Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 I get to feeling like that sometimes when I have a fever. In fact a fever makes my MS go nuts until I get the fever down. I can't even walk. I am so bad during that time period I can't even crawl. I always use Advil for my fever and once it is gone you wouldn't even know I had a fever I am back walking like normal. If walking with a walker is normal. Bill Wierd feeling Hey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Thankyou n.I luv you to pieces.Wish I could hop right in the car and finally come give you a big ol' hug! HUGZ,CASSY [Rojas5915@...] wrote: Love to you, too, Cassy; we are all sorry for what you are going through, but we all learn from what you post! Love, n Rojas5915@... Re: Re: Wierd feeling Thanks for replying Mickie.I get worried when I get a new symptom,because Im already way to ill,and the new ones pile on top of the old and haunt me every day of my life.Barf.lol.So sorry your havn so much pain.When my illness started (about 3 yrs.ago) it started with pain in my thighs,stabbing pain,now its in all my legs and arms,well and everywere,so I know it sucks.Are you taking any pain meds?I take vicodin,baclofen,and neurontin.I know the vicodin and baclofen help but im not to sure bout the neurontin these days.They can keep up n the dose And I dont see any improvement,but I also dont want to stop because I fear it will get worse.So a no winner.lol.ya.life goes on,can get pretty difficult but luckily we all have eachother.Lots of luv to u Mickie and all on the group, cassy [plymate2000@...] wrote: HI Cassy, I get that too, feels real weird but it goes away. I notice it in my right leg. Now my right leg is having stabbing pain in my thigh and calf and this weird pain behind my knee. That started about a week ago and doesnt seem to be going away. The stabbing pain comes and goes but my knee always hurts. Maybe its part of it, who knows. I'm still new to this crap but life goes on. God Bless! Mickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Cassy~ If you're anything like me, you may have lived with pain for so long that your tolerance to pain has gone up. It's really not advisable to keep upping the doses. But, I do sympathize with you. I hope that they find what the bleep is wrong with you soon. Lifting you in prayer... Val Re: Re: Wierd feeling Thanks for replying Mickie.I get worried when I get a new symptom,because Im already way to ill,and the new ones pile on top of the old and haunt me every day of my life.Barf.lol.So sorry your havn so much pain.When my illness started (about 3 yrs.ago) it started with pain in my thighs,stabbing pain,now its in all my legs and arms,well and everywere,so I know it sucks.Are you taking any pain meds?I take vicodin,baclofen,and neurontin.I know the vicodin and baclofen help but im not to sure bout the neurontin these days.They can keep up n the dose And I dont see any improvement,but I also dont want to stop because I fear it will get worse.So a no winner.lol.ya.life goes on,can get pretty difficult but luckily we all have eachother.Lots of luv to u Mickie and all on the group, cassy[plymate2000] wrote:HI Cassy,I get that too, feels real weird but it goes away. I notice it in my right leg. Now my right leg is having stabbing pain in my thigh and calf and this weird pain behind my knee. That started about a week ago and doesnt seem to be going away. The stabbing pain comes and goes but my knee always hurts. Maybe its part of it, who knows. I'm still new to this crap but life goes on. God Bless!Mickie No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.7.3/809 - Release Date: 5/17/07 5:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Well, I know you're not crazy. I'm always getting odd little sensations. I don't usually say too much about them because I just assume that we all get them. Like yesterday, I started getting a burning feeling in the ball of my foot. I've had it before in my right foot, now it's in the left. I'm guessing that it will probably be gone in a couple weeks or so. Love, Val Wierd feelingHey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.7.3/809 - Release Date: 5/17/07 5:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 LoL! Thats what im saying! Lol.You know they think it cuz thats how they look at us.lol.well,we can all jus go crazy together then.lol. [tabeloe@...] wrote: Ehhhhh. I'm ok I guess. Been better, been worse. Yeah, the chill sensation is really strange, but what would the Dr. say? Probably say I was just crazy. lol. Hugs, Trista ~~~~~~~~~~~ And he said unto me, MY GRACE IS SUFFICIENT FOR THEE; FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS. Wierd feeling Hey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 At least we're in good company. lol. Hugs, Trista~~~~~~~~~~~And he said unto me, MY GRACE IS SUFFICIENT FOR THEE;FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS. Wierd feelingHey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Wednesday