Re: Yesterdays Neuro Visit

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But Peggy--at least you finally got some answers! Yes, I know you are disappointed to know this great doc won't be available to her. What I'd do--ask HER for a referral. Tell her you don't think you could 'work' with the other (bastard, sorry!) one, and see who she might have in mind for you to see. Perhaps she could even be so kind as to call another doc she recommends and give him/her a 'heads up' about you; her findings, etc....

I think you will be pleasantly surprised with a switch from Avonex to Copaxone. I had been on Copaxone, but have heard all sorts of ill effects from Avonex. Besides the Copaxone not really slowing down progression for me--it was a wonderful med; many people have been tremendously helped by Copaxone. I will be starting Tysabri this Monday...Keep the faith. Continue posting...and YES--we ARE a chatty bunch, and I think we all are pretty proud of that fact! ) !!! blessings, kate> My gosh you all are a chatty bunch, LOL!!!! I'm just going to > update > you quickly on my visit and then go, I'm having a bad day today, > not > feeling well at all. Slept most of the day and finally just had > to > get up and stretch my legs.> > She was a wonderful dr. She did a complete exam on me. Nothing > like > what I got from the neuro here. She checked my hearing, my > eyesight, > my reflexes. She had me close my eyes and try to touch my nose, > missed both times, LOL, you'd think you'd know where your own > nose > was. Then she had me do it with my eyes open and I could look at > my > finger. AHA, there it is!!!! She took a safety pin and pricked > it on > both sides of my face, hands, arms, legs, and feet to see if > there > was a difference. My left side has less feeling in it. I kind of > knew > that. I had to walk regularly, then on my toes, not very well, > then > on my heels, could only get up on one heel without falling over > and > then heel to toe, very wobbly. Then she showed me my MRI's. I > have > arthritis starting in my neck. News to me!!!! That needs to be > watched. GREAT!!!! At my last MRI in October I still had an > enhancing > lesion which the other dr. told me I had none. At the first MRI > in > July I was told that the MS was caught right off the bat, lie, > she > saw old lesions, so I have no clue as to how long I have had MS. > > She has scheduled me for blood tests for thyroid and Vitamin D. > I > also have to have another brain MRI. No mention of another LP, > thank > God!!! She is also setting me up for an appt with a neruopsychologist> (?) to assess my cognitive abilities and a PT to see what my > strentgh > is.> > Now the bad news. Of course because she was a great dr. and I > just > liked her so much at the end of the visit she told me she could > send > all this info back to my neuro here, and I said no, I want to > stay > with you!!! She said she couldn't because she was leaving the > practice. I was crushed If it weren't for bad luck I'd have > no > luck at all I swear!!!! She is going to refer me to one of her > colleagues there. I am NOT going back to the quack of a neuro > down > here. She is only going to be there for another 2 months. She > has > taken a position in Buffalo at a research hospital. CRAP!!!!!!> > Oh well, I found out more in that hour and 1/2 than I did the > whole > 10 months with my other neuro so that's awesome. I'm so glad I > got to > see her. She is excellent at what she does and knowing she will > be > involved in research just makes me feel all the more confident > about > having someone who really cares about us finding a way to stop > this > terrible MonSter.> > I hope you all had a safe and happy holiday weekend!!! I'm going > to > go back to my bed now. Oh, and she raised my Topamax to 75mg a > day. I > take one pill in the am and 2 at night now. She said it is > supposed > to stop my headaches and if it's not it should be raised. So we > will > try this and see. Pills, pills, pills. If there are any more new > lesions on the new MRI she will switch me to Copaxone because > the > Avonex is not working well enough. OK now I think I got it all > in > there. Good think I'm seeing someone about my cognitive > abilities, > LOL!!!! They are supposed to be able to help with my SS appeal > as > well, so hopefully I come off as stupid as I feel!!!> > Thanks all.> > Hugs, Peggy> > Please visit: http://www.bicycleman.com

awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!

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