Re: Intro, tooth sealants, allergy tests

[Guest guest]

Hi ,

That's quite a story. I'm so glad your daughter is being helped by

SCD.

I was just speculating about some of those gut bugs that " hold out "

till much later. Marilyn, our super chef, once described it as the

gut bugs making " a last stand " at 3 months.

I always freak out when has a " mini-regression " like she did

in December. It wasn't a big deal, just talking less, a bit more

aloof, a bit more irritable. But she came through it better than

ever.

I'm not sure about tooth sealants. Perhaps somebody else knows

about that.

At the risk of sounding stupid, why do you want her tested for

allergies? Could you just keep her on SCD and observe as she tries

new foods? Most of what I've read on this list about allergy

testing indicates that it is not very reliable.

I hope you get all the help and support you need from this group!

Sue (From Pickering)

Mom to , 4, formerly? ASD, SCD 11 months

[Guest guest]

<<Does anyone have information about tooth sealants? My dentist is very

conservative about intervening, but she has nearly all of her adult teeth

and since she is only nine he is afraid that they will get cavities. I'm

not opposed to the idea, but I am going to do some research.>>

**Just so you know..... sealants typically wear off or fall out periodically

and have to be redone over and over. In one of my kids, we had a cavity occur

that was actually made worse by the sealant.... because half of it had come out

(unbeknownst to us) and decay was going on under the remaining part of the

sealant....where it was " leaking " I guess (for lack of a better word)...... so

no matter how well he was brushing, it couldn't have prevented the cavity. Also,

they " etch " the teeth with some kind of acid to make the sealant stick ...... so

then if the sealant comes out at some point, the etched enamel is possibly more

vulnerable to decay. I'd just say..... it really depends on the individual. If

the child has really extra deep pits and grooves in their molars, or is not good

at brushing (or not being well-monitored by the parent), the sealants might be a

good idea.... but I'd be sure to go in EVERY SIX MONTHS without fail.... so they

can replace lost or worn ones. Check with your insurance company...... many

require pre-authorization for sealants.... and will no longer pay for them after

age 14..... even if they're to replace sealants that were placed years before.

Patti, mom to Katera (age 7, SCD 10 months)...... and Seth (23), (20) and

Dylan (16).

[Guest guest]

>I always freak out when has a " mini-regression " like she did

>in December. It wasn't a big deal, just talking less, a bit more

>aloof, a bit more irritable. But she came through it better than

>ever.

Hi Sue (from Pickering),

Thanks for the input, I'll try to stay calm. I guess it is just hard to see

new stuff when we are working so hard... I'm glad to hear that made

it through the last " mini-regression " so smoothly.

>At the risk of sounding stupid, why do you want her tested for

>allergies? Could you just keep her on SCD and observe as she tries

>new foods? Most of what I've read on this list about allergy

>testing indicates that it is not very reliable.

Well, you don't sound stupid at all! I am concerned that something else is

still causing trouble that I haven't caught. And I didn't realize that the

tests are unreliable. That is good to know, I can tell my mother that and

just stay with what we are doing.

take care,

[Guest guest]

Hi.. just my humble .02 here but we had allergy testing done on

foods through a work up with Dr. McCandless. It was priceless info

for us. My son had been eating eggs with no apparent reaction that I

could discern... he was a 5+ on eggs and when I eliminated them I

saw a big change over a period of a few days that I would not have

picked up on... this tested for delayed reactions as well as

immediate ones and that was key I think..some of those reactions I

might not have noticed since they were days from the time he ate

something. We discovered other items also that we needed to

eliminate or cut back on.. and some I had wondered about, I got

the " go ahead " to use.. some that are now helping with weight gain

but are sometimes considered " high risk " for most ASD children. I

thought the testing took the guess work out of it all and kept me

from having to do trial and error completely... I realize

the " allergies " can change and there are false positives and false

negatives but we got a pretty accurate reading I feel for the point

in time where we were. We'll repeat them after a year of so of

healing possibly and see what we get and I can try to reintroduce

some foods sooner but probably will not... why take the risk with

all else we are battling. Good luck whatever you decide but it was

definitely worth it for us.. as was all the other testing too that

showed me severe deficiencies that we are correcting now and I am

seeing a totally different child. We now do both diet and these

interventions and it is bringing my little boy back the rest of the

way finally. Blessings and best wishes with your little boy.

Praying for healing for all these little ones!

Mom to Slater SCD/6 months egg and dairy free 2 years old

> Hi there,

>

> I have been on the list for a few weeks. First I would like to

thank you

> all for this terrific resource. It has been amazing for me to read

> everyone's struggles and victories and not feel so alone.

>

> We have been on the SCD a little over three months now. It was a

big change

> for us as my daughter mainly ate pasta and breads. It was very

uphill in

> the beginning, everyone fought me, including my mom, but I had a

strong

> feeling about the diet. The thing is, my daughter doesn't have a

diagnosis,

> and her behaviors are pretty much ignored by everyone except me,

so

> everybody thought I was nuts. I think we just ignore stuff like

this in my

> family, my first cousin has hyperlexia, and several behaviors, but

everyone

> just says he is willful.