and Thursday, my left arm (elbow up) burned so badly. It was a deep muscle type pain, but also a burning skin pain. At times I feel like hot grease has splashed me, but I haven't burned myself. Hugs, Trista~~~~~~~~~~~And he said unto me, MY GRACE IS SUFFICIENT FOR THEE;FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS. Wierd feelingHey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.7.3/809 - Release Date: 5/17/07 5:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 What we need is some Dr.'s like House and his team. Yeah, he's a bit arrogant and eccentric, but he's a genius and with the rest of the interns and surgeons, they can always find out what's causing symptoms. Blessings...Val Wierd feelingHey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.7.3/809 - Release Date: 5/17/07 5:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 And the sensation is already gone! Wow! I had the same thing happen to me but it lasted for 3 months. Then disappeared. But, then it went into my other arm and was there for 3 months, then switched to my right foot. It only lasted a few weeks there. You know, there are times when certain parts of my body seems to get confused. I'll have the cold water on, but my body is telling me it's scalding hot. I really hate that! Love, Val Wierd feelingHey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.7.3/809 - Release Date: 5/17/07 5:18 PM No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.7.3/809 - Release Date: 5/17/07 5:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Cassy~Listen, you might do well with seeing a pain management specialist. There could be other options for you, like in the form of biofeedback, acupuncture, massage, chiro...etc...Sometimes we need to 'widen our horizons' beyond meds/drugs...Just 'cause, I know I went off everything, as it became a blur of stuff for me..I started to question whether double vision, blurred vision, vertigo, fatigue, nausea, were side effects of meds. or MS! So, with going off everything back in February, I can now journal/document what is truly (most likely!) MS, as I'm off the meds. Yeah, pain--have that..But its funny..I guess we all 'pick and choose' what we can deal with...I can deal with pain, as I too, had natural births, 4 out of 5 of them were at home, with NO drugs...Anyways..I'm having the hardest time dealing with the cognitive aspects of the MS--for me, that is more emotionally painful than actual physical pain! Blessings, kate> Thanks Val.Yes.I have lived with pain over 3 yrs. And ill tell > ya,and I have told my fam that id rather give birth everyday of > my life then to have this pain.(just a lil example for them,you > know to imagine how it feels)both my girls were very large and > very hard to deliver.But ya,I went a long time suffering before > meds,and even now.My doc says the next step up for pain is > oxycodone and contin.Im hesitant of those so am just tryn to > deal with it.They are more then willing to up the neurontin > though and im takn 2400mg.Sometimes I feel im takn it for > nuthn.Pain everyday,one of my major symptoms.It sucks but hey > what can we do?When its really bad I hide and cry otherwise its > icepacks,lyns 5 herb balm,and my tens machine.I dont imagine > it lessening either considering it jus keeps get worse and > spreading.Oh the joys of the unknown diagnosis.lol.Bad > joke.lol.Luv to all, cassy> Please visit: http://www.bicycleman.com awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour! Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Thanks Kate.They say no no on ciropractic care for now with all the symptoms im having.I have tried acupuncture and it sent my body into jerking spasms or tremors(im not sure witch) but my body was jerking awful,you could hear the table moving.It didnt stop so the nurse quickly took everything out and put a no no for that too.My insurance dosnt cover pain management so nopie on that one too.Besides im not ready to try anything stronger im just dealing with it as long as I can,even if it does mean to hide on the bad days.I didnt have my girls at home,I had epidurals,but just didnt work much.They almost had to take my youngest c-section because she was 10 lbs and once she was in the canal she wasnt coming out.Her shoulder was stuck behind my pelvic bone and they had to pry her out.They had to fill the epidural 4 times,it was a very hard birth.Poor thing went threw hell,so did I.lol.Once she came out she wasnt breathing and OMG was that scary,then she had complications and had to stay at the hospital a week,hugz [katelloydkidz@...] wrote: Cassy~Listen, you might do well with seeing a pain management specialist. There could be other options for you, like in the form of biofeedback, acupuncture, massage, chiro...etc...Sometimes we need to 'widen our horizons' beyond meds/drugs...Just 'cause, I know I went off everything, as it became a blur of stuff for me..I started to question whether double vision, blurred vision, vertigo, fatigue, nausea, were side effects of meds. or MS! So, with going off everything back in February, I can now journal/document what is truly (most likely!) MS, as I'm off the meds. Yeah, pain--have that..But its funny..I guess we all 'pick and choose' what we can deal with...I can deal with pain, as I too, had natural births, 4 out of 5 of them were at home, with NO drugs...Anyways..I'm having the hardest time dealing with the cognitive aspects of the MS--for me, that is more emotionally painful than actual physical pain! Blessings, kate > Thanks Val.Yes.I have lived with pain over 3 yrs. And ill tell > ya,and I have told my fam that id rather give birth everyday of > my life then to have this pain.