Re: hello

[Guest guest]

Can anyone address the fatigue and spacy feeling on troprollxl 25 I take one

half at night and the a,m, one half i.e. 12.5 at a time I am a zombie

Please help with suggestions

[Guest guest]

What are the actual times you take each dose?

Re: Hello

Can anyone address the fatigue and spacy feeling on troprollxl 25 I take

one

half at night and the a,m, one half i.e. 12.5 at a time I am a zombie

Please help with suggestions

[Guest guest]

> ...I think the low pulse that was raised by the

> pacemaker was contributing to my nearly continuous AF before the

pacemaker.

> ...I also notice a lot of digestive troubles. I'm in

> the process of looking up Atenelol for digestive side effects. Has

anyone

> had this problem?

Hi, Betty,

Ellen is right that a pacemaker doesn't cure afib, but I wonder, if

you have vagal afib, that is, afib that tends to kick up at slow

pulse rates, I would think you'd be right, having the pacemaker drive

the heart faster might avoid some afib episodes.

Indigestion is a big afib trigger. I've never heard of a beta

blocker, such as atenolol, causing it though. If you can get the

indigestion under control you might find that the afib markedly

decreases. Before I went on the prescription med prevacid, my doc

recommended liquid mylanta. Also gas-x if you have burping.

[Guest guest]

> Can anyone address the fatigue and spacy feeling on troprollxl 25 I

take one

> half at night and the a,m, one half i.e. 12.5 at a time I am a

zombie

> Please help with suggestions

Hi, Millie,

When I started toprol I found 25 mg a day very hard to handle. You

might ask your doc if you can be on 12.5 mg a day for awhile. Maybe

that will be enough. If not, after awhile the docs say you get used

to it. Personally I think what they mean by that is not that we go

back to functioning normally but rather that we get used to dragging

around :-) Do you take the nighttime 12.5 just before bed? Maybe

that will help as you'd be sleeping during the highest amount for at

least one dose.

Also I think food increases its effectiveness, so you might try

taking it away from meals.

[Guest guest]

I take it at 8p.m. and 8 a.m. toprol xl 12.5 each time

[Guest guest]

The reason I was asking is that timing of doses versus the time of peak

levels in your system might make you feel worse at certain times. Toprol

XL is a time release version of metoprolol, which would tend to spread

out the absorption over time. Are you under doctor's instruction to take

half twice a day? It is intended to be a once a day dose (from the

monograph), so your blood levels over the course of the day may be

different with two 12.5 mg doses every 12 hours versus one 25 mg dose at

a well placed time, such as dinner time or early evening. That way

you may be able to place the highest plasma level time at a point when

you are least aware of the " zombie effects " .

In looking at the Toprol XL literature, they seem to emphasize once a

day. Check your prescription, and if it says twice a day, you can check

with your doc about trying once a day, maybe in the evening so the

plasma levels are higher while you are sleeping and lower during the

waking hours. The Toprol XL monograph says that the beneficial effects

are good through the 24 hour period.

To read about the meds, go to:

http://www.rxlist.com/cgi/generic/metopxl.htm

This appears to be the full monograph, or package insert, with the

addition of clickable words that bring up definitions of technical

words.

Re: Hello

I take it at 8p.m. and 8 a.m. toprol xl 12.5 each time

[Guest guest]

> Toprol

> XL is a time release version of metoprolol, which would tend to

spread

> out the absorption over time. Are you under doctor's instruction to

take

> half twice a day? It is intended to be a once a day dose (from the

> monograph

Bobby, my doc okayed my splitting toprol into twice a day doses,

actually later into every 6 hour doses. It does have a bigger

initial effect vs. constant for 24 hours. If I took the whole 50 mg

a day at once, I would be panting like a blowfish.

[Guest guest]

In a message dated 5/14/2003 8:00:40 PM Pacific Daylight Time,

maribel@... writes:

<< I read about dairy products and A-Fib (even that I don't believe in

this kin of remedy) two weeks ago I stop taking them, I don't know

for how long I will do that.

>>

Ana,

I have had good luck with decreasing my afib by stopping dairy products, but

I am careful about getting calcium in other ways because the calcium found in

dairy products must be replaced if one stops dairy products. Osteoporosis

can be caused by inadequate calcium intake. Since I have stopped dairy

products almost two years ago, I have been careful to take 1000 m.g. of

calcium citrate supplements along with magnesium daily. I also eat calcium

rich foods such as canned salmon and molasses, which is also high in

potassium and magnesium, electrolytes important to electrical conduction in

the heart. A recent blood test indicated that my calcium level is fine as a

result of my precautions. If you have stopped dairy, I would advise you to

be careful to check on your calcium level and make sure that you get adequate

calcium every day.