>

> Caya, my daughter is nine. She has been very slow with social

skills, at

> two she wouldn't go to the park unless there were no other

children there.

> Faced with children she would refuse to interact. Beginning around

that

> time, she wouldn't interact with men either, including her dad

most of the

> time. That lasted for about two years. She was very inflexible,

though I am

> now seeing lots of growth in this area. When her brother was born

she was

> four, and she had to be watched because she would hurt him if he

touched

> any of her toys. There was no reasoning her away from that. Also

she seems

> to have a lot of anxiety at bedtime and she self comforts by

picking her

> nose. We homeschool the kids. When Caya was kindergarten age we

lived in a

> tiny little community in northern California and so that year she

went to a

> school. She never developed friendships with the 8 kids in the

classroom,

> and many times she would stand off at a distance even if kids

would try to

> get her to join in.

>

> Just this year, she joined a Destination Imagination team which is

a

> collaborative group of kids who work on a presentation together

and then

> take it to a tournament. The kids are homeschooled too, and it has

been a

> struggle for her to join in, but she gradually has, and she is

starting for

> the first time to form some friendships. I can see her caring

about the

> other kid's opinions.

>

> She has also been C for years. I thought the problem had been

solved when

> she was five, but apparently it came back and since I wasn't

wiping her I

> didn't catch it.

>

> Anyway. After this time on the SCD, though she is still C she is

going

> regularly every other day, and her stools are loosening up. Though

I had

> asked her if her tummy hurt before we got on the SCD, she had

always told

> me no, but since being on the diet, she has told me that " it

doesn't hurt

> anymore " so I know now it was hurting. Her stomach was bloated,

and I had

> that as a kid, so I didn't realize that it was a medical thing.

Lame, I

> know, but we learn as we go I guess. Anyway, her stomach is flat

now. She

> still has terrible eczema though, I was hoping that it would clear

up by

> now. Obviously we are off wheat, and we ditched eggs too because

we didn't

> have any for a week and when she had them again she got a lacy red

rash on

> her arms. She doesn't like cheese, though I am feeding her the SCD

yogurt.

>

> You know, she derived 90% of her calories from breastmilk until

she was 2.

> She would eat the baby food, but she didn't like it and really

just wanted

> to nurse. She grew really fast, and seemed to taper off growing as

food

> became more a part of her diet. That was when the eczema showed up

too. I

> wish I had known more at the time.

>

> Oh, the last week or so Caya is seeming sort of mentally fuzzy,

getting

> distracted very easily and just not focusing. This is new

behavior. Does

> this sound like die off? We are around three months on the diet,

and I

> think I heard of a three month die off.

>

> Last week at the Destination Imagination tournament, she really

wanted to

> eat chips. I said no and she moped about it but them she went back

out and

> sat with her friends and ate her food, and laughed and joked with

them. It

> was a miracle. She had always sulked for hours and directed anger

at the

> kids who were eating the coveted item before. And last night she

told me " a

> really, really big secret " . She thanked me for putting us on the

diet. Said

> she was glad. Whew. So I'm really grateful for Elaine and all of

you for

> blazing the way. My DH really likes the diet too, he has lost

weight, he

> feels better. He sees a difference in our daughter. My mother

still

> resists, but she isn't openly making scathing comments anymore.

>

> Does anyone have information about tooth sealants? My dentist is

very

> conservative about intervening, but she has nearly all of her

adult teeth

> and since she is only nine he is afraid that they will get

cavities. I'm

> not opposed to the idea, but I am going to do some research.

>

> Also could someone recommend or suggest a course of action for

allergy

> testing? I just read that the ELISA tests have a lot of false

positives,

> but I don't know any alternatives. I am ready to take Caya in to

our doctor

> now and talk about food allergies but I would like to have some

suggestions

> to talk to her about.

>

> Thanks for reading,

>

> Sinclair

[Guest guest]

Re: Intro, tooth sealants, allergy tests

> Hi.. just my humble .02 here but we had allergy testing done on

> foods through a work up with Dr. McCandless. It was priceless info

> for us. My son had been eating eggs with no apparent reaction that I

> could discern... he was a 5+ on eggs and when I eliminated them I

> saw a big change over a period of a few days that I would not have

> picked up on... this tested for delayed reactions as well as

> immediate ones and that was key I think..some of those reactions I

> might not have noticed since they were days from the time he ate

> something. We discovered other items also that we needed to

> eliminate or cut back on.. and some I had wondered about, I got

> the " go ahead " to use.. some that are now helping with weight gain

> but are sometimes considered " high risk " for most ASD children. I

> thought the testing took the guess work out of it all and kept me

> from having to do trial and error completely... I realize

> the " allergies " can change and there are false positives and false

> negatives but we got a pretty accurate reading I feel for the point

> in time where we were. We'll repeat them after a year of so of

> healing possibly and see what we get and I can try to reintroduce

> some foods sooner but probably will not... why take the risk with

> all else we are battling. Good luck whatever you decide but it was

> definitely worth it for us.. as was all the other testing too that

> showed me severe deficiencies that we are correcting now and I am

> seeing a totally different child. We now do both diet and these

> interventions and it is bringing my little boy back the rest of the

> way finally. Blessings and best wishes with your little boy.

