Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 You mentioned that she's back at the table doing therapy again. What do you think of the idea of the therapy helping her to overcome her anxiety about new foods? I really wouldn't jump right to nut flours from where you are right now. How about a banana? Will she try that? How about meatballs? I know you have tried lots of things. You have said her receptive language is getting better. Can you try the one bite of this for one bite of eggs trick? I am glad to hear of her progress. Now we just have to figure out how to get her to eat something besides eggs. Jody mom to -5 and -7 SCD 13 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Here's my thoughts - she had regressed so bad and we just got her back. I'm almost afriad of using therapy to get her to try new foods. She's a " global " shut down kid. When something becomes aversive it's all over the place - our therapy at home (while she was in school) was even awful to her bc thiers was inappropriate. If it were to become negative again, I think I'd freak - she lost 8 months of her life from thier screw ups. No banana's, I've tried those as well. Meatballs, I've tried putting them into the speghetti and she freaked, they aren't supposed to be there, we had never eaten them before so they are a foriegn object to her. I've done the try a bite and get eggs, she'll refuse to eat. I only did it for one day tho, bc I didn't want her to not eat anything. I'd be in big trouble then. Tell me about it, those poor chickens are getting overtime bc of this kiddo!!!! Some have even had to take early retirement!!!!! She's been eating about 10 to 13 eggs per day!!!!!! Karyn, Mom to 4.1, dx autism, GF/CF, SCD 3 weeks You mentioned that she's back at the table doing therapy again. What do you think of the idea of the therapy helping her to overcome her anxiety about new foods? I really wouldn't jump right to nut flours from where you are right now. How about a banana? Will she try that? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Karyn, Have you tried meats other than the chicken from the soup? Like broiled hamburger, or even ground beef browned without any added oil? Could you scramble some lightly steamed yellow squash or chicken, or even ground beef into her eggs? Or even steamed cauliflower? (trying to think of things that would not be TOO obvious). The fruits are mostly sweet. If she doesn't like or is not particularly interested in sweet, what does she like? What did she like to eat before SCD? Any way you can make something that looks like whatevre that was? Then enzymes may help, but it may take awhile. There are legal graham crackers listed on pecanbread.com recipe site. They are in the section that " has dairy " , but I know the recipe creator has said you can make them without the dairy and it comes out fine. However, I guess I would also recommend you try not to add nut flour right now. If you feel you must add nut- something, you might try almond BUTTER, or grind some pecans or walnuts or hazelnuts into nut BUTTER. The stages are just a guide, a year ago we didn't have it. But it is known that nut flour is more difficult to digest, as are raw or dried fruits/veggies, and coconut for example. I would definitely NOT try those things at this point. Congratulations on all the progress, that is wonderful!! I'm sure it is difficult to think about denying her and maybe rocking the boat at this point. But you may deicde she just can't eat eggs for every meal (just like at some point you decided she could not eat gluten, or grains, or reg. sugar). Maybe she can have eggs for breakfast, but at lunchtime it is XYZ. Period. And if she doesn't want to eat that's OK. That's all I can think of right now. Sounds like you are doing a terrific job! You know you are on the right track!! P.S. Do you give an Epsom salt baths, or have you ever given any supps that have sulfur? Eggs are sulfury, could she he body be craving sulfur? -- Sue, mom to Adam and SCD 4 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Good question!! I've been giving her the Epsom salt baths, just bc it has always helped her she has been getting at least 2 a week sometimes more. I'll try some squash in her eggs. I have also been thinking of the eggs 1 meal and something else period thing. She's doing well. I guess I'm just wondering if her tummy is calling the shots at this point. Progress is far outweighing everything the dietary concerns. Maybe I'm asking if this is ok - is it ok that she eat so many eggs and nothing else. She's been on enzymes for a year prior to SCD, I just recently got the legal version in so I started them again. I know this kid and she will refuse to eat for a legthy time - if it meant getting her point across. That's something I'm afraid of!!!! Karyn, Mom to 4.1, dx autism, GF/CF, SCD 3 weeks Re: A lil' advice from the veterans & others pls - the egg child Karyn, Have you tried meats other than the chicken from the soup? Like broiled hamburger, or even ground beef browned without any added oil? Could you scramble some lightly steamed yellow squash or chicken, or even ground beef into her eggs? Or even steamed cauliflower? (trying to think of things that would not be TOO obvious). The fruits are mostly sweet. If she doesn't like or is not particularly interested in sweet, what does she like? What did she like to eat before SCD? Any way you can make something that looks like whatevre that was? Then enzymes may help, but it may take awhile. There are legal graham crackers listed on pecanbread.com recipe site. They are in the section that " has dairy " , but I know the recipe creator has said you can make them without the dairy and it comes out fine. However, I guess I would also recommend you try not to add nut flour right now. If you feel you must add nut- something, you might try almond BUTTER, or grind some pecans or walnuts or hazelnuts into nut BUTTER. The stages are just a guide, a year ago we didn't have it. But it is known that nut flour is more difficult to digest, as are raw or dried fruits/veggies, and coconut for example. I would definitely NOT try those things at this point. Congratulations on all the progress, that is wonderful!! I'm sure it is difficult to think about denying her and maybe rocking the boat at this point. But you may deicde she just can't eat eggs for every meal (just like at some point you decided she could not eat gluten, or grains, or reg. sugar). Maybe she can have eggs for breakfast, but at lunchtime it is XYZ. Period. And if she doesn't want to eat that's OK. That's all I can think of right now. Sounds like you are doing a terrific job! You know you are on the right track!! P.S. Do you give an Epsom salt baths, or have you ever given any supps that have sulfur? Eggs are sulfury, could she he body be craving sulfur? -- Sue, mom to Adam and SCD 4 months For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Karyn, You said: <<Maybe I'm asking if this is ok - is it ok that she eat so many eggs and nothing else. >> I kinda think it actually really isn't OK..... I mean not for more that a short period. Eggs are a better food than ..... well, say pork rinds..... but still, she needs a bit more variety eventually. What happens if you cook the eggs differently? Will she ONLY eat them scrambled? If so, I would tend to think that this is less a situation of her body craving something in the eggs than it is just her being rigid and self-limiting. What would happen if you just " ran out " of eggs? How long do you think she would go without eating? Has she won similar " tests of wills " before? What if you could muster up the courage to just act like " no big deal " about her not eating anything? Make the food available, but don't coax, cajole or force? What if you were just smiling and singing and cooking..... and eating the food and showing how much YOU liked it (without overacting, of course)? Would she be expecting you to fight with her? If so, what if you just didn't? I know it's hard, as a parent, not to start feeling anxious about a kid not eating.... and even harder to not SHOW your anxiety, even when it's there all the time. <<I know this kid and she will refuse to eat for a legthy time - if it meant getting her point across. That's something I'm afraid of!!!!>> Does she KNOW you're afraid? If your fear and anxiety just didn't come into play, would there be no trigger for her refusal? I'm just letting my imagination wander here.... don't mind me. I don't have these issues with Katera, so it's easy for me to talk, huh? (I've also been up since 2 am, cuz Katera is really sick... so... I'm tired and rummy. ) Patti, mom to Katera, SCD 10 months Quote Link to comment Share on other sites More sharing options...
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