Guest guest Posted June 15, 2000 Report Share Posted June 15, 2000 Kim, I'm still around. There isn't too much going on here (especially in comparison to the last couple of months!) so I've just been reading. Posting when I have a response or a question. My temp went up to 97.9 this morning, which isn't as high as my usual post-O temps but higher than they have been this cycle. I think I O'd (although I never got a + on the opk), but I guess I'll see over the next couple of days if it stays up. That's about it now, other than planning a b-day party for Saturday. My MIL and my daughter's godfather are visiting too, another reason I'm not on much. Congrats on the new job! Amy *CD 18 (maybe 1dpo) *TTC 2 years *Earth Angel, (6/18/97) *Angel Babies, 6/98 and 7/99 (D & C and metho both times) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2001 Report Share Posted July 17, 2001 I wish I had a nickel for every time I said " Focal Motor Neuron Disease! " I just have a slightly different spelling of " Focal. " (unknown) > > One of our PLS people, has had a change in her diagnoses to " Focal Motor > Neuron Disease " , never heard of it, anybody know what that is. It is > suppose to be between ALS and PLS. > > Also, I lost Joe Alberstadt's E-mail address, would appreciate if > anybody has it, they send it to me. > > Thanks! > > Rita > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2001 Report Share Posted July 17, 2001 Dear Rita, Joe Alberstadt's E-mail address is: epsPLSpal1@... ritadfromhollis@... wrote: > One of our PLS people, has had a change in her diagnoses to " Focal Motor > Neuron Disease " , never heard of it, anybody know what that is. It is > suppose to be between ALS and PLS. > > Also, I lost Joe Alberstadt's E-mail address, would appreciate if > anybody has it, they send it to me. > > Thanks! > > Rita > > Luv & Hugs! > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Having a senior moment, can't remember if I thanked you for Joe's address. Hope your doing well and thanks loads. Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Rita I am sending this from my mail box same day Byron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Thanks Byron. Got it! maybe it's just that everyone is busy and not on line. Thanks again! Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 HI RITA, You came thru loud & clear this time. I did not receive any PLS messages on Monday, 7/30, and just a couple on Sunday, 7/29. Wierd, huh? I know some have been having trouble also. Laurel (unknown) > I haven't received any PLS postings in days!!! Am I getting thru??? > > Rita > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Am I dreaming or did someone respond to this saying flax was an omega 6?? Assuming I am awake, and recognizing I tend to confuse the omega 6 and omega 3, I thought flax was a 3. I do olive is an omega 9, thats the only one I can keep straight LOL But I am pretty sure, omega 6 is sunflower, safflower, etc. Personally I belive the answer is balancing them all out, so you don't overload on one without the other, and also making sure the other nutrients (antioxidants) are in place DeEtte Person wrote: In answer to my borage oil question, I got a very interesting reply about Omega 6 supplementation and seizure disorders. Thought this might be of interest to some of you -- sure was to me!-D [childrensapraxianet] Re: caromega vs PRO efa Dear Hisvryown and Judy, In our study on EFA supplementation we found at least one case of significant improvement of speech/communication after administration of one portion of Coromega. If Coromega is used for a 5 yrs old child dividing it in two and giving it at two different times (morning and evening) is a good idea. One serving of Coromega contains the equivalent of two 1,000 mg capsules of ProEFA (Complete Omega) in terms of DHA and EPA content. Most of the improvements reported in our study were achieved with 1 such capsule/day. Some children were supplemented 2 capsules with good results. Coromega does not contain GLA. We don't have any final data on the positive therapeutic effect of GLA, nevertheless, it appears from the experience of other patents that it is beneficial. It appears that omega-6 fatty acid (GLA and linoleic acid) supplementation can aggravate seizures in children with seizure disorders. Therefore, ProEFA should not be supplemented momentarily to children with apraxia of speech and a seizure disorder. Please do not supplement your child without supervision by a medical professional. Take care, Katz, Ph.D. c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Flax oil has BOTH omega 3 and 6!!! I hope you are awake now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 --- jthefitz@... wrote: > Flax oil has BOTH omega 3 and 6!!! I hope you are > awake now. > Uh, I don't think so.....if so, it must be like 95% Omega 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Whoa. . .okay. . . now I'm waking up! Well, that probably further explains why some kids, including mine, are so senstive to it. Does it contain the GLA that Evening Primrose and Borage contains?--D --- jthefitz@... wrote: > Flax oil has BOTH omega 3 and 6!!! I hope you are > awake now. > ===== DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly reduced) and (, 4), sdale, AZ " I know God would never give me more than I can handle. . .I just wish he didn't trust me so much. " -- Mother Theresa __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 , You may use a different brand, but reading right from the bottle: 1 Tbls. provides 51-57% Omega 3, 14-18% omega 6, 16% Omega-9 and 9% Steric, Lauric, Palmitic. Just the facts, mam. I'm just saying, if kids are sensitive to Omega 6s, as the initial post stated, this would not be completely safe, even though a majority of the fat is omega 3. