Question

[Guest guest]

Tara,

Thank you so much for your support once again. I spoke to another

attending physician and he too told me that the second shot is most likely

going to do well. He also said by me bleeding is a good sign. Meaning that

the cells are being killed and that is a good sign.

What hurts me the most is that besides losing my angel, which was very

painful and horrible I am still in pain. I hope and pray to God to help me

be strong and get this through as soon as possible. I want to feel normal

again.

I hope it will be soon. Tara, thanks so much again. If there is anything

i can do for you please let me know eventhough I am new at this.

Take care...Emperus :-)

[Guest guest]

Dear Pam,

Thanks for responding my question. My next appt is on Monday 6/26 to do

another blood test and see if the hcg level has gone down. I have a feeling

it will be ok because last night and today i started to bleed but not heavy

just right. It is very uncomfortable but i just hope this is it. I wouldn't

want to go through the surgery.

I will keep you posted. Thanks again and have a nice evening. Hope all

is well with you.

Emperus.

[Guest guest]

Emperus,

It is so hard to know that you're losing your angel in that blood. It was

terrible for me. I'm sure the bleeding and pain are constant reminders. I'm

praying that it will all be over soon for you. I know I felt a lot better

when the bleeding stopped.

Joleen

[Guest guest]

Jollen

Thanks so much for your words. It touched me again and felt depressed. I

hope that God will take care of him or her or if it would have been twins. I

will never forget him. I hope one day i can be able to see him or her and

see his/her image of how they would have looked like. I pray and ask God to

let dream of that angel. To show me in my dreams how he/she would have

looked like and if it was a boy or girl, This might sound crazy to you but

so far i have not dreamed yet.

Thanks again and best wishes to you too. Sorry for your angel loss.

Emperus

[Guest guest]

Hello, my name is Kesha and I have been experiencing some type of vulvar

discomfort. Over the last six or seven months I have been back and

forth to my Gynecologist for many things. Each time I go, I explain to

him that I am itching so severely internally and he has treated me for

yeast infection after yeast infection and it just keeps going on!! I

have had two biopsies done and neither came back with any real answers.

I haven't been able to function normally, I have taken some many pills,

creams and now I am using (Lidex Cream). I haven't had a normal sex

life for months because of this. My doctor says I have inflammation of

the vulvar or the cervix. I had a colposcopy done the first time and

just a month ago had a Vulvar Biopsy, which shows I have vulvulitis or

something like that. My doctor say there is nothing he can do about it.

I still feel the itching and I have been using this cream. Just last

night, I decided after months of sustaining from sex, me and my

boyfriend decided to try. I can even explain the discomfort I felt. It

felt like some one was rubbing raw skin and it burned after wards and

from the cut my doctor made in doing the vulvar biopsy - it felt so bad.

So we stopped a now I feel like I should call my doctor. I am so sick

of calling and taking off from work to go in and have no real results.

What should I do? I seem to have a discharge from this disorder and I

may or may not have a yeast infection, but my doctor said for me to come

back in a month, so I am stuck. Don't know what to do in the mean time.

Please let me know if you know any thing about this. I am going

absolutely insane and starting to get depressed. Please help me.

[Guest guest]

Hi there,

Your symptoms sound pretty typical of what alot of us have experienced hear

on the list including myself.

I was diagnosed with vulvar vestibulitis, Atrophic Vaginitis and Early stage

Lichen Sclerosus. LS doesnt always show up on a biopsy. It didnt show up

on mine, the doctor didnt find it untill I had a vestibulectomy done and she

tested a much larger area of skin.

Hear are some URLs that might help (hope they work)I know there are alot of

them, but I cant remember which ones I liked best.

You might also want to consider seeing a vulvar specialist.

Vulvodynia:

http://www.obgmanagement.com/07_01/vestibulodynia.html

http://www.obgyn.net/cpp/cpp.asp?page=/cpp/articles/Glazer.vulvodynia_faq

http://obgyn.uihc.uiowa.edu/patinfo/Vulvar/vestibulitis.htm

http://www.edae.gr/vulvodynia.html

tp://www.obgyn.net/CPP/articles/Cracchiolo_0499.htm

http://www.vulvodynia.com/bio_med.htm

http://www.vulvodyniasupport.com/medical.html

http://www.med.umich.edu/obgyn/vulva/vulvodyn.htm

http://www.med.umich.edu/obgyn/vulva/vulvamed.htm

(Information on medications used to treat vulvar disorders)

http://www.med.umich.edu/obgyn/vulva/s & p.htm

(Sexuality and pain)

