- Syndey's mom about drop seizures

[Guest guest]

I posted this yesterday under the old heading and just wanted to make

sure you read it.

, Hannah was just like Sydney. Perfectly healthy until 3.5 yrs

old and then she started falling out of the blue! It was scary and

such a nightmare for two yrs. before we started the diet. I did so

much research on the internet and also was concerned that Hannah had

Lennox Gastaut. Cleveland reassured us that because there was no

regression in her mental or physical capabilities that it wasn't LG.

The seizures did effect her fine and large motor skills but she is

catching up. By the way, she just learned to tie her own shoes!!!

What a thrill for her. She is becoming quite independent and even

getting completely dressed on her own. Such simple things to others

have brought such joy to us : )We thank God everyday for bringing us

through. Gail

> Hello,

>

> My daughter Sydney had drop seizures. She had her first one at age

3 and

> they slowly progressed to almost fifty a day. She also wore

helment. She had

> no signs of any problems before the first drop. She has been

diagnosed with

> lennox gastuat but I fill it is a guess. She has no developmental

delays and

> we have been doing this now for two years. She started the diet two

months

> ago and everything went away. She is our old Sydney again . Many

times she

> hit her face ,busted eyes and even bit through her tongue. I had to

quite

> work to be right with her every step. We prayed hard for a

break,and I guess

> God knew we needed one. Sydney was on Topamax also. We are now in

the

> weaning process. I just hope and pray that it all goes well. I

used a car

> booster for Sydney to watch movies and eat in. That way if she

dropped She

> couldnt fall foward. It was a big help to us. I hope this helps.

> ( Sydney's mom keto kid 10-8-01 four years old, seizure

free and

> almost med free)