(just a lil example for them,you > know to imagine how it feels)both my girls were very large and > very hard to deliver.But ya,I went a long time suffering before > meds,and even now.My doc says the next step up for pain is > oxycodone and contin.Im hesitant of those so am just tryn to > deal with it.They are more then willing to up the neurontin > though and im takn 2400mg.Sometimes I feel im takn it for > nuthn.Pain everyday,one of my major symptoms.It sucks but hey > what can we do?When its really bad I hide and cry otherwise its > icepacks,lyns 5 herb balm,and my tens machine.I dont imagine > it lessening either considering it jus keeps get worse and > spreading.Oh the joys of the unknown diagnosis.lol.Bad > joke.lol.Luv to all, cassy > Please visit: http://www.bicycleman.com awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 I know the feeling. I get it mostly in my left arm although I have had it in my legs also; one at a time. The only thing that I have found that seems to help is a pair of leg warmers. For the leg I put both on one above the other. For my arm I just put one on it and pin it to my shirt. It is not instant relief but it seems to help. HAPPINESS and BUTTERFLIES Lynn Butterflies are angels bringing messages from God Re: Wierd feelingTo: MSersLife > HI Cassy,> > I get that too, feels real weird but it goes away. I notice it > in my > right leg. Now my right leg is having stabbing pain in my thigh > and > calf and this weird pain behind my knee. That started about a > week ago > and doesnt seem to be going away. The stabbing pain comes and > goes but > my knee always hurts. Maybe its part of it, who knows. I'm still > new > to this crap but life goes on. God Bless!> > Mickie> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Trista.I cant imagine burning pain like that. I mostly have stabbing and then odd sensations here and there.I know how it feels to get burned and couldnt imagine actually feeling that on my skin without the actual burn.My skin is hyper-sensitive witch is also painful but more bothersome.My fiance cannot rub my hand neither can my girls it sends a pain and then causes my hand and arm to jerk up in a cramp and twich.Almost like a spasm and cramp at the same time.I got alot of burning when I used the capaisin cream.No more of that stuff.lol.Hopefully one of these days we will get some real answers.Luv to you trista! And all here on the group,cassy [tabeloe@...] wrote: Wednesday and Thursday, my left arm (elbow up) burned so badly. It was a deep muscle type pain, but also a burning skin pain. At times I feel like hot grease has splashed me, but I haven't burned myself. Hugs, Trista ~~~~~~~~~~~ And he said unto me, MY GRACE IS SUFFICIENT FOR THEE; FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS. Wierd feeling Hey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Ya! Thank god for that. lots of luv to all, cassy [tabeloe@...] wrote: At least we're in good company. lol. Hugs, Trista ~~~~~~~~~~~ And he said unto me, MY GRACE IS SUFFICIENT FOR THEE; FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS. Wierd feeling Hey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Ya! Thank god for that. lots of luv to all, cassy [tabeloe@...] wrote: At least we're in good company. lol. Hugs, Trista ~~~~~~~~~~~ And he said unto me, MY GRACE IS SUFFICIENT FOR THEE; FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS. Wierd feeling Hey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 , I am so sorry for what you are enduring; sending prayers and love, as I can thing of nothing more effective--I always meditate though, too, more love, more n Rojas5915@... Re: Re: Wierd feelingThanks for replying Mickie.I get worried when I get a new symptom,because Im already way to ill,and the new ones pile on top of the old and haunt me every day of my life.Barf.lol.So sorry your havn so much pain.When my illness started (about 3 yrs.ago) it started with pain in my thighs,stabbing pain,now its in all my legs and arms,well and everywere,so I know it sucks.Are you taking any pain meds?I take vicodin,baclofen,and neurontin.I know the vicodin and baclofen help but im not to sure bout the neurontin these days.They can keep up n the dose And I dont see any improvement,but I also dont want to stop because I