Atrophic Vaginitis:

http://www.aafp.org/afp/20000515/3090.html

http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/9504.html

http://www.aafp.org/afp/20000515/3090.html

Lichen Sclerosis:

http://www.billingsclinic.org/dbc/IDC2ASP/h_show.asp?HealthInfoDocID=430

http://www.emedicine.com/derm/topic234.htm

http://www.obgynlinx.com/thearts.cfm?readurl= & artid=166288 & specid=5

http://www.med.umich.edu/obgyn/vulva/lichens.htm

Bunny /| |\

. .

( ! )

Reply-To: VulvarDisorders

To: <VulvarDisorders >

Subject: FW: Question

Date: Wed, 3 Oct 2001 12:18:18 -0400

Hello, my name is Kesha and I have been experiencing some type of vulvar

discomfort. Over the last six or seven months I have been back and

forth to my Gynecologist for many things. Each time I go, I explain to

him that I am itching so severely internally and he has treated me for

yeast infection after yeast infection and it just keeps going on!! I

have had two biopsies done and neither came back with any real answers.

I haven't been able to function normally, I have taken some many pills,

creams and now I am using (Lidex Cream). I haven't had a normal sex

life for months because of this. My doctor says I have inflammation of

the vulvar or the cervix. I had a colposcopy done the first time and

just a month ago had a Vulvar Biopsy, which shows I have vulvulitis or

something like that. My doctor say there is nothing he can do about it.

I still feel the itching and I have been using this cream. Just last

night, I decided after months of sustaining from sex, me and my

boyfriend decided to try. I can even explain the discomfort I felt. It

felt like some one was rubbing raw skin and it burned after wards and

from the cut my doctor made in doing the vulvar biopsy - it felt so bad.

So we stopped a now I feel like I should call my doctor. I am so sick

of calling and taking off from work to go in and have no real results.

What should I do? I seem to have a discharge from this disorder and I

may or may not have a yeast infection, but my doctor said for me to come

back in a month, so I am stuck. Don't know what to do in the mean time.

Please let me know if you know any thing about this. I am going

absolutely insane and starting to get depressed. Please help me.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Thank you. I am going to try and get in touch with someone in my area.

I live in Stafford, VA and I am 25 years old. I just started dealing

with this early this year. I don't know what brought it on. I have

been stressed, depressed and all of the above over this. I have

forwarded some information that I found on estrogen creams to my doctor

to see if she thinks it would benefit me to use one. Like I mentioned

to another lady, my symptoms go away, but the moment I try to have sex -

it is almost instant; if feel like my skin is being scrubbed with a

brilo pad and it burns so bad. He gave me LIDEX which is a steroid

cream (it burns) so yes - it stopped the itching, but I can't have a

normal sex life because of how uncomfortable it feels. Today I feel

great, no itching, no burning, no urge to urinate...but FEAR has set in.

I am afraid to even attempt to have sex. Afraid that it will burn and I

will once again have to go thru months of itching, burning and STRESS!!!

I will check out all of the web pages you listed for me. Hoping that I

can find the write answer for my condition. You and the other woman

have helped me tremendously with all of your own knowledge about vulvar

disorders. I had never heard of it - until I had to have my second

biopsy done. Never even knew what the vulva was... and that the skin

layers played such an important role in my everyday life.

Thank you so much, I will keep you up to date.

FW: Question

Date: Wed, 3 Oct 2001 12:18:18 -0400

Hello, my name is Kesha and I have been experiencing some type of vulvar

discomfort. Over the last six or seven months I have been back and

forth to my Gynecologist for many things. Each time I go, I explain to

him that I am itching so severely internally and he has treated me for

yeast infection after yeast infection and it just keeps going on!! I

have had two biopsies done and neither came back with any real answers.

I haven't been able to function normally, I have taken some many pills,

creams and now I am using (Lidex Cream). I haven't had a normal sex

life for months because of this. My doctor says I have inflammation of

the vulvar or the cervix. I had a colposcopy done the first time and

just a month ago had a Vulvar Biopsy, which shows I have vulvulitis or

something like that. My doctor say there is nothing he can do about it.

