Re: (unknown)

June 15, 2000

Kim,

I'm still around. There isn't too much going on here (especially in

comparison to the last couple of months!) so I've just been reading. Posting

when I have a response or a question. My temp went up to 97.9 this morning,

which isn't as high as my usual post-O temps but higher than they have been

this cycle. I think I O'd (although I never got a + on the opk), but I guess

I'll see over the next couple of days if it stays up. That's about it now,

other than planning a b-day party for Saturday. My MIL and my daughter's

godfather are visiting too, another reason I'm not on much.

Congrats on the new job!

Amy

*CD 18 (maybe 1dpo)

*TTC 2 years

*Earth Angel, (6/18/97)

*Angel Babies, 6/98 and 7/99 (D & C and metho both times)

July 17, 2001

I wish I had a nickel for every time I said " Focal Motor Neuron Disease! " I

just have a slightly different spelling of " Focal. "

(unknown)

>

> One of our PLS people, has had a change in her diagnoses to " Focal Motor

> Neuron Disease " , never heard of it, anybody know what that is. It is

> suppose to be between ALS and PLS.

>

> Also, I lost Joe Alberstadt's E-mail address, would appreciate if

> anybody has it, they send it to me.

>

> Thanks!

>

> Rita

>

> Luv & Hugs!

>

> *************************************

> Some people succeed in spite of their handicap. Others succeed because

> of them.

>

July 17, 2001

Dear Rita,

Joe Alberstadt's E-mail address is: epsPLSpal1@...

ritadfromhollis@... wrote:

> One of our PLS people, has had a change in her diagnoses to " Focal Motor

> Neuron Disease " , never heard of it, anybody know what that is. It is

> suppose to be between ALS and PLS.

>

> Also, I lost Joe Alberstadt's E-mail address, would appreciate if

> anybody has it, they send it to me.

>

> Thanks!

>

> Rita

>

> Luv & Hugs!

>

> *************************************

> Some people succeed in spite of their handicap. Others succeed because

> of them.

>

July 19, 2001

Having a senior moment, can't remember if I thanked you for Joe's

address. Hope your doing well and thanks loads.

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

July 30, 2001

Rita I am sending this from my mail box same day Byron

July 31, 2001

Thanks Byron. Got it! maybe it's just that everyone is busy and not on

line. Thanks again!

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

July 31, 2001

HI RITA,

You came thru loud & clear this time. I did not receive any

PLS messages on Monday, 7/30, and just a couple on Sunday, 7/29. Wierd,

huh?

I know some have been having trouble also.

Laurel

(unknown)

> I haven't received any PLS postings in days!!! Am I getting thru???

>

> Rita

>

> Luv & Hugs!

>

> *************************************

> Some people succeed in spite of their handicap. Others succeed because

> of them.

>

October 24, 2001

Am I dreaming or did someone respond to this saying flax was an omega 6??

Assuming I am awake, and recognizing I tend to confuse the omega 6

and omega 3, I thought flax was a 3. I do olive is an omega 9, thats

the only one I can keep straight LOL

But I am pretty sure, omega 6 is sunflower, safflower, etc. Personally

I belive the answer is balancing them all out, so you don't overload on

one without the other, and also making sure the other nutrients (antioxidants)

are in place

DeEtte Person wrote:

In answer to my borage oil question, I got a

very

interesting reply about Omega 6 supplementation and

seizure disorders. Thought this might be of interest

to some of you -- sure was to me!-D

[childrensapraxianet] Re: caromega vs PRO efa

Dear Hisvryown and Judy,

In our study on EFA supplementation we found at least

one case of significant

improvement of speech/communication after

administration of one portion of

Coromega. If Coromega is used for a 5 yrs old child

dividing it in two and

giving it at two different times (morning and evening)

is a good idea.

One serving of Coromega contains the equivalent of two

1,000 mg capsules of

ProEFA (Complete Omega) in terms of DHA and EPA

content. Most of the

improvements reported in our study were achieved with

1 such capsule/day.

Some children were supplemented 2 capsules with good

results. Coromega does

not contain GLA. We don't have any final data on the

positive therapeutic

effect of GLA, nevertheless, it appears from the

experience of other patents

that it is beneficial.