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 jthefitz@... wrote: , You may use a different brand, but reading right from the bottle: 1 Tbls. provides 51-57% Omega 3, 14-18% omega 6, 16% Omega-9 and 9% Steric, Lauric, Palmitic. Just the facts, mam. I'm just saying, if kids are sensitive to Omega 6s, as the initial post stated, this would not be completely safe, even though a majority of the fat is omega 3. Tina Wierd, I just checked our bottle and it doesn't say anything except "rich in Omega-3" We use Omega Nutrition. Actually I find the whole kids senstive to Omega 6 thing kind of wierd, Omega 6 is what the most commonly used oils are (canola, corn, sunflower, safflower), on the diet, what the heck else are you going to use? I was wondering if it was a typo, misprint or something Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 We use purple grapes everyday and have used some kiwi other than that we have been using strawberries and cantaloupe too. I was wondering if anyone uses canned fruits. I know it says that you can in the book but I'm worried about the sugar. Does anyone ever used canned fruits? Jeni, Mom to MaKenzie 2 1/2 Keto kid & Bo 5 (unknown) > I think I posted this before, but don't believe I got > any response. Now that it's fall and the cantaloupe > and strawberries that had been our mainstay are not > really in season anymore -- are there any other fruits > that work well into the keto diet? Pears are abundant > -- but I imagine those are pretty high in sugars. I > seem to be seeing lots of plums and kiwi fruit, too. > And, I plan to try pumpkin. I know Barb posted a list > of foods that were low on the glycemic index. . .but I > can't seem to find it anywhere! Any thoughts would be > appreciated. > > ===== > DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly reduced) and (, 4), sdale, AZ > > " I know God would never give me more than I can handle. . .I just wish he didn't trust me so much. " -- Mother Theresa > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 You know, I'm thinking that this is why some of our kids (mine included) have such a tough time on the oils. Anytime I've tried to introduce oils, I've run into trouble (except for Tyler's Eskimo 3 Fish Oil which is all Omega 3). Now, you can't have a mayo without oil -- and that's pretty much the stable oil we've got, which is canola. I've really wanted to use a healthier oil, like use safflower oil mayo, but have been nervous because of the problems we've had. Who knows -- maybe the mayo is the reason we haven't gotten complete control here. But then, as you say, what the heck else are you supposed to use -- when cream has carbs and you can't shovel butter in them all day!--D *** Actually I find the whole kids senstive to Omega 6 thing kind of wierd, Omega 6 is what the most commonly used oils are (canola, corn, sunflower, safflower), on the diet, what the heck else are you going to use? ===== DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly reduced) and (, 4), sdale, AZ " I know God would never give me more than I can handle. . .I just wish he didn't trust me so much. " -- Mother Theresa __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 Jeni Mullett wrote: We use purple grapes everyday and have used some kiwi other than that we have been using strawberries and cantaloupe too. I was wondering if anyone uses canned fruits. I know it says that you can in the book but I'm worried about the sugar. Does anyone ever used canned fruits? Canned fruits are fine as long as you make sure they are packed in juice (I think they usually use pear juice). Don't get the ones in "light syrup", that is sugar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 does great with ripe olives or pine nuts or macadamia nuts for snacks. (unknown) > Hi , > The snacks I list are not " legal " for the diet, but I also give > Hannah special treats at times. We have been fortunate with Hannah > because even though I follow the meal plans faithfully, I " cheat " and > give her snacks everyday. I also read Dr. Atkins book and have a > recipe book of his so I can make her some " sweet " treats that don't > upset her ketones. I want to make this VERY clear, not every child > can do this. So you have to decide what is best for Sydney. Also, I > do not calculate any of her treats into her meals. They are given in > addition to her meals. > > The easiest beverage that Hannah really likes is Crystal Light. It > comes in a 12 pack at our Sam's Club. I also buy her Atkins Advantage > bars. I see them even at the grocery store. Only trouble would be > finding out which one she really likes. Hannah's favorite is the > Chocolate/Coconut.