I still feel the itching and I have been using this cream. Just last

night, I decided after months of sustaining from sex, me and my

boyfriend decided to try. I can even explain the discomfort I felt. It

felt like some one was rubbing raw skin and it burned after wards and

from the cut my doctor made in doing the vulvar biopsy - it felt so bad.

So we stopped a now I feel like I should call my doctor. I am so sick

of calling and taking off from work to go in and have no real results.

What should I do? I seem to have a discharge from this disorder and I

may or may not have a yeast infection, but my doctor said for me to come

back in a month, so I am stuck. Don't know what to do in the mean time.

Please let me know if you know any thing about this. I am going

absolutely insane and starting to get depressed. Please help me.

_________________________________________________________________

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http://explorer.msn.com/intl.asp

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[Guest guest]

I have a list of vulvar specialists that I have saved on my hard drive.

There is a specialist listed in Virginia. I dont know if this will help in

your serch for a doctor, but hear it is. The specialist I see is in another

state from where I live.

Vulvar Specialist In Virginia

Norfolk

Azoury, Ramez S., MD

De Hospital, Ob/Gyn

Eastern VA Medical School

150 Kingsley Lane

Norfolk, VA 23505

Fax

Bunny /| |\

. .

( ! )

_________________________________________________________________

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[Guest guest]

Hi,

You should really find a vulvar specialist, b/c you will not get

anywhere with a doc that doesn't know about this.

Love,

Ruth

>

> Hello, my name is Kesha and I have been experiencing some type of

vulvar

> discomfort. Over the last six or seven months I have been back and

> forth to my Gynecologist for many things. Each time I go, I

explain to

> him that I am itching so severely internally and he has treated me

for

> yeast infection after yeast infection and it just keeps going on!!

I

> have had two biopsies done and neither came back with any real

answers.

> I haven't been able to function normally, I have taken some many

pills,

> creams and now I am using (Lidex Cream). I haven't had a normal sex

> life for months because of this. My doctor says I have

inflammation of

> the vulvar or the cervix. I had a colposcopy done the first time

and

> just a month ago had a Vulvar Biopsy, which shows I have vulvulitis

or

> something like that. My doctor say there is nothing he can do

about it.

> I still feel the itching and I have been using this cream. Just

last

> night, I decided after months of sustaining from sex, me and my

> boyfriend decided to try. I can even explain the discomfort I

felt. It

> felt like some one was rubbing raw skin and it burned after wards

and

> from the cut my doctor made in doing the vulvar biopsy - it felt so

bad.

> So we stopped a now I feel like I should call my doctor. I am so

sick

> of calling and taking off from work to go in and have no real

results.

> What should I do? I seem to have a discharge from this disorder

and I

> may or may not have a yeast infection, but my doctor said for me to

come

> back in a month, so I am stuck. Don't know what to do in the mean

time.

>

>

> Please let me know if you know any thing about this. I am going

> absolutely insane and starting to get depressed. Please help me.

[Guest guest]

Hi Kesha, my heart is really going out to you.

One thing about VV is that there isn't a simple answer to it. There is no

magic pill that we can take that will allow us to have a normal sex life. I

think that you will discover what your boyfriend is really made of now. Some

men can't take the stress of being with a person who has chronic pain, let

alone having it be literally agony to have sex. On the other hand many of

the husbands/boyfriends of women on this list have become more nurturing,

more caring, and more close than they were before the VV struck. In order to

have a love life with VV in the picture you need to really communicate with

your husband or boyfriend, and you have to always communicate. It can lead

to a closer relationship that can remain close forever.

Anyway, enough rambling about love and sex...

..... what was sex again, I forget... :-)

>

>

>

>

> Message: 5

> Date: Thu, 4 Oct 2001 10:40:55 -0400

>

> Subject: RE: FW: Question

>

> Thank you. I am going to try and get in touch with someone in my area.

> I live in Stafford, VA and I am 25 years old. I just started dealing

> with this early this year. I don't know what brought it on. I have

> been stressed, depressed and all of the above over this. I have

> forwarded some information that I found on estrogen creams to my doctor

> to see if she thinks it would benefit me to use one. Like I mentioned

> to another lady, my symptoms go away, but the moment I try to have sex -

> it is almost instant; if feel like my skin is being scrubbed with a

> brilo pad and it burns so bad. He gave me LIDEX which is a steroid

> cream (it burns) so yes - it stopped the itching, but I can't have a

> normal sex life because of how uncomfortable it feels. Today I feel

> great, no itching, no burning, no urge to urinate...but FEAR has set in.