> Praying for healing for all these little ones!

>

> Mom to Slater SCD/6 months egg and dairy free 2 years old

> > Hi there,

> >

> > I have been on the list for a few weeks. First I would like to

> thank you

> > all for this terrific resource. It has been amazing for me to read

> > everyone's struggles and victories and not feel so alone.

> >

> > We have been on the SCD a little over three months now. It was a

> big change

> > for us as my daughter mainly ate pasta and breads. It was very

> uphill in

> > the beginning, everyone fought me, including my mom, but I had a

> strong

> > feeling about the diet. The thing is, my daughter doesn't have a

> diagnosis,

> > and her behaviors are pretty much ignored by everyone except me,

> so

> > everybody thought I was nuts. I think we just ignore stuff like

> this in my

> > family, my first cousin has hyperlexia, and several behaviors, but

> everyone

> > just says he is willful.

> >

> > Caya, my daughter is nine. She has been very slow with social

> skills, at

> > two she wouldn't go to the park unless there were no other

> children there.

> > Faced with children she would refuse to interact. Beginning around

> that

> > time, she wouldn't interact with men either, including her dad

> most of the

> > time. That lasted for about two years. She was very inflexible,

> though I am

> > now seeing lots of growth in this area. When her brother was born

> she was

> > four, and she had to be watched because she would hurt him if he

> touched

> > any of her toys. There was no reasoning her away from that. Also

> she seems

> > to have a lot of anxiety at bedtime and she self comforts by

> picking her

> > nose. We homeschool the kids. When Caya was kindergarten age we

> lived in a

> > tiny little community in northern California and so that year she

> went to a

> > school. She never developed friendships with the 8 kids in the

> classroom,

> > and many times she would stand off at a distance even if kids

> would try to

> > get her to join in.

> >

> > Just this year, she joined a Destination Imagination team which is

> a

> > collaborative group of kids who work on a presentation together

> and then

> > take it to a tournament. The kids are homeschooled too, and it has

> been a

> > struggle for her to join in, but she gradually has, and she is

> starting for

> > the first time to form some friendships. I can see her caring

> about the

> > other kid's opinions.

> >

> > She has also been C for years. I thought the problem had been

> solved when

> > she was five, but apparently it came back and since I wasn't

> wiping her I

> > didn't catch it.

> >

> > Anyway. After this time on the SCD, though she is still C she is

> going

> > regularly every other day, and her stools are loosening up. Though

> I had

> > asked her if her tummy hurt before we got on the SCD, she had

> always told

> > me no, but since being on the diet, she has told me that " it

> doesn't hurt

> > anymore " so I know now it was hurting. Her stomach was bloated,

> and I had

> > that as a kid, so I didn't realize that it was a medical thing.

> Lame, I

> > know, but we learn as we go I guess. Anyway, her stomach is flat

> now. She

> > still has terrible eczema though, I was hoping that it would clear

> up by

> > now. Obviously we are off wheat, and we ditched eggs too because

> we didn't

> > have any for a week and when she had them again she got a lacy red

> rash on

> > her arms. She doesn't like cheese, though I am feeding her the SCD

> yogurt.

> >

> > You know, she derived 90% of her calories from breastmilk until

> she was 2.

> > She would eat the baby food, but she didn't like it and really

> just wanted

> > to nurse. She grew really fast, and seemed to taper off growing as

> food

> > became more a part of her diet. That was when the eczema showed up

> too. I

> > wish I had known more at the time.

> >

> > Oh, the last week or so Caya is seeming sort of mentally fuzzy,

> getting

> > distracted very easily and just not focusing. This is new

> behavior. Does

> > this sound like die off? We are around three months on the diet,

> and I

> > think I heard of a three month die off.

> >

> > Last week at the Destination Imagination tournament, she really

> wanted to

> > eat chips. I said no and she moped about it but them she went back

> out and

> > sat with her friends and ate her food, and laughed and joked with

> them. It

> > was a miracle. She had always sulked for hours and directed anger

> at the

> > kids who were eating the coveted item before. And last night she

> told me " a

> > really, really big secret " . She thanked me for putting us on the

> diet. Said

> > she was glad. Whew. So I'm really grateful for Elaine and all of

> you for

> > blazing the way. My DH really likes the diet too, he has lost

> weight, he

> > feels better. He sees a difference in our daughter. My mother

> still

> > resists, but she isn't openly making scathing comments anymore.

> >

> > Does anyone have information about tooth sealants? My dentist is

> very

> > conservative about intervening, but she has nearly all of her

> adult teeth

> > and since she is only nine he is afraid that they will get

> cavities. I'm

> > not opposed to the idea, but I am going to do some research.

> >

> > Also could someone recommend or suggest a course of action for

> allergy

> > testing? I just read that the ELISA tests have a lot of false

> positives,

> > but I don't know any alternatives. I am ready to take Caya in to

> our doctor

> > now and talk about food allergies but I would like to have some

> suggestions

> > to talk to her about.

> >

> > Thanks for reading,

> >

> > Sinclair

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>