(These are big and filling, so I actually cut them > into quarters). She doesn't like them, but those fried pork rinds > could be used. They are in the potato chip isle at the grocery store. > How about some nuts? If you live near a health food or vitamin store > they may sell Keto chips. I buy these for Hannah and give her several > at a time. I can't think of much else that would transport easily to > the movies. Was thinking of taking my two youngest to see that this > weekend too. Have fun Gail > > Hello, > > > > Im taking Sydney this evening to see Monsters Inc. at the movies. > she knows she cant have any popcorn. I was wonmdering if any of you > had ideas about a snack that would be good for movie watching. I cant > call her diatician today. I dont know how to figure amounts . I dont > have a meal planner although Im interested in getting one. Ill give > her amounts in case you have any ideas. > > > > Per meal > > > > prot 5.3 > > > > fat 39.6 > > cho 4.6 > > calories 398.97 > > > > She isnt sensitive to much . So far she can eat and drink anything > ive given her as long as it is in ratio. > > > > > > Thanks, jessica (sydneys mom Keto kid 10-8-01 seizure free ,working > on med reduction, age 4) > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2001 Report Share Posted November 8, 2001 Hi there, I would make sure to see a specialist who will help you determane what is wrong. You may have vulvar Vestibulitis, which is what I was diagnosed with. another possibility is that you could have vaginisimus. Of course I am simply guessing from the little bit you have shared with us. Vestibulitis is a type of vulvodynia involving the major and minor vestibulary glands around the hearts line of the vulva. It causes burning and sharp pain apon penitration (penis, fingers or otherwise), also often redness and inflammation. Chronic vaginial infections are common with this problem as well. Vagnismus is a problem seen most often with women who have experienced some sort of trauma, sexual or physical abuse, surgical trauma etc... but not always. It can also cause sharp pain with attempted intercourse. This is caused by tense pelvic floor muscles that are litterally closing off the entrance. Some women describe this as if there partner can get in just a little bit and then it feels like he hits a wall. In either case, a specialist or doctor familiar with vulvar disorders would be able to help you determane your condition. It is definatly not in your head. If you tell me where you live, I can see if there is a doctor on the list I have by state listed for that area. Hear are some links you might want to check out. http://www.aafp.org/afp/990315ap/1547.html (Vulvodynia and Vulvar Vestibulitis, excellent article with pictures) http://www.obgmanagement.com/07_01/vestibulodynia.html (Vestibulodynia excellent article on sever vulvar vestibulitis) http://www.obgyn.net/cpp/cpp.asp?page=/cpp/articles/Glazer.vulvodynia_faq (Dr. Glazers Vulvodynia FAQ list) I dont currently have any links on vaginismus, but I am sure that there are plenty if you go to www.google.com and then use their search engine to find articals listed under vaginismus. Good Luck Bunny /| |\ . . ( ! ) _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Thank you SO much for this link: <http://www.aafp.org/afp/990315ap/1547.html(Vulvodynia and Vulvar Vestibulitis, excellent article with pictures)> So helpful... It really pinpoints what everything is. I am not diagnosed yet, but I have an appt. with a specialist on the 20th, and I think I will print this out to take to her!!! Thanks! Kristi -----Original Message-----From: Bunny Sent: Thursday, November 08, 2001 2:15 PMTo: VulvarDisorders Subject: Re: (unknown)Hi there,I would make sure to see a specialist who will help you determane what is wrong. You may have vulvar Vestibulitis, which is what I was diagnosed with. another possibility is that you could have vaginisimus. Of course I am simply guessing from the little bit you have shared with us. Vestibulitis is a type of vulvodynia involving the major and minor vestibulary glands around the hearts line of the vulva. It causes burning and sharp pain apon penitration (penis, fingers or otherwise), also often redness and inflammation. Chronic vaginial infections are common with this problem as well. Vagnismus is a problem seen most often with women who have experienced some sort of trauma, sexual or physical abuse, surgical trauma etc... but not always. It can also cause sharp pain with attempted intercourse. This is caused by tense pelvic floor muscles that are litterally closing off the entrance. Some women describe this as if there partner can get in just a little bit and then it feels like he hits a wall.In either case, a specialist or doctor familiar with vulvar disorders would be able to help you determane your condition. It is definatly not in your head.If you tell me where you live, I can see if there is a doctor on the list I have by state listed for that area.Hear are some links you might want to check out.http://www.aafp.org/afp/990315ap/1547.html(Vulvodynia and Vulvar Vestibulitis, excellent article with pictures)http://www.obgmanagement.com/07_01/vestibulodynia.html(Vestibulodynia excellent article on sever vulvar vestibulitis)http://www.obgyn.net/cpp/cpp.asp?page=/cpp/articles/Glazer.vulvodynia_faq(Dr. Glazers Vulvodynia FAQ list)I dont currently have any links on vaginismus, but I am sure that there are plenty if you go to www.google.com and then use their search engine to find articals listed under vaginismus.Good Luck Bunny /| |\ . . ( ! )_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Hi Shehla, therer is the VPS Society in Great Britain, did you contact them? My name is a, I'm from Germany, we have absolutely no informatian about vulvar problems in our country, except one Department of Dermatology in the Eastern Part of Germany, so my first contact was the VPS in Great Britain. Nunns is a medical doctor who started the whole thing, he must be a wonderful man, he even wrote a letter to me. He must be caring, thats my feeling. You can join the group, they have very interesting newsletters. if you need more information, contact me. Take care, a. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Have you had your hormone levels checked?? it is a simple blood test. any doctor could do? I have an appt. with an endocrinologist this month who deals with hormones and thier functions. My trouble started with bc pills and I have had very low estrogen, unfortunatly you will find that not many of us get good answers it seems to be a matter of trial and error. Lactobacillus is also something that can cause cyclic itching. Do you have burning also or just itching?? Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Hi Thom: Thanks for your kind words. Seems to me when any diagnosis is made, not only PLS. that we have two choices, to learn to live with it, or sit around feeling sorry for oneself (which can make matter's worse), also look around there are lots of people worse off than we are for example I have a close friend named Bill who I met about 15 years ago. We were both in the early stages of our diseases (he has MS). We pretty much stayed the same, until his MS really started to crab hold, well now he is pretty bad, breaks my heart to see him go down hill, but it also makes me count my blessings. I have my frustration moments, but you have to talk to yourself and make the best of any situation. I had and still do have a problem bending to pick some off the floor, first I know my " belly " gets in the way, but most of the time it's my stiffness in my legs. So now I use a " grabber " , so you see thats what I mean. Sorry to go on babbling, but thats what I really do best LOL!. Happy New Year everyone! Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 I tried to change 'Subject' but it sent it before I got my question in [whatever IT is ?]. My question for planning ahead is: What is experience and a source of good info for " after walker " i.e. a wheel chair and primarily for getting around the house but some out of home use also. Is there a small, motorized devise? We already have an Amigo but assumed that primarily for outdoor use, bad assumption? Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 Hi - above all keep him safe. Assistive aids can be used at any time- don't wait until absolutely necessary since establishing absolute need usually comes after falls. For instance I will soon hopefully have a wheel chair- I can walk safely with a walker and for very short distances with no aids at all but the chair is for when I get tired when even with the walker I am at risk of falling. If he stumbles he needs help now and at least a cane is in order. Talk to his doc and look into a four wheeled walker with seat and handbrakes. Those of us who use them find them invaluable and much better for averting a fall than a cane. There are many models out there- mine is an Avant which I like because it lets me walk closer to the frame than some. Lavon At 09:05 AM 01/27/2002 -0600, you wrote: >Hello all, > >Thank you for the warm welcome to the group. Could any of you help educate >me on CoQ10, NADH, and any other supplements/meds anyone has found helpful. >My dad is 75 y.o. Dx just this past fall. Still ambulatory but has poor >balance and stumbles frequently. He mostly has problems with getting out of >chairs, etc. Once he is up he does ok if he takes his time and makes a >conscious effort to lift his feet. My family and I realize PLS strikes >everyone differently but we are trying to get an idea of how this will >progress. How long from walking to a cane? Cane to wheelchair? How soon >is the upper body affected? Any info would be great. Jen > >PS Anyone live in WI?? If so could my parents contact you? > >_________________________________________________________________ >Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 Four wheeled walkers are great - and do help tremendously in keeping me on my feet. I have a Featherweight now - it only weighs about 11 lbs. I used to have a Winnie that weighed about 20 - it was great and got me through a lot but was wearing out. The new lighter model is nicer. They give you confidence and stability when you need it. And for those of us who experience sudden jerking or loss of balance, it's extremely helpful. Re: (unknown) Hi - above all keep him safe. Assistive aids can be used at any time- don't wait until absolutely necessary since establishing absolute need usually comes after falls. For instance I will soon hopefully have a wheel chair- I can walk safely with a walker and for very short distances with no aids at all but the chair is for when I get tired when even with the walker I am at risk of falling. If he stumbles he needs help now and at least a cane is in order. Talk to his doc and look into a four wheeled walker with seat and handbrakes. Those of us who use them find them invaluable and much better for averting a fall than a cane. There are many models out there- mine is an Avant which I like because it lets me walk closer to the frame than some. LavonAt 09:05 AM 01/27/2002 -0600, you wrote:>Hello all,>>Thank you for the warm welcome to the group. Could any of you help educate>me on CoQ10, NADH, and any other supplements/meds anyone has found helpful.>My dad is 75 y.o. Dx just this past fall. Still ambulatory but has poor>balance and stumbles frequently. He mostly has problems with getting out of>chairs, etc. Once he is up he does ok if he takes his time and makes a>conscious effort to lift his feet. My family and I realize PLS strikes>everyone differently but we are trying to get an idea of how this will>progress. How long from walking to a cane? Cane to wheelchair? How soon>is the upper body affected? Any info would be great. Jen>>PS Anyone live in WI?? If so could my parents contact you?>>_________________________________________________________________>Chat with friends online, try MSN Messenger: http://messenger.msn.com>>>>> Quote Link to comment Share on other sites More sharing options...
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