Re: Questions on the DOC band and a little hot head.

July 15, 2004

Hi Becca,

We live in Buffalo, NY and I could not go a summer without A/C. I do

not like heat (so I guess it's good that we live here LOL). I can

only suggest a room a/c if central air is out of the question. I

keep a small room thermometer (temp and RH%) in Colin's room and I am

a FREAK about not letting it get too hot in there. We have central

air. I guess also just dress her very lightly (only a diaper?) Good

luck.

Sue

Colin F. 9.5 mos. STARband 6/29

Buffalo, NY

> Hello all. I was wondering if any one has any advice on how to deal

> with the heat. Currently it has been getting hotter here by Disney

> Land in Cali. We don't have AC in the house and it gets hot at

> night. My hubby uses a small fan at night to keep himself cool.

> Should I invest in a small fan to face 's crib at night after

> she gets the DOC band? She can be a little hot box. I receaved a

> paper in my info pack from Cranial Tech and it talked about how to

> keep the kiddo cool during the day, but didn't say anything about

it

> for night time. If any one has any good ideas or advice let me

know.

> And thank you to all who responded to my last post. I realy

> epriciate the support. Things are looking good. Can't wait to get

> the ball rolling on the DOC band and getting excited on finding a

> good Nurologist to further evaluate 's Optic Nerve Hypoplacia.

> So far they Have pointed out that she is a little devlopmentaly

> delayed, but not much. And they also suggesded that she have

> physical therapy for her Tort and that will help her motor skills

> that she is lagging on. Thanks again to every one. I am glad I

found

> you all.

>

> Becca ('s mom in California, Soon to be DOC banded)

July 15, 2004

This might sound weird, but I had a thought. There are products you

can buy to put in dog crates that keep dogs cool. I have a cooler pad

that has this odd gel in it. The gel soaks up water but doesn't

release it again (I think it's the same stuff they put in diapers,

actually, to soak up the moisture and keep the baby dry) and the dog

can lie on it and stay cool without getting wet. There are also

cooling disks you can put under their crate pad. A

gain, I realize this sounds weird and I am not saying your baby is a

puppy! But it might be worth checking them out to see if there is

anything that can go in the crib. I live in Seattle and we don't get

hot here, so I haven't had to deal with this problem.

, 19 mos, tort, DOC Band 5/7

<r_shields21@y...> wrote:

> Hello all. I was wondering if any one has any advice on how to deal

> with the heat. > Becca ('s mom in California, Soon to be DOC

banded)

July 15, 2004

Hi Becca,

We have a regular sized standing fan that is temp controlled

(about $25-$30 at Wal-Mart) in 's room that we keep running

all nite. We have window units in the living room and in our room,

but not in hers. Thankfully we are just now getting to the 100 degree

temps here(Texas) and at nite it is still in the low to mid 70's. I

would suggest you get a small fan either standing or a desk fan a use

it in her room at nite. sleeps only in a t-shirt at nite to

help her stay cool because just like me she is hot natured. Good Luck.

in Texas

Mom to , DOC banded 5/03

Plagio/Brachy/Tort

> <r_shields21@y...> wrote:

> > Hello all. I was wondering if any one has any advice on how to

deal

> > with the heat. > Becca ('s mom in California, Soon to be DOC

> banded)

July 15, 2004

Hello again Becca

I would try a fan, but rotate it. I do think that should help.

After a few days most kids adjust to the temperature change. Just

keep her dressed light, and maybe leave socks off as that is a vent

for heat as well.

As for the PT and the torticollis Please do get her into PT. That

is really important for tort kids, and will only help with the

plagio as well. Have you contacted EI yet? Early intervention will

eval your daughter, and if she qualifies they come to your home and

do treatment there with her. (Free of charge in most states) Some

states it is called birth to 3. You probably can contact the school

system and they should be able to help you along there. OR have the

ped refer her to EI / Birth to 3 as soon as you found a good one.

Good luck in all of this, and what helped me when I started all this

that you are about to. ALL the great Moms that have been there and

done it. You will get there.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

> Hello all. I was wondering if any one has any advice on how to

deal

> with the heat. Currently it has been getting hotter here by Disney

> Land in Cali. We don't have AC in the house and it gets hot at

> night. My hubby uses a small fan at night to keep himself cool.

> Should I invest in a small fan to face 's crib at night after

> she gets the DOC band? She can be a little hot box. I receaved a

> paper in my info pack from Cranial Tech and it talked about how to

> keep the kiddo cool during the day, but didn't say anything about

it

> for night time. If any one has any good ideas or advice let me

know.

> And thank you to all who responded to my last post. I realy

> epriciate the support. Things are looking good. Can't wait to get

> the ball rolling on the DOC band and getting excited on finding a

> good Nurologist to further evaluate 's Optic Nerve

Hypoplacia.

> So far they Have pointed out that she is a little devlopmentaly

> delayed, but not much. And they also suggesded that she have

> physical therapy for her Tort and that will help her motor skills

> that she is lagging on. Thanks again to every one. I am glad I

found

> you all.

>

> Becca ('s mom in California, Soon to be DOC banded)

July 15, 2004

Hi Becca,

Dress her in just a onesie and diaper for bed. You can use a fan but

I'd use an oscillating one, so as not to have the cool breeze blowing

directly on her.