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Re: StarBand dropouts -

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Thanks for the email... yes I just got it (hadn't checked before!).

I have been going back and forth with whether or not to keep her in

this band until we get the new one; basically I am taking it off

when she is awake(and off her head) and putting it on for her to

sleep. Just this afternoon after her bath, I was really looking at

her head, and it almost seemed worse. It's a little rounder, maybe,

but the bossing of her forehead and cheek, and the asymmetry in her

eyes are no better, possibly worse.

Ahhhhh! What to do! I think I might call CT in the Chicago area

tomorrow to see if they can help us. I'll let you know what I find

out!

> > > > Today we went in (yes, on Sat. since the orthotist was

> > > > on call at the hospital anyway) and he played around with is

> > some

> > > more,

> > > > and ultimately ended up scanning her for a new band. So we

> have

> > to

> > > wait

> > > > two weeks to get this replacement band. in the meantime she

has

> > to

> > > wear

> > > > a band that doesn't fit quite like it should, or nothing at

> all,

> > > which I

> > > > don't like the idea of since she is in the midst of a good

> > growth

> > > spurt.

> > > >

> > > >

> > > If your ortho thinks she needs a new band then why is she

> > continuing

> > > to wear one that is damaged? That would make me nervous!

> > > Natasha

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Guest guest

Wow !

I can totally understand your frustration. Whenever I hear of foam

pieces being added/removed it seems like those end up with fit

problems. The band should not cover her ear, sometimes when they are

laying a little of the band might cover an ear but sitting up

shouldn't at all. Is it irritating her? Can you post a picture of

the ill fit?

Natasha

> > > Today we went in (yes, on Sat. since the orthotist was

> > > on call at the hospital anyway) and he played around with is

> some

> > more,

> > > and ultimately ended up scanning her for a new band. So we

have

> to

> > wait

> > > two weeks to get this replacement band. in the meantime she has

> to

> > wear

> > > a band that doesn't fit quite like it should, or nothing at

all,

> > which I

> > > don't like the idea of since she is in the midst of a good

> growth

> > spurt.

> > >

> > >

> > If your ortho thinks she needs a new band then why is she

> continuing

> > to wear one that is damaged? That would make me nervous!

> > Natasha

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Guest guest

,

Please keep her band off of her. I'd hate to hear another story of a

band causing more damage. Please let us know what you decide to do.

If you do call Cranial Tech let us know what they say. Good luck.

> > > > > Today we went in (yes, on Sat. since the orthotist was

> > > > > on call at the hospital anyway) and he played around with

is

> > > some

> > > > more,

> > > > > and ultimately ended up scanning her for a new band. So we

> > have

> > > to

> > > > wait

> > > > > two weeks to get this replacement band. in the meantime she

> has

> > > to

> > > > wear

> > > > > a band that doesn't fit quite like it should, or nothing at

> > all,

> > > > which I

> > > > > don't like the idea of since she is in the midst of a good

> > > growth

> > > > spurt.

> > > > >

> > > > >

> > > > If your ortho thinks she needs a new band then why is she

> > > continuing

> > > > to wear one that is damaged? That would make me nervous!

> > > > Natasha

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Guest guest

> Thanks for your support! I did indeed schedule an evaluation with

> CT in chicago for next week. We'll see what they have to say, and

> I'll keep everyone posted on what we decide to do!

>

Good luck next week !! I hope you have a smooth, traffic jam

free drive!! Let us know how it goes.

Debbie

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