fear it will get worse.So a no winner.lol.ya.life goes on,can get pretty difficult but luckily we all have eachother.Lots of luv to u Mickie and all on the group, cassy[plymate2000] wrote:HI Cassy,I get that too, feels real weird but it goes away. I notice it in my right leg. Now my right leg is having stabbing pain in my thigh and calf and this weird pain behind my knee. That started about a week ago and doesnt seem to be going away. The stabbing pain comes and goes but my knee always hurts. Maybe its part of it, who knows. I'm still new to this crap but life goes on. God Bless!Mickie----------------------------------------------------------No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.7.3/809 - Release Date: 5/17/07 5:18 PM ' in Texas Courage is not being fearless, courage is facing your fears and not running for cover! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Yes.I feel so blessed to have my pcp.He truly cares.He has seen the hell I have been threw and is genuinely concerned about how quickly im progressing.He orders x-rays,tons of blood,basically anything he can think of regarding my symptoms and what he sees on exam.I love him to pieces he is an angel. Hugz,cassy [dixmstx@...] wrote: Cassy At least you are with a dr that is working with your pain medicine. Some dr's forget that a pt's concept of their pain is real and not for them to judge what it is. ' cassandra workmn wrote: Thanks Val.Yes.I have lived with pain over 3 yrs. And ill tell ya,and I have told my fam that id rather give birth everyday of my life then to have this pain.(just a lil example for them,you know to imagine how it feels)both my girls were very large and very hard to deliver.But ya,I went a long time suffering before meds,and even now.My doc says the next step up for pain is oxycodone and contin.Im hesitant of those so am just tryn to deal with it.They are more then willing to up the neurontin though and im takn 2400mg.Sometimes I feel im takn it for nuthn.Pain everyday,one of my major symptoms.It sucks but hey what can we do?When its really bad I hide and cry otherwise its icepacks,lyns 5 herb balm,and my tens machine.I dont imagine it lessening either considering it jus keeps get worse and spreading.Oh the joys of the unknown diagnosis.lol.Bad joke.lol.Luv to all, cassy [cop.girl@...] wrote: Cassy~ If you're anything like me, you may have lived with pain for so long that your tolerance to pain has gone up. It's really not advisable to keep upping the doses. But, I do sympathize with you. I hope that they find what the bleep is wrong with you soon. Lifting you in prayer... Val Re: Re: Wierd feeling Thanks for replying Mickie.I get worried when I get a new symptom,because Im already way to ill,and the new ones pile on top of the old and haunt me every day of my life.Barf.lol.So sorry your havn so much pain.When my illness started (about 3 yrs.ago) it started with pain in my thighs,stabbing pain,now its in all my legs and arms,well and everywere,so I know it sucks.Are you taking any pain meds?I take vicodin,baclofen,and neurontin.I know the vicodin and baclofen help but im not to sure bout the neurontin these days.They can keep up n the dose And I dont see any improvement,but I also dont want to stop because I fear it will get worse.So a no winner.lol.ya.life goes on,can get pretty difficult but luckily we all have eachother.Lots of luv to u Mickie and all on the group, cassy [plymate2000@...] wrote: HI Cassy, I get that too, feels real weird but it goes away. I notice it in my right leg. Now my right leg is having stabbing pain in my thigh and calf and this weird pain behind my knee. That started about a week ago and doesnt seem to be going.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Do you also have joint pain? If so you might try MSM with Glucosamine. I started taking it because I have a trigger finger and a very painful thumb joint. I was very happy to discover my bad back pain and weakness got better. I've run out a few times and the back pain came back. LDN also helps with the pain. Other than that I only take Tylenol except for my regular meds. My youngest was 10 lbs. 2 oz. But I saw a 14 lb. newborn on the news last week. Big baby! Sharon Re: Re: Wierd feeling Thanks Kate.They say no no on ciropractic care for now with all the symptoms im having.I have tried acupuncture and it sent my body into jerking spasms or tremors(im not sure witch) but my body was jerking awful,you could hear the table moving.It didnt stop so the nurse quickly took everything out and put a no no for that too.My insurance dosnt cover pain management so nopie on that one too.Besides im not ready to try anything stronger im just dealing with it as long as I can,even if it does mean to hide on the bad days.I didnt have my girls at home,I had epidurals,but just didnt work much.They almost had to take my youngest c-section because she was 10 lbs and once she was in the canal she wasnt coming out.Her shoulder was stuck behind my pelvic bone