New member

[Guest guest]

Vicki,

I agree. There should be no need for a D & C with an ectopic. There should be

no need for a D & C if the location of the pregnancy is not first established!

What if a pg was in the uterus??? This happened to a woman just last week,

bless her heart.

Take care,

Krista

[Guest guest]

Amy H.,

I so sorry for your recent loss. It is just so unfair. It sounds as if

you are handling the situation quite well.

I am glad you are being referred to an RE. That is just devastating to

learn that both your tubes are blocked. Several of the ladies here are

already pursuing IVF and can probably offer a lot of advice.

I hope you find the comfort here you need.

Tara

New member

I am a new member and wanted to tell you a little about myself. I

had a ep the end of January and consequently had a D & C on Feb.7, 2000

to confirm the ep. I received the metho at that time and did not

suffer any ruptured tube or damage due to the ep. I am 27 yrs old

and this was my first pregnancy. I had a extremely kind and good

doctor who was able to diagnose the ep early. I was between 5-6

weeks along and was upset and saddened by the loss. The doctor,

myself and my husband talked after the post-op appt and she

determined that I needed a HSG before ttc. I was fine with this

because I did not care to go thru the pain again. My HSG was about 2

weeks ago and I found that one of my tubes is 95% blocked and the

other is 100% blocked. The procedure was extremely painful in my case

and I know that this not the norm. They said sometimes with severe

blockage there is intense pain. My doctor referred me to a RE whom we

see on Friday. I am looking at all the options and want to have a

successful pregnancy. I know that ttc naturally may not be and

option and I am okay with that. I do not want to experience that

sadness again. I feel hopeful in that they know what it wrong and

have somewhere to start. I know that I may be in the minority. I am

a master level therapist and do counseling and have been taking care

of myself. I would advise all of you to do the same thing. I hope

that there are some answers to some of my questions by you if I

need. Hope I can help others and myself as well. Thanks!

Amy Hoag

------------------------------------------------------------------------

Enjoy the award-winning journalism of The New York Times with

convenient home delivery. And for a limited time, get 50% off for the

first 8 weeks by subscribing. Pay by credit card and receive an

additional 4 weeks at this low introductory rate.

http://click./1/3104/2/_/26068/_/955494828/

------------------------------------------------------------------------

[Guest guest]

Amy H,

I am glad you found us, and so sorry about your EP. I too am 27 years

old and my ectopic was dx on March 10. I am sorry about your HSG results, it

sounds as though you are a good candidate for IVF. My DH and I are

considering IVF when we are able to try again, b/c I am terrified of a

repeat EP. I have not had my HSG yet since the EP but I had one a year ago

that was clear.

If you have any questions feel free to ask us anything, that's what

we are here for, Kim

New member

> > additional 4 weeks at this low introductory rate.

> http://click./1/3104/2/_/26068/_/955494828/

> ------------------------------------------------------------------------

>

>

[Guest guest]

: Welcome to our group. Sorry you had to come here under all these

circumstances. Everyone here is of such great help. Well, I guess I should

say they have all helped me. Sorry for your loss. I know that you are deeply

saddened but in time the pain will heal but only to an extent. I still have

good days a bad days. Like today will be 8 weeks since we found out we were

having a baby then 2 hours later I was in surgery to have it removed along

with my ruptured left fallopian tube. it seems like all the gloomy days are

bad and especially on Thursdays. Anyway I just wanted to let you know that I

am thinking of you. and if you need to talk I will be here. Or you can email

me priv. At CMDRuss@.... I was wondering when are you suppose to go back

to the doctor? Did he give you any reasons why you couldn't ttc in a couple

of months? Take Care and I hope to hear from you soon.

Thoughts & Prayers

Dana

[Guest guest]

,

I'm glad that you found us, and I hope that we can give you what you need.

This is a great group, where at least one person usually knows the answer to

the questions you may ask.

