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Re: All in Different ways/patty

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Posted

Janie, the side effects are doeable, good insurance if y ou ask me. I would do it again.

Jeana

Posted

Janie, the side effects are doeable, good insurance if y ou ask me. I would do it again.

Jeana

Posted

Janie, the side effects are doeable, good insurance if y ou ask me. I would do it again.

Jeana

Posted

Janie I was able to drive myself to chemo. I had A/C once a month for 4 treatments. Then I had 37 radiations treatments, I got really tired then, as I had to drive 45 minutes one way. When I was having chemo the onco came to town. After I finished the A/C I was scheduled for 4 treatments of taxol. I couldnt finish it, I developed neuropathy and was violently sick, more so than with the A/C. I think I had 2 then they decided I could stop. Boy was I glad. I would still do it all over again for the assurance and peace of mind.

God will lead you down the right path for you.Good luck.

Hugs,Jeana

Posted

Janie I was able to drive myself to chemo. I had A/C once a month for 4 treatments. Then I had 37 radiations treatments, I got really tired then, as I had to drive 45 minutes one way. When I was having chemo the onco came to town. After I finished the A/C I was scheduled for 4 treatments of taxol. I couldnt finish it, I developed neuropathy and was violently sick, more so than with the A/C. I think I had 2 then they decided I could stop. Boy was I glad. I would still do it all over again for the assurance and peace of mind.

God will lead you down the right path for you.Good luck.

Hugs,Jeana

Posted

Janie I was able to drive myself to chemo. I had A/C once a month for 4 treatments. Then I had 37 radiations treatments, I got really tired then, as I had to drive 45 minutes one way. When I was having chemo the onco came to town. After I finished the A/C I was scheduled for 4 treatments of taxol. I couldnt finish it, I developed neuropathy and was violently sick, more so than with the A/C. I think I had 2 then they decided I could stop. Boy was I glad. I would still do it all over again for the assurance and peace of mind.

God will lead you down the right path for you.Good luck.

Hugs,Jeana

Posted

Lucilla --

I got so much from your statement " death must find me alive. "

Today, I happened to go to a shop to get my prosthesis and bras,

which Medicaid is paying for 100%. I ended up with two very

comfortable microfiber bras and a temporary prosthesis (cheap) plus a

permanent prosthesis (retails at $300). I was happy driving home and

even felt that I had made the 180-degree turn back to living again.

After I went home, I tried on all the garments again and it looked

like I had let myself be talked into one size too big on everything,

because I was between sizes. But I am shrinking down, losing weight,

which I expect to continue. So, am I taking this lying down and

depressed -- no, I am going back to exchange them if I possibly can.

This will be my way of " living, " you know?

Also, I thought how quickly I turned down chemo the other day. They

think I can go through it and I believe it could help me, because in

my stage of cancer, the onc said " think of chemo as an insurance

policy now, but if the cancer later spreads into the other organs it

will then be treatable but not curable. " Early intervention is

important. So why did I refuse it? I was afraid of the side

effects. But that is not life, is it? Life is more adventurous and

courageous. I was not. It may be that I can change my decision on

that, too, if I am allowed. (It is five weeks since my surgery.)

Know what I mean?

Janie

--- You know, the death must find me alive.

> Lucilla

>

Posted

Lucilla --

I got so much from your statement " death must find me alive. "

Today, I happened to go to a shop to get my prosthesis and bras,

which Medicaid is paying for 100%. I ended up with two very

comfortable microfiber bras and a temporary prosthesis (cheap) plus a

permanent prosthesis (retails at $300). I was happy driving home and

even felt that I had made the 180-degree turn back to living again.

After I went home, I tried on all the garments again and it looked

like I had let myself be talked into one size too big on everything,

because I was between sizes. But I am shrinking down, losing weight,

which I expect to continue. So, am I taking this lying down and

depressed -- no, I am going back to exchange them if I possibly can.

This will be my way of " living, " you know?

Also, I thought how quickly I turned down chemo the other day. They

think I can go through it and I believe it could help me, because in

my stage of cancer, the onc said " think of chemo as an insurance

policy now, but if the cancer later spreads into the other organs it

will then be treatable but not curable. " Early intervention is

important. So why did I refuse it? I was afraid of the side

effects. But that is not life, is it? Life is more adventurous and

courageous. I was not. It may be that I can change my decision on

that, too, if I am allowed. (It is five weeks since my surgery.)

