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Re: local support groups

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YES! This is excellent! I will add your info. Hey! Another

Missouri person!! (I'll forgive you for being on the wrong side of

the state.)

> I am not sure if my group (SPEAK Group -- St Louis Extension for

APraxic

> Kids) would qualify for your page but I thought I would try. It

started out

> as a group for apraxia of speech but now we have expanded it to

speech

> challenged kids. A good number of the kids in our group have the

autism

> diagnosis. Plus, apraxia of speech and autism are so close in

their traits

> in the early years that many of us go back and forth between

diagnoses (my

> son included). We meet monthly. You can use my email address as a

contact

>

> morinfamily4@c...

>

> Our next meeting is in Kirkwood, MO (in St Louis Missouri) at the

Mc's

> playland (350 S. Kirkwood Rd, Kirkwood, MO).

>

> Thanks for all your efforts to be a hero to our kids!

>

> Tricia Morin

> SPEAK Group Coordinator

> Newsletter editor for speechville.com

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Great, Moria! Thanks! Very neat idea about collecting books for the

group. I'll be sure to ask send you and the group her book to

share.

Actually, though, I will have to discuss part of this further with

you as I have a personal ethical rule against encouraging members of

this group to become part of an email list managed by a person who

has seemingly misrepresented herself to this group, myself, and

others and used email as one of the resources to do so; many, many

emails. I'll contact you off this list and perhaps you can give me

an alternative email address as I don't want to make myself liable

for any problems that could arise. I also would prefer to handle it

with you in private email as I am personally trying not to tie-up

this list with the negative stuff. I apologize for having to be semi-

negative here because I know people are sick and tired of the whole

situation.

I don't like censoring, banning, and all that kind of thing, but I

will have to ask for an alternative contact person for your group who

will not be forwarding email addresses from this group to the

original person given.

Thanks Moria,

> Hi,

>

> I haven't been reading this list recently, but I understand

> there is a request out for info on local support groups.

> So I'm sending in some info....

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A little update on sending in support group info. As it stands now,

I've decided that whatever group or person you send me and who you

perceive as being helpful and who you perceive does not stand in the

way of enzymes being an option for autism will be included. If that

person misuses their position, then it is up to you to do something

about it.

I only have a few groups, if you'd like your's included, let me know

or add it yourself, but please only include groups you are confident

are helpful. Also, I really liked the way Moria's group has a

library, so I think it would be great for people to ask to

donate her book, too. I plan on donating one to my son's school,

too. Actually, the teacher asked for one for the library!!!

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  • 1 year later...
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What a great idea, Kim! All I ever organized down here in Atlanta

was a picnic but it was great and I'm still in touch with several of

those moms!

BTW, my dad is freezing in big ole Ada, Minnesota, is that close to

you?

Natasha

--- In Plagiocephaly , " kasaint_2 " <kasaint_2@y...>

wrote:

> Hi everyone!

> I have started a new mission... something other than to regather

my

> sanity! I want to start a local support group for plagio in my area

> of MN. Has anyone here ever started one on their own? If so, how

did

> you do it? I don't know what I would have/or would do without all

of

> you here... :) and sometimes it would be nice to see people FACE TO

> FACE and discuss all this! Any ideas on where to go to get started?

I

> have already contacted the hospital here and they don't have any

> groups for either tort or plagio. I am going to talk to Jaxson's pt

> tomorrow about it, but want the experts here to guide me!

>

> Thanks in advance!

> Kim

> mom to Kaela 9 and Jaxson 7.5 mo tort/plagio/craniocap

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Kim,

If I'm not mistaken we had a member I believe in KY who tried to

start a local support group at her public library. It didn't go over

to well, no one showed up. Hopefully you'll have better luck. Let us

know.

--- In Plagiocephaly , " kasaint_2 " <kasaint_2@y...>

wrote:

> Hi everyone!

> I have started a new mission... something other than to regather

my

> sanity! I want to start a local support group for plagio in my area

> of MN. Has anyone here ever started one on their own? If so, how

did

> you do it? I don't know what I would have/or would do without all

of

> you here... :) and sometimes it would be nice to see people FACE TO

> FACE and discuss all this! Any ideas on where to go to get started?

I

> have already contacted the hospital here and they don't have any

> groups for either tort or plagio. I am going to talk to Jaxson's pt

> tomorrow about it, but want the experts here to guide me!

>

> Thanks in advance!

> Kim

> mom to Kaela 9 and Jaxson 7.5 mo tort/plagio/craniocap

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