As for suggestions about tests, I can tell you that I have only had one test.

I had an hsg. I learned from mine that my right tube is completely closed

off on one end. They are not the " perfect " test, they cannot detect all

tubal problems. However, I am glad that I had mine, although I may have

problems with the left tube that did not show up. I just personally feel

better knowing at least one thing about my body, even if it isn't something

positive. Does all of this make sense?

Well, I think that may be kind of boring, I hope you didn't fall asleep.

Amy

[Guest guest]

Hello ~

I understand what you're going through cause I'm going through it myself. I

lost my baby on March 3rd along with my right tube to ectopic and it has been

emotionally, physically and mentally exhausting ever since. i do have some

good days where I go the whole day without crying but sometimes it seems like

I can't stop. and I tried for 1 1/2 years to get pregnant so that makes

it even worse when I think about it. Sometimes the weight on your shoulders

seems too hard to bare but I have a lot of support here and you will too. I

want you to know that if you ever need to talk, we are always here. I aam

going to start counseling because my emotionally state is getting the best of

me and effecting my job and personal life. I feel I need to try this to see

if it works so everyone wish me luck. I'm hoping this will enable me to get

my life back on track and enable me to better cope with the loss.

Take care.

Sharon

[Guest guest]

,

I am sorry it has taken me a while to welcome you. I'm glad you decided to

post.

I am so sorry for your recent loss. It is a truly horrible thing and none

of us should have had to go through it. But I am glad that you have found

us.

I might suggest you talk to your doc about a hsg. Especially to see how

the tube that survived is. While the hsg won't answer all your questions,

it will tell you if a true blockage exists. Keep us posted on what you

decide.

Tara

[Guest guest]

Hi Amy. Nice to meet you. Your message was not boring! MY into

letter was a little(ha ha)on the lengthy side. I tend to be very

" wordy " . With your ep were they able to save the tube? Did your dr.

recommend the hsg or did you? Thanks for all the info and hope you

have a wonderful weekend!

-monique

[Guest guest]

Dear Sharon,

Thanks for the message. Talking about it really does help. I am

lucky to have family close to me that have been supportive, but it is

still not the same. My husband has definitely moved on. I do think

that it will catch up with him eventually but he doesn't really see

it as the death of a child. It is hard to explain. I guess I should

be greatful that he listens to me, holds me when I cry, and wants a

child as bad as I do. Take care Sharon and thanks again!

[Guest guest]

Tara, please don't apologize. YOU have had a lot going on. I got

the chills when I heard. Congrats!!!!!

We are going to interview a few new doctors next week and I will ask

what they each think about the hsg...what a great opportunity to ask

a lot of questions to different drs. Thanks for the support and best

wishes to you...No morning sickness!!

monique

[Guest guest]

Hi, Tara! I am so glad you finally found someone who

could correctly diagnose you, even though you already

*knew* what was wrong. (Same here.) I have had good

success in just 2 months with Estrace for my

vestibulitis (I have DV, too). It's not cured, but

I've come a long way in just 2 months. I am glad you

are using hypnosis, too. I have come to believe more

and more in the power of the mind to calm and relax

us. I use meditation and visualization techniques,

and they really help me cope. One other thing - if

you don't already work out at a gym, I highly

recommend that for pain management. It gets the blood

pumping and the endorphins flowing. I can leave the

gym feeling great, even when I'm having a miserable

burning day.

Take care, and keep in touch!

