Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 I apologize..... I thought I was replying to privately. Big oops on my part.... and I do sincerely apologize for the comments, Penny. I'll admit, this is what I do truly believe about the pork rinds with Kenzie.... but I've been biting my tongue. Please forgive my rudeness, though...... I wasn't meaning this to go to the list but that's no excuse. I understand you've got a struggle on your hands and you want him to have something to eat. We hate being hard on you for letting him have these...... and it's really none of my business because you are doing the best you can. Again..... please accept my apologies. I'm truly very sorry. Sheepishly, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 I know I suck at this. That's why I'm ready to quit. If I take away fruit, take away pork rinds, take away honey, that leaves me with chicken which he hasn't eaten in three days and white grape juice. That sounds healthy. I guess I'm just not cut out for this with such a picky kid or a lazy mom. Penny Re: Patti - mtg tonight I apologize..... I thought I was replying to privately. Big oops on my part.... and I do sincerely apologize for the comments, Penny. I'll admit, this is what I do truly believe about the pork rinds with Kenzie.... but I've been biting my tongue. Please forgive my rudeness, though...... I wasn't meaning this to go to the list but that's no excuse. I understand you've got a struggle on your hands and you want him to have something to eat. We hate being hard on you for letting him have these...... and it's really none of my business because you are doing the best you can. Again..... please accept my apologies. I'm truly very sorry. Sheepishly, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Penny, I truly feel for you as I only know how difficult it is to have a 2-1/2 or 3 year old on this diet who is extremely picky w/ sensory issues. I'm sure this has been brought up before but is there ANY way you can get yourself hooked up w/ an occupational therapist who can help you w/ desensitizing Kenzie and his mouth? Did you know there are 8 steps to eating, with the final step being actually putting a bite of food in your mouth, chewing it and swallowing the whole thing? There are many steps before that, including smelling, touching, etc and it sounds like your Kenzie may be like my Zach-man---he would have just given up on eating because he doesn't care that much. Now things are different but we tried only giving him certain foods for a 3 day period last March and all he did was sleep after the 1st day and didn't even care to get up in his high chair. Very scary and didn't work for us. I can't stress how much our feeding specialist has helped us because I was very concerned/stressed by meal time and the kids know it. It was as much for me as for Zach and we still have a long way to go but we're doing so much better. If there is no one in your area, maybe you could have someone do a consultation with you and then follow up periodically via email/phone, etc. It may not be ideal but much can be done w/ the technology we have...even videotaping him or whatever needs to be done. You don't suck, but if you don't give this both barrels and consider the sensory issues as well and doing all you can for those in conjunction with the diet I think you will continue to stuggle and Kenzie will not have the chance we all know he deserves to truly benefit from this diet. We are at the 6 month mark and still having daily diarrhea--but I'm not giving up because I know this is the healthiest diet for my son. We recently found out he has a parasite and his bismuth (heavy metal) level is 70 times the normal amount and elevated bismuth can cause diarrhea. It's confusing and scary but don't give up..you really don't sound like that kind of person or you would already have thrown in the towel. Best-- Thea, Zach's mom, ASD and 3 years old on 2/23, SCD 6 months I know I suck at this. That's why I'm ready to quit. If I take away fruit, take away pork rinds, take away honey, that leaves me with chicken which he hasn't eaten in three days and white grape juice. That sounds healthy. I guess I'm just not cut out for this with such a picky kid or a lazy mom. Penny Re: Patti - mtg tonight I apologize..... I thought I was replying to privately. Big oops on my part.... and I do sincerely apologize for the comments, Penny. I'll admit, this is what I do truly believe about the pork rinds with Kenzie.... but I've been biting my tongue. Please forgive my rudeness, though...... I wasn't meaning this to go to the list but that's no excuse. I understand you've got a struggle on your hands and you want him to have something to eat. We hate being hard on you for letting him have these...... and it's really none of my business because you are doing the best you can. Again..... please accept my apologies. I'm truly very sorry. Sheepishly, Patti Quote Link to comment Share on other sites More sharing options...
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