> I am afraid to even attempt to have sex. Afraid that it will burn and I

> will once again have to go thru months of itching, burning and STRESS!!!

> I will check out all of the web pages you listed for me. Hoping that I

> can find the write answer for my condition. You and the other woman

> have helped me tremendously with all of your own knowledge about vulvar

> disorders. I had never heard of it - until I had to have my second

> biopsy done. Never even knew what the vulva was... and that the skin

> layers played such an important role in my everyday life.

>

> Thank you so much, I will keep you up to date.

>

>

[Guest guest]

Hi Friends,

Have a very quick question. Does anyone have very swollen angles and

feet? My husbands are very bad had to even get socks on and off his feet. He

100% in a wheelchair now and wonder if that is the cause of the swelling?

Should I be worried or not? He told me today that the doctors know about it

but just can't believe how bad they are and also feet seem to be a bit blue

in color. Anyone is this PLS or something else anyone know? Thanks Shirley

[Guest guest]

Shirley, I do not have swollen feet but if he is sitting in his wheel chair a

great deal it could be his circulation I don't think that having it is good.

I would call his doctor and talk to him myself and stress how bad it is. I

wouldn't wait............

Flora from Florida

[Guest guest]

--Shirley, I think it probably is because he is in the wheelchair, my

neighbor is in one also and his wife told me he has to take water

pills... I would talk to his Dr. Carolyn- In PLS-FRIENDS@y...,

belgium46@a... wrote:

> Shirley, I do not have swollen feet but if he is sitting in his

wheel chair a

> great deal it could be his circulation I don't think that having it

is good.

> I would call his doctor and talk to him myself and stress how bad

it is. I

> wouldn't wait............

>

> Flora from Florida

[Guest guest]

Shirley:

I have a bit of swelling in my feet at times but it's usually when it's

really hot outside, living in Canada, this only happens for about half of

our year. I think there are special socks that may help, I'm sorry I don't

know alot about them as I've never used them but I'm quite sure I've seen

them advertised at local pharmacies. I think they help relieve swelling and

maybe are used for people with circulation problems - it might be something

you could check into that might help.

Good luck.

Jen L.

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

I do have swelling in my feet and leg also in a wheelchair most of the time.

I ware TED hose and keep my feet up as much as possible. Here by my

computer I have a box to put my feet up also at my table. Them when they put

me in my lift chair for 3 hours which has vibration in it I have solved the

problen pretty good......

Re: Re:question

> Shirley:

>

> I have a bit of swelling in my feet at times but it's usually when it's

> really hot outside, living in Canada, this only happens for about half of

> our year. I think there are special socks that may help, I'm sorry I

don't

> know alot about them as I've never used them but I'm quite sure I've seen

> them advertised at local pharmacies. I think they help relieve swelling

and

> maybe are used for people with circulation problems - it might be

something

> you could check into that might help.

>

> Good luck.

>

> Jen L.

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

>

>

>

[Guest guest]

thanks Flora

[Guest guest]

I too take Zanaflex (after trying Baclofen-made me feel like jello) But, the

Zanaflex coupled with Klonipin still makes me feel like a " zombie " . My Doc.

during last visit switched me off klonipin and started me on Valium (4mg

3Xday) along with about 8mg on Zanaflex/day. Haven't started yet but am

afraid I will really be sleeping a lot. I took Valium several years ago for

nerve probs and finally got off it in 1989. also, I have dry mouth from

Zanaflex.

Oh well!!!

Meacham

>

>Reply-To: PLS-FRIENDS

>To: PLS-FRIENDS

>Subject: Re: Question

>Date: Mon, 13 May 2002 19:08:01 -0500

>

>Jane,

>

>I have been taking Zanaflex for about 6 years now. In addition with the

>Baclofen and the Klonopin, I seem to get along just fine. The only side

>effect I have is dry mouth and drowsiness occasionally. The dry mouth could

>also be caused by the Claritin I take. For me, it is much better than

>Flexeril. Have your husband try it for a month as a trial. Good luck!

>

>Mike Gray

>

>

>At 06:34 PM 5/13/02 -0400, you wrote:

>>Have any of you heard of this drug--Zanaflex. This is supposed to be a new

>>medication for PLS which is better than Flexerill. This was mentioned to

>>my husband at a visit to his Dr. (he is a GP). Do any of you know of any

>>side effects of this drug? Thanks.

