Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 , I'm so glad that 's appt. went so smoothly, what a nice surprise! Would you let us know how her initial fitting goes when the helmet gets in? I was wondering if you could help me with some information when you have time... is the orthotics dept. right there at the hospital, and do you have a name, contact/address info that you could share? Do you know if their helmet is locally designed, or if it is a brand name that they order to their casting specifications? What age range is their helmet appropriate for as far as treatment goes (ex. 3 - 18 months.) That information might be of interest and help to other parents new to plagio evaluating options in your area. Thank you for any help at all! I noted that you mentioned that 's helmet would be in in 3 - 4 weeks... I don't know from personal experience, but that seems to be a long time between casting and fitting, especially in a little one as young as your daughter is who is growing very quickly. Would you please make sure you are absolutely comfortable with her fit at the initial fitting? By the way, should see some fantastic and rapid improvement in her headshape with being helmeted so young! Please keep us posted! Take care, Christie (Mom to Repo'd Remy) > I posted last week about my 3 month daughter being diagnosed with > plagio and tort. I want to thank you for the responses. I just wanted > to check back in and let you know how things have progressed this > past week. > Liz started physical therapy for the tort on Tuesday and that went > well. We'll be going once a week for a couple of times and then every > other week. The therapist said that Liz's tort was mild, just > rotation and no tilt, and that therapy shouldn't take long. > We then had an appointment at the University of Iowa hospitals > yesterday and saw the nurse practitioner at their pediatric > neurosurgery clinic. I went into the appointment armed with fighting > my case for a helmet, but was wonderfully surprised that I didn't > need to defend my decision! She said that Liz's plagio is on the > lower side of moderate, but that there was obvious ear and facial > assymetry. She gave us two options. The first was to continue > repositioning for six weeks and then have a follow up appointment to > evaluate for a helmet, or start the helmet now. I told her that my > husband and I were wanting to go with the helmet now, rather than > wait. We discussed the differences between helmets and decided that > we'll go with the orthotics company through the hospital. > Honestly, I was still really torn as to whether to helmet or not and > asked the NP what she would do if this was her child. She flat out > said she'd go with the helmet now. So... > She wrote us the prescription and sent us to the orthotic clinic at > the hospital. We were able to get her cast made right away yesterday, > and we'll recieve the band in 3-4 weeks. I was absolutely floored! In > just over 2 hours, we were seen by the NP, given a prescription, and > got her casting done! I expected this whole process to drag out over > two or three weeks at least. > Thank you all for your valuable knowledge! I will check back in when > gets her band. > > (mom to - 3mos. w/ tort and plagio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Wow ! How great! And what a relief for you guys to not have to worry about fighting to get a script or dreading a casting appt! I will however echo Christie's worry about going 3-4 weeks between casting and fitting, especially at 's age. Her head is growing so quickly at this point, so please be sure you're happy with the fit. For example, Cranial Tech fits all babies within 2 weeks of casting, and for babies younger than 6 mos, they aim for even less than that. Let us know when her band is in! , mom to Hannah, DOCband #3 3/30 Cape Cod, Ma > I posted last week about my 3 month daughter being diagnosed with > plagio and tort. I want to thank you for the responses. I just wanted > to check back in and let you know how things have progressed this > past week. > Liz started physical therapy for the tort on Tuesday and that went > well. We'll be going once a week for a couple of times and then every > other week. The therapist said that Liz's tort was mild, just > rotation and no tilt, and that therapy shouldn't take long. > We then had an appointment at the University of Iowa hospitals > yesterday and saw the nurse practitioner at their pediatric > neurosurgery clinic. I went into the appointment armed with fighting > my case for a helmet, but was wonderfully surprised that I didn't > need to defend my decision! She said that Liz's plagio is on the > lower side of moderate, but that there was obvious ear and facial > assymetry. She gave us two options. The first was to continue > repositioning for six weeks and then have a follow up appointment to > evaluate for a helmet, or start the helmet now. I told her that my > husband and I were wanting to go with the helmet now, rather than > wait. We discussed the differences between helmets and decided that > we'll go with the orthotics company through the hospital. > Honestly, I was still really torn as to whether to helmet or not and > asked the NP what she would do if this was her child. She flat out > said she'd go with the helmet now. So... > She wrote us the prescription and sent us to the orthotic clinic at > the hospital. We were able to get her cast made right away yesterday, > and we'll recieve the band in 