It appears that omega-6 fatty acid (GLA and linoleic

acid) supplementation

can aggravate seizures in children with seizure

disorders. Therefore,

ProEFA should not be supplemented momentarily to

children with apraxia of

speech and a seizure disorder.

Please do not supplement your child without

supervision by a medical

professional.

Take care,

Katz, Ph.D.

c

October 25, 2001

Flax oil has BOTH omega 3 and 6!!! I hope you are awake now.

October 25, 2001

--- jthefitz@... wrote:

> Flax oil has BOTH omega 3 and 6!!! I hope you are

> awake now.

>

Uh, I don't think so.....if so, it must be like 95% Omega 3

October 25, 2001

Whoa. . .okay. . . now I'm waking up! Well, that

probably further explains why some kids, including

mine, are so senstive to it. Does it contain the GLA

that Evening Primrose and Borage contains?--D

--- jthefitz@... wrote:

> Flax oil has BOTH omega 3 and 6!!! I hope you are

> awake now.

>

=====

DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly

reduced) and (, 4), sdale, AZ

" I know God would never give me more than I can handle. . .I just wish he didn't

trust me so much. " -- Mother Theresa

__________________________________________________

October 26, 2001

, You may use a different brand, but reading right from the bottle: 1 Tbls. provides 51-57% Omega 3, 14-18% omega 6, 16% Omega-9 and 9% Steric, Lauric, Palmitic. Just the facts, mam. I'm just saying, if kids are sensitive to Omega 6s, as the initial post stated, this would not be completely safe, even though a majority of the fat is omega 3. Tina

October 26, 2001

jthefitz@... wrote:

,

You may use a different

brand, but reading right from the bottle: 1 Tbls. provides 51-57%

Omega 3, 14-18% omega 6, 16% Omega-9 and 9% Steric, Lauric, Palmitic.

Just the facts, mam. I'm just saying, if kids are sensitive to Omega

6s, as the initial post stated, this would not be completely safe, even

though a majority of the fat is omega 3. Tina

Wierd, I just checked our bottle and it doesn't say anything except "rich

in Omega-3" We use Omega Nutrition.

Actually I find the whole kids senstive to Omega 6 thing kind of wierd,

Omega 6 is what the most commonly used oils are (canola, corn, sunflower,

safflower), on the diet, what the heck else are you going to use? I was

wondering if it was a typo, misprint or something

October 27, 2001

We use purple grapes everyday and have used some kiwi other than that we

have been using strawberries and cantaloupe too. I was wondering if anyone

uses canned fruits. I know it says that you can in the book but I'm worried

about the sugar. Does anyone ever used canned fruits?

Jeni, Mom to MaKenzie 2 1/2 Keto kid & Bo 5

(unknown)

> I think I posted this before, but don't believe I got

> any response. Now that it's fall and the cantaloupe

> and strawberries that had been our mainstay are not

> really in season anymore -- are there any other fruits

> that work well into the keto diet? Pears are abundant

> -- but I imagine those are pretty high in sugars. I

> seem to be seeing lots of plums and kiwi fruit, too.

> And, I plan to try pumpkin. I know Barb posted a list

> of foods that were low on the glycemic index. . .but I

> can't seem to find it anywhere! Any thoughts would be

> appreciated.

>

> =====

> DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly

reduced) and (, 4), sdale, AZ

>

> " I know God would never give me more than I can handle. . .I just wish he

didn't trust me so much. " -- Mother Theresa

>

> __________________________________________________

>

October 27, 2001

You know, I'm thinking that this is why some of our

kids (mine included) have such a tough time on the

oils. Anytime I've tried to introduce oils, I've run

into trouble (except for Tyler's Eskimo 3 Fish Oil

which is all Omega 3). Now, you can't have a mayo

without oil -- and that's pretty much the stable oil

we've got, which is canola. I've really wanted to use

a healthier oil, like use safflower oil mayo, but have

been nervous because of the problems we've had. Who

knows -- maybe the mayo is the reason we haven't

gotten complete control here. But then, as you say,

what the heck else are you supposed to use -- when

cream has carbs and you can't shovel butter in them

all day!--D

***

Actually I find the whole kids senstive to Omega 6

thing kind of wierd, Omega 6 is what the most commonly

used oils are (canola, corn, sunflower, safflower), on

the diet, what the heck else are you going to use?