Suzy

--- Tara McClung wrote:

<HR>

<html><div style='background-color:'><DIV>Hi, I am new

to the group. & nbsp; I am 22 and have known that

I & nbsp;have vulvar vestibulitis since the first

attempt at intercourse at the age of 17 with my

then-high school sweetheart. & nbsp; At first I thought

that the pain that I was experiencing was normal " it

hurts the first time " pain. & nbsp; A year later I went

off to college and was on this " sword in the

stone " search for the magic guy that would be able to

have intercourse with me. & nbsp; That was a bad idea,

you meet the jerks that way. & nbsp;I am sure that

others like me can relate to high school/college sex

talk which required you to pretend that you understood

and were having sex rather than explain what was wrong

with you. & nbsp; My husband and I have been married for

almost three years and have probably had sex three

times, all of which hurt like hell. & nbsp; All the

while, I went to doc after doc after doc until finally

I learned through a friend of a friend of a specialist

in vulvodynia. & nbsp; So I weaseled my way in to an

appointment (he only took referrals w/diag--which is

what i couldnt get!!! & nbsp; and I had to pay out of

pocket, which hurt!) and he took one look at me and

said " i bet it hurts right there... " and touched the

EXACT place. & nbsp; He told me that it is verry

common. & nbsp; How come no doctors know about it to

diagnose it then!!?? I wish that there was something

that I could do to get the word out!! & nbsp; I was very

pleased to see the articles in Self and Redbook

recently that talked about vulvodynia and

vestibulitis. & nbsp; We need more exposure like that to

help get the word out. & nbsp; This condition is painful

enough physically and emotionally to have to also take

on the rollercoaster of seeing doctor after doctor who

either are smart enough to tell you that they don't

know what's wrong with you; pretend it is something

else rather than look stupid; or (worst case) tell you

that " it's all in your head " . & nbsp; I & nbsp;have dealt

with all three types. & nbsp; Right now I am using an

estrogen cream and hypnosis to get the blood flowing

and muscles relaxing in the area (I also have

vaginismus--which i think is a result of the

vestibulitis). & nbsp; I have just started this

treatment and really hope that it works. & nbsp; I would

really appreciate hearing other people's stories and

hear of their treatments/progress

__________________________________________________

[Guest guest]

Hi,

I'm 19 and have had vvs for 4 1/2 yrs. I tried atarax for ~6 wks and

it did nothing. I also tried clobetasol (topical, very potent

steriod) and it made it worse. But anything is worth a try!

Love,

Ruth

> Hi,

>

> I haven't introduced myself yet. My name is Elliott, I'm

29

> and live and WV. I have Endometriosis, Vulvodynia and IC. I've

had

> the Endo since I was 16, and the bladder and vulvar irritaion since

I

> was 20. Just this last week I was finally diagnosed with

Vulvodynia

> and IC. I would love any info anyone would like to share. I'm

> currently taking Atarax, a prescription antihistamine for the

vulvar

> irritation and IC... just started it three days ago. I had success

> with an over the counter antihistamine for two and a half yrs. In

> early October I had a bladder attack that has led to " old " and

> familiar symptoms, except this was the worst I had ever been in ten

> yrs. Has anybody else tried Atarax, or gotten relief from

> antihistamines? I welcome any responses...

>

> Thanks,

> in WV

[Guest guest]

Hi,

Wow, we have a very similar story. I am 19 and have had vvs for 4

1/2 yrs, since 1st intercourse. Have you tried any other treatments?

Love,

Ruth

>

[Guest guest]

Arline,

Thank you so much for your kind welcome to the group, just sorry I have to be here as all of you are I'm sure. Let me better explain my kidney disorder to you. I was a little brief in my first post. What I have is called "Cystinuria". It is a rare metabolic genetic disorder where the body produces to much Cystine and the kidney's cannot filter it out properly and therefore the cystine binds in the kidney's and forms cystine stones. Everyone has a certain amount of Cystine in their bodies. Mine produces too much. Therefore, I have to drink the 4 or more liters of water everyday to keep the kidney's constantly flushed out and my urine alkaline. The more acidic my urine or the lower my ph level; the more likely for a stone to form. I have had 2 surgery's on my right kidney at age 14 and then again at 16 for stone removal and several lithotripsy laser blastings to bust up stones. There is also a special diet I have to be on which consists mostly of NO MEATS, Dairy or animal proteins of any sort and no gluten or soy. Basically a vegetarian diet. I have to get my protein from foods such as beans, nuts, peanut butter etc. This condition is very very rare, only about 1 in every 20,000 people have it. But there is currently no cure. The way I understand it from all my doctors over the yrs. When we are born we inherit so many genes from our mother and so many from our father. Apparently one or more of my genes mutated and so therefore this is why I have this condition. It is purely genetic. I am currently on medication for this but it only slows the episodes between stone attacks, it does not prevent stones from forming. I have had several stone attacks while on the medication and drinking the water. Hope this helps you better understand my condition. Thank you for responding to my post and your help and information.