Know what I mean?

Janie

--- You know, the death must find me alive.

> Lucilla

>

Posted

I know what you mean. I wish I was right next door to hug you.

Reconsider about chemo, gather more information. I did it, and I survive. So all the women here.

love

lu

janie8002000 wrote:

Lucilla --I got so much from your statement "death must find me alive."Today, I happened to go to a shop to get my prosthesis and bras, which Medicaid is paying for 100%. I ended up with two very comfortable microfiber bras and a temporary prosthesis (cheap) plus a permanent prosthesis (retails at $300). I was happy driving home and even felt that I had made the 180-degree turn back to living again.After I went home, I tried on all the garments again and it looked like I had let myself be talked into one size too big on everything, because I was between sizes. But I am shrinking down, losing weight, which I expect to continue. So, am I taking this lying down and depressed -- no, I am going back to exchange them if I possibly can. This will be my way of "living," you know?Also, I

thought how quickly I turned down chemo the other day. They think I can go through it and I believe it could help me, because in my stage of cancer, the onc said "think of chemo as an insurance policy now, but if the cancer later spreads into the other organs it will then be treatable but not curable." Early intervention is important. So why did I refuse it? I was afraid of the side effects. But that is not life, is it? Life is more adventurous and courageous. I was not. It may be that I can change my decision on that, too, if I am allowed. (It is five weeks since my surgery.)Know what I mean?Janie--- You know, the death must find me alive.> Lucilla>__________________________________________________

Posted

I know what you mean. I wish I was right next door to hug you.

Reconsider about chemo, gather more information. I did it, and I survive. So all the women here.

love

lu

janie8002000 wrote:

Lucilla --I got so much from your statement "death must find me alive."Today, I happened to go to a shop to get my prosthesis and bras, which Medicaid is paying for 100%. I ended up with two very comfortable microfiber bras and a temporary prosthesis (cheap) plus a permanent prosthesis (retails at $300). I was happy driving home and even felt that I had made the 180-degree turn back to living again.After I went home, I tried on all the garments again and it looked like I had let myself be talked into one size too big on everything, because I was between sizes. But I am shrinking down, losing weight, which I expect to continue. So, am I taking this lying down and depressed -- no, I am going back to exchange them if I possibly can. This will be my way of "living," you know?Also, I

thought how quickly I turned down chemo the other day. They think I can go through it and I believe it could help me, because in my stage of cancer, the onc said "think of chemo as an insurance policy now, but if the cancer later spreads into the other organs it will then be treatable but not curable." Early intervention is important. So why did I refuse it? I was afraid of the side effects. But that is not life, is it? Life is more adventurous and courageous. I was not. It may be that I can change my decision on that, too, if I am allowed. (It is five weeks since my surgery.)Know what I mean?Janie--- You know, the death must find me alive.> Lucilla>__________________________________________________

Posted

Thank you, lu

I think you helped me there with a step in my survival journey.

Janie

>

> Lucilla --

>

> I got so much from your statement " death must find me alive. "

>

> Today, I happened to go to a shop to get my prosthesis and bras,

> which Medicaid is paying for 100%. I ended up with two very

> comfortable microfiber bras and a temporary prosthesis (cheap) plus

a

> permanent prosthesis (retails at $300). I was happy driving home

and

> even felt that I had made the 180-degree turn back to living again.

>

> After I went home, I tried on all the garments again and it looked

> like I had let myself be talked into one size too big on

everything,

> because I was between sizes. But I am shrinking down, losing

weight,

> which I expect to continue. So, am I taking this lying down and

> depressed -- no, I am going back to exchange them if I possibly

can.

> This will be my way of " living, " you know?

>

> Also, I thought how quickly I turned down chemo the other day.

They

> think I can go through it and I believe it could help me, because

in

> my stage of cancer, the onc said " think of chemo as an insurance

> policy now, but if the cancer later spreads into the other organs

it

> will then be treatable but not curable. " Early intervention is

> important. So why did I refuse it? I was afraid of the side

> effects. But that is not life, is it? Life is more adventurous

and

> courageous. I was not. It may be that I can change my decision on

> that, too, if I am allowed. (It is five weeks since my surgery.)

>

> Know what I mean?

>

> Janie

>

>

> --- You know, the death must find me alive.

> > Lucilla

> >

>

>

>

>

>

Posted

Thank you, lu

I think you helped me there with a step in my survival journey.