=====

DeEtte -- Mom to (, 6, keto-kid since 1/01, med-free, seizures greatly

reduced) and (, 4), sdale, AZ

" I know God would never give me more than I can handle. . .I just wish he didn't

trust me so much. " -- Mother Theresa

__________________________________________________

October 28, 2001

Jeni Mullett wrote:

We use purple grapes everyday and have used some

kiwi other than that we

have been using strawberries and cantaloupe too. I was wondering

if anyone

uses canned fruits. I know it says that you can in the book

but I'm worried

about the sugar. Does anyone ever used canned fruits?

Canned fruits are fine as long as you make sure they are packed in juice

(I think they usually use pear juice). Don't get the ones in "light syrup",

that is sugar

November 3, 2001

does great with ripe olives or pine nuts or macadamia nuts for snacks.

(unknown)

> Hi ,

> The snacks I list are not " legal " for the diet, but I also give

> Hannah special treats at times. We have been fortunate with Hannah

> because even though I follow the meal plans faithfully, I " cheat " and

> give her snacks everyday. I also read Dr. Atkins book and have a

> recipe book of his so I can make her some " sweet " treats that don't

> upset her ketones. I want to make this VERY clear, not every child

> can do this. So you have to decide what is best for Sydney. Also, I

> do not calculate any of her treats into her meals. They are given in

> addition to her meals.

>

> The easiest beverage that Hannah really likes is Crystal Light. It

> comes in a 12 pack at our Sam's Club. I also buy her Atkins Advantage

> bars. I see them even at the grocery store. Only trouble would be

> finding out which one she really likes. Hannah's favorite is the

> Chocolate/Coconut.(These are big and filling, so I actually cut them

> into quarters). She doesn't like them, but those fried pork rinds

> could be used. They are in the potato chip isle at the grocery store.

> How about some nuts? If you live near a health food or vitamin store

> they may sell Keto chips. I buy these for Hannah and give her several

> at a time. I can't think of much else that would transport easily to

> the movies. Was thinking of taking my two youngest to see that this

> weekend too. Have fun Gail

> > Hello,

> >

> > Im taking Sydney this evening to see Monsters Inc. at the movies.

> she knows she cant have any popcorn. I was wonmdering if any of you

> had ideas about a snack that would be good for movie watching. I cant

> call her diatician today. I dont know how to figure amounts . I dont

> have a meal planner although Im interested in getting one. Ill give

> her amounts in case you have any ideas.

> >

> > Per meal

> >

> > prot 5.3

> >

> > fat 39.6

> > cho 4.6

> > calories 398.97

> >

> > She isnt sensitive to much . So far she can eat and drink anything

> ive given her as long as it is in ratio.

> >

> > Thanks, jessica (sydneys mom Keto kid 10-8-01 seizure free ,working

> on med reduction, age 4)

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

November 8, 2001

Hi there,

I would make sure to see a specialist who will help you determane what is

wrong. You may have vulvar Vestibulitis, which is what I was diagnosed

with. another possibility is that you could have vaginisimus. Of course I

am simply guessing from the little bit you have shared with us.

Vestibulitis is a type of vulvodynia involving the major and minor

vestibulary glands around the hearts line of the vulva. It causes burning

and sharp pain apon penitration (penis, fingers or otherwise), also often

redness and inflammation. Chronic vaginial infections are common with this

problem as well. Vagnismus is a problem seen most often with women who have

experienced some sort of trauma, sexual or physical abuse, surgical trauma

etc... but not always. It can also cause sharp pain with attempted

intercourse. This is caused by tense pelvic floor muscles that are

litterally closing off the entrance. Some women describe this as if there

partner can get in just a little bit and then it feels like he hits a wall.

In either case, a specialist or doctor familiar with vulvar disorders would

be able to help you determane your condition. It is definatly not in your

head.

If you tell me where you live, I can see if there is a doctor on the list I

have by state listed for that area.