I want to underscores the danger in acting on information that one finds on

the Internet. Because there is so much information here, it is easy to

fasten on just one bit of information and miss important complementary

information. I have posted frequently about my success in decreasing afib by

eliminating dairy products, but I have not spent equal time discussing the

necessity for replacing calcium and possibly other nutrients found in milk.

Because I would not want to cause problems for anyone who acts on my

information about giving up dairy, I strongly urge all to discuss this issue

with your doctor before giving up dairy. I did that. My gastroenterologist

encouraged me to give up dairy although he said that doing so would have no

effect on my afib. He was wrong. This Sunday, May 18, will mark the one

year anniversary of my last afib episode of the frequency pattern that I had

followed for about the last four years of my twenty year afib career. From

May 18 of last year until Dec. 1, 2002, I had no afib. After 15 minutes of

afib on Dec. 1, I then had no afib until March 1, when I started a 68 hour

episode. Since March 1, I have had no afib. I have had a total of 68 hours

and 15 minutes of afib in the past year. Meds alone never helped me achieve

that low frequency level before I gave up dairy. I am convinced that

eliminating dairy made the difference. I am equally convinced that giving up

dairy may not be good for everyone because everyone is different. There is

no substitute for a doctor's approval of a strategy that you have read about

on the Internet.

in sinus in Seattle

[Guest guest]

Trader Joe's carries a whole wheat low carb tortilla that, i think,

tastes great!

-padget

> I am new to the group. Can we have Diet Snapple? I just started

today

> and I want to lose some weight before my cruise? How does one focus

> during Phase 1 and where can you buy low carb tortillas? Please

> respond.

[Guest guest]

Welcome to the group! I lost 9 lbs my first 2 weeks, but there

are some people in the group that have lost less than you have. I

think it depends on how you were eating before the diet. Continue

the good work.

Sheri

> Just wanted to say " hi. " I'm new to the group. I've been on the

SB

> diet for 10 days now. So far, I've only lost 3 pounds. Since

they

> talk about 8-13 pounds, I thought it would have been more by now.

I

> think I'm following it closely to the book. Can anyone else tell

me

> about their first 2 weeks? Do you lose the 8-12 pounds?

>

> Thanks,

> Kathy

[Guest guest]

Kathy..

It really is individual. It all depends upon your own body, how much water you

were retaining, how much weight you need to lose, how you ate before starting

South Beach, etc...

Some people only lose 3-5 pounds in the first 2 weeks. I lost 15, but I also

want to lose around 115 pounds total.

I have lost a total of 45 pounds since the beginning of March.

3 pounds is still 3 pounds you will never see again!

Congrats on the weight loss..

Hello

> Just wanted to say " hi. " I'm new to the group. I've been on the

> SB

> diet for 10 days now. So far, I've only lost 3 pounds. Since

> they

> talk about 8-13 pounds, I thought it would have been more by now.

> I

> think I'm following it closely to the book. Can anyone else tell

> me

> about their first 2 weeks? Do you lose the 8-12 pounds?

>

> Thanks,

> Kathy

[Guest guest]

I lost 7 lbs. I am now on day 16. Yes, I

primarily went by the book, but I did vary occasionally.

Cheryl in WA

Bless each day. It is a gift from God!!!

From: scrapperks

Sent: Friday, July 02, 2004 4:09

AM

To: South-Beach-Diet-Getting-It-Right

Subject: Hello

Just wanted to say " hi. " I'm new to the group.

I've been on the SB

diet for 10 days now. So far, I've only lost

3 pounds. Since they

talk about 8-13 pounds, I thought it would have

been more by now. I

think I'm following it closely to the book. Can

anyone else tell me

about their first 2 weeks? Do you lose the

8-12 pounds?

Thanks,

Kathy

Reminder:

The South Beach Diet is not low-carb. Nor is it low-fat. The South Beach Diet

teaches you to rely on the right carbs and the right fats-the good ones-and

enables you to live quite happily without the bad carbs and bad fats.

For more on this WOE please read " The South

Beach Diet " by Arthur

Agatston, MD.