and they had to pry her out.They had to fill the epidural 4 times,it was a very hard birth.Poor thing went threw hell,so did I.lol.Once she came out she wasnt breathing and OMG was that scary,then she had complications and hadto stay at the hospital a week,hugz[katelloydkidz@ optonline. net] wrote:Cassy~Listen, you might do well with seeing a pain management specialist. There could be other options for you, like in the form of biofeedback, acupuncture, massage, chiro...etc. ..Sometimes we need to 'widen our horizons' beyond meds/drugs.. .Just 'cause, I know I went off everything, as it became a blur of stuff for me..I started to question whether double vision, blurred vision, vertigo, fatigue, nausea, were side effects of meds. or MS! So, with going off everything back in February, I can now journal/document what is truly (most likely!) MS, as I'm off the meds. Yeah, pain--have that..But its funny..I guess we all 'pick and choose' what we can deal with...I can deal with pain, as I too, had natural births, 4 out of 5 of them were at home, with NO drugs...Anyways. .I'm having the hardest time dealing with the cognitive aspects of the MS--for me, that is more emotionally painful than actual physical pain! Blessings, kate> Thanks Val.Yes.I have lived with pain over 3 yrs. And ill tell > ya,and I have told my fam that id rather give birth everyday of > my life then to have this pain.(just a lil example for them,you > know to imagine how it feels)both my girls were very large and > very hard to deliver.But ya,I went a long time suffering before > meds,and even now.My doc says the next step up for pain is > oxycodone and contin.Im hesitant of those so am just tryn to > deal with it.They are more then willing to up the neurontin > though and im takn 2400mg.Sometimes I feel im takn it for > nuthn.Pain everyday,one of my major symptoms.It sucks but hey > what can we do?When its really bad I hide and cry otherwise its > icepacks,lyns 5 herb balm,and my tens machine.I dont imagine > it lessening either considering it jus keeps get worse and > spreading.Oh the joys of the unknown diagnosis.lol. Bad > joke.lol.Luv to all, cassy> Please visit: http://www.bicyclem an.comawesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour! Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://us.rd.yahoo.com/evt=48516/*http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 hot CTA = Join Yahoo!'s user panel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Thank you Cassy. You are starting to sign off like n. lol. Hugs, Trista~~~~~~~~~~~And he said unto me, MY GRACE IS SUFFICIENT FOR THEE;FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS. Wierd feelingHey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Sharon.I have never heard of that,I will look into it.My friends baby was over 11 lbs.Ahhh.lol.My pain is deep down,like punching it isnt deep enough and dosnt hurt.My pcp always pushes or squeezes,its weird cuz I do have alot of numbness yet there is so much pain.It is an all day everyday stabbing.I could handle it alot more before the cramps and spasms and stiffness and all that.Those are everyday as well,cramps are sumthn awful.Willin to try out other things but dont like to take to much meds.I have takn everything im on for awile now,but dont like to add in others.I tried the baclofen before the neurontin,thats what helped me use a cane instead of always the walker.Now I only use the walker on bad bad days.I never really did notice a difference on the neurontin,but like I said im scared bout stopn incase its helpn more then I think.The pain and weakness pretty much keep me housebound.Leave when I can but its hard.Still learnin to adapt.Luv to all,cassy [wobbletowalk@...] wrote: Do you also have joint pain? If so you might try MSM with Glucosamine. I started taking it because I have a trigger finger and a very painful thumb joint. I was very happy to discover my bad back pain and weakness got better. I've run out a few times and the back pain came back. LDN also helps with the pain. Other than that I only take Tylenol except for my regular meds. My youngest was 10 lbs. 2 oz. But I saw a 14 lb. newborn on the news last week. Big baby! Sharon Re: Re: Wierd feeling Thanks Kate.They say no no on ciropractic care for now with all the symptoms im having.I have tried acupuncture and it sent my body into jerking spasms or tremors(im not sure witch) but my body was jerking awful,you could hear the table moving.It didnt stop so the nurse quickly took everything out and put a no no for that too.My insurance dosnt cover pain management so nopie on that one too.Besides im not ready to try anything stronger im just dealing with it as long as I can,even if it does mean to hide on the bad days.I didnt have my girls at home,I had epidurals,but just didnt work much.They almost had to take my youngest c-section because she was 10 lbs and once she was in the canal she wasnt coming out.Her shoulder was stuck behind my pelvic bone and they had to