>>Love to all,

>>Jane Anne King

>>

>>

[Guest guest]

Jane Anne,

If you go to the PLS-FRIENDS section of and run a search

of the archives for Zanaflex you'll find heaps of emails to PLS-FRIENDS

in which people discuss it and how it works for them.

Lkgentner@... wrote:

Jane

Anne,

You must just have forgotten.

Lots of "us" have talked about Zanaflex.

I didn't tolerate Baclofen

so tried Zanaflex and, unfortunately, with the

same result---felt like

a zombie. Now I take epam (valium)

and have had the best results

with it. I don't think I ever took high

enough doses of Baclofen

or Zanaflex to help with the stiffness.

I only take one 5 mg of

epam and it's just relaxes my muscles

enough to make my walking

better.

--

.

,-._|\ Covington

/ Oz \

\_,--.x/

v

[Guest guest]

HI!

I've been taking Zanaflex for quite a while. I take 30 mg. a day. Some of

the side

effects - I cannot stay awake. Have to spread the dosages out during the

day. I take 12 mg at bedtime along with 100 mg. Elavil to sleep. And do I

ever sleep - the house could fall down and I would never wake up!!! Another

side effect - but this only happens at bedtime are VERY real hallucinations.

They vary in subject matter -

anywhere from a clown at the end of the bed to a chicken on the bed with blood

dripping out of its mouth. Horrible. I don't know if anyone else has had

these effects????? Beth

[Guest guest]

Beth

I too tried Zanaflex & had hallucinations at night. I was gradually

increasing the dose as directed & the 2nd or 3rd week I started having a

period when I would wake up & see someone, usually a girl, come into the

bedroom & climb in bed with me & my husband. It was quite strange the

first time, but I got use to it. My Neurologist told me to stop taking

it. I tried Neurontin, it made me to groggy & spacey. I've had a

Baclofen pump since Nov., so far I'm very pleased with the results.

Pat Niehaus

[Guest guest]

Diabetes has to be stable and controlled otherwise surgery too risky. Too

high risk of infection and slow wound healing with high sugars. In hospital

they often put surgery patients on insulin pump or infusion to get that good

control.

Unless your surgery is imminent and life threatening (ie cancer), I would

defer unless you have good control. High sugars delay healing and increase

risk of infections as affect circulatory system and immune system is then

compromised. That is why diabetics get told have flu injection in winter as

flu infection can be dangerous for some diabetics.

Discuss with your breast surgeon.

Good luck

Fenella

>

> Hi,

>

> I had a semi-major surgery (Breast Reduction) scheduled for Febrary, then

> learned about the Diabetes in Janurary.

> Should I go ahead with the surgery? How does Diabetes complicate the

> healing process, sugar-hormone levels?

> Any advice?

>

> Jo

>

>

>

>

[Guest guest]

In a message dated 2/1/2003 2:15:53 AM Eastern Standard Time,

hekate@... writes:

> I had a semi-major surgery (Breast Reduction) scheduled for Febrary, then

> learned about the Diabetes in Janurary

Hi Jo,

You did not say if you were overweight, but if you are, I would suggest you

lose weight and then you may not need surgery.

Discuss this thoroughly with your doctor and your surgeon.

Hugs

Eunice

[Guest guest]

Jo - my friend has a breast reduction because she had so much shoulder and back

surgery (she's not diabetic). She had a short recovery time and now looks &

feels fabulous. She wishes she had done it earlier. She was developing a hump

in her back from the weight of her breasts - and that seems to be slowly

disappearing.

It is very important that you talk to your surgeon & let him know that you have

diabetes. You will still be able to have the surgery, but may have to post-pone

a bit until your sugars are under control.

Deanna

[Guest guest]

Thanks so much !!!

Jo

Re: Question

Jo - my friend has a breast reduction because she had so much shoulder and

back surgery (she's not diabetic). She had a short recovery time and now looks

& feels fabulous. She wishes she had done it earlier. She was developing a

hump in her back from the weight of her breasts - and that seems to be slowly

disappearing.

It is very important that you talk to your surgeon & let him know that you

have diabetes. You will still be able to have the surgery, but may have to

post-pone a bit until your sugars are under control.

Deanna

[Guest guest]

Yep - talk to your doctor. They need to know. Diabetics can go through

surgery, but the surgical team needs to know, and the hospital staff needs to

know. There are certain insulin therapies that apply to pre-operation patients.

---

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