ISBN 1-57954-814-8

[Guest guest]

Kathy,

I lost seven pounds during PhaseI. I didn't " do " Phase II well(IMO)

so I am on Phase I 1/2.....that's a modified II.....sticking to the

safety of Phase I.

The three pounds isn't ONLY three pounds. When was the last time

you ate real food and lost three pounds?

Time of month, age, amount needed to lose will all have an effect on

how much is lost.(I have about 100 pounds to lose)

Are you exercising? You may have well lost more than three pounds

and it was replaced by muscle.

Keep going, you are doing well, really.

Robyn

> Just wanted to say " hi. " I'm new to the group. I've been on the

SB

> diet for 10 days now. So far, I've only lost 3 pounds. Since

they

> talk about 8-13 pounds, I thought it would have been more by now.

I

> think I'm following it closely to the book. Can anyone else tell

me

> about their first 2 weeks? Do you lose the 8-12 pounds?

>

> Thanks,

> Kathy

[Guest guest]

Gwynne, I also had difficulty with Fosamax and Boniva in pill

form...I've been diagnosed with osteoporosis due to the pred.

I now get an IV injection of Boniva every three months...it goes to

your blood stream and not through the digestive system which had caused

me so much heartburn.

I still take Evista, calcium and vitamin D to try to keep the

osteoporosis at bay.

Z fibriotic NSIP/05

Z fibriotic NSIP/o5/PA

Potter, reader,carousel lover and MomMom to Darah

“I’m gonna

be iron like a lion in Zion” Bob Marley

Gwynne Keyland wrote:

,

I wanted to offer you a warm welcome to this board. I'm

so glad to have you with us, but I understand that you are

having to make some huge and complicated decisions. I do

hope you get to make that wonderful trip you have planned!

I was diagnosed with UIP/IPF after a VATS biopsy in July

2004. Now I also have some Bronchiectasis. I, too, was

being treated, unsuccessfully of course, for what was thought

to be worsening asthma. By the time I was diagnosed I had to

go on full-time 02. Since then, my liter flow at rest has doubled

and with exertion, trippled. I have year-round allergies, which

doesn't help, nor does Texas' blistering heat, outrageous humidity,

and frequent ozone alert days. bah.

This week I found out I have osteoporosis at one point

on my right hip and osteopenia elsewhere. This makes

me sad and worried, because I don't think I'll ever be off

the Prednisone - 10mg a day now, but post-transplant

patients are on it for life. God willing, I will get a call one

of these days for a new lung after being listed this past March.

But in spring 2006 I fell and smashed my right hand - had

to have 2 surgeries & still have a crooked hand- and now I

wonder if my fall was affected by more than klutziness.

Mentally, I seem to deal well with the Pred. but I hate the

physical effects. Especially the bone thinning and gastric

problems. I've had serious reflux (from which I have no symptoms

& which is now controlled by medication - fortunately, 'cause if

it wasn't I wouldn't have been listed), so I can't take Fosomax or

any of the better bone loss preventive drugs. Most of them

can't be taken with Nexium, one of the two reflux meds I take,

so I use a nasal spray called Miacalcin, which is probably a

puny alternative.

Anyway, some of us do quite well on the Prednisone, at least

in moderate doses.

For some reason reason, I usually get posts about 12 hours

after they're initially posted, which can be irritating. However,

I love this group. Thanks for posting and please keep us updated

on you. You're in my prayers.

,

It's good to see your post. My heart hurts for the pain you and

are going through. I'm terribly sorry about his foot, and I hope

this week goes better than you anticipate. God bless you both.

Greg,

Thank you for the photos. You and Deb look wonderful!!! It's hard to

believe it has been 6 months. I also have trouble believing that

I was listed nearly 6 months ago.

Peggy,

Hope your headache is better. Do you get migraines? I detest

headaches. I'm sorry you feel lousy.

,

Wish I could wave a magic wand and make some of that mountain

of stress disappear. Hang in there. It sounds like you are doing

a terrific job in a difficult situation. We're here for you! Ask for

help at work if you get the chance.

Joyce and , I'm already praying that you'll get some real

RESULTS this week instead of insensitive remarks, lame excuses,

and more headaches. It's infuriating to the rest of us, so I can

hardly imagine how frustrated you've been.

Hugs and prayers,

Gwynne IPF 7/04 listed for transplant 3/07 TX

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