Best wishes

[Guest guest]

,

Vulvodynia only means you have vulvar pain. You can diagnose yourself with this ( but it is always helpful to have a doctor do this). I haven't heard anyone on this list who had a biopsy that was useful. But many who said they were very painful. Maybe you should ask your doctor to explain what he is looking for with a biopsy and what various reports would mean to you. Then go away and think about what he said before you have this procedure. If there are no visible signs of a problem what could a biopsy possibly tell him? I think there is way to much cutting going on out there with no indications that it will provide useful information.

Marilyn A.

New Member

My name is , and I am new to the group. Actually I have been here for a couple of weeks reading all posts, but this is my first post. I don't even know where to begin. My vulvar problems started last November, a few months after my last child was born. Like most of you, over the past year, I had been to doctor after doctor searching for an answer to what is wrong with me. My main problem is this constant 24/7 burning sensation just barely inside the vagina. Some days the burning is sooooo bad I literally just want to die. Some days it is not as severe as other days, but it is always there and never totally goes away. I have been married for about 3 yrs now and within the past 6 months, sex has become totally out of the question. As is tampon use or anything that touches or comes in contact down there. But unlike some of you, I do not have any pain or itching down there only the constant burning sensation. Do any of you have only the severe burning with no pain or itching. God, some days I don't know if I can go another day suffering like this. I cry almost every day now as my condition continues to worsen with every passing day. It started out only burning occassionally, then progreer the internet, desperately searching for a clue to what was wrong with me. I was so happy to hear it from this doctor.. He admitted to me that so many women suffer so long with this condition because most doctors don't know about it or as you all have said "Think it's all in your head". He has scheduled me for my first biopsy on the 29th of this month. He said he will know more then, and will probably be able to confirm the "Vulvodynia" diagnosis. But until then he has me on Zoloft, which isn't helping, pain medication, and last week he gave me some Lidocaine which burned me worse than I ever was burning before applying it. Please keep in mind, this doctor is just a regular M.D. He is not a gyn or specialist. But he knows about the Vulvodynia, so maybe that will be a plus for helping me. This has been so very hard to take. I also have a rare genetic disorder in which my body continues to produce Kidney stones (Cystine stones). I was born with this. I have to drink 4 liters of water every day and take medication every day. All of this for the rest of my life and there is no cure currently. So as you can imagine the thought of me having another condition with no cure came as a debilitating blow to me. Sorry to ramble on and on. I am just so depressed right now and in so much pain and discom *****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

[Guest guest]

,

These are just my opinions but maybe they will be helpful in some way. I

don't think that " Vulvadynia " is considered to be a diagnosis. The word

simply means " vulvar pain " . I can't imagine what was in the doctor's head

about that and I truly doubt that he knows anything much about what is wrong

with you. That said, I welcome you to this list and hope you can find some

help here.

Another thing--about your kidney stones. There is a high incidence of people

with kidney stones who have Celiac disease (gluten sensitivity) and you

might find reading about that to be interesting. Some have found that not

eating gluten cures their kidney stone problem.

If you are interested in that, open wwwgoogle.com and do a search for

" kidney stones gluten " . There are some articles there by a Ron Hoggan who

has written about this subject that is interesting and also some other

writings.

