Re: a friend who's baby w/ plagio pos brachy KIM in MN

[Guest guest]

Kim,

Definately show her pics to better help her understand the

severity. Explain to her that she has her " mommy goggles " on, and

needs to take them off and try to be open to what her child has.

Ask her if she'd be willing to speak w/ another mom about it, and

put her in touch w/ another member that has brachy or you can even

give her my name if you want and have her call me even tho Jaden

doesn't have Brachy but plagio. I find it easier to ignore the

pleas of people close to me, but when someone non-judgemental and is

an outsider offers their assistance, that person is more open and

non-threatened but what ever issue it is they are dealing w/.

One more important thing, did you explain to her if it's not

corrected, the problems that may arise in the future? That might

help her decide to get some help. There's info also on

babycenter.com as well about plagio (i'm not sure about brachy).

Good luck,

~Amy

> Hey guys,

> I have a close friend who is a nurse, has a baby that is 9 months

> old. For the past 5 months or so she has been aware that her son

has

> plagio, but her doctor keeps telling her the famous 'it will round

> out on it's own' thing. Well, I really think he has a brachy head

> shape.. comparing it with the info that I got from CT, Id say he's

> pretty severe, too. I talked to her about it, saying that with it

> this bad, he's not going to be able to round out on his own,

> especially if she wouldn't repo him. He spent a TON of time in his

> swing, which I would think led to this... I am going to send

> information to her doctor (she doesnt know this yet) but any

advice

> on what else I can say to her? I know I can only do so much, but I

> hate to see someone I am so close to just accept the rounding on

it's

> own thing..

>

>

> Kim

[Guest guest]

Hello Kim,

My son has severe brachy and has been in his Starband for his third week. One reason your friend may be ignoring the problem is with brachy there is very little asymmetry. Actually from the front most brachy babies look completely normal. People would just say that they have big heads. it is when they turn to the side you see the problem. 's is noticeably flat and kind of pointy on top. My family kept saying " doesn't need a band his face is beautiful." They would not address the flatness at all. I think it is easier to justify getting the band to yourself and everyone else if you see some facial asymmetry. Then you can say I am fixing a lowered eye or lining up the ears, and people are more supportive.I decided to go ahead and get one after I read that the sides could keep growing wider and the back stay flat ( I just had this horrible thought that he would he teased). My PT said his beginning numbers where beyond severe, but now after 3 weeks I have already seen improvement- visibly.One thing my orthodist has told me is that brachy takes the longest to see correction, and that the sides of his head can be stopped from getting any bigger but not decreased. it is also hard to repo brachy because usually the whole back is flat not just one side.

Hope this helps,

-----Original Message-----From: Amy in MN [mailto:skisum88@...] Sent: Saturday, May 22, 2004 12:50 PMPlagiocephaly Subject: Re: a friend who's baby w/ plagio pos brachy KIM in MNKim,Definately show her pics to better help her understand the severity. Explain to her that she has her "mommy goggles" on, and needs to take them off and try to be open to what her child has. Ask her if she'd be willing to speak w/ another mom about it, and put her in touch w/ another member that has brachy or you can even give her my name if you want and have her call me even tho Jaden doesn't have Brachy but plagio. I find it easier to ignore the pleas of people close to me, but when someone non-judgemental and is an outsider offers their assistance, that person is more open and non-threatened but what ever issue it is they are dealing w/. One more important thing, did you explain to her if it's not corrected, the problems that may arise in the future? That might help her decide to get some help. There's info also on babycenter.com as well about plagio (i'm not sure about brachy). Good luck,~Amy> Hey guys, > I have a close friend who is a nurse, has a baby that is 9 months > old. For the past 5 months or so she has been aware that her son has > plagio, but her doctor keeps telling her the famous 'it will round > out on it's own' thing. Well, I really think he has a brachy head > shape.. comparing it with the info that I got from CT, Id say he's > pretty severe, too. I talked to her about it, saying that with it > this bad, he's not going to be able to round out on his own, > especially if she wouldn't repo him. He spent a TON of time in his > swing, which I would think led to this... I am going to send > information to her doctor (she doesnt know this yet) but any advice > on what else I can say to her? I know I can only do so much, but I > hate to see someone I am so close to just accept the rounding on it's > own thing.. > > > KimFor more plagio info

[Guest guest]

Hi Kim,

My son is Brachy. He has been in his Starband for 4 weeks now and

we see improvement. He will need a lot of growth spurts to round out. I

tried repro for months- nothing worked. I think Brachy need the

pressure on the side of the head to stop it from growing outward. I can

sleep at night now knowing he is not on the flat spot. Good luck!

Krissy

ph' mom

Starband 4/28/04 (7 months when banded)