3-4 weeks. I was absolutely floored! In > just over 2 hours, we were seen by the NP, given a prescription, and > got her casting done! I expected this whole process to drag out over > two or three weeks at least. > Thank you all for your valuable knowledge! I will check back in when > gets her band. > > (mom to - 3mos. w/ tort and plagio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Wow ! It's always refreshing hearing stories like yours! SO many of our plagio parents get the runaround when wanting a helmet or ANY plagio info for that matter, so I'm happy to hear how smooth everything went. If you don't mind, could you add the clinic's information to our HELMET/BAND DATABASE? This would help future members in your area I'm sure. Let us know when the helmet is in., Thanks for the great update. Debbie MI > > > I posted last week about my 3 month daughter being diagnosed with > > plagio and tort. I want to thank you for the responses. I just > wanted > > to check back in and let you know how things have progressed this > > past week. > > Liz started physical therapy for the tort on Tuesday and that went > > well. We'll be going once a week for a couple of times and then > every > > other week. The therapist said that Liz's tort was mild, just > > rotation and no tilt, and that therapy shouldn't take long. > > We then had an appointment at the University of Iowa hospitals > > yesterday and saw the nurse practitioner at their pediatric > > neurosurgery clinic. I went into the appointment armed with > fighting > > my case for a helmet, but was wonderfully surprised that I didn't > > need to defend my decision! She said that Liz's plagio is on the > > lower side of moderate, but that there was obvious ear and facial > > assymetry. She gave us two options. The first was to continue > > repositioning for six weeks and then have a follow up appointment > to > > evaluate for a helmet, or start the helmet now. I told her that my > > husband and I were wanting to go with the helmet now, rather than > > wait. We discussed the differences between helmets and decided > that > > we'll go with the orthotics company through the hospital. > > Honestly, I was still really torn as to whether to helmet or not > and > > asked the NP what she would do if this was her child. She flat out > > said she'd go with the helmet now. So... > > She wrote us the prescription and sent us to the orthotic clinic > at > > the hospital. We were able to get her cast made right away > yesterday, > > and we'll recieve the band in 3-4 weeks. I was absolutely floored! > In > > just over 2 hours, we were seen by the NP, given a prescription, > and > > got her casting done! I expected this whole process to drag out > over > > two or three weeks at least. > > Thank you all for your valuable knowledge! I will check back in > when > > gets her band. > > > > (mom to - 3mos. w/ tort and plagio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Hello It is such a nice change to hear a story like yours. No fighting for something your child needs. ) Like the others have already mentioned that 3 to 4wks between casting and fitting is a long time. Maybe you could contact them and see if they could put a rush on it. At your dughters age this is a long time and much growth can occur in this time. Please let us know how it goes. Sandy Willow's Mom torticollis resolved Cranio Germany Grad 02/04 > I posted last week about my 3 month daughter being diagnosed with > plagio and tort. I want to thank you for the responses. I just wanted > to check back in and let you know how things have progressed this > past week. > Liz started physical therapy for the tort on Tuesday and that went > well. We'll be going once a week for a couple of times and then every > other week. The therapist said that Liz's tort was mild, just > rotation and no tilt, and that therapy shouldn't take long. > We then had an appointment at the University of Iowa hospitals > yesterday and saw the nurse practitioner at their pediatric > neurosurgery clinic. I went into the appointment armed with fighting > my case for a helmet, but was wonderfully surprised that I didn't > need to defend my decision! She said that Liz's plagio is on the > lower side of moderate, but that there was obvious ear and facial > assymetry. She gave us two options. The first was to continue > repositioning for six weeks and then have a follow up appointment to > evaluate for a helmet, or start the helmet now. I told her that my > husband and I were wanting to go with the helmet now, rather than > wait. We discussed the differences between helmets and decided that > we'll go with the orthotics company through the hospital. > Honestly, I was still really torn as to whether to helmet or not and > asked the NP what she would do if this was her child. She flat out > said she'd go with the helmet now. So... > She wrote us the prescription and sent us to the orthotic clinic at > the hospital. We were able to get her cast made right away yesterday, > and we'll recieve the band in 3-4 weeks. I was absolutely floored! In > just over 2 hours, we were seen by the NP, given a prescription, and > got her casting done! I expected this whole process to drag out over > two or three weeks at least. > Thank you all for your valuable knowledge! I will check back in when > gets her band. > > (mom to - 3mos. w/ tort and plagio) Quote Link to comment Share on other sites More sharing options...
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