Janie

>

> Lucilla --

>

> I got so much from your statement " death must find me alive. "

>

> Today, I happened to go to a shop to get my prosthesis and bras,

> which Medicaid is paying for 100%. I ended up with two very

> comfortable microfiber bras and a temporary prosthesis (cheap) plus

a

> permanent prosthesis (retails at $300). I was happy driving home

and

> even felt that I had made the 180-degree turn back to living again.

>

> After I went home, I tried on all the garments again and it looked

> like I had let myself be talked into one size too big on

everything,

> because I was between sizes. But I am shrinking down, losing

weight,

> which I expect to continue. So, am I taking this lying down and

> depressed -- no, I am going back to exchange them if I possibly

can.

> This will be my way of " living, " you know?

>

> Also, I thought how quickly I turned down chemo the other day.

They

> think I can go through it and I believe it could help me, because

in

> my stage of cancer, the onc said " think of chemo as an insurance

> policy now, but if the cancer later spreads into the other organs

it

> will then be treatable but not curable. " Early intervention is

> important. So why did I refuse it? I was afraid of the side

> effects. But that is not life, is it? Life is more adventurous

and

> courageous. I was not. It may be that I can change my decision on

> that, too, if I am allowed. (It is five weeks since my surgery.)

>

> Know what I mean?

>

> Janie

>

>

> --- You know, the death must find me alive.

> > Lucilla

> >

>

>

>

>

>

Posted

Thank you, lu

I think you helped me there with a step in my survival journey.

Janie

>

> Lucilla --

>

> I got so much from your statement " death must find me alive. "

>

> Today, I happened to go to a shop to get my prosthesis and bras,

> which Medicaid is paying for 100%. I ended up with two very

> comfortable microfiber bras and a temporary prosthesis (cheap) plus

a

> permanent prosthesis (retails at $300). I was happy driving home

and

> even felt that I had made the 180-degree turn back to living again.

>

> After I went home, I tried on all the garments again and it looked

> like I had let myself be talked into one size too big on

everything,

> because I was between sizes. But I am shrinking down, losing

weight,

> which I expect to continue. So, am I taking this lying down and

> depressed -- no, I am going back to exchange them if I possibly

can.

> This will be my way of " living, " you know?

>

> Also, I thought how quickly I turned down chemo the other day.

They

> think I can go through it and I believe it could help me, because

in

> my stage of cancer, the onc said " think of chemo as an insurance

> policy now, but if the cancer later spreads into the other organs

it

> will then be treatable but not curable. " Early intervention is

> important. So why did I refuse it? I was afraid of the side

> effects. But that is not life, is it? Life is more adventurous

and

> courageous. I was not. It may be that I can change my decision on

> that, too, if I am allowed. (It is five weeks since my surgery.)

>

> Know what I mean?

>

> Janie

>

>

> --- You know, the death must find me alive.

> > Lucilla

> >

>

>

>

>

>

Posted

Thank you, Jeana.

I would just like to know -- If I have 4 rounds of A/C, one every

three weeks, will I be able to drive the 10 miles back and forth to

the hospital for these treatments? ...

Do you have any idea? (There is no more chemo than that -- No taxol

at the end or anything.)

Janie

> Janie, the side effects are doeable, good insurance if y ou ask me.

I would

> do it again.

> Jeana

Posted

Thank you, Jeana.

I would just like to know -- If I have 4 rounds of A/C, one every

three weeks, will I be able to drive the 10 miles back and forth to

the hospital for these treatments? ...

Do you have any idea? (There is no more chemo than that -- No taxol

at the end or anything.)

Janie

> Janie, the side effects are doeable, good insurance if y ou ask me.

I would

> do it again.

> Jeana

Posted

Thank you, Jeana.

I would just like to know -- If I have 4 rounds of A/C, one every

three weeks, will I be able to drive the 10 miles back and forth to

the hospital for these treatments? ...

Do you have any idea? (There is no more chemo than that -- No taxol

at the end or anything.)

Janie

> Janie, the side effects are doeable, good insurance if y ou ask me.

I would

> do it again.

> Jeana

Posted

Jeana --

Could you just tell me:

(1) Describe how sick you got with the A/C. Did you take any

remedies?

(2) Was the neuropathy due to the taxol? Would you have had it

anyway?

Thank you for anything you will tell me.