I have found that not eatin gluten has solved my vulvar burning and itching.

Best Wishes,

Arline

>

>My name is , and I am new to the group. Actually I have been here for

>a

>couple of weeks reading all posts, but this is my first post. I don't even

>know where to begin.

>My vulvar problems started last November, a few months after my last child

>was born.

>Like most of you, over the past year, I had been to doctor after doctor

>searching for an answer to what is wrong with me. My main problem is this

>constant 24/7 burning sensation just barely inside the vagina. Some days

>the

>burning is sooooo bad I literally just want to die. Some days it is not as

>severe as other days, but it is always there and never totally goes away.

>I

>have been married for about 3 yrs now and within the past 6 months, sex has

>become totally out of the question. As is tampon use or anything that

>touches or comes in contact down there. But unlike some of you, I do not

>have

>any pain or itching down there only the constant burning sensation. Do

>any

>of you have only the severe burning with no pain or itching. God, some

>days

>I don't know if I can go another day suffering like this. I cry almost

>every

>day now as my condition continues to worsen with every passing day. It

>started out only burning occassionally, then progressed to every day 24/7.

>I

>am 30 yrs old, and up until the last yr. or so, enjoyed having intercourse

>and enjoyed life to the fullest. This burning just seemed to come out of

>nowhere. One day I was fine and the next day......... It is at the point

>now that I can't eat or sleep or hardly function in my daily life because

>of

>the burning. My husband understands and tries to be compassionate and

>patient with all of this but I can see it is wearing him down too. And I

>can't help but wonder if some day he might get tired of the whole thing and

>leave me. My husband is in the Army, and so I am forced (because of our

>insurance) to see these quacks at the army hospital. I went to see one

>doctor about a month ago and explained to him my story as I have done so

>many

>times in the past yr. And to my surprise, he came right out and said it

>sounded like Vulvodynia to him. I couldn't believe it because I had done a

>lot of research on vulvar conditions over the internet, desperately

>searching

>for a clue to what was wrong with me. I was so happy to hear it from this

>doctor.. He admitted to me that so many women suffer so long with this

>condition because most doctors don't know about it or as you all have said

> " Think it's all in your head " . He has scheduled me for my first biopsy on

>the 29th of this month.

>He said he will know more then, and will probably be able to confirm the

> " Vulvodynia " diagnosis. But until then he has me on Zoloft, which isn't

>helping, pain medication, and last week he gave me some Lidocaine which

>burned me worse than I ever was burning before applying it. Please keep in

>mind, this doctor is just a regular M.D. He is not a gyn or specialist.

>But

>he knows about the Vulvodynia, so maybe that will be a plus for helping me.

>This has been so very hard to take. I also have a rare genetic disorder in

>which my body continues to produce Kidney stones (Cystine stones). I was

>born with this. I have to drink 4 liters of water every day and take

>medication every day. All of this for the rest of my life and there is no

>cure currently. So as you can imagine the thought of me having another

>condition with no cure came as a debilitating blow to me. Sorry to ramble

>on

>and on. I am just so depressed right now and in so much pain and

>discomfort.

> The only thing that keeps me going is the love for my 2 beautiful boys.

>(Ages 3 and 19 months). Do any of you have any home remedies that would

>help

>the burning when it gets so unbearable?? I go back to the doctor

>tommorrow,

>so I'm just trying to get by till then. thank you so much for listening to

>my story. I have read so many of your posts in the past few weeks and all

>of

>you sound so compassionate and there for each other. Any advice that you

>could give me would be so appreciated. Thank you.

>

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

JUlie,

Sorry I placed all that in your lap about kidney stones, etc. I guess your

stones are different than some other kidney stones. Sorry you have such a

bad time and now the vulvar problems--UGH!