Hear are some links you might want to check out.

http://www.aafp.org/afp/990315ap/1547.html

(Vulvodynia and Vulvar Vestibulitis, excellent article with pictures)

http://www.obgmanagement.com/07_01/vestibulodynia.html

(Vestibulodynia excellent article on sever vulvar vestibulitis)

http://www.obgyn.net/cpp/cpp.asp?page=/cpp/articles/Glazer.vulvodynia_faq

(Dr. Glazers Vulvodynia FAQ list)

I dont currently have any links on vaginismus, but I am sure that there are

plenty if you go to www.google.com and then use their search engine to find

articals listed under vaginismus.

Good Luck

Bunny /| |\

. .

( ! )

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

November 9, 2001

Thank you SO much for this link:

<http://www.aafp.org/afp/990315ap/1547.html(Vulvodynia and Vulvar Vestibulitis, excellent article with pictures)>

So helpful... It really pinpoints what everything is. I am not diagnosed yet, but I have an appt. with a specialist on the 20th, and I think I will print this out to take to her!!!

Thanks!

Kristi

-----Original Message-----From: Bunny Sent: Thursday, November 08, 2001 2:15 PMTo: VulvarDisorders Subject: Re: (unknown)Hi there,I would make sure to see a specialist who will help you determane what is wrong. You may have vulvar Vestibulitis, which is what I was diagnosed with. another possibility is that you could have vaginisimus. Of course I am simply guessing from the little bit you have shared with us. Vestibulitis is a type of vulvodynia involving the major and minor vestibulary glands around the hearts line of the vulva. It causes burning and sharp pain apon penitration (penis, fingers or otherwise), also often redness and inflammation. Chronic vaginial infections are common with this problem as well. Vagnismus is a problem seen most often with women who have experienced some sort of trauma, sexual or physical abuse, surgical trauma etc... but not always. It can also cause sharp pain with attempted intercourse. This is caused by tense pelvic floor muscles that are litterally closing off the entrance. Some women describe this as if there partner can get in just a little bit and then it feels like he hits a wall.In either case, a specialist or doctor familiar with vulvar disorders would be able to help you determane your condition. It is definatly not in your head.If you tell me where you live, I can see if there is a doctor on the list I have by state listed for that area.Hear are some links you might want to check out.http://www.aafp.org/afp/990315ap/1547.html(Vulvodynia and Vulvar Vestibulitis, excellent article with pictures)http://www.obgmanagement.com/07_01/vestibulodynia.html(Vestibulodynia excellent article on sever vulvar vestibulitis)http://www.obgyn.net/cpp/cpp.asp?page=/cpp/articles/Glazer.vulvodynia_faq(Dr. Glazers Vulvodynia FAQ list)I dont currently have any links on vaginismus, but I am sure that there are plenty if you go to www.google.com and then use their search engine to find articals listed under vaginismus.Good Luck Bunny /| |\ . . ( ! )_________________________________________________________________Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

December 16, 2001

Hi Shehla,

therer is the VPS Society in Great Britain, did you contact them? My name is a, I'm from Germany, we have absolutely no informatian about vulvar problems in our country, except one Department of Dermatology in the Eastern Part of Germany, so my first contact was the VPS in Great Britain. Nunns is a medical doctor who started the whole thing, he must be a wonderful man, he even wrote a letter to me. He must be caring, thats my feeling. You can join the group, they have very interesting newsletters. if you need more information, contact me.

Take care, a.

December 17, 2001

Have you had your hormone levels checked?? it is a simple blood test. any doctor could do? I have an appt. with an endocrinologist this month who deals with hormones and thier functions. My trouble started with bc pills and I have had very low estrogen, unfortunatly you will find that not many of us get good answers it seems to be a matter of trial and error. Lactobacillus is also something that can cause cyclic itching. Do you have burning also or just itching??