Janie

-- In breastcancer2 , stmpcrzy@w... wrote:

> Janie I was able to drive myself to chemo. I had A/C once a month

for 4

> treatments. Then I had 37 radiations treatments, I got really tired

then, as I had

> to drive 45 minutes one way. When I was having chemo the onco came

to town.

> After I finished the A/C I was scheduled for 4 treatments of taxol.

I couldnt

> finish it, I developed neuropathy and was violently sick, more so

than with the

> A/C. I think I had 2 then they decided I could stop. Boy was I

glad. I would

> still do it all over again for the assurance and peace of mind.

> God will lead you down the right path for you.Good luck.

> Hugs,Jeana

Posted

Jeana --

Could you just tell me:

(1) Describe how sick you got with the A/C. Did you take any

remedies?

(2) Was the neuropathy due to the taxol? Would you have had it

anyway?

Thank you for anything you will tell me.

Janie

-- In breastcancer2 , stmpcrzy@w... wrote:

> Janie I was able to drive myself to chemo. I had A/C once a month

for 4

> treatments. Then I had 37 radiations treatments, I got really tired

then, as I had

> to drive 45 minutes one way. When I was having chemo the onco came

to town.

> After I finished the A/C I was scheduled for 4 treatments of taxol.

I couldnt

> finish it, I developed neuropathy and was violently sick, more so

than with the

> A/C. I think I had 2 then they decided I could stop. Boy was I

glad. I would

> still do it all over again for the assurance and peace of mind.

> God will lead you down the right path for you.Good luck.

> Hugs,Jeana

Posted

Jeana --

Could you just tell me:

(1) Describe how sick you got with the A/C. Did you take any

remedies?

(2) Was the neuropathy due to the taxol? Would you have had it

anyway?

Thank you for anything you will tell me.

Janie

-- In breastcancer2 , stmpcrzy@w... wrote:

> Janie I was able to drive myself to chemo. I had A/C once a month

for 4

> treatments. Then I had 37 radiations treatments, I got really tired

then, as I had

> to drive 45 minutes one way. When I was having chemo the onco came

to town.

> After I finished the A/C I was scheduled for 4 treatments of taxol.

I couldnt

> finish it, I developed neuropathy and was violently sick, more so

than with the

> A/C. I think I had 2 then they decided I could stop. Boy was I

glad. I would

> still do it all over again for the assurance and peace of mind.

> God will lead you down the right path for you.Good luck.

> Hugs,Jeana

Posted

I just got mildly sick with A/C. It was mostly just feeling blah, no nausea or vomiting. It was given through IV. I was given a premed before the chemo. Oh I did develope a headache, so he had me take I think it was tylenol before I came in for treatment, then I had anti nausea meds that I took at home. I lost me sense of taste, that I didnt particularly like. Eventually I also lost my smeller. lol It takes a very strong odor now for me to smell it. sometimes that is a good thing. lol

Neuropathy was due to the taxol, and I was violently sick with it. Not everyone get as sick as I did. This was given only as a chaser, in case something escaped all the other treatments. Yes I would have done it anyway. I am glad they didnt finish giving me the regime. The only thing that really bothered me was losing my hair, vanity thing.

Good luck

Jeana

Posted

Patty

You are not different than me, Patty.

I once met beth Kubler Ross (the famous pioneer psychiatrist who

discovered the four phases of accepting death and dying when you have

been diagnosed with a definite, fatal illness). She said it is

first, denial (it's not me -- they got the x-rays mixed up), then

rage (why me!!!), then despair (it's me and nothing I can do about

it), then resolution (death finally comes like a friend after

suffering badly). Not pretty news. She said our doctors are in

denial while cancer patients are knowing the truth, and we have to

handle their denial, too, even while we are really needing to talk

about it.

The 4 " phases " she discovered are different with each individual. So

perhaps you are a little ahead of the rest of us wanting to talk

about it. I wish you felt able to do it. When I think of it I don't

know what to say, but it could be interesting. Feel free to email me

privately anytime, if you'd like at jojane500@....

I do have hope at this time because of good, clean surgery (but a

stage 2, grade 3 aggressive tumor). However, I could easily have a

recurrence which my chemo onc has just told me would THEN

be " treatable but not curable. " I just got that news this week. I

didn't know that! (Or did I?) Feel free to ask me more about my

case if you want -- any questions.

Luv in spirit,

Janie

<<<<.....It is just the hope that you can also see how I work

differently than some of you.......>>>

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