pry her out.They had to fill the epidural 4 times,it was a very hard birth.Poor thing went threw hell,so did I.lol.Once she came out she wasnt breathing and OMG was that scary,then she had complications and had to stay at the hospital a week,hugz [katelloydkidz@ optonline. net] wrote: Cassy~Listen, you might do well with seeing a pain management specialist. There could be other options for you, like in the form of biofeedback, acupuncture, massage, chiro...etc. ..Sometimes we need to 'widen our horizons' beyond meds/drugs.. .Just 'cause, I know I went off everything, as it became a blur of stuff for me..I started to question whether double vision, blurred vision, vertigo, fatigue, nausea, were side effects of meds. or MS! So, with going off everything back in February, I can now journal/document what is truly (most likely!) MS, as I'm off the meds. Yeah, pain--have that..But its funny..I guess we all 'pick and choose' what we can deal with...I can deal with pain, as I too, had natural births, 4 out of 5 of them were at home, with NO drugs...Anyways. ..I'm having the hardest time dealing with the cognitive aspects of the MS--for me, that is more emotionally painful than actual physical pain! Blessings, kate > Thanks Val.Yes.I have lived with pain over 3 yrs. And ill tell > ya,and I have told my fam that id rather give birth everyday of > my life then to have this pain.(just a lil example for them,you > know to imagine how it feels)both my girls were very large and > very hard to deliver.But ya,I went a long time.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 ya.I think we all need a house doc.lol.Sounds kinda funny.lol.I wish my pcp were a specialist. I know id be dx'd if he was.Most docs,especially specialists(in my opinion) dont wanna look outside " the box " .There are so many diseases out there,and yet they only want to look for the 1 or 2 things they think " are most likely " .Ughh.I dont think my views on docs will ever change.Luv to all,cassy [dixmstx@...] wrote: You've got it. I would give anything if there was a real House who would devote the time to figure what the heck is wrong with me. ' Val Lee wrote: What we need is some Dr.'s like House and his team. Yeah, he's a bit arrogant and eccentric, but he's a genius and with the rest of the interns and surgeons, they can always find out what's causing symptoms. Blessings...Val Wierd feeling Hey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Most people look at me like I'm high or crazy when I tell of these sensations. But, this group ALWAYS knows exactly what I mean. Hugs, Trista~~~~~~~~~~~And he said unto me, MY GRACE IS SUFFICIENT FOR THEE;FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS. Wierd feelingHey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of my weird sensations I get.But it is only on the left leg and it is annoying not painful,but today it has been non stop,it seems like as soon as the feeling goes away it comes right back.Any ideas?or does anyone get this?or ever had it?Maybe it is just the numbness thawing out?lol.could it be feeling coming back?I worry it could be the start of another flair up or new symptom.I dont know.Thanks guys.Luv ya all, cassy No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.7.3/809 - Release Date: 5/17/07 5:18 PM No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.467 / Virus Database: 269.7.3/809 - Release Date: 5/17/07 5:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 It's kind of addictive, isn't it? I find myself signing off like n sometimes too. We all love n!love to all on the list :)Sharon Wierd feelingHey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of.... Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 I do the same. hee hee. n must be resting after her newest adventure. Wish I could get out and people watch or animal watch, but the only animals I see are in my zoo..... I mean home. lol. Hugs, Trista~~~~~~~~~~~And he said unto me, MY GRACE IS SUFFICIENT FOR THEE;FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS. Wierd feelingHey guys.Im having a chill/goosebump feeling only on my left leg.It is very strange,from the top of my thigh down.It started yesterday and I figured it was just one of.... Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 LoL.Guess I waited til I was comfortable enough,ya know the big L word.lol.Cuz I do love you all,and hey people musta been sayn that for centuries.lol.Right n!?lol..Well,I have been here awile maybe n just wore off on me. either way,from my heart,maybe not my created words.hehe. but just how I feel.love,me(is that one me?lol.will everyone know its me if i put that.lol.but really.) [wobbletowalk@...] wrote: It's kind of addictive, isn't it? I find myself signing off like n sometimes too. We all love n! love to all on the list Sharon Re: Wierd feeling It was Trista.And I get them down my back,I.... Quote Link to comment Share on other sites More sharing options...
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