Daphne

December 31, 2001

Hi Thom:

Thanks for your kind words. Seems to me when any diagnosis is made, not

only PLS. that we have two choices, to learn to live with it, or sit

around feeling sorry for oneself (which can make matter's worse), also

look around there are lots of people worse off than we are for example I

have a close friend named Bill who I met about 15 years ago. We were

both in the early stages of our diseases (he has MS). We pretty much

stayed the same, until his MS really started to crab hold, well now he

is pretty bad, breaks my heart to see him go down hill, but it also

makes me count my blessings. I have my frustration moments, but you

have to talk to yourself and make the best of any situation. I had and

still do have a problem bending to pick some off the floor, first I know

my " belly " gets in the way, but most of the time it's my stiffness in my

legs. So now I use a " grabber " , so you see thats what I mean. Sorry to

go on babbling, but thats what I really do best LOL!.

Happy New Year everyone!

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

January 27, 2002

I tried to change 'Subject' but it sent it before I got my question in

[whatever IT is ?]. My question for planning ahead is: What is experience and

a source of good info for " after walker " i.e. a wheel chair and primarily

for getting around the house but some out of home use also. Is there a small,

motorized devise? We already have an Amigo but assumed that primarily for

outdoor use, bad assumption?

Dick

January 27, 2002

Hi - above all keep him safe. Assistive aids can be used at any time-

don't wait until absolutely necessary since establishing absolute need

usually comes after falls. For instance I will soon hopefully have a wheel

chair- I can walk safely with a walker and for very short distances with no

aids at all but the chair is for when I get tired when even with the walker

I am at risk of falling. If he stumbles he needs help now and at least a

cane is in order. Talk to his doc and look into a four wheeled walker with

seat and handbrakes. Those of us who use them find them invaluable and

much better for averting a fall than a cane. There are many models out

there- mine is an Avant which I like because it lets me walk closer to the

frame than some. Lavon

At 09:05 AM 01/27/2002 -0600, you wrote:

>Hello all,

>

>Thank you for the warm welcome to the group. Could any of you help educate

>me on CoQ10, NADH, and any other supplements/meds anyone has found helpful.

>My dad is 75 y.o. Dx just this past fall. Still ambulatory but has poor

>balance and stumbles frequently. He mostly has problems with getting out of

>chairs, etc. Once he is up he does ok if he takes his time and makes a

>conscious effort to lift his feet. My family and I realize PLS strikes

>everyone differently but we are trying to get an idea of how this will

>progress. How long from walking to a cane? Cane to wheelchair? How soon

>is the upper body affected? Any info would be great. Jen

>

>PS Anyone live in WI?? If so could my parents contact you?

>

>_________________________________________________________________

>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

January 27, 2002

Four wheeled walkers are great - and do help tremendously in keeping me on my feet. I have a Featherweight now - it only weighs about 11 lbs. I used to have a Winnie that weighed about 20 - it was great and got me through a lot but was wearing out. The new lighter model is nicer. They give you confidence and stability when you need it. And for those of us who experience sudden jerking or loss of balance, it's extremely helpful.

Re: (unknown)

Hi - above all keep him safe. Assistive aids can be used at any time- don't wait until absolutely necessary since establishing absolute need usually comes after falls. For instance I will soon hopefully have a wheel chair- I can walk safely with a walker and for very short distances with no aids at all but the chair is for when I get tired when even with the walker I am at risk of falling. If he stumbles he needs help now and at least a cane is in order. Talk to his doc and look into a four wheeled walker with seat and handbrakes. Those of us who use them find them invaluable and much better for averting a fall than a cane. There are many models out there- mine is an Avant which I like because it lets me walk closer to the frame than some. LavonAt 09:05 AM 01/27/2002 -0600, you wrote:>Hello all,>>Thank you for the warm welcome to the group. Could any of you help educate>me on CoQ10, NADH, and any other supplements/meds anyone has found helpful.>My dad is 75 y.o. Dx just this past fall. Still ambulatory but has poor>balance and stumbles frequently. He mostly has problems with getting out of>chairs, etc. Once he is up he does ok if he takes his time and makes a>conscious effort to lift his feet. My family and I realize PLS strikes>everyone differently but we are trying to get an idea of how this will>progress. How long from walking to a cane? Cane to wheelchair? How soon>is the upper body affected? Any info would be great. Jen>>PS Anyone live in WI?? If so could my parents contact you?>>_________________________________________________________________>Chat with friends online, try MSN Messenger: http://messenger.msn.com>>>>>

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Re: (unknown)

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