/2 weeks ago, I took her to her pediatrician to have

her

> > condition evaluated. The doctor said to keep repositioning and

> also

> > suggested Cranial Sacral Therapy. The doctor is concerned about

> > ruling out cranio. (something didn't feel right with her

sutures)

> and

> > said that she would re-check at her 4 month visit and send us on

> to a

> > neurosurgeon if she still had cause for concern. Sounded like a

> plan

> > to me at the time. We have not yet seen the osteopath-that appt

> is

> > in a couple more weeks.

> >

> > Since we saw the pediatrician I have, of course, been all over

the

> > Internet researching and have been so encouraged by the success

> > people have had with the bands. But I can appreciate that the

> sooner

> > we start treatment the better. SO I just got off the phone with

> the

> > ped. this afternoon--I called to let her know how concerned I am

> that

> > 's head is just getting worse! She finally suggested

> > physical therapy ( I should have asked for that before--my

> fault). I

> > asked her whether she had any patients who had been treated with

> > helmets or headbands and she said " absolutely not " --just

physical

> > therapy and some cranial sacral therapy for those who were

> interested

> > in osteopathic treatment. She also said that she would get a

copy

> of

> > a recent journal article for me that supposedly concludes

> > that " helmets don't work " !!

> >

> > I know that I am getting ahead of myself assuming that

> > should be in a band (based on the pictures that I have seen

posted

> on

> > the Internet I would think she is going to be classified as

> > a " moderate " case)---but I am so discouraged to know that my

> > physician isn't going to even consider that to be an option!! I

> am

> > shocked!!

> >

> > Has anyone heard anything about the research to which she is

> > referring?

> >

> > Also, would be curious to know if any of you were unsuccessful

> with

> > breastfeeding due to this condition--if only I had listened to

the

> > lactation consultant who after 6 weeks of trying to help us said

> that

> > the only thing she could think of that was left to explain

> > 's ineffective suck was some misalignment in her mouth--

> she

> > recommended that we think about cranial sacral therapy at that

> time

> > and I thought it was too much of a long shot!! Oh, the mother's

> > guilt I have about that...

> >

> > thank you,

> > Barb

> > Maine

>

>

>

> For more plagio info