I was glad to read the post from Marilyn about the biopsies and agree that

it is a good idea to try to know what is going to happen and what the doctor

is going to do and even--why? I had a doctor who put me under a general

anesthetic and did twelve biopsies. It took a year to heal. It was really

irresponsible and I didn't know any better. If you just have red inflamed

skin I can't imagine why one is necessary. If there is a lesion or

suspicious spot or whitened skin or mole or something I can see it. But I

don't think he is going to diagnose anything from just red inflamed skin

(unfortunately). I don't ever plan to have another one unless I can see the

reason. Generally they are looking for cancer.

Here we are just confusing you! `;O) I hope we aren't but I just want to

help you to prevent unnecessary cutting, pain, expense, etc. and be

forewarned. In my opinion there is a lot of " abuse of biopsy " in this area.

Take care and let us know.

Arline

>

>Arline,

> Thank you so much for your kind welcome to the group, just sorry

>I

>have to be here as all of you are I'm sure. Let me better explain my

>kidney

>disorder to you. I was a little brief in my first post. What I have is

>called " Cystinuria " . It is a rare metabolic genetic disorder where the

>body

>produces to much Cystine and the kidney's cannot filter it out properly and

>therefore the cystine binds in the kidney's and forms cystine stones.

>Everyone has a certain amount of Cystine in their bodies. Mine produces

>too

>much. Therefore, I have to drink the 4 or more liters of water everyday to

>keep the kidney's constantly flushed out and my urine alkaline. The more

>acidic my urine or the lower my ph level; the more likely for a stone to

>form. I have had 2 surgery's on my right kidney at age 14 and then again

>at

>16 for stone removal and several lithotripsy laser blastings to bust up

>stones. There is also a special diet I have to be on which consists mostly

>of NO MEATS, Dairy or animal proteins of any sort and no gluten or soy.

>Basically a vegetarian diet. I have to get my protein from foods such as

>beans, nuts, peanut butter etc. This condition is very very rare, only

>about

>1 in every 20,000 people have it. But there is currently no cure. The way

>I

>understand it from all my doctors over the yrs. When we are born we

>inherit

>so many genes from our mother and so many from our father. Apparently one

>or

>more of my genes mutated and so therefore this is why I have this

>condition.

>It is purely genetic. I am currently on medication for this but it only

>slows the episodes between stone attacks, it does not prevent stones from

>forming. I have had several stone attacks while on the medication and

>drinking the water. Hope this helps you better understand my condition.

>Thank you for responding to my post and your help and information.

>Best wishes

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

,

I to suffer from constant 24/7 burning (no itching)

for the past two years. I do have pain in one area

constantly that feels like I am being pinched and

kind of crampy. I am so sorry that you have to deal

with this being so young, it's hard enough at my age

(46). but I truly understand how you feel, today I cried

the whole way home from work because I honestly feel

I can't take this pain any longer. I recently had

some biopsies done and am waiting for the results.

Right now I have been using estrace for the past

three months (which has improved my skin tissue)

and just started using temovate (clob) yesterday.

I always felt that my husband and I had a healthy

sex life and now It's been a year since we have had

sex. I guess the most important thing I can recommend

to you is to find a good vulvodynia specialist, hope-

fully you will be able to find one through your hus-

bands benifits. A lot of the women on this site have

found their cure and also have great advice that may

help you. , good luck and I am sorry if I have

been negative about myself, I guess I am having a case

of feeling sorry for myself, but today I honestly feel

like I can't live another day with this burning.

Pam

[Guest guest]

Welcome! My first advise to you is to get a good Pediatric Neurologist! Sometimes the good ones take 2-4 months to get into so I would start there! Good Luck! tina. mom to Ethie,3 on Ketogenic Diet since 6/18/01!

[Guest guest]

Welcome to the list. My son is on the diet - and has

been for almost 2 years - because he was starting to

have more and more seizures of different types that

were interfering with his daily life.. not to mention

he was doped up on drugs (which we didn't know how

much until we got on the diet and off drugs).

