Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Hi ! Thanks for your great response.....Not sure on the dosage I had....I- 31 rings a faint and distant bell. Didn't have isolation at hosp. or anything...just a wk. of staying away from close contact with people. Yes, am having the scan 3 days after drink, and the DR. will be seeing me with results thereafter, and how much next dosage will be...He said it might take a couple of little drinks instead of the bigger ones to do this.....They did also recommend 6 mos between drinks.....I thought it was a little early. But being a small dose, I thought they could give them more frequently...... I'll check the archives and see what's there....it's very interesting and learning lots with this website.... Seems I got myself listed under 2 names....not sure how I did that, but will try to correct. Thank-you again for responding...Good luck and good health to you. Lesley > > > Hi Everybody! > > > > I'm new on this list and had to read everyone's > > message. I'm 50 yrs. old so no children at home to be > > concerned for, but I empathize with you. It must be > > difficult. > > > > If you have a couple mins., I'd like to share a bit of > > my crazy story with you, and get your opinions and > > advice. > > > > I had a goitre, and half thyroid removed 10 yrs ago. > > Tests came back neg., but they say I should have had > > whole thyroidectomy....that's when they feel this > > 'good' cancer started.... > > > > Was diagnosed with pap. ca last Sept..(l lump, 2cm) > > It's such a shocker, I think they feel they're putting > > us at ease by telling us it's the 'good' kind....it > > actually made me feel better, but I'm still new at > > this and have yet to experience the side effects, etc. > > > > Had it removed with lymph nodes in Oct....you know, > > the whole major surgery thing...... > > > > O.R. report was not written up clearly, so I had to > > have further tests to determine if thyroid was > > completely removed....(Can u believe?? They told me > > this 2 wks. after surgery......I told them, surgeon > > said he got it all, just phone him!!...but it's not > > that simple..) > > > > Surgeon made error, and tests showed some remaining > > thy. in me...However, he said he didn't know it was > > there due to old scar tissue and location (close to > > parathyroid?) and was so small he ignored and went to > > malignancy and removed all that.... > > > > So now, question is, how to deplete remaining > > thy...RAI drinks and scans or more surgery? > > > > They decided since I'd already had 2 surgeries, and > > probably scar tissue, and remaining bit is so small, > > they'd do the RAI drinks. > > > > Had my first one in Nov....I'm now awaiting my second. > > Have been off syn. for 2 wks. and still feel good so > > am thinking I still have active thy tissue left. > > After the next scan, it should show if it's active. > > > > If it's active, then how many drinks will it take to > > deplete it? > > > > Is it safer to drink these chemicals, or just have > > MORE surgery to try to remove this safely? > > > > How important is it to go on low iodine? > > > > I was not told to stay away from iodine.....just salt, > > and msg, and even then they said I didn't have to > > worry too much, just to be careful and cut back a > > little. > > > > It sounds like all of you take great care to stay away > > from iodine.....Is that so the thy cells will take up > > more from the RAI drink? Would they not take it up > > anyway? > > > > So, if you're going in for surgery, I'd make pretty > > darned sure they know exactly where everything is and > > how much they're removing, because you will not want > > to have it done twice...It's not that it's that > > bad.....but major surgery is major surgery......I wish > > I had got them to check the ultrasound again before > > it....I don't believe the surgeon ever really saw the > > ultrasound, or he would have known where the tissue > > was....... > > > > I look forward to sharing your stories, ideas and > > input...Thank-you for your time, and you'll probably > > be hearing from me too now and then....If you have any > > questions, shoot! > > > > ....and how many surgeons DOES it take to remove a > > thyroid???....... > > > > Lesley in Canada (where I keep the heat turned wayyy > > up!)....and......good luck in the hockey game on > > Sun....but I hope we win! Quote Link to comment Share on other sites More sharing options...
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