If he's tired a lot, I would wonder if there is some

other type of metabolic disorder going on that the

side effect of which is the occasional seizure... I

agree with the other post about getting a good

pediatric neurologist. Make sure they know your views

about drugs - as some doctors/hospitals treat more the

" test results " than looking at the child to see if

they really need intervention. We've had both kind of

neurologist - and I don't think that either one is

wrong or right necessarily, but you need to know the

approach before you get too far in with one. And many

children are controlled with drugs without bad side

effects. I'm not advocating trying them, but since

his seizures are few and far between it might be a

very low dose would keep them away completely without

side effects. I totally understand wanting to stay

away from them, though.

If it does seem like the diet would be a good option,

with those few seizures it might be you could be on

modified Adkins type diet - which is less restrictive

(I think - haven't used it) than the ketogenic diet.

There are some people on this list that use that...

I'm sure you'll get a lot of helpful info here.

Good luck!

Sheri

mom to Tyler, 9, keto kid 5/00 med and seizure free

and Sara, 6

--- umbasheer@... wrote:

> Hello I am the mother of two boys. The youngest of

> whom has been recently

> (last summer) diagnosed wth epilepsy. I have many

> questions as I am very

> ingnorant about the disease and it's affects.

> Let me tell you a bit about my boy. He is

> five and was five when he

> had his first seizure. (Last summer) His first

> seizure was very scary for

> me. We (he, my older son, who is going to be 7 in

> march, and myself) laid

> down for an afternoon nap. We had been sleep for

> about an hour, when in my

> sleep it seemed as though I could hear my son making

> a gurgling sound. I

> woke up and I saw that my son was vomited in his

> sleep. I was alarmed and

> wondered how long he could have been this way. I

> looked to make sure that he

> was still breathing, and he was. My next thought

> was to get him to the

> bathroom and put his head forward to the toilet, to

> try to get him to expel

> any vomit that might still be in his throat or

> mouth. Oh, I forgot to

> mention when I woke up, his eyes were going up and

> down, over and over again,

> but he did not respond to me.

> To make a long story short he vomited more in

> the toilet, and I called

> 911. We spent a lot of time in the emergency room,

> and he received a cat

> scan. They then could only tell me that the

> symptoms seemed to be pointing

> to a seizure. But they could not be sure until they

> did an EEG.

> He got one done about a month later and it

> showed abnormal brain patterns

> especially but not exclusively, when he is sleep or

> and on the verge of sleep.

> He has only had four seizures so far, including

> the first one that he

> had. They come on the average every three months,

> though the last one was a

> lot closer than they were coming. The third one was

> in the last week of

> December, and the last one was on this past

> thursday. They usually last from

> about two to five minutes. They have all occured

> while he was sleeping, with

> the exception of one where I know he was sleepy, and

> probably would have been

> sleep if I had not told him to sit up properly and

> listen to his social

> studies lesson. ( We homeschool) I think in most

> of the situations it was

> a little warm. The last one he had he was in front

> of the fire place when he

> fell asleep. The first one the weather was hot, and

> so was our room. He

> always vomits either right after or later on after

> he has had a seizure. A

> couple of times he has complained of a headache

> after waking up.

> He is not on any meds and has never taken any,

> and I would love to keep

> it that way.

> I think this is about all. The lady that was

> giving him Sacro-cranial

> therapy is hard to keep up with. Plus paying is a

> bit difficult at times.

> But I will try to start this back up. I think that

> she works at the center

> that you are speaking of, but I usually have it done

> at her home. She does a

> good job.

>

> I have a few questions that I would like to

> pose. I my son would be

> considered by many to be a little slow but by no

> means handicapped, could

> this be from his neurological disorder?

> Since his seizures are so mild, and are not

> frequent, should I put him on

> a diet or just use supplements. If diet which one.

> If Supplements which

> ones. I really want to keep him drug free.

> Is common for epileptics to be tired natured? He

> is often tired.

> Are there any further tests that I need to do on

> him at home? If so

> which ones?

> I am really confused as to which form of action

> I should take next, as I

> have only recently been informed that if no action

> is taken his condition

> will more than likely worsen.

> All help will be greatly appreciated.

>

> Thank you,

> Kareemah

>

> Proud mother of Musa, age 5 Kindergarten.

> Homeschooler and SAM (Stay at

> home mom.

>

__________________________________________________

[Guest guest]

In a message dated 12/31/2002 12:34:37 PM Eastern Standard Time,

mjbearit@... writes:

> I really don't like

> meds, but I know that this is serious enough that if I can't do it in

> 3 months I'll go with his program without complaining

Hi Mike,

Welcome to the group. Glad you found us. This is a great group of people.

If you need meds to get bg's stabilized, that is okay. Losing weight and

exercising are two of the most important things that you can do to control

bg's. Even though you may have to go on meds, that does not mean that at

some point you can go off them.

I was on medication for about a year when I decided I wanted off. In Dec

2000, I told my doctor I wanted off meds, she told me she didn't think it

would happen, I would probably have to increase them. At that time, my HbA1c

was 7.5. However, I had already lost about 20 lbs. In Jan, I started

getting lows every two hours. My doctor cut my meds in half. In Feb, I was

still getting lows, so she discontinued my meds. When I went in June 2001

for HbA1c, it was 5.7. I have been off meds for almost two years, and bg's

are doing great. In fact, I only do the HbA1c test every year. However, my

doctor knows that I keep a close check on bg's and if I should see drastic

changes, I would let her know immediately.

Eunice

[Guest guest]

In a message dated 12/31/2002 2:23:02 PM Eastern Standard Time,

nk1234_2000@... writes:

> By the way on this group I thing the members read the posts and reply fast.

Hi Nick,

Thanks for the nice compliment. We try to answer messages as soon as

possible.

Eunice

[Guest guest]

BTW what dogs have ya?

[Guest guest]

dear Tom

welcome.

have you got a dietician that you can see? someone to go through an eating

plan with you? ask your endocrinologist or doc who supervises your diabetes.

In meantime for wound healing you need protein and to lower sugars and lots

of vitc. Take supplements or fruit rather than juice as juice gives instant

high and no good unless in hypo.

as far as boredom goes.....keep chopped melon in fridge....and find something

to keep hands busy. Do you work? any hobbies? Is taking a class at local

college an option? lots to cover boredom if you need to.

Good luck

Fenella

[Guest guest]

In a message dated 1/14/2003 8:19:38 PM Central Standard Time,

chrischringle@... writes:

> I went out and bought a Palm handheld and found Diabetes Pilot to track my

> bG, meds, and eating.

>

> What is Diabetes Pilot? It sounds interesting.

>

> I need to learn more about carbs and food.  Hopefully I can get that info

> here.  I'd rather not try a normal weight loss group.  Right now I'm buying

> frozen dinners.  I know that they are not the best or the cheapest or the

> least fat, but they are better and cheaper than what I was spending on

> food.  Mostly things like Lean Cuisine and Healthy Choice.

Watch out for those frozen dinners. I have found that they are high in carbs

with very little food. An average dinner is around 50 g of carbs. I know

everyone is different but I can only eat around 15 g per meal. I still go

back and forth with not eating carbs and not having to take drugs or eating a

few carbs and taking drugs. Before the day is over, I usually end up eating

carbs and popping a few pills.

As far as easy meals go, I usually freeze single portions of chicken,

hamburgers, and steak and cook them on the Foreman grill with a side

salad or vegies. I make chili with just a few beans but lots of meat, also

taco salads are good with just a few corn chips. My biggest problem is

breakfast. I usually just eat eggs everyday. If I eat any cereal, toast, or

any carbs,my BS will go sky high in the morning, so I eat eggs or just forget

about it until lunch. Kat

>

>